Re: Re: Diet & Neurology Questions

[Guest guest]

Joanne,

when you say that you eat lots of oils, how do you do that? do you take

them as supplements or cook with them or just down them? I have to get

started on the low carb diet again. I had done it years ago and lost 40

pounds in a relatively short amount of time and felt pretty energetic. I

just find those first few days to be real difficult to kick the carb habit.

I usually feel awful the first week that I go low carb--I think that is

because my body is dealing with getting rid of toxins and candida fairly

quickly. Would you mind telling me what you might eat in a day? I know you

listed foods, but I would like an example of what one day looks like on this

type of diet.

thanks,

nne

On Sat, May 29, 2010 at 7:42 AM, Joanne Ford wrote:

>

>

> When i started low carb eating and i found my symptoms improvedI realised

> that hypoglycemia (irractic blood sugar) could be the original trigger of

> the rollercoaster that a fibro body goes through each day. Later I cut out

> all wheat and found my IBS improved. I cut back o dairy and found I lost

> weight more easily, I icreased my oils, particularly coconut oil and found

> my candida cleared up

>

> As I removed more and more processed foods and replaced them wiith natural

> (where possible orgainic) very low carb foods i found my foggy head

> clearing.

>

> codliver oil helps me with my joint pain, and i believe, my brain function

>

> evening primrose helps me with my hormones

>

> coconut oil gives me energy and balances my candida

>

> All, oils lower my appitite, so I rarely binge nowadays

>

> Any way for me the secret is, in this order, very low carb natural foods

> such as meat fish eggs vegetables nuts and seeds, along with plenty of oils,

> especially coconut oil, lots of water with herbal teas, no wheat products, a

> small amount of very low dairy, ie butter (is the best) then a little

> cheese, cream or greek yougarts. I can have the occasional treat, sugar free

> jelly, maybe blueberries or strawberries, but generally I do not crave sweat

> stuff now, I enjoy eating the foods that heal

>

> There are neurologists that do know carbs have an impact onn the nervous

> system, see Ketogenic diet for epilepsy. But it seems they have not yet

> clicked a similar process is in play with Fibromyalgia. At least this is my

> view

>

> Current research is looking at how epilepsy medication cann be used for

> Fibromyalgia

>

> And current research is looking at how Parkinsons medication can be used

> for Fibromyalgia

>

> And current research is looking at how ketogenic diet for epilepsy can be

> used for Parkinsons

>

> Is anybody seeing the same pattern i am seeing

>

> Love Joanne

>

>

>

> ________________________________

> From: cmoralez_ak <cmoralez_ak@... <cmoralez_ak%40yahoo.com>>

> To: fibromyalgiacured <fibromyalgiacured%40yahoogroups.com>

> Sent: Fri, 28 May, 2010 21:54:40

>

> Subject: Re: Diet & Neurology Questions

>

>

>

>

> Joanne (and all who have responded) --

>

> I appreciate the guidance. Candida is one of those things I think I have

> struggled with forever, more successful sometimes than others. I have tried

> increasing the fresh fruits & veggies, while cutting out more carbs, sweets,

> etc., but seemed to quickly put on generous pounds and shot up my

> cholesterol!! PH testing and starting the alkaline stuff did not last either

> - my Ph kept coming up as normal so in many respects, I guess it seemed like

> I was trying to do something that was unnecessary.

>

> I know that several years ago, when I was in charge of groceries, shopping,

> and pre-FM, I put my two teens left at home and myself on a celiac's diet

> and definitely felt better - we all three did, but it became too cumbersome

> and constant battle to stay on and eventually abandoned. I have looked up

> the Bee diet and information I want to try it for sure. As a younger person,

> low carb/high protein diets were the ONLY thing that wordked for me and

> seems to be what you are suggesting -- which I find intriguing at best,

> since it is long before FM.

>

> As for the neuro and dopamine side of FM, the research I have done has me

> convinced that the belief that it is a disease/problem of the central

> nervous system clicks. That's why I thought that seeing a neurologist might

> be good. It seems as if every dx they add to the list can be traced back to

> CNS. It is disappointing to hear, however, that FM folks here have not had a

> positive experience w/neuros!

>

> Thanks so much for all the info and support.

>

> Cheryl M (AK)

>

> > Hi Cheryl

> >

> > from reading your message I am wondering if the diet you are refering to

> is the non-processed, low carb, anti-candida diet most of us talk about on

> here

> >

> > you asked how we worked it out

> >

> > well to cut a long story short what happend was several of us discovered

> certain aspects of this diet and then, by coinsidence we joined this group.

> we each shared our findings and over time as we adjusted our own regimes we

> found our symptoms imporving

> >

> > Now, obviously I cannot share everybodies findings here, but I can tell

> you a little about my own experience

> >

> > As you probably already know, many Foibros are over weight, and in this

> aspect I am no different.

> >

> > for years my doctor told me to eat low fat, and I did and on and on the

> pounds went. One day somebody suggested the Atkins diet for me. reluctantly

> I tried it. bit to my amazement not only did I loose weight my symptoms

> improved

> >

> > Anyway, this is all a long story in itself, but to cut that story short,

> basically in any one day I can only eat up to 35g of carbs

> >

> > Anyway, I decided to join this site to find out if anybody else was

> following a low carb diet to help themselves with there illness. I found

> that quite a few people were, but I also found out some new stuff

> >

> > the people here that were following the low carb diet had modified it.

> they had discovered that by removing 99% of processed foods out of their

> diet their symptoms had improved further

> >

> > I decided to copy them, and to my amazement, i found my symptoms improved

> further

> >

> > Later somebody introduced me to the Bees, Candida healing naturally site.

> to my amazement the people on there were also promoting a low carb diet for

> healing, but there was a lot more addition information. they suggested

> eating coconut oil and other stuff to fight off the canidia. I tried this,

> and I was amazed, my candida cleared up to

> >

> > now the latest thing I am looking into (this is very much my own thing,

> not so much a thing commonly shared on this site) is the low dopamine theory

> of fibromyalgia.

> >

> > I am convinced that this theory is true.

> >

> > I do not have time right now to explain all this but there is a lot on

> the internet

> >

> > Anyway, the latest research is looking at how parkinsons medication

> improves Fibro.

> >

> > MY DAD HAS PARKINSONS Interesting!!!!!

> >

> > anyway I have looked into this a lot, and guess what. new research is

> looking at how Ketogenic diets can help parklinsons

> >

> > Ketogenic diets are very very very strict low carb diets that are

> normally used for epilepsy to help epileptics balance their brain neurons. i

> really do not have time to go into all this now but if you do look up

> ketogenic diets for epilepsy, you will find that the best food for them is

> COCONUT OIL............ Wow

> >

> > anyway, to cut a long story short I am in the proocess of making my diet

> more ketogenic. This is not easy, and to be honest I do not think newcomers

> need to go this far. This is something you could do later, like me, once you

> have masrtered the Atkins diet, non-processed, Anti-condida thing. but I can

> tell you now this Ketogenic diet thing is improving my symptoms further

> >

> > also, my dad has just gone on it 10 weeks ago, and yes you have guressed

> it, he is much improved

> >

> > anyway, right now a lot of this perhaps seems hard, or does not make

> sense. All I can suggest is that you visit the Bees site and get the Atkins

> book. After that just keep coming here and the people here will guide you

> >

> > all I can tell you is this You are in the right place

> >

> > Love Joanne

> >

> > ________________________________

> >

> > To: fibromyalgiacured <fibromyalgiacured%40yahoogroups.com>

> > Sent: Fri, 28 May, 2010 0:17:25

> > Subject: Diet & Neurology Questions

> >

> > Â

> > First, reading about the strict diet that seems to be working would be

> wonderful!! Is it something that should be Placed in Files or something? I

> would love to get more info on the diet plan, etc. Curiously, how did you

> find out about this? I have been wondering about going to a nutritionist or

> something. How long did it take you to get under control with the diet?

> >

> > Second, Has anyone felt the need, or actually gone to see, a Neurologist?

> Neurotherapy? Neuro-Psych? Did you get any benefit or answers? Positive

> experience? I am currently working with my PCP to get a neurology consult

> for two primary reasons. One is that it seems as if every time they add to

> my dx list - it is either somehow related to brain stem and/or Central

> Nervous System. The other reason, if I am to be honest with myself, is that

> if there is anything going on that can be corrected, cured,

> healed....helpful in making it a little easier to treat & manage this body

> of mine! Maybe it would eliminate at least one small aggravation.

> >

> > Third, the pulmonologist and the rheumatologist I saw in early December

> both/jointly recommended that I have complete neuro and cardiac work ups

> completed and pointed out 2-3 reasons why. My PCP just kind of blew it off

> when he read the letter! My PCP is nice, we work well together, but seems to

> be out more than in the office and I seem to have to research, teach myself,

> try to figure things out, then take into w/me to the appt to educate him.

> He's good at that point about trying new things, as long as it is not too

> risky and/or not likely to come back on him!! Sad, I know.

> >

> > Any response -- group or directly to my email if you prefer.)

> >

> > Thank you for all the help you folks provide through posting. I do not

> often have an oppty to get on the list and browse much, but whenever I do, I

> always find help!!

> >

> > Sincerely,

> >

> > Cheryl (in Alaska!)

> >

> >