Guest guest Posted April 7, 2011 Report Share Posted April 7, 2011 Morning All, This is just way too eerie for me. I now have Shingles! At the moment, the EN is quiet, I am on 5mg of prednisone, the nodules are small, and not really doing anything, but not gone either. On reading about Shingles, HSV is mentioned often, and is usually a problem for people with compromised immune systems such as myself. The other oddity I suffer is candidas or thrush in the esophagus, which again is common in immune compromised people, and those who have been on long term steroid treatment. I have just had a wonderful two-week holiday with my Mum, and couldn't have been more relaxed or stress free, but the Shingles broke out soon after we left. About 8 weeks ago, I had what felt like a cold sore coming up on my lip and saw my doctor that day, he gave me some medication (can't remember the name of them!) and the cold sore didn't eventuate, one must wonder if this is/was all related? And why? Can't get an appointment now until next Friday........... Trudi Re: EN and HSV Hi Robyn,No, I have HSV 2... I really can't remember whether I had HSV breakouts during my previous EN episodes, but this time the link is so obvious it just can't be a coincidence. In my case the HSV breakout and EN occured at the same time.Is it the first time you have had a cold sore?AnnePS Thanks for your message : I'll monitor the situation and let you know how I get on :-) I found a great source of information on how to boost your immune system specifically in relation to HSV: http://www.herpes-coldsores.com/immune-system.htm (the whole website is really good)so I'll follow their advice and see how I get on.> >> > Hi all,> > > > I've been a member of the group for years but have never posted before.> > > > I've had idiopathic EN, associated with rheumatoid arthritis since 2001. Various tests were done, and all discarded the most common causes for EN. I also had my first episode of uveitis the same year I had my first EN outbreak, but no consultant has ever made the link between the two conditions.> > > > EN+RA and uveitis came and went at irregular intervals, but not necessarily together, and I just learned to accept it as part of my life, resting and taking Ibuprofen for the one and cortico-steroid eye drops for the other when they occured. > > > > Well, today I believe I've found the link! I've suspected for years I might have HSV but just kept postponing getting a confirmation from a gynecologist until today. HSV sores usually last for 5 to 10 days, and I'm on the second outbreak in the last 6 weeks. The first one coincides precisely with the beginning of the most severe EN + RA episode I've had in the last two years. No uveitis mind you, touch wood!> > > > Once I got home I googled EN and HSV, and uveitis and HSV. Eureka! For both conditions, HSV is a potential cause:> > http://www.aafp.org/afp/2007/0301/p695.html -> see table 2, causes of EN: Infections - Viral: herpes simplex virus> > http://www.merckmanuals.com/professional/sec09/ch105/ch105a.html -> Etiology> > > > So, I think I've just found my trigger! After 10 years!! Now I just need to make sure I eliminate causes of stress (on this forum the link between stress and EN has been discussed many times) and look after my weakened immune system, as both trigger HSV outbreaks, and the associated EN and uveitis. I know the forum is full of good advice to that effect, so thanks a million to all, and to ML Gemmill and in particular!> > > > Best,> > Anne> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 8, 2011 Report Share Posted April 8, 2011 I agree GG!Gluten Free will amaze you. I am EN free. Also had parasites and bacteria, candida and used an herb protocol to rid my self of them. I take my probiotics religiously. Your colon is 70 percent of your immune system. My energy is terrific.MLSent from my Verizon Wireless BlackBerrySender: erythema_nodosum_Group Date: Fri, 08 Apr 2011 13:43:10 -0000To: <erythema_nodosum_Group >ReplyTo: erythema_nodosum_Group Subject: Re: EN and HSV Find a good naturapath and have them do some stool tests. You need to find out what is going on in your gut. The immune system is so intertwined with the balance of bacteria in your gut, that you will have to get that corrected first. You may have yeast overgrowth (like I did) or even a parasite (like I did) that is compromising the balance of intestinal flora. Conventional medicine most likely will not recognize that or at least it would not be something they would explore. I cleared my EN up by clearing up my gut and I continue to take probiotics in high doses to keep my gut clear. I also had fever blisters and had shingles at one point. Also look at anything in your home that could be pulling on your immune system. I had a built in planter that was not getting enough sunlight, consequently, growing mold that I was not aware of until I had it dug up and could see what was growing in it. It didn't help my immune system at all. Try not to be exposed to heavy chemicals ie cleaning, pesticides, or herbicides as that will also compromise your system. Take a good multiple vitamin for women (GNC has a good one) with folic acid and eat plenty of fresh fruits and veggies. I know this process can be frustrating, but you can heal if you find the right practitioner to help you. I did.> > >> > > Hi all,> > > > > > I've been a member of the group for years but have never posted before.> > > > > > I've had idiopathic EN, associated with rheumatoid arthritis since 2001. Various tests were done, and all discarded the most common causes for EN. I also had my first episode of uveitis the same year I had my first EN outbreak, but no consultant has ever made the link between the two conditions.> > > > > > EN+RA and uveitis came and went at irregular intervals, but not necessarily together, and I just learned to accept it as part of my life, resting and taking Ibuprofen for the one and cortico-steroid eye drops for the other when they occured. > > > > > > Well, today I believe I've found the link! I've suspected for years I might have HSV but just kept postponing getting a confirmation from a gynecologist until today. HSV sores usually last for 5 to 10 days, and I'm on the second outbreak in the last 6 weeks. The first one coincides precisely with the beginning of the most severe EN + RA episode I've had in the last two years. No uveitis mind you, touch wood!> > > > > > Once I got home I googled EN and HSV, and uveitis and HSV. Eureka! For both conditions, HSV is a potential cause:> > > http://www.aafp.org/afp/2007/0301/p695.html -> see table 2, causes of EN: Infections - Viral: herpes simplex virus> > > http://www.merckmanuals.com/professional/sec09/ch105/ch105a.html -> Etiology> > > > > > So, I think I've just found my trigger! After 10 years!! Now I just need to make sure I eliminate causes of stress (on this forum the link between stress and EN has been discussed many times) and look after my weakened immune system, as both trigger HSV outbreaks, and the associated EN and uveitis. I know the forum is full of good advice to that effect, so thanks a million to all, and to ML Gemmill and in particular!> > > > > > Best,> > > Anne> > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 8, 2011 Report Share Posted April 8, 2011 I had to respond to this! I am a nurse and my legs were worse than most of the cardiac patients I see. It was horrible. I had every test in the book..and no answers. I turned to a naturopath (which i had never been to before) and the first thing she suggested was a gluten free diet, Probiotics, and some other natrual anti-inflammatory pills. My legs when from looking like were covered in cellulitis, with pitting edema beyond words.....to completely normal. I actually cant believe it myself. I would definitely suggest it to anyone that cant find their answers, it certainly cant hurt!love to you all. Its nice to hear from people that understand what you are going through :)To: erythema_nodosum_Group Sent: Fri, April 8, 2011 10:08:17 AMSubject: Re: Re: EN and HSV I agree GG!Gluten Free will amaze you. I am EN free. Also had parasites and bacteria, candida and used an herb protocol to rid my self of them. I take my probiotics religiously. Your colon is 70 percent of your immune system. My energy is terrific.MLSent from my Verizon Wireless BlackBerry Sender: erythema_nodosum_Group Date: Fri, 08 Apr 2011 13:43:10 -0000To: <erythema_nodosum_Group >ReplyTo: erythema_nodosum_Group Subject: Re: EN and HSV Find a good naturapath and have them do some stool tests. You need to find out what is going on in your gut. The immune system is so intertwined with the balance of bacteria in your gut, that you will have to get that corrected first. You may have yeast overgrowth (like I did) or even a parasite (like I did) that is compromising the balance of intestinal flora. Conventional medicine most likely will not recognize that or at least it would not be something they would explore. I cleared my EN up by clearing up my gut and I continue to take probiotics in high doses to keep my gut clear. I also had fever blisters and had shingles at one point. Also look at anything in your home that could be pulling on your immune system. I had a built in planter that was not getting enough sunlight, consequently, growing mold that I was not aware of until I had it dug up and could see what was growing in it. It didn't help my immune system at all. Try not to be exposed to heavy chemicals ie cleaning, pesticides, or herbicides as that will also compromise your system. Take a good multiple vitamin for women (GNC has a good one) with folic acid and eat plenty of fresh fruits and veggies. I know this process can be frustrating, but you can heal if you find the right practitioner to help you. I did. > > > > > > Hi all, > > > > > > I've been a member of the group for years but have never posted before. > > > > > > I've had idiopathic EN, associated with rheumatoid arthritis since 2001. Various tests were done, and all discarded the most common causes for EN. I also had my first episode of uveitis the same year I had my first EN outbreak, but no consultant has ever made the link between the two conditions. > > > > > > EN+RA and uveitis came and went at irregular intervals, but not necessarily together, and I just learned to accept it as part of my life, resting and taking Ibuprofen for the one and cortico-steroid eye drops for the other when they occured. > > > > > > Well, today I believe I've found the link! I've suspected for years I might have HSV but just kept postponing getting a confirmation from a gynecologist until today. HSV sores usually last for 5 to 10 days, and I'm on the second outbreak in the last 6 weeks. The first one coincides precisely with the beginning of the most severe EN + RA episode I've had in the last two years. No uveitis mind you, touch wood! > > > > > > Once I got home I googled EN and HSV, and uveitis and HSV. Eureka! For both conditions, HSV is a potential cause: > > > http://www.aafp.org/afp/2007/0301/p695.html -> see table 2, causes of EN: Infections - Viral: herpes simplex virus > > > http://www.merckmanuals.com/professional/sec09/ch105/ch105a.html -> Etiology > > > > > > So, I think I've just found my trigger! After 10 years!! Now I just need to make sure I eliminate causes of stress (on this forum the link between stress and EN has been discussed many times) and look after my weakened immune system, as both trigger HSV outbreaks, and the associated EN and uveitis. I know the forum is full of good advice to that effect, so thanks a million to all, and to ML Gemmill and in particular! > > > > > > Best, > > > Anne > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 8, 2011 Report Share Posted April 8, 2011 Very exciting ! And very empowering to take maters into your own hands. I was just watching this guy on tv today. a powerful program. I am going to do his program for three weeks.http://www.fatsickandnearlydead.com/He was super fat and sick. Juiced for 3 months. Not only lost 100 pounds, he healed himself. there is power in the foods we chose to eat.powerful trailer watch it.ml ML Gemmill I had to respond to this! I am a nurse and my legs were worse than most of the cardiac patients I see. It was horrible. I had every test in the book..and no answers. I turned to a naturopath (which i had never been to before) and the first thing she suggested was a gluten free diet, Probiotics, and some other natrual anti-inflammatory pills. My legs when from looking like were covered in cellulitis, with pitting edema beyond words.....to completely normal. I actually cant believe it myself. I would definitely suggest it to anyone that cant find their answers, it certainly cant hurt!love to you all. Its nice to hear from people that understand what you are going through :)To: erythema_nodosum_Group Sent: Fri, April 8, 2011 10:08:17 AMSubject: Re: Re: EN and HSV I agree GG!Gluten Free will amaze you. I am EN free. Also had parasites and bacteria, candida and used an herb protocol to rid my self of them. I take my probiotics religiously. Your colon is 70 percent of your immune system. My energy is terrific.MLSent from my Verizon Wireless BlackBerrySender: erythema_nodosum_Group Date: Fri, 08 Apr 2011 13:43:10 -0000To: <erythema_nodosum_Group >ReplyTo: erythema_nodosum_Group Subject: Re: EN and HSV Find a good naturapath and have them do some stool tests. You need to find out what is going on in your gut. The immune system is so intertwined with the balance of bacteria in your gut, that you will have to get that corrected first. You may have yeast overgrowth (like I did) or even a parasite (like I did) that is compromising the balance of intestinal flora. Conventional medicine most likely will not recognize that or at least it would not be something they would explore. I cleared my EN up by clearing up my gut and I continue to take probiotics in high doses to keep my gut clear. I also had fever blisters and had shingles at one point. Also look at anything in your home that could be pulling on your immune system. I had a built in planter that was not getting enough sunlight, consequently, growing mold that I was not aware of until I had it dug up and could see what was growing in it. It didn't help my immune system at all. Try not to be exposed to heavy chemicals ie cleaning, pesticides, or herbicides as that will also compromise your system. Take a good multiple vitamin for women (GNC has a good one) with folic acid and eat plenty of fresh fruits and veggies. I know this process can be frustrating, but you can heal if you find the right practitioner to help you. I did.> > >> > > Hi all,> > > > > > I've been a member of the group for years but have never posted before.> > > > > > I've had idiopathic EN, associated with rheumatoid arthritis since 2001. Various tests were done, and all discarded the most common causes for EN. I also had my first episode of uveitis the same year I had my first EN outbreak, but no consultant has ever made the link between the two conditions.> > > > > > EN+RA and uveitis came and went at irregular intervals, but not necessarily together, and I just learned to accept it as part of my life, resting and taking Ibuprofen for the one and cortico-steroid eye drops for the other when they occured.> > > > > > Well, today I believe I've found the link! I've suspected for years I might have HSV but just kept postponing getting a confirmation from a gynecologist until today. HSV sores usually last for 5 to 10 days, and I'm on the second outbreak in the last 6 weeks. The first one coincides precisely with the beginning of the most severe EN + RA episode I've had in the last two years. No uveitis mind you, touch wood!> > > > > > Once I got home I googled EN and HSV, and uveitis and HSV. Eureka! For both conditions, HSV is a potential cause:> > > http://www.aafp.org/afp/2007/0301/p695.html -> see table 2, causes of EN: Infections - Viral: herpes simplex virus> > > http://www.merckmanuals.com/professional/sec09/ch105/ch105a.html -> Etiology> > > > > > So, I think I've just found my trigger! After 10 years!! Now I just need to make sure I eliminate causes of stress (on this forum the link between stress and EN has been discussed many times) and look after my weakened immune system, as both trigger HSV outbreaks, and the associated EN and uveitis. I know the forum is full of good advice to that effect, so thanks a million to all, and to ML Gemmill and in particular!> > > > > > Best,> > > Anne> > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 8, 2011 Report Share Posted April 8, 2011 I took beladona 1 tab 3 times a day for three days, along with Probiotics, and turmeric 3 times a day, with glutamine and omega 3s twice a day! Sounds like a lot, but I decided to hold off on the potassium iodide i had been prescribed (by the dermatologist) and see what happened taking the above along with going gluten free. I figured it was worth a shot.... within a few days it was shockingly better, and within a week it was gone! Heres hoping this is my one and only encounter with EN, because noone wants to go through that pain...not at 23.. or any age! I couldnt be more thankful for stumbling upon this group as well!Also enjoyed that video! Looking forward to hearing your results!To: erythema_nodosum_Group Sent: Fri, April 8, 2011 2:23:46 PMSubject: Re: EN and HSV Hi Everyone, What an amazing video! Shows it is never too late to get healthy! Louise--Please let us know the results of your "fatsickandnearlydead" juicing diet! I'm very impressed with finding a natural way to get into an EN remission! Do you remember the anti inflammatory pills you took (take?)? Sounds like you belong on our "cured members list";-) I just got back from the gym--remission is wonderful ! Wishing Everyone a Happy and Pain free weekend. Love, http://poems2order.wordpress.com/donate-to-erythema-nodosum-research/ > > > > > > > > > > Hi all, > > > > > > > > > > I've been a member of the group for years but have never > > posted before. > > > > > > > > > > I've had idiopathic EN, associated with rheumatoid arthritis > > since 2001. Various tests were done, and all discarded the most > > common causes for EN. I also had my first episode of uveitis the > > same year I had my first EN outbreak, but no consultant has ever > > made the link between the two conditions. > > > > > > > > > > EN+RA and uveitis came and went at irregular intervals, but > > not necessarily together, and I just learned to accept it as part of > > my life, resting and taking Ibuprofen for the one and cortico- > > steroid eye drops for the other when they occured. > > > > > > > > > > Well, today I believe I've found the link! I've suspected for > > years I might have HSV but just kept postponing getting a > > confirmation from a gynecologist until today. HSV sores usually last > > for 5 to 10 days, and I'm on the second outbreak in the last 6 > > weeks. The first one coincides precisely with the beginning of the > > most severe EN + RA episode I've had in the last two years. No > > uveitis mind you, touch wood! > > > > > > > > > > Once I got home I googled EN and HSV, and uveitis and HSV. > > Eureka! For both conditions, HSV is a potential cause: > > > > > http://www.aafp.org/afp/2007/0301/p695.html -> see table 2, > > causes of EN: Infections - Viral: herpes simplex virus > > > > > http://www.merckmanuals.com/professional/sec09/ch105/ > > ch105a.html -> Etiology > > > > > > > > > > So, I think I've just found my trigger! After 10 years!! Now I > > just need to make sure I eliminate causes of stress (on this forum > > the link between stress and EN has been discussed many times) and > > look after my weakened immune system, as both trigger HSV outbreaks, > > and the associated EN and uveitis. I know the forum is full of good > > advice to that effect, so thanks a million to all, and to ML Gemmill > > and in particular! > > > > > > > > > > Best, > > > > > Anne > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 8, 2011 Report Share Posted April 8, 2011 Wow that is wonderful! I only did the gluten free and mine was gone (I’m 46). So at twice your age I had a similar experience ith the gluten free seeming to be the ticket. Mind you I was not really eating gluten before though, and hadn’t for years, so I was QUITE surprised that this was the outcome. However, I feel quite quite sure now that it was, several months down the road. I have seen a lot of other changes too simply from not even having the gluten products I used to have oonly a handful of times per year chantelle I took beladona 1 tab 3 times a day for three days, along with Probiotics, and turmeric 3 times a day, with glutamine and omega 3s twice a day! Sounds like a lot, but I decided to hold off on the potassium iodide i had been prescribed (by the dermatologist) and see what happened taking the above along with going gluten free. I figured it was worth a shot.... within a few days it was shockingly better, and within a week it was gone! Heres hoping this is my one and only encounter with EN, because noone wants to go through that pain...not at 23.. or any age! I couldnt be more thankful for stumbling upon this group as well! Also enjoyed that video! Looking forward to hearing your results! To: erythema_nodosum_Group Sent: Fri, April 8, 2011 2:23:46 PM Subject: Re: EN and HSV Hi Everyone, What an amazing video! Shows it is never too late to get healthy! Louise--Please let us know the results of your " fatsickandnearlydead " juicing diet! I'm very impressed with finding a natural way to get into an EN remission! Do you remember the anti inflammatory pills you took (take?)? Sounds like you belong on our " cured members list " ;-) I just got back from the gym--remission is wonderful ! Wishing Everyone a Happy and Pain free weekend. Love, http://poems2order.wordpress.com/donate-to-erythema-nodosum-research/ > > > > > > > > > > Hi all, > > > > > > > > > > I've been a member of the group for years but have never > > posted before. > > > > > > > > > > I've had idiopathic EN, associated with rheumatoid arthritis > > since 2001. Various tests were done, and all discarded the most > > common causes for EN. I also had my first episode of uveitis the > > same year I had my first EN outbreak, but no consultant has ever > > made the link between the two conditions. > > > > > > > > > > EN+RA and uveitis came and went at irregular intervals, but > > not necessarily together, and I just learned to accept it as part of > > my life, resting and taking Ibuprofen for the one and cortico- > > steroid eye drops for the other when they occured. > > > > > > > > > > Well, today I believe I've found the link! I've suspected for > > years I might have HSV but just kept postponing getting a > > confirmation from a gynecologist until today. HSV sores usually last > > for 5 to 10 days, and I'm on the second outbreak in the last 6 > > weeks. The first one coincides precisely with the beginning of the > > most severe EN + RA episode I've had in the last two years. No > > uveitis mind you, touch wood! > > > > > > > > > > Once I got home I googled EN and HSV, and uveitis and HSV. > > Eureka! For both conditions, HSV is a potential cause: > > > > > http://www.aafp.org/afp/2007/0301/p695.html -> see table 2, > > causes of EN: Infections - Viral: herpes simplex virus > > > > > http://www.merckmanuals.com/professional/sec09/ch105/ > > ch105a.html -> Etiology > > > > > > > > > > So, I think I've just found my trigger! After 10 years!! Now I > > just need to make sure I eliminate causes of stress (on this forum > > the link between stress and EN has been discussed many times) and > > look after my weakened immune system, as both trigger HSV outbreaks, > > and the associated EN and uveitis. I know the forum is full of good > > advice to that effect, so thanks a million to all, and to ML Gemmill > > and in particular! > > > > > > > > > > Best, > > > > > Anne > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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