Re: Migraines?

[Guest guest]

I've had horrible classic migraines since age 11 and misophonia since 8. MRI's have shown ischemic changes in blood vessels due to migraines. My father and brother also were plagued by misophonia but did not have migraines. Interesting enough both worked in a machine shop and lost their hearing early which tuned out alot of noises. When my dad got Alzheimer's he lost all misophonia symtoms. There is no doubt in my mind that this is a brain disorder connected with the limbic system.

Subject: Migraines?To: Soundsensitivity Date: Wednesday, April 20, 2011, 4:21 AM

hi all,i'm wondering if any of you are plagued with severe headaches or migraines - in particular classic migraines (light/sound sensitivity, body numbness, disrupted vision and blind spots, etc., sometimes not not always paired with bad headaches)? unfortunately, i have them pretty badly. my neurologist said that his research indicates that people with classic migraines have more sensitive/hyperactive/etc. brains that are easily triggered by environmental stimuli. importantly, their brains have a larger percentage of region devoted to processing stimuli (somatosensory cortex) - by 21%. i've had 4s/misophonia at least as long as i've had migraines and am wondering if there's a connection b/n brain hypersensitivity, enlarged sensory cortex, and my sensitivity to sounds.so... any one else out there get migraines?thanks!

[Guest guest]

I have suffered from migraines since the age of six. I am now 40. I wouldn't wish them on my worst enemy. The auras, vomiting, sensitivity to strong smells. Unfortunately there is no one trigger. The weather, cigarette smoke, sleeping too long, not enough sleep, skipping meals, strong odors in general, weather, I could go on lolBeen on Elavil as a preventive. Used beta blockers, Topomax while it did help messed up my speech and thought processes. Relpax as a reliever.

[Guest guest]

My neuroologist has described something similar. His take is that if the migraine can be relived the rest of the brain will reduce it's "hypersensitivity"

Haven't found great results with that side of it yet, but neurofeedback paired with counseling and sound generators has been making some progress for me personally.

To: Soundsensitivity Sent: Wed, April 20, 2011 3:21:56 AMSubject: Migraines?

hi all,i'm wondering if any of you are plagued with severe headaches or migraines - in particular classic migraines (light/sound sensitivity, body numbness, disrupted vision and blind spots, etc., sometimes not not always paired with bad headaches)? unfortunately, i have them pretty badly. my neurologist said that his research indicates that people with classic migraines have more sensitive/hyperactive/etc. brains that are easily triggered by environmental stimuli. importantly, their brains have a larger percentage of region devoted to processing stimuli (somatosensory cortex) - by 21%. i've had 4s/misophonia at least as long as i've had migraines and am wondering if there's a connection b/n brain hypersensitivity, enlarged sensory cortex, and my sensitivity to sounds.so... any one else out there get migraines?thanks!

[Guest guest]

I started getting occasional migraines in my later twenties. By my early

thirties, I was diagnosed with high blood pressure and put on a beta blocker

(atenolol).

Since then, I haven't had actual migraine headaches, but I still get the aura

that used to precede the migraine headache. These days, the aura may be followed

by an ordinary headache or by nothing. The most common reason for me getting the

aura is over-tiredness.

>

> hi all,

>

> i'm wondering if any of you are plagued with severe headaches or migraines -

in particular classic migraines (light/sound sensitivity, body numbness,

disrupted vision and blind spots, etc., sometimes not not always paired with bad

headaches)? unfortunately, i have them pretty badly.

>

> my neurologist said that his research indicates that people with classic

migraines have more sensitive/hyperactive/etc. brains that are easily triggered

by environmental stimuli. importantly, their brains have a larger percentage of

region devoted to processing stimuli (somatosensory cortex) - by 21%.

>

> i've had 4s/misophonia at least as long as i've had migraines and am wondering

if there's a connection b/n brain hypersensitivity, enlarged sensory cortex, and

my sensitivity to sounds.

>

> so... any one else out there get migraines?

>

> thanks!

>

[Guest guest]

I strongly believe that the limbic system is the issue. Which is why if you wait too long to take migraine medicines, it may not work because during a migraine the limbic system causes the stomach contents not to digest which is why if you have vomited during a migraine you can see everything you had to eat starting from breakfast. Which is why they say to take any reliever asap. Also, my migraine usually subsides within a couple of hours of hurling. Sorry for being so descriptive...Sent: April 20, 2011 8:08 AMTo: Soundsensitivity Subject: Re: Migraines? I've had horrible classic migraines since age 11 and misophonia since 8. MRI's have shown ischemic changes in blood vessels due to migraines. My father and brother also were plagued by misophonia but did not have migraines. Interesting enough both worked in a machine shop and lost their hearing early which tuned out alot of noises. When my dad got Alzheimer's he lost all misophonia symtoms. There is no doubt in my mind that this is a brain disorder connected with the limbic system.Subject: Migraines?To: Soundsensitivity Date: Wednesday, April 20, 2011, 4:21 AM hi all,i'm wondering if any of you are plagued with severe headaches or migraines - in particular classic migraines (light/sound sensitivity, body numbness, disrupted vision and blind spots, etc., sometimes not not always paired with bad headaches)? unfortunately, i have them pretty badly.my neurologist said that his research indicates that people with classic migraines have more sensitive/hyperactive/etc. brains that are easily triggered by environmental stimuli. importantly, their brains have a larger percentage of region devoted to processing stimuli (somatosensory cortex) - by 21%.i've had 4s/misophonia at least as long as i've had migraines and am wondering if there's a connection b/n brain hypersensitivity, enlarged sensory cortex, and my sensitivity to sounds.so... any one else out there get migraines?thanks!

[Guest guest]

I have severe headaches every single day lately. I've had migraines and tension headaches for years, but not daily. It is driving me crazy, but I've tried so many medications and nothing has worked. My doctor doesn't know what to give me anymore, so I just have to deal with it. They knock me out so bad that all I can do is lay in bed with my eyes closed. And the nausea that comes with it--yuck.

---------------------------------------------------------

♥

" Hope is more than a word; it's a state of being. It's a firm belief God will come through. Life brings rain... hope turns every drop into the power to bloom like never before. " -Holley Gerth ♥

http://www.caringbridge.org/visit/sarahmae

 

I strongly believe that the limbic system is the issue. Which is why if you wait too long to take migraine medicines, it may not work because during a migraine the limbic system causes the stomach contents not to digest which is why if you have vomited during a migraine you can see everything you had to eat starting from breakfast. Which is why they say to take any reliever asap. Also, my migraine usually subsides within a couple of hours of hurling. Sorry for being so descriptive...

Sent: April 20, 2011 8:08 AMTo: Soundsensitivity

Subject: Re: Migraines?

  I've had horrible classic migraines since age 11 and misophonia since 8.  MRI's have shown ischemic changes in blood vessels due to migraines. My father and brother also were plagued by misophonia but did not have migraines. Interesting enough both worked in a machine shop and lost their hearing early which tuned out alot of noises.  When my dad got Alzheimer's he lost all misophonia symtoms.  There is no doubt in my mind that this is a brain disorder connected with the limbic system.

Subject: Migraines?To: Soundsensitivity Date: Wednesday, April 20, 2011, 4:21 AM 

hi all,i'm wondering if any of you are plagued with severe headaches or migraines - in particular classic migraines (light/sound sensitivity, body numbness, disrupted vision and blind spots, etc., sometimes not not always paired with bad headaches)? unfortunately, i have them pretty badly.

my neurologist said that his research indicates that people with classic migraines have more sensitive/hyperactive/etc. brains that are easily triggered by environmental stimuli. importantly, their brains have a larger percentage of region devoted to processing stimuli (somatosensory cortex) - by 21%.

i've had 4s/misophonia at least as long as i've had migraines and am wondering if there's a connection b/n brain hypersensitivity, enlarged sensory cortex, and my sensitivity to sounds.so... any one else out there get migraines?

thanks!

[Guest guest]

I have 3 different types of migraines which have 3 different remedies.

I take excedrin tension for my tension migraines. I take propanolol and zomig for my light activated migraines, and the propanolol also helps prevent the migraines that my doctor thinks might actually be mini focal seizures. Nothing helps the migraine/seizures but the propanolol significantly reduces their frequency and intensity. I remember having these headaches as early as my early teens.

Tammy

To: Soundsensitivity Sent: Wed, April 20, 2011 4:21:56 AMSubject: Migraines?

hi all,i'm wondering if any of you are plagued with severe headaches or migraines - in particular classic migraines (light/sound sensitivity, body numbness, disrupted vision and blind spots, etc., sometimes not not always paired with bad headaches)? unfortunately, i have them pretty badly. my neurologist said that his research indicates that people with classic migraines have more sensitive/hyperactive/etc. brains that are easily triggered by environmental stimuli. importantly, their brains have a larger percentage of region devoted to processing stimuli (somatosensory cortex) - by 21%. i've had 4s/misophonia at least as long as i've had migraines and am wondering if there's a connection b/n brain hypersensitivity, enlarged sensory cortex, and my sensitivity to sounds.so... any one else out there get migraines?thanks!

[Guest guest]

I had tried injectable Imitrex then the pills then Zomig, biofeedback, 2 aspirins and 2 acetominofen plus coffee. Everything worked for a while but because of damage to the blood vesselsI would get done with a migraine on one side and then get it on the other just thinking of the aura makes me sick to my stomach. The ER's how many times I couldn't count from when my Dad had to carry me in to as an adult in Florida when the doctor thought I was on drugs (she apologized after I suffered for three hours and she got a hold of my doctor at home). Later I'd get a shot in the ER usually demerol and vistrol be wheeled out, sleep at home for hours and wake up with one starting with aura on the other side.People and some doctors didn't believe I was that sick unless they heard me fumble my words during the aura or I vomited on their shoes until MRI's were

available. I thought menopause would give me relief but the only got worse and I was on inderal and antidepressants already so I got botox shots.Given by a nuerologist and paid for by Medicare it's the best thing I ever did for myself. The shots last 9-12months

Subject: Re: Migraines?To: Soundsensitivity Date: Wednesday, April 20, 2011, 5:56 PM

I have 3 different types of migraines which have 3 different remedies.

I take excedrin tension for my tension migraines. I take propanolol and zomig for my light activated migraines, and the propanolol also helps prevent the migraines that my doctor thinks might actually be mini focal seizures. Nothing helps the migraine/seizures but the propanolol significantly reduces their frequency and intensity. I remember having these headaches as early as my early teens.

Tammy

To: Soundsensitivity Sent: Wed, April 20, 2011 4:21:56 AMSubject: Migraines?

hi all,i'm wondering if any of you are plagued with severe headaches or migraines - in particular classic migraines (light/sound sensitivity, body numbness, disrupted vision and blind spots, etc., sometimes not not always paired with bad headaches)? unfortunately, i have them pretty badly. my neurologist said that his research indicates that people with classic migraines have more sensitive/hyperactive/etc. brains that are easily triggered by environmental stimuli. importantly, their brains have a larger percentage of region devoted to processing stimuli (somatosensory cortex) - by 21%. i've had 4s/misophonia at least as long as i've had migraines and am wondering if there's a connection b/n brain hypersensitivity, enlarged sensory cortex, and my sensitivity to sounds.so... any one else out there get migraines?thanks!

[Guest guest]

I have classic migraines with light/sound sensitivity, disrupted vision and blind spots. I don't get them as often as I used to because I take a beta blocker every day.

To: Soundsensitivity Sent: Wed, April 20, 2011 3:21:56 AMSubject: Migraines?

hi all,i'm wondering if any of you are plagued with severe headaches or migraines - in particular classic migraines (light/sound sensitivity, body numbness, disrupted vision and blind spots, etc., sometimes not not always paired with bad headaches)? unfortunately, i have them pretty badly. my neurologist said that his research indicates that people with classic migraines have more sensitive/hyperactive/etc. brains that are easily triggered by environmental stimuli. importantly, their brains have a larger percentage of region devoted to processing stimuli (somatosensory cortex) - by 21%. i've had 4s/misophonia at least as long as i've had migraines and am wondering if there's a connection b/n brain hypersensitivity, enlarged sensory cortex, and my sensitivity to sounds.so... any one else out there get migraines?thanks!

[Guest guest]

Any chance you could send me a link to the study (ies) on increased somasensory cortex?Many thanks,TaraLet your email find you with BlackBerry from VodafoneSender: Soundsensitivity Date: Wed, 20 Apr 2011 08:21:56 -0000To: <Soundsensitivity >ReplyTo: Soundsensitivity Subject: Migraines? hi all,i'm wondering if any of you are plagued with severe headaches or migraines - in particular classic migraines (light/sound sensitivity, body numbness, disrupted vision and blind spots, etc., sometimes not not always paired with bad headaches)? unfortunately, i have them pretty badly. my neurologist said that his research indicates that people with classic migraines have more sensitive/hyperactive/etc. brains that are easily triggered by environmental stimuli. importantly, their brains have a larger percentage of region devoted to processing stimuli (somatosensory cortex) - by 21%. i've had 4s/misophonia at least as long as i've had migraines and am wondering if there's a connection b/n brain hypersensitivity, enlarged sensory cortex, and my sensitivity to sounds.so... any one else out there get migraines?thanks!

[Guest guest]

what do you mean by disrupted vision?I have at times seen the world move in front of me as if looking through water, other times I have noticed blind spots but I thought they were because hte tension in my shoulders and neck from a car accident, can you detail your vision disruptions more please? 

 

I have classic migraines with light/sound sensitivity, disrupted vision and blind spots. I don't get them as often as I used to because I take a beta blocker every day.

To: Soundsensitivity

Sent: Wed, April 20, 2011 3:21:56 AMSubject: Migraines?

 

hi all,i'm wondering if any of you are plagued with severe headaches or migraines - in particular classic migraines (light/sound sensitivity, body numbness, disrupted vision and blind spots, etc., sometimes not not always paired with bad headaches)? unfortunately, i have them pretty badly.

my neurologist said that his research indicates that people with classic migraines have more sensitive/hyperactive/etc. brains that are easily triggered by environmental stimuli. importantly, their brains have a larger percentage of region devoted to processing stimuli (somatosensory cortex) - by 21%.

i've had 4s/misophonia at least as long as i've had migraines and am wondering if there's a connection b/n brain hypersensitivity, enlarged sensory cortex, and my sensitivity to sounds.so... any one else out there get migraines?

thanks!

[Guest guest]

Hi there, I get what the Doctors have told me is a mild Migraine! No headache but a visual disturbance on its own. Lots of Zig Zags getting bigger and moving as well as flashing coloured lights and blind spots! They usually happen 3 or 4 times a year and scare me to death, even though I have had them for 30 years and been told they are nothing to worry about. They usually only last 30 mins top side but I get scared incase the next one doesn't go and stays all day or longer. I am 53 years old by the way.Sent from my BlackBerry® wireless deviceSender: Soundsensitivity Date: Thu, 21 Apr 2011 05:07:23 -0700To: <Soundsensitivity >ReplyTo: Soundsensitivity Subject: Re: Migraines?what do you mean by disrupted vision?I have at times seen the world move in front of me as if looking through water, other times I have noticed blind spots but I thought they were because hte tension in my shoulders and neck from a car accident, can you detail your vision disruptions more please?  I have classic migraines with light/sound sensitivity, disrupted vision and blind spots. I don't get them as often as I used to because I take a beta blocker every day.To: Soundsensitivity Sent: Wed, April 20, 2011 3:21:56 AMSubject: Migraines?  hi all,i'm wondering if any of you are plagued with severe headaches or migraines - in particular classic migraines (light/sound sensitivity, body numbness, disrupted vision and blind spots, etc., sometimes not not always paired with bad headaches)? unfortunately, i have them pretty badly. my neurologist said that his research indicates that people with classic migraines have more sensitive/hyperactive/etc. brains that are easily triggered by environmental stimuli. importantly, their brains have a larger percentage of region devoted to processing stimuli (somatosensory cortex) - by 21%. i've had 4s/misophonia at least as long as i've had migraines and am wondering if there's a connection b/n brain hypersensitivity, enlarged sensory cortex, and my sensitivity to sounds.so... any one else out there get migraines?thanks!

[Guest guest]

I’ve heard of people thinking they’ve had a stroke because of going numb on one side and not having a headache, and being told it was a migraine. There is also the case recently of the newscaster who started talking jibberish on live TV and they told her that was a migraine. Unfortunately, I think the medical community does not really know that much about causes of migraines or when some symptons may or may not be from a migraine. Regardless, they know more about migraines than they do about 4S! From: Soundsensitivity [mailto:Soundsensitivity ] On Behalf Of shirlrimm@...Sent: Thursday, April 21, 2011 5:18 AMTo: Soundsensitivity Subject: Re: Migraines? Hi there, I get what the Doctors have told me is a mild Migraine! No headache but a visual disturbance on its own. Lots of Zig Zags getting bigger and moving as well as flashing coloured lights and blind spots! They usually happen 3 or 4 times a year and scare me to death, even though I have had them for 30 years and been told they are nothing to worry about. They usually only last 30 mins top side but I get scared incase the next one doesn't go and stays all day or longer. I am 53 years old by the way.Sent from my BlackBerry® wireless device Sender: Soundsensitivity Date: Thu, 21 Apr 2011 05:07:23 -0700To: <Soundsensitivity >ReplyTo: Soundsensitivity Subject: Re: Migraines? what do you mean by disrupted vision? I have at times seen the world move in front of me as if looking through water, other times I have noticed blind spots but I thought they were because hte tension in my shoulders and neck from a car accident, can you detail your vision disruptions more please? I have classic migraines with light/sound sensitivity, disrupted vision and blind spots. I don't get them as often as I used to because I take a beta blocker every day. To: Soundsensitivity Sent: Wed, April 20, 2011 3:21:56 AMSubject: Migraines? hi all,i'm wondering if any of you are plagued with severe headaches or migraines - in particular classic migraines (light/sound sensitivity, body numbness, disrupted vision and blind spots, etc., sometimes not not always paired with bad headaches)? unfortunately, i have them pretty badly. my neurologist said that his research indicates that people with classic migraines have more sensitive/hyperactive/etc. brains that are easily triggered by environmental stimuli. importantly, their brains have a larger percentage of region devoted to processing stimuli (somatosensory cortex) - by 21%. i've had 4s/misophonia at least as long as i've had migraines and am wondering if there's a connection b/n brain hypersensitivity, enlarged sensory cortex, and my sensitivity to sounds.so... any one else out there get migraines?thanks!

[Guest guest]

Yes they do know more about Migraines than they do 4s. I am so bad I can't even talk to my mum on the phone when she is eating or drinking! I wouldn't mind but I only see her once every couple of months and she is 80 years old and we lost my dad last year. Yet I still cannot tolerate her noises!!! There are loads more noises besides mums that I can't bear as well. Its awful isn't it.Sent from my BlackBerry® wireless deviceSender: Soundsensitivity Date: Thu, 21 Apr 2011 11:43:33 -0700To: <Soundsensitivity >ReplyTo: Soundsensitivity Subject: RE: Migraines?I’ve heard of people thinking they’ve had a stroke because of going numb on one side and not having a headache, and being told it was a migraine. There is also the case recently of the newscaster who started talking jibberish on live TV and they told her that was a migraine. Unfortunately, I think the medical community does not really know that much about causes of migraines or when some symptons may or may not be from a migraine. Regardless, they know more about migraines than they do about 4S! From: Soundsensitivity [mailto:Soundsensitivity ] On Behalf Of shirlrimm@...Sent: Thursday, April 21, 2011 5:18 AMTo: Soundsensitivity Subject: Re: Migraines? Hi there, I get what the Doctors have told me is a mild Migraine! No headache but a visual disturbance on its own. Lots of Zig Zags getting bigger and moving as well as flashing coloured lights and blind spots! They usually happen 3 or 4 times a year and scare me to death, even though I have had them for 30 years and been told they are nothing to worry about. They usually only last 30 mins top side but I get scared incase the next one doesn't go and stays all day or longer. I am 53 years old by the way.Sent from my BlackBerry® wireless device Sender: Soundsensitivity Date: Thu, 21 Apr 2011 05:07:23 -0700To: <Soundsensitivity >ReplyTo: Soundsensitivity Subject: Re: Migraines? what do you mean by disrupted vision? I have at times seen the world move in front of me as if looking through water, other times I have noticed blind spots but I thought they were because hte tension in my shoulders and neck from a car accident, can you detail your vision disruptions more please? I have classic migraines with light/sound sensitivity, disrupted vision and blind spots. I don't get them as often as I used to because I take a beta blocker every day. To: Soundsensitivity Sent: Wed, April 20, 2011 3:21:56 AMSubject: Migraines? hi all,i'm wondering if any of you are plagued with severe headaches or migraines - in particular classic migraines (light/sound sensitivity, body numbness, disrupted vision and blind spots, etc., sometimes not not always paired with bad headaches)? unfortunately, i have them pretty badly. my neurologist said that his research indicates that people with classic migraines have more sensitive/hyperactive/etc. brains that are easily triggered by environmental stimuli. importantly, their brains have a larger percentage of region devoted to processing stimuli (somatosensory cortex) - by 21%. i've had 4s/misophonia at least as long as i've had migraines and am wondering if there's a connection b/n brain hypersensitivity, enlarged sensory cortex, and my sensitivity to sounds.so... any one else out there get migraines?thanks!

[Guest guest]

Maybe you can start writing letters to her to fill in the time between phone calls – I’m sure she would love to get them, especially if you include lots of love or photos. Then, when you find you can not talk on the phone to her very much, you’ll know that she still knows you’re thinking of her and love her because of the letters, and then you will feel better about it too. Just an idea . . . From: Soundsensitivity [mailto:Soundsensitivity ] On Behalf Of shirlrimm@...Sent: Thursday, April 21, 2011 11:55 AMTo: Soundsensitivity Subject: Re: Migraines? Yes they do know more about Migraines than they do 4s. I am so bad I can't even talk to my mum on the phone when she is eating or drinking! I wouldn't mind but I only see her once every couple of months and she is 80 years old and we lost my dad last year. Yet I still cannot tolerate her noises!!! There are loads more noises besides mums that I can't bear as well. Its awful isn't it.Sent from my BlackBerry® wireless device Sender: Soundsensitivity Date: Thu, 21 Apr 2011 11:43:33 -0700To: <Soundsensitivity >ReplyTo: Soundsensitivity Subject: RE: Migraines? I’ve heard of people thinking they’ve had a stroke because of going numb on one side and not having a headache, and being told it was a migraine. There is also the case recently of the newscaster who started talking jibberish on live TV and they told her that was a migraine. Unfortunately, I think the medical community does not really know that much about causes of migraines or when some symptons may or may not be from a migraine. Regardless, they know more about migraines than they do about 4S! From: Soundsensitivity [mailto:Soundsensitivity ] On Behalf Of shirlrimm@...Sent: Thursday, April 21, 2011 5:18 AMTo: Soundsensitivity Subject: Re: Migraines? Hi there, I get what the Doctors have told me is a mild Migraine! No headache but a visual disturbance on its own. Lots of Zig Zags getting bigger and moving as well as flashing coloured lights and blind spots! They usually happen 3 or 4 times a year and scare me to death, even though I have had them for 30 years and been told they are nothing to worry about. They usually only last 30 mins top side but I get scared incase the next one doesn't go and stays all day or longer. I am 53 years old by the way.Sent from my BlackBerry® wireless device Sender: Soundsensitivity Date: Thu, 21 Apr 2011 05:07:23 -0700To: <Soundsensitivity >ReplyTo: Soundsensitivity Subject: Re: Migraines? what do you mean by disrupted vision? I have at times seen the world move in front of me as if looking through water, other times I have noticed blind spots but I thought they were because hte tension in my shoulders and neck from a car accident, can you detail your vision disruptions more please? I have classic migraines with light/sound sensitivity, disrupted vision and blind spots. I don't get them as often as I used to because I take a beta blocker every day. To: Soundsensitivity Sent: Wed, April 20, 2011 3:21:56 AMSubject: Migraines? hi all,i'm wondering if any of you are plagued with severe headaches or migraines - in particular classic migraines (light/sound sensitivity, body numbness, disrupted vision and blind spots, etc., sometimes not not always paired with bad headaches)? unfortunately, i have them pretty badly. my neurologist said that his research indicates that people with classic migraines have more sensitive/hyperactive/etc. brains that are easily triggered by environmental stimuli. importantly, their brains have a larger percentage of region devoted to processing stimuli (somatosensory cortex) - by 21%. i've had 4s/misophonia at least as long as i've had migraines and am wondering if there's a connection b/n brain hypersensitivity, enlarged sensory cortex, and my sensitivity to sounds.so... any one else out there get migraines?thanks!

[Guest guest]

Thanks for that idea. Its a good one and I always liked writing to people anyway so it would be worth doing. Thanks again. ShirlSent from my BlackBerry® wireless deviceSender: Soundsensitivity Date: Thu, 21 Apr 2011 12:08:10 -0700To: <Soundsensitivity >ReplyTo: Soundsensitivity Subject: RE: Migraines?Maybe you can start writing letters to her to fill in the time between phone calls – I’m sure she would love to get them, especially if you include lots of love or photos. Then, when you find you can not talk on the phone to her very much, you’ll know that she still knows you’re thinking of her and love her because of the letters, and then you will feel better about it too. Just an idea . . . From: Soundsensitivity [mailto:Soundsensitivity ] On Behalf Of shirlrimm@...Sent: Thursday, April 21, 2011 11:55 AMTo: Soundsensitivity Subject: Re: Migraines? Yes they do know more about Migraines than they do 4s. I am so bad I can't even talk to my mum on the phone when she is eating or drinking! I wouldn't mind but I only see her once every couple of months and she is 80 years old and we lost my dad last year. Yet I still cannot tolerate her noises!!! There are loads more noises besides mums that I can't bear as well. Its awful isn't it.Sent from my BlackBerry® wireless device Sender: Soundsensitivity Date: Thu, 21 Apr 2011 11:43:33 -0700To: <Soundsensitivity >ReplyTo: Soundsensitivity Subject: RE: Migraines? I’ve heard of people thinking they’ve had a stroke because of going numb on one side and not having a headache, and being told it was a migraine. There is also the case recently of the newscaster who started talking jibberish on live TV and they told her that was a migraine. Unfortunately, I think the medical community does not really know that much about causes of migraines or when some symptons may or may not be from a migraine. Regardless, they know more about migraines than they do about 4S! From: Soundsensitivity [mailto:Soundsensitivity ] On Behalf Of shirlrimm@...Sent: Thursday, April 21, 2011 5:18 AMTo: Soundsensitivity Subject: Re: Migraines? Hi there, I get what the Doctors have told me is a mild Migraine! No headache but a visual disturbance on its own. Lots of Zig Zags getting bigger and moving as well as flashing coloured lights and blind spots! They usually happen 3 or 4 times a year and scare me to death, even though I have had them for 30 years and been told they are nothing to worry about. They usually only last 30 mins top side but I get scared incase the next one doesn't go and stays all day or longer. I am 53 years old by the way.Sent from my BlackBerry® wireless device Sender: Soundsensitivity Date: Thu, 21 Apr 2011 05:07:23 -0700To: <Soundsensitivity >ReplyTo: Soundsensitivity Subject: Re: Migraines? what do you mean by disrupted vision? I have at times seen the world move in front of me as if looking through water, other times I have noticed blind spots but I thought they were because hte tension in my shoulders and neck from a car accident, can you detail your vision disruptions more please? I have classic migraines with light/sound sensitivity, disrupted vision and blind spots. I don't get them as often as I used to because I take a beta blocker every day. To: Soundsensitivity Sent: Wed, April 20, 2011 3:21:56 AMSubject: Migraines? hi all,i'm wondering if any of you are plagued with severe headaches or migraines - in particular classic migraines (light/sound sensitivity, body numbness, disrupted vision and blind spots, etc., sometimes not not always paired with bad headaches)? unfortunately, i have them pretty badly. my neurologist said that his research indicates that people with classic migraines have more sensitive/hyperactive/etc. brains that are easily triggered by environmental stimuli. importantly, their brains have a larger percentage of region devoted to processing stimuli (somatosensory cortex) - by 21%. i've had 4s/misophonia at least as long as i've had migraines and am wondering if there's a connection b/n brain hypersensitivity, enlarged sensory cortex, and my sensitivity to sounds.so... any one else out there get migraines?thanks!

[Guest guest]

I know this isn't about migraines, but since we're talking about notes and such... dry erase markers wipe clean off mirrors, so if you want to leave a note where someone will see it, use a dry erase marker on the bathroom mirror. My mom and I leave notes for each other all the time... bathroom mirror, bedroom mirrors (we both have one on the back of our doors) and the little whiteboard on the fridge!

---------------------------------------------------------

♥

" Hope is more than a word; it's a state of being. It's a firm belief God will come through. Life brings rain... hope turns every drop into the power to bloom like never before. " -Holley Gerth ♥

http://www.caringbridge.org/visit/sarahmae

 

Thanks for that idea. Its a good one and I always liked writing to people anyway so it would be worth doing. Thanks again. ShirlSent from my BlackBerry® wireless device

Sender: Soundsensitivity

Date: Thu, 21 Apr 2011 12:08:10 -0700To: <Soundsensitivity >ReplyTo: Soundsensitivity

Subject: RE: Migraines?

Maybe you can start writing letters to her to fill in the time between phone calls – I’m sure she would love to get them, especially if you include lots of love or photos.  Then, when you find you can not talk on the phone to her very much, you’ll know that she still knows you’re thinking of her and love her because of the letters, and then you will feel better about it too.  Just an idea . . .

 From: Soundsensitivity [mailto:Soundsensitivity ] On Behalf Of shirlrimm@...

Sent: Thursday, April 21, 2011 11:55 AMTo: Soundsensitivity Subject: Re: Migraines?

   Yes they do know more about Migraines than they do 4s. I am so bad I can't even talk to my mum on the phone when she is eating or drinking! I wouldn't mind but I only see her once every couple of months and she is 80 years old and we lost my dad last year. Yet I still cannot tolerate her noises!!! There are loads more noises besides mums that I can't bear as well. Its awful isn't it.

Sent from my BlackBerry® wireless device

Sender: Soundsensitivity Date: Thu, 21 Apr 2011 11:43:33 -0700

To: <Soundsensitivity >ReplyTo: Soundsensitivity

Subject: RE: Migraines? I’ve heard of people thinking they’ve had a stroke because of going numb on one side and not having a headache, and being told it was a migraine.  There is also the case recently of the newscaster who started talking jibberish on live TV and they told her that was a migraine.  Unfortunately, I think the medical community does not really know that much about causes of migraines or when some symptons may or may not be from a migraine.  Regardless, they know more about migraines than they do about 4S!

 From: Soundsensitivity [mailto:Soundsensitivity ] On Behalf Of shirlrimm@...

Sent: Thursday, April 21, 2011 5:18 AMTo: Soundsensitivity Subject: Re: Migraines?

   Hi there, I get what the Doctors have told me is a mild Migraine! No headache but a visual disturbance on its own. Lots of Zig Zags getting bigger and moving as well as flashing coloured lights and blind spots! They usually happen 3 or 4 times a year and scare me to death, even though I have had them for 30 years and been told they are nothing to worry about. They usually only last 30 mins top side but I get scared incase the next one doesn't go and stays all day or longer. I am 53 years old by the way.

Sent from my BlackBerry® wireless device

Sender: Soundsensitivity Date: Thu, 21 Apr 2011 05:07:23 -0700

To: <Soundsensitivity >ReplyTo: Soundsensitivity

Subject: Re: Migraines? what do you mean by disrupted vision? 

I have at times seen the world move in front of me as if looking through water, other times I have noticed blind spots but I thought they were because hte tension in my shoulders and neck from a car accident, can you detail your vision disruptions more please? 

  I have classic migraines with light/sound sensitivity, disrupted vision and blind spots. I don't get them as often as I used to because I take a beta blocker every day.

 

To: Soundsensitivity Sent: Wed, April 20, 2011 3:21:56 AMSubject: Migraines?

  hi all,i'm wondering if any of you are plagued with severe headaches or migraines - in particular classic migraines (light/sound sensitivity, body numbness, disrupted vision and blind spots, etc., sometimes not not always paired with bad headaches)? unfortunately, i have them pretty badly.

my neurologist said that his research indicates that people with classic migraines have more sensitive/hyperactive/etc. brains that are easily triggered by environmental stimuli. importantly, their brains have a larger percentage of region devoted to processing stimuli (somatosensory cortex) - by 21%.

i've had 4s/misophonia at least as long as i've had migraines and am wondering if there's a connection b/n brain hypersensitivity, enlarged sensory cortex, and my sensitivity to sounds.so... any one else out there get migraines?

thanks! 

[Guest guest]

My son and I always leave little written notes for each other, so your idea is great – will save on paper! Thanks. From: Soundsensitivity [mailto:Soundsensitivity ] On Behalf Of Mae Sent: Thursday, April 21, 2011 2:24 PMTo: Soundsensitivity Subject: Re: Migraines? I know this isn't about migraines, but since we're talking about notes and such... dry erase markers wipe clean off mirrors, so if you want to leave a note where someone will see it, use a dry erase marker on the bathroom mirror. My mom and I leave notes for each other all the time... bathroom mirror, bedroom mirrors (we both have one on the back of our doors) and the little whiteboard on the fridge!---------------------------------------------------------♥ " Hope is more than a word; it's a state of being. It's a firm belief God will come through. Life brings rain... hope turns every drop into the power to bloom like never before. " -Holley Gerth ♥http://www.caringbridge.org/visit/sarahmaeOn Thu, Apr 21, 2011 at 4:20 PM, wrote: Thanks for that idea. Its a good one and I always liked writing to people anyway so it would be worth doing. Thanks again. ShirlSent from my BlackBerry® wireless device Sender: Soundsensitivity Date: Thu, 21 Apr 2011 12:08:10 -0700To: <Soundsensitivity >ReplyTo: Soundsensitivity Subject: RE: Migraines? Maybe you can start writing letters to her to fill in the time between phone calls – I’m sure she would love to get them, especially if you include lots of love or photos. Then, when you find you can not talk on the phone to her very much, you’ll know that she still knows you’re thinking of her and love her because of the letters, and then you will feel better about it too. Just an idea . . . From: Soundsensitivity [mailto:Soundsensitivity ] On Behalf Of shirlrimm@...Sent: Thursday, April 21, 2011 11:55 AMTo: Soundsensitivity Subject: Re: Migraines? Yes they do know more about Migraines than they do 4s. I am so bad I can't even talk to my mum on the phone when she is eating or drinking! I wouldn't mind but I only see her once every couple of months and she is 80 years old and we lost my dad last year. Yet I still cannot tolerate her noises!!! There are loads more noises besides mums that I can't bear as well. Its awful isn't it.Sent from my BlackBerry® wireless device Sender: Soundsensitivity Date: Thu, 21 Apr 2011 11:43:33 -0700To: <Soundsensitivity >ReplyTo: Soundsensitivity Subject: RE: Migraines? I’ve heard of people thinking they’ve had a stroke because of going numb on one side and not having a headache, and being told it was a migraine. There is also the case recently of the newscaster who started talking jibberish on live TV and they told her that was a migraine. Unfortunately, I think the medical community does not really know that much about causes of migraines or when some symptons may or may not be from a migraine. Regardless, they know more about migraines than they do about 4S! From: Soundsensitivity [mailto:Soundsensitivity ] On Behalf Of shirlrimm@...Sent: Thursday, April 21, 2011 5:18 AMTo: Soundsensitivity Subject: Re: Migraines? Hi there, I get what the Doctors have told me is a mild Migraine! No headache but a visual disturbance on its own. Lots of Zig Zags getting bigger and moving as well as flashing coloured lights and blind spots! They usually happen 3 or 4 times a year and scare me to death, even though I have had them for 30 years and been told they are nothing to worry about. They usually only last 30 mins top side but I get scared incase the next one doesn't go and stays all day or longer. I am 53 years old by the way.Sent from my BlackBerry® wireless device Sender: Soundsensitivity Date: Thu, 21 Apr 2011 05:07:23 -0700To: <Soundsensitivity >ReplyTo: Soundsensitivity Subject: Re: Migraines? what do you mean by disrupted vision? I have at times seen the world move in front of me as if looking through water, other times I have noticed blind spots but I thought they were because hte tension in my shoulders and neck from a car accident, can you detail your vision disruptions more please? I have classic migraines with light/sound sensitivity, disrupted vision and blind spots. I don't get them as often as I used to because I take a beta blocker every day. To: Soundsensitivity Sent: Wed, April 20, 2011 3:21:56 AMSubject: Migraines? hi all,i'm wondering if any of you are plagued with severe headaches or migraines - in particular classic migraines (light/sound sensitivity, body numbness, disrupted vision and blind spots, etc., sometimes not not always paired with bad headaches)? unfortunately, i have them pretty badly. my neurologist said that his research indicates that people with classic migraines have more sensitive/hyperactive/etc. brains that are easily triggered by environmental stimuli. importantly, their brains have a larger percentage of region devoted to processing stimuli (somatosensory cortex) - by 21%. i've had 4s/misophonia at least as long as i've had migraines and am wondering if there's a connection b/n brain hypersensitivity, enlarged sensory cortex, and my sensitivity to sounds.so... any one else out there get migraines?thanks!

[Guest guest]

For me, distrupted vision usually begins as a blind spot or a spot where what I am supposed to be seeing is missing. Then an arch shaped aura of flashing light begins on the outer edge of my vision. During the disrupted vision, I usually feel fine. Then as my vision begins to clear (usually after about 45 minutes), the migraine pain begins.

To: Soundsensitivity Sent: Thu, April 21, 2011 7:07:23 AMSubject: Re: Migraines?

what do you mean by disrupted vision?

I have at times seen the world move in front of me as if looking through water, other times I have noticed blind spots but I thought they were because hte tension in my shoulders and neck from a car accident, can you detail your vision disruptions more please?

I have classic migraines with light/sound sensitivity, disrupted vision and blind spots. I don't get them as often as I used to because I take a beta blocker every day.

To: Soundsensitivity Sent: Wed, April 20, 2011 3:21:56 AMSubject: Migraines?

hi all,

i'm wondering if any of you are plagued with severe headaches or migraines - in particular classic migraines (light/sound sensitivity, body numbness, disrupted vision and blind spots, etc., sometimes not not always paired with bad headaches)? unfortunately, i have them pretty badly. my neurologist said that his research indicates that people with classic migraines have more sensitive/hyperactive/etc. brains that are easily triggered by environmental stimuli. importantly, their brains have a larger percentage of region devoted to processing stimuli (somatosensory cortex) - by 21%. i've had 4s/misophonia at least as long as i've had migraines and am wondering if there's a connection b/n brain hypersensitivity, enlarged sensory cortex, and my sensitivity to sounds.so... any one else out there get migraines?thanks!

[Guest guest]

That sounds just like what happens to me, but I usually get a moderately bad migraine after the vision disturbance clears up. And yes, it always scares me too, even though I know what it is. I can see the zig zags even if my eyes are close. I've heard the term optical migraines for visional disturbances without headaches.

To: "Soundsensitivity " <Soundsensitivity >Sent: Thu, April 21, 2011 7:17:30 AMSubject: Re: Migraines?

Hi there, I get what the Doctors have told me is a mild Migraine! No headache but a visual disturbance on its own. Lots of Zig Zags getting bigger and moving as well as flashing coloured lights and blind spots! They usually happen 3 or 4 times a year and scare me to death, even though I have had them for 30 years and been told they are nothing to worry about. They usually only last 30 mins top side but I get scared incase the next one doesn't go and stays all day or longer. I am 53 years old by the way. Sent from my BlackBerry® wireless device

Sender: Soundsensitivity

Date: Thu, 21 Apr 2011 05:07:23 -0700

To: <Soundsensitivity >

ReplyTo: Soundsensitivity

Subject: Re: Migraines?

what do you mean by disrupted vision?

I have at times seen the world move in front of me as if looking through water, other times I have noticed blind spots but I thought they were because hte tension in my shoulders and neck from a car accident, can you detail your vision disruptions more please?

I have classic migraines with light/sound sensitivity, disrupted vision and blind spots. I don't get them as often as I used to because I take a beta blocker every day.

To: Soundsensitivity Sent: Wed, April 20, 2011 3:21:56 AMSubject: Migraines?

hi all,

i'm wondering if any of you are plagued with severe headaches or migraines - in particular classic migraines (light/sound sensitivity, body numbness, disrupted vision and blind spots, etc., sometimes not not always paired with bad headaches)? unfortunately, i have them pretty badly. my neurologist said that his research indicates that people with classic migraines have more sensitive/hyperactive/etc. brains that are easily triggered by environmental stimuli. importantly, their brains have a larger percentage of region devoted to processing stimuli (somatosensory cortex) - by 21%. i've had 4s/misophonia at least as long as i've had migraines and am wondering if there's a connection b/n brain hypersensitivity, enlarged sensory cortex, and my sensitivity to sounds.so... any one else out there get migraines?thanks!

[Guest guest]

Exactly the same here.

One day I was describing this to a work colleague right when it was happening to

me. She looked at me a little weirdly until I showed her an article online about

" aura " (the visual precursor to a migraine headache). She thought I was kidding

about the circle of jagged flashing light that was slowly growing and obscuring

my vision. I think I found an artist's impression, like this:

http://upload.wikimedia.org/wikipedia/commons/b/b0/Migraine_aura.jpg

That's a pretty reasonable depiction of what I experience, except I am not

really aware of the colours.

>

> For me, distrupted vision usually begins as a blind spot or a spot where what

I

> am supposed to be seeing is missing. Then an arch shaped aura of flashing

light

> begins on the outer edge of my vision. During the disrupted vision, I usually

> feel fine. Then as my vision begins to clear (usually after about 45 minutes),

> the migraine pain begins.

[Guest guest]

hi!

first i'm so sorry you also suffer from migraines... but i also wanted to just

say for the group that **NO ONE with classic migraines should ever, ever take

imitrex **! classic migraines + imitrex can lead to stroke. my neurologist has

banned me from taking any drugs like imitrex. classic migraines are tough to

treat because most medications for migraines can cause increased risk of stroke

for us.

just something to keep in mind!

thanks everyone for responding about the migraines question - i really do think

there's a link there, considering the response.

>

> I’m surprised no one has mentioned Imitrex! I have had severe migraines

since 4th grade and didn’t even realize they were migraines for a long time

because I would get all of the symptoms except the actual headache sometimes.

When a doctor finally diagnosed it, he mentioned that often the same chemical

imbalance that can cause depression can also cause migraines, so he started me

on Elavil as a preventive. For me, that did not really help. I was also taking

propanalol, but that was for my prolapsed mitrol valve (to control racing heart,

etc.). Eventually I switched to taking Imitrex whenever I felt a migraine

coming on, or even right in the middle of a migraine, and it worked †" and

still does! It would take about 30-45 minutes, and then I felt fine †"

amazing. The only thing with Imitrex is it can not be taken at the same time as

any MAO inhibitor meds (e.g. amitriptylene), and shouldn’t be taken if you

have high blood pressure. But if that’s not an issue, it might be worth a

try. I wish I could tell you how any of this might relate to 4S, but it’s my

son that has 4S, not me (and my son does not get migraines). Still, for those

of you with migraines, I wanted to share in case it helps.

>

> From: Soundsensitivity

[mailto:Soundsensitivity ] On Behalf Of whysendmejunkmail

> Sent: Wednesday, April 20, 2011 5:46 AM

> To: Soundsensitivity

> Subject: RE: Re: Migraines?

>

>

>

>

>

> That's interesting, I am definitely sensitive. I have to take singular and

Claritan for chronic hives, I have chronic insomnia, migraines, and allergic to

yellow# 5 dye which is in a lot of foods and meds, allergic to aspirin and

penicillin. Mitral valve prolapse, heart murmur. I am sure I am missing

something. Overactive sensory system is an understatement for me!

>

>

>

>

> ________________________________

>

>

> Sent: April 20, 2011 8:37 AM

> To: Soundsensitivity

> Subject: Re: Re: Migraines?

>

>

>

> Interesting about the elavil, I used to take elavil for depression, but went

off it suddenly unfortunately without titration, ended up with these horrible

migraines in my eyes. Ever since that I have had these visual disturbances,

shimmering and static in my vision , strait lines look wavy and words jump

around on the page. Doctor's couldn't find anything obviously wrong, it is

something in my brain, but I have it all the time.

> I have always had problems with bad sinus headaches with vomiting. And I am

very sensitive to changes in barometric pressure, makes me dizzy.

> I do feel like I have an over active sensory system in general.

>

>

>

>

>

> ________________________________

>

>

> To: Soundsensitivity

> Sent: Wed, April 20, 2011 7:10:18 AM

> Subject: Re: Migraines?

>

>

>

> I have suffered from migraines since the age of six. I am now 40. I wouldn't

wish them on my worst enemy. The auras, vomiting, sensitivity to strong smells.

Unfortunately there is no one trigger. The weather, cigarette smoke, sleeping

too long, not enough sleep, skipping meals, strong odors in general, weather, I

could go on lol

> Been on Elavil as a preventive. Used beta blockers, Topomax while it did help

messed up my speech and thought processes. Relpax as a reliever.

>

[Guest guest]

hi richard,

my blind spots are difficult to notice at first until i realize i'm missing

parts of what i can see. then it kind of spreads across my visual field. there

are some good visualizations on youtube about the visual aura on youtube, e.g.

also try looking up " scintillating scotoma " which means the same thing.

but definitely have a chat with a neurologist - it couldn't hurt, regardless of

what's going on! mention your 4s too

best of luck!

>

> >

> >

> > I have classic migraines with light/sound sensitivity, disrupted vision and

> > blind spots. I don't get them as often as I used to because I take a beta

> > blocker every day.

> >

> > ------------------------------

> > *From:* sullivnj

> > *To:* Soundsensitivity

> > *Sent:* Wed, April 20, 2011 3:21:56 AM

> > *Subject:* Migraines?

> >

> >

> >

> > hi all,

> >

> >

> > i'm wondering if any of you are plagued with severe headaches or migraines

> > - in particular classic migraines (light/sound sensitivity, body numbness,

> > disrupted vision and blind spots, etc., sometimes not not always paired with

> > bad headaches)? unfortunately, i have them pretty badly.

> >

> > my neurologist said that his research indicates that people with classic

> > migraines have more sensitive/hyperactive/etc. brains that are easily

> > triggered by environmental stimuli. importantly, their brains have a larger

> > percentage of region devoted to processing stimuli (somatosensory cortex) -

> > by 21%.

> >

> > i've had 4s/misophonia at least as long as i've had migraines and am

> > wondering if there's a connection b/n brain hypersensitivity, enlarged

> > sensory cortex, and my sensitivity to sounds.

> >

> > so... any one else out there get migraines?

> >

> > thanks!

> >

> >

> >

>