Guest guest Posted April 22, 2011 Report Share Posted April 22, 2011 Exciting news! So thankful you found a doctor who listened and is trying to figure this out. Keep us posted! I don't live anywhere near California, but I'll fly out there if it means getting help with 4S. To: Soundsensitivity Sent: Fri, April 22, 2011 9:19:18 PMSubject: SPECT/CT SCAN!! I'm trying to not get too excited but I have to tell "my people" the news . . . I asked around for a Naturopath and got a MD/Doctor's name, called and went in for the appointment this past Tuesday. He LISTENED to us and agreed that something is different. (It probably helped that I was a few steps from psycho and pretty suicidal since I'd had some bogus Fluoxetine and stopped cold-turkey: bad idea.) He respected and understood everything that I (with my husband by my side) have tried. Psychological counseling? check. EEG neurofeedback? check. Neurologist? (huge disappointment but) check. gluten free? check. B vitamins? Krill oil? yes yes. He did a ton of blood tests (heavy metals, DHEA, hormones, cortisol, etc etc.) and he authorized a SPECT/CT (like Dr. Amen is famous for). We went today and had the scan. The hospital allowed us to finance the cost for a year at zero interest. We HAD to go for it even if we have to pay for it (we've chosen insurance with a high deductible to try to keep the cost down: we're still ahead of the game). This may be the only chance we get authorization for brain imaging (using the bogus "epilepsy" semi-diagnosis from the quack-neurologist). I'll know in a few days if it shows anything. We'll have the results from the blood tests in a week. If we need to go further, our next steps are adrenals and pituitary and allergy testing. Since we already spent a lot towards our deductible we may as well keep going: retirement account, here I come! I am hoping hoping that there's something wrong in my brain (strange but WE understand)and that is something added and not something missing! Will keep you posted . . . keep the faith. If we can find something, I'll ask the Doctor and then broadcast here so everyone in or near San Diego/LA/Orange CA can be in on it if you want. I am trying sooo hard to not be too optimistic. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2011 Report Share Posted April 22, 2011 Thank you for doing this. I hope that answers are found. Good luck Sent from my BlackBerry® smartphone on 3Sender: Soundsensitivity Date: Sat, 23 Apr 2011 02:19:18 -0000To: <Soundsensitivity >ReplyTo: Soundsensitivity Subject: SPECT/CT SCAN!! I'm trying to not get too excited but I have to tell " my people " the news . . . I asked around for a Naturopath and got a MD/Doctor's name, called and went in for the appointment this past Tuesday. He LISTENED to us and agreed that something is different. (It probably helped that I was a few steps from psycho and pretty suicidal since I'd had some bogus Fluoxetine and stopped cold-turkey: bad idea.) He respected and understood everything that I (with my husband by my side) have tried. Psychological counseling? check. EEG neurofeedback? check. Neurologist? (huge disappointment but) check. gluten free? check. B vitamins? Krill oil? yes yes. He did a ton of blood tests (heavy metals, DHEA, hormones, cortisol, etc etc.) and he authorized a SPECT/CT (like Dr. Amen is famous for). We went today and had the scan. The hospital allowed us to finance the cost for a year at zero interest. We HAD to go for it even if we have to pay for it (we've chosen insurance with a high deductible to try to keep the cost down: we're still ahead of the game). This may be the only chance we get authorization for brain imaging (using the bogus " epilepsy " semi-diagnosis from the quack-neurologist). I'll know in a few days if it shows anything. We'll have the results from the blood tests in a week. If we need to go further, our next steps are adrenals and pituitary and allergy testing. Since we already spent a lot towards our deductible we may as well keep going: retirement account, here I come! I am hoping hoping that there's something wrong in my brain (strange but WE understand)and that is something added and not something missing! Will keep you posted . . . keep the faith. If we can find something, I'll ask the Doctor and then broadcast here so everyone in or near San Diego/LA/Orange CA can be in on it if you want. I am trying sooo hard to not be too optimistic. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2011 Report Share Posted April 23, 2011 Good luck! I'd be interested in hearing if anything stands out from your blood tests as well. I have always wondered about heavy metals and cortisol... > > I'm trying to not get too excited but I have to tell " my people " the news . . .. > I asked around for a Naturopath and got a MD/Doctor's name, called and went in for the appointment this past Tuesday. He LISTENED to us and agreed that something is different. (It probably helped that I was a few steps from psycho and pretty suicidal since I'd had some bogus Fluoxetine and stopped cold-turkey: bad idea.) He respected and understood everything that I (with my husband by my side) have tried. Psychological counseling? check. EEG neurofeedback? check. Neurologist? (huge disappointment but) check. gluten free? check. B vitamins? Krill oil? yes yes. He did a ton of blood tests (heavy metals, DHEA, hormones, cortisol, etc etc.) and he authorized a SPECT/CT (like Dr. Amen is famous for). We went today and had the scan. The hospital allowed us to finance the cost for a year at zero interest. We HAD to go for it even if we have to pay for it (we've chosen insurance with a high deductible to try to keep the cost down: we're still ahead of the game). This may be the only chance we get authorization for brain imaging (using the bogus " epilepsy " semi-diagnosis from the quack-neurologist). I'll know in a few days if it shows anything. We'll have the results from the blood tests in a week. If we need to go further, our next steps are adrenals and pituitary and allergy testing. Since we already spent a lot towards our deductible we may as well keep going: retirement account, here I come! I am hoping hoping that there's something wrong in my brain (strange but WE understand)and that is something added and not something missing! Will keep you posted . . . keep the faith. If we can find something, I'll ask the Doctor and then broadcast here so everyone in or near San Diego/LA/Orange CA can be in on it if you want. I am trying sooo hard to not be too optimistic. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2011 Report Share Posted April 23, 2011 I've got lots of bismuth (sp?) In my system. No idea what from. Sent from my BlackBerry® smartphone on 3Sender: Soundsensitivity Date: Sat, 23 Apr 2011 07:05:26 -0000To: <Soundsensitivity >ReplyTo: Soundsensitivity Subject: Re: SPECT/CT SCAN!! Good luck! I'd be interested in hearing if anything stands out from your blood tests as well. I have always wondered about heavy metals and cortisol...>> I'm trying to not get too excited but I have to tell " my people " the news . . . > I asked around for a Naturopath and got a MD/Doctor's name, called and went in for the appointment this past Tuesday. He LISTENED to us and agreed that something is different. (It probably helped that I was a few steps from psycho and pretty suicidal since I'd had some bogus Fluoxetine and stopped cold-turkey: bad idea.) He respected and understood everything that I (with my husband by my side) have tried. Psychological counseling? check. EEG neurofeedback? check. Neurologist? (huge disappointment but) check. gluten free? check. B vitamins? Krill oil? yes yes. He did a ton of blood tests (heavy metals, DHEA, hormones, cortisol, etc etc.) and he authorized a SPECT/CT (like Dr. Amen is famous for). We went today and had the scan. The hospital allowed us to finance the cost for a year at zero interest. We HAD to go for it even if we have to pay for it (we've chosen insurance with a high deductible to try to keep the cost down: we're still ahead of the game). This may be the only chance we get authorization for brain imaging (using the bogus " epilepsy " semi-diagnosis from the quack-neurologist). I'll know in a few days if it shows anything. We'll have the results from the blood tests in a week. If we need to go further, our next steps are adrenals and pituitary and allergy testing. Since we already spent a lot towards our deductible we may as well keep going: retirement account, here I come! I am hoping hoping that there's something wrong in my brain (strange but WE understand)and that is something added and not something missing! Will keep you posted . . . keep the faith. If we can find something, I'll ask the Doctor and then broadcast here so everyone in or near San Diego/LA/Orange CA can be in on it if you want. I am trying sooo hard to not be too optimistic.> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2011 Report Share Posted April 23, 2011 Excellent news. What's the name if your Dr?Sent from my iPhone I'm trying to not get too excited but I have to tell "my people" the news . . . I asked around for a Naturopath and got a MD/Doctor's name, called and went in for the appointment this past Tuesday. He LISTENED to us and agreed that something is different. (It probably helped that I was a few steps from psycho and pretty suicidal since I'd had some bogus Fluoxetine and stopped cold-turkey: bad idea.) He respected and understood everything that I (with my husband by my side) have tried. Psychological counseling? check. EEG neurofeedback? check. Neurologist? (huge disappointment but) check. gluten free? check. B vitamins? Krill oil? yes yes. He did a ton of blood tests (heavy metals, DHEA, hormones, cortisol, etc etc.) and he authorized a SPECT/CT (like Dr. Amen is famous for). We went today and had the scan. The hospital allowed us to finance the cost for a year at zero interest. We HAD to go for it even if we have to pay for it (we've chosen insurance with a high deductible to try to keep the cost down: we're still ahead of the game). This may be the only chance we get authorization for brain imaging (using the bogus "epilepsy" semi-diagnosis from the quack-neurologist). I'll know in a few days if it shows anything. We'll have the results from the blood tests in a week. If we need to go further, our next steps are adrenals and pituitary and allergy testing. Since we already spent a lot towards our deductible we may as well keep going: retirement account, here I come! I am hoping hoping that there's something wrong in my brain (strange but WE understand)and that is something added and not something missing! Will keep you posted . . . keep the faith. If we can find something, I'll ask the Doctor and then broadcast here so everyone in or near San Diego/LA/Orange CA can be in on it if you want. I am trying sooo hard to not be too optimistic. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2011 Report Share Posted April 23, 2011 I will be saying prayers Adah. Something has to be found! Thanks for keeping us posted. Kathy From: Soundsensitivity [mailto:Soundsensitivity ] On Behalf Of adah_123Sent: Friday, April 22, 2011 10:19 PMTo: Soundsensitivity Subject: SPECT/CT SCAN!! I'm trying to not get too excited but I have to tell " my people " the news . . . I asked around for a Naturopath and got a MD/Doctor's name, called and went in for the appointment this past Tuesday. He LISTENED to us and agreed that something is different. (It probably helped that I was a few steps from psycho and pretty suicidal since I'd had some bogus Fluoxetine and stopped cold-turkey: bad idea.) He respected and understood everything that I (with my husband by my side) have tried. Psychological counseling? check. EEG neurofeedback? check. Neurologist? (huge disappointment but) check. gluten free? check. B vitamins? Krill oil? yes yes. He did a ton of blood tests (heavy metals, DHEA, hormones, cortisol, etc etc.) and he authorized a SPECT/CT (like Dr. Amen is famous for). We went today and had the scan. The hospital allowed us to finance the cost for a year at zero interest. We HAD to go for it even if we have to pay for it (we've chosen insurance with a high deductible to try to keep the cost down: we're still ahead of the game). This may be the only chance we get authorization for brain imaging (using the bogus " epilepsy " semi-diagnosis from the quack-neurologist). I'll know in a few days if it shows anything. We'll have the results from the blood tests in a week. If we need to go further, our next steps are adrenals and pituitary and allergy testing. Since we already spent a lot towards our deductible we may as well keep going: retirement account, here I come! I am hoping hoping that there's something wrong in my brain (strange but WE understand)and that is something added and not something missing! Will keep you posted . . . keep the faith. If we can find something, I'll ask the Doctor and then broadcast here so everyone in or near San Diego/LA/Orange CA can be in on it if you want. I am trying sooo hard to not be too optimistic. Quote Link to comment Share on other sites More sharing options...
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