Re: Re: Migraines?

[Guest guest]

Interesting about the elavil, I used to take elavil for depression, but went off it suddenly unfortunately without titration, ended up with these horrible migraines in my eyes. Ever since that I have had these visual disturbances, shimmering and static in my vision , strait lines look wavy and words jump around on the page. Doctor's couldn't find anything obviously wrong, it is something in my brain, but I have it all the time. I have always had problems with bad sinus headaches with vomiting. And I am very sensitive to changes in barometric pressure, makes me dizzy.I do feel like I have an over active sensory system in general.To: Soundsensitivity Sent: Wed, April 20, 2011 7:10:18 AMSubject: Re: Migraines?

I have suffered from migraines since the age of six. I am now 40. I wouldn't wish them on my worst enemy. The auras, vomiting, sensitivity to strong smells. Unfortunately there is no one trigger. The weather, cigarette smoke, sleeping too long, not enough sleep, skipping meals, strong odors in general, weather, I could go on lolBeen on Elavil as a preventive. Used beta blockers, Topomax while it did help messed up my speech and thought processes. Relpax as a reliever.

[Guest guest]

That's interesting, I am definitely sensitive. I have to take singular and Claritan for chronic hives, I have chronic insomnia, migraines, and allergic to yellow# 5 dye which is in a lot of foods and meds, allergic to aspirin and penicillin. Mitral valve prolapse, heart murmur. I am sure I am missing something. Overactive sensory system is an understatement for me!Sent: April 20, 2011 8:37 AMTo: Soundsensitivity Subject: Re: Re: Migraines? Interesting about the elavil, I used to take elavil for depression, but went off it suddenly unfortunately without titration, ended up with these horrible migraines in my eyes. Ever since that I have had these visual disturbances, shimmering and static in my vision , strait lines look wavy and words jump around on the page. Doctor's couldn't find anything obviously wrong, it is something in my brain, but I have it all the time.I have always had problems with bad sinus headaches with vomiting. And I am very sensitive to changes in barometric pressure, makes me dizzy.I do feel like I have an over active sensory system in general.To: Soundsensitivity Sent: Wed, April 20, 2011 7:10:18 AMSubject: Re: Migraines? I have suffered from migraines since the age of six. I am now 40. I wouldn't wish them on my worst enemy. The auras, vomiting, sensitivity to strong smells. Unfortunately there is no one trigger. The weather, cigarette smoke, sleeping too long, not enough sleep, skipping meals, strong odors in general, weather, I could go on lolBeen on Elavil as a preventive. Used beta blockers, Topomax while it did help messed up my speech and thought processes. Relpax as a reliever.

[Guest guest]

I understand the migraine issues. have suffered all my life as well with similar symptoms.

Recently have used Propronalol ( blood pressure med) that has reduced them quite a bit. Topomax resulted in kidney stones- that's no fun.

Is this one that you have tried? If not, might be worth a shot.

Feeling your pain!

To: Soundsensitivity Sent: Wed, April 20, 2011 7:10:18 AMSubject: Re: Migraines?

I have suffered from migraines since the age of six. I am now 40. I wouldn't wish them on my worst enemy. The auras, vomiting, sensitivity to strong smells. Unfortunately there is no one trigger. The weather, cigarette smoke, sleeping too long, not enough sleep, skipping meals, strong odors in general, weather, I could go on lolBeen on Elavil as a preventive. Used beta blockers, Topomax while it did help messed up my speech and thought processes. Relpax as a reliever.

[Guest guest]

Thank you. I have used numerous beta blockers including the one you mentioned. Only problem with them for me is that they slowed my metabolism down and kept my energy down. As a mother of four daughters and a job as an instructor I need all the energy I can get. It's like trying various drugs to find the perfect mix, don't know if that will happen. Most people who suffer from migraine are low in magnesium and b 2. I could probably write a book on my research :/Sent: April 20, 2011 8:56 AMTo: Soundsensitivity Subject: Re: Re: Migraines? I understand the migraine issues. have suffered all my life as well with similar symptoms. Recently have used Propronalol ( blood pressure med) that has reduced them quite a bit. Topomax resulted in kidney stones- that's no fun. Is this one that you have tried? If not, might be worth a shot.Feeling your pain! To: Soundsensitivity Sent: Wed, April 20, 2011 7:10:18 AMSubject: Re: Migraines? I have suffered from migraines since the age of six. I am now 40. I wouldn't wish them on my worst enemy. The auras, vomiting, sensitivity to strong smells. Unfortunately there is no one trigger. The weather, cigarette smoke, sleeping too long, not enough sleep, skipping meals, strong odors in general, weather, I could go on lolBeen on Elavil as a preventive. Used beta blockers, Topomax while it did help messed up my speech and thought processes. Relpax as a reliever.

[Guest guest]

I would strongly recommend that you ask doctor about possibility of trying blood pressure pills (I take INDERAL LA 160mg capsule) one a day (and Imigran Nasal Spray on the very odd occasion I feel the onset of a headache).  There was absolutely no prescription drug that worked for me and I know that no-one actually ever sees you when you look like you could be dying - and the high you feel when the migraine finally subsides.   My children have memories of having to look after themselves for 2-3 days quite often - and people thinking I was drunk if I hadn't made it home before the vomiting set in.     

 

I have suffered from migraines since the age of six. I am now 40. I wouldn't wish them on my worst enemy. The auras, vomiting, sensitivity to strong smells. Unfortunately there is no one trigger. The weather, cigarette smoke, sleeping too long, not enough sleep, skipping meals, strong odors in general, weather, I could go on lol

Been on Elavil as a preventive. Used beta blockers, Topomax while it did help messed up my speech and thought processes. Relpax as a reliever.

[Guest guest]

Yes, I have a history of migraines and 4S as well.Subject: Re: Migraines?To: Soundsensitivity Date: Wednesday, April 20, 2011, 9:49 AM

I started getting occasional migraines in my later twenties. By my early thirties, I was diagnosed with high blood pressure and put on a beta blocker (atenolol).

Since then, I haven't had actual migraine headaches, but I still get the aura that used to precede the migraine headache. These days, the aura may be followed by an ordinary headache or by nothing. The most common reason for me getting the aura is over-tiredness.

>

> hi all,

>

> i'm wondering if any of you are plagued with severe headaches or migraines - in particular classic migraines (light/sound sensitivity, body numbness, disrupted vision and blind spots, etc., sometimes not not always paired with bad headaches)? unfortunately, i have them pretty badly.

>

> my neurologist said that his research indicates that people with classic migraines have more sensitive/hyperactive/etc. brains that are easily triggered by environmental stimuli. importantly, their brains have a larger percentage of region devoted to processing stimuli (somatosensory cortex) - by 21%.

>

> i've had 4s/misophonia at least as long as i've had migraines and am wondering if there's a connection b/n brain hypersensitivity, enlarged sensory cortex, and my sensitivity to sounds.

>

> so... any one else out there get migraines?

>

> thanks!

>

[Guest guest]

I’m surprised no one has mentioned Imitrex!  I have had severe migraines since 4th grade and didn’t even realize they were migraines for a long time because I would get all of the symptoms except the actual headache sometimes.   When a doctor finally diagnosed it, he mentioned that often the same chemical imbalance that can cause depression can also cause migraines, so he started me on Elavil as a preventive.  For me, that did not really help.  I was also taking propanalol, but that was for my prolapsed mitrol valve (to control racing heart, etc.).    Eventually I switched to taking Imitrex whenever I felt a migraine coming on, or even right in the middle of a migraine, and it worked – and still does!  It would take about 30-45 minutes, and then I felt fine – amazing.  The only thing with Imitrex is it can not be taken at the same time as any MAO inhibitor meds (e.g. amitriptylene), and shouldn’t be taken if you have high blood pressure.  But if that’s not an issue, it might be worth a try.   I wish I could tell you how any of this might relate to 4S, but it’s my son that has 4S, not me (and my son does not get migraines).  Still, for those of you with migraines, I wanted to share in case it helps.From: Soundsensitivity [mailto:Soundsensitivity ] On Behalf Of whysendmejunkmailSent: Wednesday, April 20, 2011 5:46 AMTo: Soundsensitivity Subject: RE: Re: Migraines? That's interesting, I am definitely sensitive. I have to take singular and Claritan for chronic hives, I have chronic insomnia, migraines, and allergic to yellow# 5 dye which is in a lot of foods and meds, allergic to aspirin and penicillin. Mitral valve prolapse, heart murmur. I am sure I am missing something. Overactive sensory system is an understatement for me!Sent: April 20, 2011 8:37 AMTo: Soundsensitivity Subject: Re: Re: Migraines? Interesting about the elavil, I used to take elavil for depression, but went off it suddenly unfortunately without titration, ended up with these horrible migraines in my eyes. Ever since that I have had these visual disturbances, shimmering and static in my vision , strait lines look wavy and words jump around on the page. Doctor's couldn't find anything obviously wrong, it is something in my brain, but I have it all the time.I have always had problems with bad sinus headaches with vomiting. And I am very sensitive to changes in barometric pressure, makes me dizzy.I do feel like I have an over active sensory system in general. To: Soundsensitivity Sent: Wed, April 20, 2011 7:10:18 AMSubject: Re: Migraines? I have suffered from migraines since the age of six. I am now 40. I wouldn't wish them on my worst enemy. The auras, vomiting, sensitivity to strong smells. Unfortunately there is no one trigger. The weather, cigarette smoke, sleeping too long, not enough sleep, skipping meals, strong odors in general, weather, I could go on lolBeen on Elavil as a preventive. Used beta blockers, Topomax while it did help messed up my speech and thought processes. Relpax as a reliever.

[Guest guest]

Hey did you find that the beta blockers dropped your blood pressure? I was diagnosed with IST (racing heart) and was on propanalol (to slow it down) but went to hos at one stage (bp 71/36 pulse 70) found out later it was the beta blockers.RSent from my BlackBerry® smartphone on 3Sender: Soundsensitivity Date: Wed, 20 Apr 2011 18:03:44 -0700To: <Soundsensitivity >ReplyTo: Soundsensitivity Subject: RE: Re: Migraines?

I’m surprised no one has mentioned Imitrex!  I have had severe migraines since 4th grade and didn’t even realize they were migraines for a long time because I would get all of the symptoms except the actual headache sometimes.   When a doctor finally diagnosed it, he mentioned that often the same chemical imbalance that can cause depression can also cause migraines, so he started me on Elavil as a preventive.  For me, that did not really help.  I was also taking propanalol, but that was for my prolapsed mitrol valve (to control racing heart, etc.).    Eventually I switched to taking Imitrex whenever I felt a migraine coming on, or even right in the middle of a migraine, and it worked – and still does!  It would take about 30-45 minutes, and then I felt fine – amazing.  The only thing with Imitrex is it can not be taken at the same time as any MAO inhibitor meds (e.g. amitriptylene), and shouldn’t be taken if you have high blood pressure.  But if that’s not an issue, it might be worth a try.   I wish I could tell you how any of this might relate to 4S, but it’s my son that has 4S, not me (and my son does not get migraines).  Still, for those of you with migraines, I wanted to share in case it helps.From: Soundsensitivity [mailto:Soundsensitivity ] On Behalf Of whysendmejunkmailSent: Wednesday, April 20, 2011 5:46 AMTo: Soundsensitivity Subject: RE: Re: Migraines? That's interesting, I am definitely sensitive. I have to take singular and Claritan for chronic hives, I have chronic insomnia, migraines, and allergic to yellow# 5 dye which is in a lot of foods and meds, allergic to aspirin and penicillin. Mitral valve prolapse, heart murmur. I am sure I am missing something. Overactive sensory system is an understatement for me!Sent: April 20, 2011 8:37 AMTo: Soundsensitivity Subject: Re: Re: Migraines? Interesting about the elavil, I used to take elavil for depression, but went off it suddenly unfortunately without titration, ended up with these horrible migraines in my eyes. Ever since that I have had these visual disturbances, shimmering and static in my vision , strait lines look wavy and words jump around on the page. Doctor's couldn't find anything obviously wrong, it is something in my brain, but I have it all the time.I have always had problems with bad sinus headaches with vomiting. And I am very sensitive to changes in barometric pressure, makes me dizzy.I do feel like I have an over active sensory system in general. To: Soundsensitivity Sent: Wed, April 20, 2011 7:10:18 AMSubject: Re: Migraines? I have suffered from migraines since the age of six. I am now 40. I wouldn't wish them on my worst enemy. The auras, vomiting, sensitivity to strong smells. Unfortunately there is no one trigger. The weather, cigarette smoke, sleeping too long, not enough sleep, skipping meals, strong odors in general, weather, I could go on lolBeen on Elavil as a preventive. Used beta blockers, Topomax while it did help messed up my speech and thought processes. Relpax as a reliever.

[Guest guest]

I was on Imitrex and it didn't help me one bit. My doctor today just gave me Maxalt... so next time I have a migraine, I hope it works.

---------------------------------------------------------

♥

" Hope is more than a word; it's a state of being. It's a firm belief God will come through. Life brings rain... hope turns every drop into the power to bloom like never before. " -Holley Gerth ♥

http://www.caringbridge.org/visit/sarahmae

 

I’m surprised no one has mentioned Imitrex!  I have had severe migraines since 4th grade and didn’t even realize they were migraines for a long time because I would get all of the symptoms except the actual headache sometimes.   When a doctor finally diagnosed it, he mentioned that often the same chemical imbalance that can cause depression can also cause migraines, so he started me on Elavil as a preventive.  For me, that did not really help.  I was also taking propanalol, but that was for my prolapsed mitrol valve (to control racing heart, etc.).    Eventually I switched to taking Imitrex whenever I felt a migraine coming on, or even right in the middle of a migraine, and it worked – and still does!  It would take about 30-45 minutes, and then I felt fine – amazing.  The only thing with Imitrex is it can not be taken at the same time as any MAO inhibitor meds (e.g. amitriptylene), and shouldn’t be taken if you have high blood pressure.  But if that’s not an issue, it might be worth a try.   I wish I could tell you how any of this might relate to 4S, but it’s my son that has 4S, not me (and my son does not get migraines).  Still, for those of you with migraines, I wanted to share in case it helps.

From: Soundsensitivity [mailto:Soundsensitivity ] On Behalf Of whysendmejunkmail

Sent: Wednesday, April 20, 2011 5:46 AMTo: Soundsensitivity Subject: RE: Re: Migraines?

   That's interesting, I am definitely sensitive. I have to take singular and Claritan for chronic hives, I have chronic insomnia, migraines, and allergic to yellow# 5 dye which is in a lot of foods and meds, allergic to aspirin and penicillin. Mitral valve prolapse, heart murmur. I am sure I am missing something. Overactive sensory system is an understatement for me!

Sent: April 20, 2011 8:37 AMTo: Soundsensitivity

Subject: Re: Re: Migraines?   Interesting about the elavil,  I used to take elavil for depression, but went off it suddenly unfortunately without titration, ended up with these horrible migraines in my eyes. Ever since that I have had these visual disturbances, shimmering and static in my vision , strait lines look wavy and words jump around on the page. Doctor's couldn't find anything obviously wrong, it is something in my brain, but I have it all the time.

I have always had problems with bad sinus headaches with vomiting. And I am very sensitive to changes in barometric pressure, makes me dizzy.I do feel like I have an over active sensory system in general.

  

To: Soundsensitivity Sent: Wed, April 20, 2011 7:10:18 AMSubject: Re: Migraines?

  I have suffered from migraines since the age of six. I am now 40. I wouldn't wish them on my worst enemy. The auras, vomiting, sensitivity to strong smells. Unfortunately there is no one trigger. The weather, cigarette smoke, sleeping too long, not enough sleep, skipping meals, strong odors in general, weather, I could go on lol

Been on Elavil as a preventive. Used beta blockers, Topomax while it did help messed up my speech and thought processes. Relpax as a reliever.

[Guest guest]

I didn’t have any problem with my blood pressure going too low – was pretty steady at about 120 or 130/80.  Pulse generally was also around 70, but when it raced, it was up to 200!  They said that would mostly be a problem when I get older because it could cause a stoke, but I AM older now!  Fortunately it’s been under control for a while now – not sure why. From: Soundsensitivity [mailto:Soundsensitivity ] On Behalf Of richard.t.mckenna@...Sent: Wednesday, April 20, 2011 6:09 PMTo: Sound sensitivitySubject: Re: Re: Migraines? Hey did you find that the beta blockers dropped your blood pressure? I was diagnosed with IST (racing heart) and was on propanalol (to slow it down) but went to hos at one stage (bp 71/36 pulse 70) found out later it was the beta blockers.RSent from my BlackBerry® smartphone on 3 Sender: Soundsensitivity Date: Wed, 20 Apr 2011 18:03:44 -0700To: <Soundsensitivity >ReplyTo: Soundsensitivity Subject: RE: Re: Migraines? I’m surprised no one has mentioned Imitrex! I have had severe migraines since 4th grade and didn’t even realize they were migraines for a long time because I would get all of the symptoms except the actual headache sometimes. When a doctor finally diagnosed it, he mentioned that often the same chemical imbalance that can cause depression can also cause migraines, so he started me on Elavil as a preventive. For me, that did not really help. I was also taking propanalol, but that was for my prolapsed mitrol valve (to control racing heart, etc.). Eventually I switched to taking Imitrex whenever I felt a migraine coming on, or even right in the middle of a migraine, and it worked – and still does! It would take about 30-45 minutes, and then I felt fine – amazing. The only thing with Imitrex is it can not be taken at the same time as any MAO inhibitor meds (e.g. amitriptylene), and shouldn’t be taken if you have high blood pressure. But if that’s not an issue, it might be worth a try. I wish I could tell you how any of this might relate to 4S, but it’s my son that has 4S, not me (and my son does not get migraines). Still, for those of you with migraines, I wanted to share in case it helps.From: Soundsensitivity [mailto:Soundsensitivity ] On Behalf Of whysendmejunkmailSent: Wednesday, April 20, 2011 5:46 AMTo: Soundsensitivity Subject: RE: Re: Migraines? That's interesting, I am definitely sensitive. I have to take singular and Claritan for chronic hives, I have chronic insomnia, migraines, and allergic to yellow# 5 dye which is in a lot of foods and meds, allergic to aspirin and penicillin. Mitral valve prolapse, heart murmur. I am sure I am missing something. Overactive sensory system is an understatement for me!Sent: April 20, 2011 8:37 AMTo: Soundsensitivity Subject: Re: Re: Migraines? Interesting about the elavil, I used to take elavil for depression, but went off it suddenly unfortunately without titration, ended up with these horrible migraines in my eyes. Ever since that I have had these visual disturbances, shimmering and static in my vision , strait lines look wavy and words jump around on the page. Doctor's couldn't find anything obviously wrong, it is something in my brain, but I have it all the time.I have always had problems with bad sinus headaches with vomiting. And I am very sensitive to changes in barometric pressure, makes me dizzy.I do feel like I have an over active sensory system in general. To: Soundsensitivity Sent: Wed, April 20, 2011 7:10:18 AMSubject: Re: Migraines? I have suffered from migraines since the age of six. I am now 40. I wouldn't wish them on my worst enemy. The auras, vomiting, sensitivity to strong smells. Unfortunately there is no one trigger. The weather, cigarette smoke, sleeping too long, not enough sleep, skipping meals, strong odors in general, weather, I could go on lolBeen on Elavil as a preventive. Used beta blockers, Topomax while it did help messed up my speech and thought processes. Relpax as a reliever.

[Guest guest]

I’ve heard from some others that Imitrex did not work for them, and some where it did work, so I’m guessing it might be due to different causes of migraines or different body/brain chemistries.  I’m sorry it didn’t work for you, but I sure hope the Maxalt works!!! From: Soundsensitivity [mailto:Soundsensitivity ] On Behalf Of Mae Sent: Wednesday, April 20, 2011 6:15 PMTo: Soundsensitivity Subject: Re: Re: Migraines? I was on Imitrex and it didn't help me one bit. My doctor today just gave me Maxalt... so next time I have a migraine, I hope it works.---------------------------------------------------------♥ " Hope is more than a word; it's a state of being. It's a firm belief God will come through. Life brings rain... hope turns every drop into the power to bloom like never before. " -Holley Gerth ♥http://www.caringbridge.org/visit/sarahmaeOn Wed, Apr 20, 2011 at 8:03 PM, Cummings wrote: I’m surprised no one has mentioned Imitrex! I have had severe migraines since 4th grade and didn’t even realize they were migraines for a long time because I would get all of the symptoms except the actual headache sometimes. When a doctor finally diagnosed it, he mentioned that often the same chemical imbalance that can cause depression can also cause migraines, so he started me on Elavil as a preventive. For me, that did not really help. I was also taking propanalol, but that was for my prolapsed mitrol valve (to control racing heart, etc.). Eventually I switched to taking Imitrex whenever I felt a migraine coming on, or even right in the middle of a migraine, and it worked – and still does! It would take about 30-45 minutes, and then I felt fine – amazing. The only thing with Imitrex is it can not be taken at the same time as any MAO inhibitor meds (e.g. amitriptylene), and shouldn’t be taken if you have high blood pressure. But if that’s not an issue, it might be worth a try. I wish I could tell you how any of this might relate to 4S, but it’s my son that has 4S, not me (and my son does not get migraines). Still, for those of you with migraines, I wanted to share in case it helps.From: Soundsensitivity [mailto:Soundsensitivity ] On Behalf Of whysendmejunkmailSent: Wednesday, April 20, 2011 5:46 AMTo: Soundsensitivity Subject: RE: Re: Migraines? That's interesting, I am definitely sensitive. I have to take singular and Claritan for chronic hives, I have chronic insomnia, migraines, and allergic to yellow# 5 dye which is in a lot of foods and meds, allergic to aspirin and penicillin. Mitral valve prolapse, heart murmur. I am sure I am missing something. Overactive sensory system is an understatement for me!Sent: April 20, 2011 8:37 AMTo: Soundsensitivity Subject: Re: Re: Migraines? Interesting about the elavil, I used to take elavil for depression, but went off it suddenly unfortunately without titration, ended up with these horrible migraines in my eyes. Ever since that I have had these visual disturbances, shimmering and static in my vision , strait lines look wavy and words jump around on the page. Doctor's couldn't find anything obviously wrong, it is something in my brain, but I have it all the time.I have always had problems with bad sinus headaches with vomiting. And I am very sensitive to changes in barometric pressure, makes me dizzy.I do feel like I have an over active sensory system in general. To: Soundsensitivity Sent: Wed, April 20, 2011 7:10:18 AMSubject: Re: Migraines? I have suffered from migraines since the age of six. I am now 40. I wouldn't wish them on my worst enemy. The auras, vomiting, sensitivity to strong smells. Unfortunately there is no one trigger. The weather, cigarette smoke, sleeping too long, not enough sleep, skipping meals, strong odors in general, weather, I could go on lolBeen on Elavil as a preventive. Used beta blockers, Topomax while it did help messed up my speech and thought processes. Relpax as a reliever.

[Guest guest]

I was on Maxalt for a long time and it worked wonders! But then my body got used to it and I kept upping the dosage until my dr. finally switched me to Zomig. Which was good timing because it happened at the same time my insurance refused to cover Maxalt.

good luck,

Tammy

and also, I am on propanolol and my blood pressure is very low. So low that I go momentarily blind when getting up after lying down, especially when waking up in the mornings. It takes a good 15 to 30 seconds for me to see anything at all.

Tammy

To: Soundsensitivity Sent: Wed, April 20, 2011 9:30:24 PMSubject: RE: Re: Migraines?

I’ve heard from some others that Imitrex did not work for them, and some where it did work, so I’m guessing it might be due to different causes of migraines or different body/brain chemistries. I’m sorry it didn’t work for you, but I sure hope the Maxalt works!!!

From: Soundsensitivity [mailto:Soundsensitivity ] On Behalf Of Mae Sent: Wednesday, April 20, 2011 6:15 PMTo: Soundsensitivity Subject: Re: Re: Migraines?

I was on Imitrex and it didn't help me one bit. My doctor today just gave me Maxalt... so next time I have a migraine, I hope it works.

---------------------------------------------------------

♥ "Hope is more than a word; it's a state of being. It's a firm belief God will come through. Life brings rain... hope turns every drop into the power to bloom like never before." -Holley Gerth ♥

http://www.caringbridge.org/visit/sarahmae

I’m surprised no one has mentioned Imitrex! I have had severe migraines since 4th grade and didn’t even realize they were migraines for a long time because I would get all of the symptoms except the actual headache sometimes. When a doctor finally diagnosed it, he mentioned that often the same chemical imbalance that can cause depression can also cause migraines, so he started me on Elavil as a preventive. For me, that did not really help. I was also taking propanalol, but that was for my prolapsed mitrol valve (to control racing heart, etc.). Eventually I switched to taking Imitrex whenever I felt a migraine coming on, or even right in the middle of a migraine, and it worked – and still does! It would take about 30-45 minutes, and then I felt fine – amazing. The only thing with Imitrex is it can not be taken at the same time as any

MAO inhibitor meds (e.g. amitriptylene), and shouldn’t be taken if you have high blood pressure. But if that’s not an issue, it might be worth a try. I wish I could tell you how any of this might relate to 4S, but it’s my son that has 4S, not me (and my son does not get migraines). Still, for those of you with migraines, I wanted to share in case it helps.

From: Soundsensitivity [mailto:Soundsensitivity ] On Behalf Of whysendmejunkmailSent: Wednesday, April 20, 2011 5:46 AMTo: Soundsensitivity Subject: RE: Re: Migraines?

That's interesting, I am definitely sensitive. I have to take singular and Claritan for chronic hives, I have chronic insomnia, migraines, and allergic to yellow# 5 dye which is in a lot of foods and meds, allergic to aspirin and penicillin. Mitral valve prolapse, heart murmur. I am sure I am missing something. Overactive sensory system is an understatement for me!

Sent: April 20, 2011 8:37 AMTo: Soundsensitivity Subject: Re: Re: Migraines?

Interesting about the elavil, I used to take elavil for depression, but went off it suddenly unfortunately without titration, ended up with these horrible migraines in my eyes. Ever since that I have had these visual disturbances, shimmering and static in my vision , strait lines look wavy and words jump around on the page. Doctor's couldn't find anything obviously wrong, it is something in my brain, but I have it all the time.I have always had problems with bad sinus headaches with vomiting. And I am very sensitive to changes in barometric pressure, makes me dizzy.I do feel like I have an over active sensory system in general.

To: Soundsensitivity Sent: Wed, April 20, 2011 7:10:18 AMSubject: Re: Migraines?

I have suffered from migraines since the age of six. I am now 40. I wouldn't wish them on my worst enemy. The auras, vomiting, sensitivity to strong smells. Unfortunately there is no one trigger. The weather, cigarette smoke, sleeping too long, not enough sleep, skipping meals, strong odors in general, weather, I could go on lolBeen on Elavil as a preventive. Used beta blockers, Topomax while it did help messed up my speech and thought processes. Relpax as a reliever.

[Guest guest]

I hope you are only sitting up and not standing up right away, so that you don’t pass out!  The “blindness†is basically dizzyness from not enough blood pressure to pump blood up to your brain fast enough (you probably already knew that).  I was on propanolol for a long time (for my prolapsed mitrol valve), but only about 10mg/day, so maybe that’s why I didn’t have any low-blood pressure or dizzyness problems from it.  Whatever dose you’re taking, if it’s mostly stopping the migraines, then I’d say a little dizzyness is definitely worth it! From: Soundsensitivity [mailto:Soundsensitivity ] On Behalf Of Tammy CaseSent: Thursday, April 21, 2011 8:31 PMTo: Soundsensitivity Subject: Re: Re: Migraines? I was on Maxalt for a long time and it worked wonders! But then my body got used to it and I kept upping the dosage until my dr. finally switched me to Zomig. Which was good timing because it happened at the same time my insurance refused to cover Maxalt.good luck,Tammy and also, I am on propanolol and my blood pressure is very low. So low that I go momentarily blind when getting up after lying down, especially when waking up in the mornings. It takes a good 15 to 30 seconds for me to see anything at all. TammyTo: Soundsensitivity Sent: Wed, April 20, 2011 9:30:24 PMSubject: RE: Re: Migraines? I’ve heard from some others that Imitrex did not work for them, and some where it did work, so I’m guessing it might be due to different causes of migraines or different body/brain chemistries. I’m sorry it didn’t work for you, but I sure hope the Maxalt works!!! From: Soundsensitivity [mailto:Soundsensitivity ] On Behalf Of Mae Sent: Wednesday, April 20, 2011 6:15 PMTo: Soundsensitivity Subject: Re: Re: Migraines? I was on Imitrex and it didn't help me one bit. My doctor today just gave me Maxalt... so next time I have a migraine, I hope it works.---------------------------------------------------------♥ " Hope is more than a word; it's a state of being. It's a firm belief God will come through. Life brings rain... hope turns every drop into the power to bloom like never before. " -Holley Gerth ♥http://www.caringbridge.org/visit/sarahmaeOn Wed, Apr 20, 2011 at 8:03 PM, Cummings wrote: I’m surprised no one has mentioned Imitrex! I have had severe migraines since 4th grade and didn’t even realize they were migraines for a long time because I would get all of the symptoms except the actual headache sometimes. When a doctor finally diagnosed it, he mentioned that often the same chemical imbalance that can cause depression can also cause migraines, so he started me on Elavil as a preventive. For me, that did not really help. I was also taking propanalol, but that was for my prolapsed mitrol valve (to control racing heart, etc.). Eventually I switched to taking Imitrex whenever I felt a migraine coming on, or even right in the middle of a migraine, and it worked – and still does! It would take about 30-45 minutes, and then I felt fine – amazing. The only thing with Imitrex is it can not be taken at the same time as any MAO inhibitor meds (e.g. amitriptylene), and shouldn’t be taken if you have high blood pressure. But if that’s not an issue, it might be worth a try. I wish I could tell you how any of this might relate to 4S, but it’s my son that has 4S, not me (and my son does not get migraines). Still, for those of you with migraines, I wanted to share in case it helps.From: Soundsensitivity [mailto:Soundsensitivity ] On Behalf Of whysendmejunkmailSent: Wednesday, April 20, 2011 5:46 AMTo: Soundsensitivity Subject: RE: Re: Migraines? That's interesting, I am definitely sensitive. I have to take singular and Claritan for chronic hives, I have chronic insomnia, migraines, and allergic to yellow# 5 dye which is in a lot of foods and meds, allergic to aspirin and penicillin. Mitral valve prolapse, heart murmur. I am sure I am missing something. Overactive sensory system is an understatement for me!Sent: April 20, 2011 8:37 AMTo: Soundsensitivity Subject: Re: Re: Migraines? Interesting about the elavil, I used to take elavil for depression, but went off it suddenly unfortunately without titration, ended up with these horrible migraines in my eyes. Ever since that I have had these visual disturbances, shimmering and static in my vision , strait lines look wavy and words jump around on the page. Doctor's couldn't find anything obviously wrong, it is something in my brain, but I have it all the time.I have always had problems with bad sinus headaches with vomiting. And I am very sensitive to changes in barometric pressure, makes me dizzy.I do feel like I have an over active sensory system in general. To: Soundsensitivity Sent: Wed, April 20, 2011 7:10:18 AMSubject: Re: Migraines? I have suffered from migraines since the age of six. I am now 40. I wouldn't wish them on my worst enemy. The auras, vomiting, sensitivity to strong smells. Unfortunately there is no one trigger. The weather, cigarette smoke, sleeping too long, not enough sleep, skipping meals, strong odors in general, weather, I could go on lolBeen on Elavil as a preventive. Used beta blockers, Topomax while it did help messed up my speech and thought processes. Relpax as a reliever.

[Guest guest]

No, I'm used to it now and I don't wait. Which is bad. Because one time, my dad was standing in the bathroom at the sink or something. And I was quite literally blind and didn't expect him to be standing there. I crashed right into him! That was embarrassing.

Tammy

To: Soundsensitivity Sent: Fri, April 22, 2011 3:37:13 PMSubject: RE: Re: Migraines?

I hope you are only sitting up and not standing up right away, so that you don’t pass out! The “blindness†is basically dizzyness from not enough blood pressure to pump blood up to your brain fast enough (you probably already knew that). I was on propanolol for a long time (for my prolapsed mitrol valve), but only about 10mg/day, so maybe that’s why I didn’t have any low-blood pressure or dizzyness problems from it. Whatever dose you’re taking, if it’s mostly stopping the migraines, then I’d say a little dizzyness is definitely worth it!

From: Soundsensitivity [mailto:Soundsensitivity ] On Behalf Of Tammy CaseSent: Thursday, April 21, 2011 8:31 PMTo: Soundsensitivity Subject: Re: Re: Migraines?

I was on Maxalt for a long time and it worked wonders! But then my body got used to it and I kept upping the dosage until my dr. finally switched me to Zomig. Which was good timing because it happened at the same time my insurance refused to cover Maxalt.

good luck,

Tammy

and also, I am on propanolol and my blood pressure is very low. So low that I go momentarily blind when getting up after lying down, especially when waking up in the mornings. It takes a good 15 to 30 seconds for me to see anything at all.

Tammy

To: Soundsensitivity Sent: Wed, April 20, 2011 9:30:24 PMSubject: RE: Re: Migraines?

I’ve heard from some others that Imitrex did not work for them, and some where it did work, so I’m guessing it might be due to different causes of migraines or different body/brain chemistries. I’m sorry it didn’t work for you, but I sure hope the Maxalt works!!!

From: Soundsensitivity [mailto:Soundsensitivity ] On Behalf Of Mae Sent: Wednesday, April 20, 2011 6:15 PMTo: Soundsensitivity Subject: Re: Re: Migraines?

I was on Imitrex and it didn't help me one bit. My doctor today just gave me Maxalt... so next time I have a migraine, I hope it works.

---------------------------------------------------------

♥ "Hope is more than a word; it's a state of being. It's a firm belief God will come through. Life brings rain... hope turns every drop into the power to bloom like never before." -Holley Gerth ♥

http://www.caringbridge.org/visit/sarahmae

I’m surprised no one has mentioned Imitrex! I have had severe migraines since 4th grade and didn’t even realize they were migraines for a long time because I would get all of the symptoms except the actual headache sometimes. When a doctor finally diagnosed it, he mentioned that often the same chemical imbalance that can cause depression can also cause migraines, so he started me on Elavil as a preventive. For me, that did not really help. I was also taking propanalol, but that was for my prolapsed mitrol valve (to control racing heart, etc.). Eventually I switched to taking Imitrex whenever I felt a migraine coming on, or even right in the middle of a migraine, and it worked – and still does! It would take about 30-45 minutes, and then I felt fine – amazing. The only thing with Imitrex is it can not be taken at the same time as any

MAO inhibitor meds (e.g. amitriptylene), and shouldn’t be taken if you have high blood pressure. But if that’s not an issue, it might be worth a try. I wish I could tell you how any of this might relate to 4S, but it’s my son that has 4S, not me (and my son does not get migraines). Still, for those of you with migraines, I wanted to share in case it helps.

From: Soundsensitivity [mailto:Soundsensitivity ] On Behalf Of whysendmejunkmailSent: Wednesday, April 20, 2011 5:46 AMTo: Soundsensitivity Subject: RE: Re: Migraines?

That's interesting, I am definitely sensitive. I have to take singular and Claritan for chronic hives, I have chronic insomnia, migraines, and allergic to yellow# 5 dye which is in a lot of foods and meds, allergic to aspirin and penicillin. Mitral valve prolapse, heart murmur. I am sure I am missing something. Overactive sensory system is an understatement for me!

Sent: April 20, 2011 8:37 AMTo: Soundsensitivity Subject: Re: Re: Migraines?

Interesting about the elavil, I used to take elavil for depression, but went off it suddenly unfortunately without titration, ended up with these horrible migraines in my eyes. Ever since that I have had these visual disturbances, shimmering and static in my vision , strait lines look wavy and words jump around on the page. Doctor's couldn't find anything obviously wrong, it is something in my brain, but I have it all the time.I have always had problems with bad sinus headaches with vomiting. And I am very sensitive to changes in barometric pressure, makes me dizzy.I do feel like I have an over active sensory system in general.

To: Soundsensitivity Sent: Wed, April 20, 2011 7:10:18 AMSubject: Re: Migraines?

I have suffered from migraines since the age of six. I am now 40. I wouldn't wish them on my worst enemy. The auras, vomiting, sensitivity to strong smells. Unfortunately there is no one trigger. The weather, cigarette smoke, sleeping too long, not enough sleep, skipping meals, strong odors in general, weather, I could go on lolBeen on Elavil as a preventive. Used beta blockers, Topomax while it did help messed up my speech and thought processes. Relpax as a reliever.

[Guest guest]

Do you only have that symptom when you have migraines?I ask because that is one of the main symptoms of a condition I have called POTS (postural orthostatic tachycardia syndrome).

http://www.dinet.org/pots_an_overview.htm---------------------------------------------------------

♥

" Hope is more than a word; it's a state of being. It's a firm belief God will come through. Life brings rain... hope turns every drop into the power to bloom like never before. " -Holley Gerth ♥

http://www.caringbridge.org/visit/sarahmae

 

No, I'm used to it now and I don't wait. Which is bad. Because one time, my dad was standing in the bathroom at the sink or something. And I was quite literally blind and didn't expect him to be standing there. I crashed right into him! That was embarrassing.

 

Tammy

To: Soundsensitivity

Sent: Fri, April 22, 2011 3:37:13 PMSubject: RE: Re: Migraines?

 

I hope you are only sitting up and not standing up right away, so that you don’t pass out!  The “blindness†is basically dizzyness from not enough blood pressure to pump blood up to your brain fast enough (you probably already knew that).  I was on propanolol for a long time (for my prolapsed mitrol valve), but only about 10mg/day, so maybe that’s why I didn’t have any low-blood pressure or dizzyness problems from it.  Whatever dose you’re taking, if it’s mostly stopping the migraines, then I’d say a little dizzyness is definitely worth it!

 

From: Soundsensitivity [mailto:Soundsensitivity ] On Behalf Of Tammy Case

Sent: Thursday, April 21, 2011 8:31 PMTo: Soundsensitivity Subject: Re: Re: Migraines?

 

 

 

I was on Maxalt for a long time and it worked wonders! But then my body got used to it and I kept upping the dosage until my dr. finally switched me to Zomig. Which was good timing because it happened at the same time my insurance refused to cover Maxalt.

good luck,

Tammy

 

and also, I am on propanolol and my blood pressure is very low. So low that I go momentarily blind when getting up after lying down, especially when waking up in the mornings. It takes a good 15 to 30 seconds for me to see anything at all.

 

Tammy

To: Soundsensitivity

Sent: Wed, April 20, 2011 9:30:24 PMSubject: RE: Re: Migraines? 

I’ve heard from some others that Imitrex did not work for them, and some where it did work, so I’m guessing it might be due to different causes of migraines or different body/brain chemistries.  I’m sorry it didn’t work for you, but I sure hope the Maxalt works!!!

 

From: Soundsensitivity [mailto:Soundsensitivity ] On Behalf Of Mae

Sent: Wednesday, April 20, 2011 6:15 PMTo: Soundsensitivity Subject: Re: Re: Migraines?

 

 

I was on Imitrex and it didn't help me one bit. My doctor today just gave me Maxalt... so next time I have a migraine, I hope it works.

---------------------------------------------------------

♥ " Hope is more than a word; it's a state of being. It's a firm belief God will come through. Life brings rain... hope turns every drop into the power to bloom like never before. " -Holley Gerth ♥

http://www.caringbridge.org/visit/sarahmae

 

I’m surprised no one has mentioned Imitrex!  I have had severe migraines since 4th grade and didn’t even realize they were migraines for a long time because I would get all of the symptoms except the actual headache sometimes.   When a doctor finally diagnosed it, he mentioned that often the same chemical imbalance that can cause depression can also cause migraines, so he started me on Elavil as a preventive.  For me, that did not really help.  I was also taking propanalol, but that was for my prolapsed mitrol valve (to control racing heart, etc.).    Eventually I switched to taking Imitrex whenever I felt a migraine coming on, or even right in the middle of a migraine, and it worked – and still does!  It would take about 30-45 minutes, and then I felt fine – amazing.  The only thing with Imitrex is it can not be taken at the same time as any

MAO inhibitor meds (e.g. amitriptylene), and shouldn’t be taken if you have high blood pressure.  But if that’s not an issue, it might be worth a try.   I wish I could tell you how any of this might relate to 4S, but it’s my son that has 4S, not me (and my son does not get migraines).  Still, for those of you with migraines, I wanted to share in case it helps.

From: Soundsensitivity [mailto:Soundsensitivity ] On Behalf Of whysendmejunkmail

Sent: Wednesday, April 20, 2011 5:46 AMTo: Soundsensitivity Subject: RE: Re: Migraines?

 

 

That's interesting, I am definitely sensitive. I have to take singular and Claritan for chronic hives, I have chronic insomnia, migraines, and allergic to yellow# 5 dye which is in a lot of foods and meds, allergic to aspirin and penicillin. Mitral valve prolapse, heart murmur. I am sure I am missing something. Overactive sensory system is an understatement for me!

Sent: April 20, 2011 8:37 AMTo: Soundsensitivity

Subject: Re: Re: Migraines? 

 Interesting about the elavil,  I used to take elavil for depression, but went off it suddenly unfortunately without titration, ended up with these horrible migraines in my eyes. Ever since that I have had these visual disturbances, shimmering and static in my vision , strait lines look wavy and words jump around on the page. Doctor's couldn't find anything obviously wrong, it is something in my brain, but I have it all the time.

I have always had problems with bad sinus headaches with vomiting. And I am very sensitive to changes in barometric pressure, makes me dizzy.I do feel like I have an over active sensory system in general.

 

 

To: Soundsensitivity Sent: Wed, April 20, 2011 7:10:18 AMSubject: Re: Migraines?

 

I have suffered from migraines since the age of six. I am now 40. I wouldn't wish them on my worst enemy. The auras, vomiting, sensitivity to strong smells. Unfortunately there is no one trigger. The weather, cigarette smoke, sleeping too long, not enough sleep, skipping meals, strong odors in general, weather, I could go on lol

Been on Elavil as a preventive. Used beta blockers, Topomax while it did help messed up my speech and thought processes. Relpax as a reliever.

 

[Guest guest]

Pots sucks but I hear there are decent treatments for it Sent from my BlackBerry® smartphone on 3Sender: Soundsensitivity Date: Fri, 22 Apr 2011 15:20:55 -0500To: <Soundsensitivity >ReplyTo: Soundsensitivity Subject: Re: Re: Migraines? Do you only have that symptom when you have migraines?I ask because that is one of the main symptoms of a condition I have called POTS (postural orthostatic tachycardia syndrome). http://www.dinet.org/pots_an_overview.htm---------------------------------------------------------♥ " Hope is more than a word; it's a state of being. It's a firm belief God will come through. Life brings rain... hope turns every drop into the power to bloom like never before. " -Holley Gerth ♥http://www.caringbridge.org/visit/sarahmaeOn Fri, Apr 22, 2011 at 3:16 PM, Tammy Case wrote: No, I'm used to it now and I don't wait. Which is bad. Because one time, my dad was standing in the bathroom at the sink or something. And I was quite literally blind and didn't expect him to be standing there. I crashed right into him! That was embarrassing.  TammyTo: Soundsensitivity Sent: Fri, April 22, 2011 3:37:13 PMSubject: RE: Re: Migraines?  I hope you are only sitting up and not standing up right away, so that you don’t pass out!  The “blindness†is basically dizzyness from not enough blood pressure to pump blood up to your brain fast enough (you probably already knew that).  I was on propanolol for a long time (for my prolapsed mitrol valve), but only about 10mg/day, so maybe that’s why I didn’t have any low-blood pressure or dizzyness problems from it.  Whatever dose you’re taking, if it’s mostly stopping the migraines, then I’d say a little dizzyness is definitely worth it! From: Soundsensitivity [mailto:Soundsensitivity ] On Behalf Of Tammy CaseSent: Thursday, April 21, 2011 8:31 PMTo: Soundsensitivity Subject: Re: Re: Migraines?    I was on Maxalt for a long time and it worked wonders! But then my body got used to it and I kept upping the dosage until my dr. finally switched me to Zomig. Which was good timing because it happened at the same time my insurance refused to cover Maxalt.good luck,Tammy and also, I am on propanolol and my blood pressure is very low. So low that I go momentarily blind when getting up after lying down, especially when waking up in the mornings. It takes a good 15 to 30 seconds for me to see anything at all. TammyTo: Soundsensitivity Sent: Wed, April 20, 2011 9:30:24 PMSubject: RE: Re: Migraines?  I’ve heard from some others that Imitrex did not work for them, and some where it did work, so I’m guessing it might be due to different causes of migraines or different body/brain chemistries.  I’m sorry it didn’t work for you, but I sure hope the Maxalt works!!! From: Soundsensitivity [mailto:Soundsensitivity ] On Behalf Of Mae Sent: Wednesday, April 20, 2011 6:15 PMTo: Soundsensitivity Subject: Re: Re: Migraines?   I was on Imitrex and it didn't help me one bit. My doctor today just gave me Maxalt... so next time I have a migraine, I hope it works.---------------------------------------------------------♥ " Hope is more than a word; it's a state of being. It's a firm belief God will come through. Life brings rain... hope turns every drop into the power to bloom like never before. " -Holley Gerth ♥http://www.caringbridge.org/visit/sarahmaeOn Wed, Apr 20, 2011 at 8:03 PM, Cummings wrote:  I’m surprised no one has mentioned Imitrex!  I have had severe migraines since 4th grade and didn’t even realize they were migraines for a long time because I would get all of the symptoms except the actual headache sometimes.   When a doctor finally diagnosed it, he mentioned that often the same chemical imbalance that can cause depression can also cause migraines, so he started me on Elavil as a preventive.  For me, that did not really help.  I was also taking propanalol, but that was for my prolapsed mitrol valve (to control racing heart, etc.).    Eventually I switched to taking Imitrex whenever I felt a migraine coming on, or even right in the middle of a migraine, and it worked – and still does!  It would take about 30-45 minutes, and then I felt fine – amazing.  The only thing with Imitrex is it can not be taken at the same time as anyMAO inhibitor meds (e.g. amitriptylene), and shouldn’t be taken if you have high blood pressure.  But if that’s not an issue, it might be worth a try.   I wish I could tell you how any of this might relate to 4S, but it’s my son that has 4S, not me (and my son does not get migraines).  Still, for those of you with migraines, I wanted to share in case it helps.From: Soundsensitivity [mailto:Soundsensitivity ] On Behalf Of whysendmejunkmailSent: Wednesday, April 20, 2011 5:46 AMTo: Soundsensitivity Subject: RE: Re: Migraines?   That's interesting, I am definitely sensitive. I have to take singular and Claritan for chronic hives, I have chronic insomnia, migraines, and allergic to yellow# 5 dye which is in a lot of foods and meds, allergic to aspirin and penicillin. Mitral valve prolapse, heart murmur. I am sure I am missing something. Overactive sensory system is an understatement for me!Sent: April 20, 2011 8:37 AMTo: Soundsensitivity Subject: Re: Re: Migraines?   Interesting about the elavil,  I used to take elavil for depression, but went off it suddenly unfortunately without titration, ended up with these horrible migraines in my eyes. Ever since that I have had these visual disturbances, shimmering and static in my vision , strait lines look wavy and words jump around on the page. Doctor's couldn't find anything obviously wrong, it is something in my brain, but I have it all the time.I have always had problems with bad sinus headaches with vomiting. And I am very sensitive to changes in barometric pressure, makes me dizzy.I do feel like I have an over active sensory system in general.  To: Soundsensitivity Sent: Wed, April 20, 2011 7:10:18 AMSubject: Re: Migraines?  I have suffered from migraines since the age of six. I am now 40. I wouldn't wish them on my worst enemy. The auras, vomiting, sensitivity to strong smells. Unfortunately there is no one trigger. The weather, cigarette smoke, sleeping too long, not enough sleep, skipping meals, strong odors in general, weather, I could go on lolBeen on Elavil as a preventive. Used beta blockers, Topomax while it did help messed up my speech and thought processes. Relpax as a reliever. 

[Guest guest]

Thanks Sent from my BlackBerry® smartphone on 3Sender: Soundsensitivity Date: Sat, 23 Apr 2011 09:31:43 -0000To: <Soundsensitivity >ReplyTo: Soundsensitivity Subject: Re: Migraines? hi richard,my blind spots are difficult to notice at first until i realize i'm missing parts of what i can see. then it kind of spreads across my visual field. there are some good visualizations on youtube about the visual aura on youtube, e.g. http://www.youtube.com/watch?v=sch2jX6J8B4also try looking up " scintillating scotoma " which means the same thing.but definitely have a chat with a neurologist - it couldn't hurt, regardless of what's going on! mention your 4s too :)best of luck!> > >> >> > I have classic migraines with light/sound sensitivity, disrupted vision and> > blind spots. I don't get them as often as I used to because I take a beta> > blocker every day.> >> > ------------------------------> > *From:* sullivnj > > *To:* Soundsensitivity > > *Sent:* Wed, April 20, 2011 3:21:56 AM> > *Subject:* Migraines?> >> >> >> > hi all,> >> >> > i'm wondering if any of you are plagued with severe headaches or migraines> > - in particular classic migraines (light/sound sensitivity, body numbness,> > disrupted vision and blind spots, etc., sometimes not not always paired with> > bad headaches)? unfortunately, i have them pretty badly.> >> > my neurologist said that his research indicates that people with classic> > migraines have more sensitive/hyperactive/etc. brains that are easily> > triggered by environmental stimuli. importantly, their brains have a larger> > percentage of region devoted to processing stimuli (somatosensory cortex) -> > by 21%.> >> > i've had 4s/misophonia at least as long as i've had migraines and am> > wondering if there's a connection b/n brain hypersensitivity, enlarged> > sensory cortex, and my sensitivity to sounds.> >> > so... any one else out there get migraines?> >> > thanks!> >> > > >>

[Guest guest]

Similar to me also. Once I got one in the car and I could see the road ahead but not the hood of the car. Sometimes the migraine came in my sleep and I was dreaming about the aura and there is was. Sometimes my hand would tingle and that side of my face would go numb then the pain was on the other side, the excruciating pain. Imetrix was a saving grace just because it stopped my migraines dead in their tracks but I noticed after several times that my heart felt like it was in a fist and it stopped working. Every sound was amphlified, light was horrible, smells atrocious. Oliver Sacks wrote a book on migraines and shows pictures of auras which I can't look at with out feeling sick. Interesting enough when I first found this group on 4s, I had to read the blogs in slow dosages on the chewing etc.because I felt the anger, entrapment and helplessness

and it made me anxious and sick. My brain conditioning is so strong. Migraines and misophonis run in my family but as far as I know, I'm the only one with both.

Subject: Re: Migraines?To: Soundsensitivity Date: Friday, April 22, 2011, 11:18 PM

Exactly the same here.One day I was describing this to a work colleague right when it was happening to me. She looked at me a little weirdly until I showed her an article online about "aura" (the visual precursor to a migraine headache). She thought I was kidding about the circle of jagged flashing light that was slowly growing and obscuring my vision. I think I found an artist's impression, like this:http://upload.wikimedia.org/wikipedia/commons/b/b0/Migraine_aura.jpgThat's a pretty reasonable depiction of what I experience, except I am not really aware of the colours.>> For me, distrupted vision usually begins as a blind spot or a spot where what I > am supposed to be seeing is missing. Then an arch shaped aura of flashing light > begins on the outer edge of my vision. During the disrupted vision, I usually > feel fine. Then as my vision begins to clear (usually after about 45 minutes), > the migraine pain begins.

[Guest guest]

No, not really.There are beta blockers and things like that... but nothing takes away all the symptoms. POTS is half of the reason why I am bedridden... if I sit or stand, my legs turn dark purple, sometimes black from the blood pooling in my legs.. and there isn't anything to make that better.

---------------------------------------------------------

♥

" Hope is more than a word; it's a state of being. It's a firm belief God will come through. Life brings rain... hope turns every drop into the power to bloom like never before. " -Holley Gerth ♥

http://www.caringbridge.org/visit/sarahmae

 

Pots sucks but I hear there are decent treatments for it Sent from my BlackBerry® smartphone on 3

Sender: Soundsensitivity

Date: Fri, 22 Apr 2011 15:20:55 -0500To: <Soundsensitivity >ReplyTo: Soundsensitivity

Subject: Re: Re: Migraines?

 

Do you only have that symptom when you have migraines?I ask because that is one of the main symptoms of a condition I have called POTS (postural orthostatic tachycardia syndrome).

http://www.dinet.org/pots_an_overview.htm---------------------------------------------------------

♥

" Hope is more than a word; it's a state of being. It's a firm belief God will come through. Life brings rain... hope turns every drop into the power to bloom like never before. " -Holley Gerth ♥

http://www.caringbridge.org/visit/sarahmae

 

No, I'm used to it now and I don't wait. Which is bad. Because one time, my dad was standing in the bathroom at the sink or something. And I was quite literally blind and didn't expect him to be standing there. I crashed right into him! That was embarrassing.

 

Tammy

To: Soundsensitivity

Sent: Fri, April 22, 2011 3:37:13 PMSubject: RE: Re: Migraines?

 

I hope you are only sitting up and not standing up right away, so that you don’t pass out!  The “blindness†is basically dizzyness from not enough blood pressure to pump blood up to your brain fast enough (you probably already knew that).  I was on propanolol for a long time (for my prolapsed mitrol valve), but only about 10mg/day, so maybe that’s why I didn’t have any low-blood pressure or dizzyness problems from it.  Whatever dose you’re taking, if it’s mostly stopping the migraines, then I’d say a little dizzyness is definitely worth it!

 

From: Soundsensitivity [mailto:Soundsensitivity ] On Behalf Of Tammy Case

Sent: Thursday, April 21, 2011 8:31 PMTo: Soundsensitivity Subject: Re: Re: Migraines?

 

 

 

I was on Maxalt for a long time and it worked wonders! But then my body got used to it and I kept upping the dosage until my dr. finally switched me to Zomig. Which was good timing because it happened at the same time my insurance refused to cover Maxalt.

good luck,

Tammy

 

and also, I am on propanolol and my blood pressure is very low. So low that I go momentarily blind when getting up after lying down, especially when waking up in the mornings. It takes a good 15 to 30 seconds for me to see anything at all.

 

Tammy

To: Soundsensitivity

Sent: Wed, April 20, 2011 9:30:24 PMSubject: RE: Re: Migraines? 

I’ve heard from some others that Imitrex did not work for them, and some where it did work, so I’m guessing it might be due to different causes of migraines or different body/brain chemistries.  I’m sorry it didn’t work for you, but I sure hope the Maxalt works!!!

 

From: Soundsensitivity [mailto:Soundsensitivity ] On Behalf Of Mae

Sent: Wednesday, April 20, 2011 6:15 PMTo: Soundsensitivity Subject: Re: Re: Migraines?

 

 

I was on Imitrex and it didn't help me one bit. My doctor today just gave me Maxalt... so next time I have a migraine, I hope it works.

---------------------------------------------------------

♥ " Hope is more than a word; it's a state of being. It's a firm belief God will come through. Life brings rain... hope turns every drop into the power to bloom like never before. " -Holley Gerth ♥

http://www.caringbridge.org/visit/sarahmae

 

I’m surprised no one has mentioned Imitrex!  I have had severe migraines since 4th grade and didn’t even realize they were migraines for a long time because I would get all of the symptoms except the actual headache sometimes.   When a doctor finally diagnosed it, he mentioned that often the same chemical imbalance that can cause depression can also cause migraines, so he started me on Elavil as a preventive.  For me, that did not really help.  I was also taking propanalol, but that was for my prolapsed mitrol valve (to control racing heart, etc.).    Eventually I switched to taking Imitrex whenever I felt a migraine coming on, or even right in the middle of a migraine, and it worked – and still does!  It would take about 30-45 minutes, and then I felt fine – amazing.  The only thing with Imitrex is it can not be taken at the same time as any

MAO inhibitor meds (e.g. amitriptylene), and shouldn’t be taken if you have high blood pressure.  But if that’s not an issue, it might be worth a try.   I wish I could tell you how any of this might relate to 4S, but it’s my son that has 4S, not me (and my son does not get migraines).  Still, for those of you with migraines, I wanted to share in case it helps.

From: Soundsensitivity [mailto:Soundsensitivity ] On Behalf Of whysendmejunkmail

Sent: Wednesday, April 20, 2011 5:46 AMTo: Soundsensitivity Subject: RE: Re: Migraines?

 

 

That's interesting, I am definitely sensitive. I have to take singular and Claritan for chronic hives, I have chronic insomnia, migraines, and allergic to yellow# 5 dye which is in a lot of foods and meds, allergic to aspirin and penicillin. Mitral valve prolapse, heart murmur. I am sure I am missing something. Overactive sensory system is an understatement for me!

Sent: April 20, 2011 8:37 AMTo: Soundsensitivity

Subject: Re: Re: Migraines? 

 Interesting about the elavil,  I used to take elavil for depression, but went off it suddenly unfortunately without titration, ended up with these horrible migraines in my eyes. Ever since that I have had these visual disturbances, shimmering and static in my vision , strait lines look wavy and words jump around on the page. Doctor's couldn't find anything obviously wrong, it is something in my brain, but I have it all the time.

I have always had problems with bad sinus headaches with vomiting. And I am very sensitive to changes in barometric pressure, makes me dizzy.I do feel like I have an over active sensory system in general.

 

 

To: Soundsensitivity Sent: Wed, April 20, 2011 7:10:18 AMSubject: Re: Migraines?

 

I have suffered from migraines since the age of six. I am now 40. I wouldn't wish them on my worst enemy. The auras, vomiting, sensitivity to strong smells. Unfortunately there is no one trigger. The weather, cigarette smoke, sleeping too long, not enough sleep, skipping meals, strong odors in general, weather, I could go on lol

Been on Elavil as a preventive. Used beta blockers, Topomax while it did help messed up my speech and thought processes. Relpax as a reliever.

 

[Guest guest]

I'm with you there, mine is NMH nueromediated hypertension and with misophonia, migraines and orthostatic intolerence life isn't easy. I'm 80% lying down with my legs up. I don't have the mottling or red legs but very weak. The botox shots in my head mostly have elimnated the migraines thereby helping with the sound sensitivety of everything. Good Luck to you.

I’m surprised no one has mentioned Imitrex! I have had severe migraines since 4th grade and didn’t even realize they were migraines for a long time because I would get all of the symptoms except the actual headache sometimes. When a doctor finally diagnosed it, he mentioned that often the same chemical imbalance that can cause depression can also cause migraines, so he started me on Elavil as a preventive. For me, that did not really help. I was also taking propanalol, but that was for my prolapsed mitrol valve (to control racing heart, etc.). Eventually I switched to taking Imitrex whenever I felt a migraine coming on, or even right in the middle of a migraine, and it worked – and still does! It would take about 30-45 minutes, and then I felt fine – amazing. The only thing with Imitrex is it can not be taken at the same time as any MAO

inhibitor meds (e.g. amitriptylene), and shouldn’t be taken if you have high blood pressure. But if that’s not an issue, it might be worth a try. I wish I could tell you how any of this might relate to 4S, but it’s my son that has 4S, not me (and my son does not get migraines). Still, for those of you with migraines, I wanted to share in case it helps.

From: Soundsensitivity [mailto:Soundsensitivity ] On Behalf Of whysendmejunkmailSent: Wednesday, April 20, 2011 5:46 AMTo: Soundsensitivity Subject: RE: Re: Migraines?

That's interesting, I am definitely sensitive. I have to take singular and Claritan for chronic hives, I have chronic insomnia, migraines, and allergic to yellow# 5 dye which is in a lot of foods and meds, allergic to aspirin and penicillin. Mitral valve prolapse, heart murmur. I am sure I am missing something. Overactive sensory system is an understatement for me!

Sent: April 20, 2011 8:37 AMTo: Soundsensitivity Subject: Re: Re: Migraines?

Interesting about the elavil, I used to take elavil for depression, but went off it suddenly unfortunately without titration, ended up with these horrible migraines in my eyes. Ever since that I have had these visual disturbances, shimmering and static in my vision , strait lines look wavy and words jump around on the page. Doctor's couldn't find anything obviously wrong, it is something in my brain, but I have it all the time.I have always had problems with bad sinus headaches with vomiting. And I am very sensitive to changes in barometric pressure, makes me dizzy.I do feel like I have an over active sensory system in general.

To: Soundsensitivity

Sent: Wed, April 20, 2011 7:10:18 AMSubject: Re: Migraines?

I have suffered from migraines since the age of six. I am now 40. I wouldn't wish them on my worst enemy. The auras, vomiting, sensitivity to strong smells. Unfortunately there is no one trigger. The weather, cigarette smoke, sleeping too long, not enough sleep, skipping meals, strong odors in general, weather, I could go on lolBeen on Elavil as a preventive. Used beta blockers, Topomax while it did help messed up my speech and thought processes. Relpax as a reliever.

[Guest guest]

Oh wow that terrible, hang in there, pots is recognized and treatment will come, medicine is increasing so quickly these daysSent from my BlackBerry® smartphone on 3Sender: Soundsensitivity Date: Sat, 23 Apr 2011 11:58:48 -0500To: <Soundsensitivity >ReplyTo: Soundsensitivity Subject: Re: Re: Migraines? No, not really.There are beta blockers and things like that... but nothing takes away all the symptoms. POTS is half of the reason why I am bedridden... if I sit or stand, my legs turn dark purple, sometimes black from the blood pooling in my legs.. and there isn't anything to make that better.---------------------------------------------------------♥ " Hope is more than a word; it's a state of being. It's a firm belief God will come through. Life brings rain... hope turns every drop into the power to bloom like never before. " -Holley Gerth ♥http://www.caringbridge.org/visit/sarahmaeOn Sat, Apr 23, 2011 at 4:46 AM, wrote: Pots sucks but I hear there are decent treatments for it Sent from my BlackBerry® smartphone on 3Sender: Soundsensitivity Date: Fri, 22 Apr 2011 15:20:55 -0500To: <Soundsensitivity >ReplyTo: Soundsensitivity Subject: Re: Re: Migraines? Do you only have that symptom when you have migraines?I ask because that is one of the main symptoms of a condition I have called POTS (postural orthostatic tachycardia syndrome). http://www.dinet.org/pots_an_overview.htm---------------------------------------------------------♥ " Hope is more than a word; it's a state of being. It's a firm belief God will come through. Life brings rain... hope turns every drop into the power to bloom like never before. " -Holley Gerth ♥http://www.caringbridge.org/visit/sarahmaeOn Fri, Apr 22, 2011 at 3:16 PM, Tammy Case wrote: No, I'm used to it now and I don't wait. Which is bad. Because one time, my dad was standing in the bathroom at the sink or something. And I was quite literally blind and didn't expect him to be standing there. I crashed right into him! That was embarrassing.  TammyTo: Soundsensitivity Sent: Fri, April 22, 2011 3:37:13 PMSubject: RE: Re: Migraines?  I hope you are only sitting up and not standing up right away, so that you don’t pass out!  The “blindness†is basically dizzyness from not enough blood pressure to pump blood up to your brain fast enough (you probably already knew that).  I was on propanolol for a long time (for my prolapsed mitrol valve), but only about 10mg/day, so maybe that’s why I didn’t have any low-blood pressure or dizzyness problems from it.  Whatever dose you’re taking, if it’s mostly stopping the migraines, then I’d say a little dizzyness is definitely worth it! From: Soundsensitivity [mailto:Soundsensitivity ] On Behalf Of Tammy CaseSent: Thursday, April 21, 2011 8:31 PMTo: Soundsensitivity Subject: Re: Re: Migraines?    I was on Maxalt for a long time and it worked wonders! But then my body got used to it and I kept upping the dosage until my dr. finally switched me to Zomig. Which was good timing because it happened at the same time my insurance refused to cover Maxalt.good luck,Tammy and also, I am on propanolol and my blood pressure is very low. So low that I go momentarily blind when getting up after lying down, especially when waking up in the mornings. It takes a good 15 to 30 seconds for me to see anything at all. TammyTo: Soundsensitivity Sent: Wed, April 20, 2011 9:30:24 PMSubject: RE: Re: Migraines?  I’ve heard from some others that Imitrex did not work for them, and some where it did work, so I’m guessing it might be due to different causes of migraines or different body/brain chemistries.  I’m sorry it didn’t work for you, but I sure hope the Maxalt works!!! From: Soundsensitivity [mailto:Soundsensitivity ] On Behalf Of Mae Sent: Wednesday, April 20, 2011 6:15 PMTo: Soundsensitivity Subject: Re: Re: Migraines?   I was on Imitrex and it didn't help me one bit. My doctor today just gave me Maxalt... so next time I have a migraine, I hope it works.---------------------------------------------------------♥ " Hope is more than a word; it's a state of being. It's a firm belief God will come through. Life brings rain... hope turns every drop into the power to bloom like never before. " -Holley Gerth ♥http://www.caringbridge.org/visit/sarahmaeOn Wed, Apr 20, 2011 at 8:03 PM, Cummings wrote:  I’m surprised no one has mentioned Imitrex!  I have had severe migraines since 4th grade and didn’t even realize they were migraines for a long time because I would get all of the symptoms except the actual headache sometimes.   When a doctor finally diagnosed it, he mentioned that often the same chemical imbalance that can cause depression can also cause migraines, so he started me on Elavil as a preventive.  For me, that did not really help.  I was also taking propanalol, but that was for my prolapsed mitrol valve (to control racing heart, etc.).    Eventually I switched to taking Imitrex whenever I felt a migraine coming on, or even right in the middle of a migraine, and it worked – and still does!  It would take about 30-45 minutes, and then I felt fine – amazing.  The only thing with Imitrex is it can not be taken at the same time as anyMAO inhibitor meds (e.g. amitriptylene), and shouldn’t be taken if you have high blood pressure.  But if that’s not an issue, it might be worth a try.   I wish I could tell you how any of this might relate to 4S, but it’s my son that has 4S, not me (and my son does not get migraines).  Still, for those of you with migraines, I wanted to share in case it helps.From: Soundsensitivity [mailto:Soundsensitivity ] On Behalf Of whysendmejunkmailSent: Wednesday, April 20, 2011 5:46 AMTo: Soundsensitivity Subject: RE: Re: Migraines?   That's interesting, I am definitely sensitive. I have to take singular and Claritan for chronic hives, I have chronic insomnia, migraines, and allergic to yellow# 5 dye which is in a lot of foods and meds, allergic to aspirin and penicillin. Mitral valve prolapse, heart murmur. I am sure I am missing something. Overactive sensory system is an understatement for me!Sent: April 20, 2011 8:37 AMTo: Soundsensitivity Subject: Re: Re: Migraines?   Interesting about the elavil,  I used to take elavil for depression, but went off it suddenly unfortunately without titration, ended up with these horrible migraines in my eyes. Ever since that I have had these visual disturbances, shimmering and static in my vision , strait lines look wavy and words jump around on the page. Doctor's couldn't find anything obviously wrong, it is something in my brain, but I have it all the time.I have always had problems with bad sinus headaches with vomiting. And I am very sensitive to changes in barometric pressure, makes me dizzy.I do feel like I have an over active sensory system in general.  To: Soundsensitivity Sent: Wed, April 20, 2011 7:10:18 AMSubject: Re: Migraines?  I have suffered from migraines since the age of six. I am now 40. I wouldn't wish them on my worst enemy. The auras, vomiting, sensitivity to strong smells. Unfortunately there is no one trigger. The weather, cigarette smoke, sleeping too long, not enough sleep, skipping meals, strong odors in general, weather, I could go on lolBeen on Elavil as a preventive. Used beta blockers, Topomax while it did help messed up my speech and thought processes. Relpax as a reliever.