Introduction

[Guest guest]

Sorry you have to be on the list but know you will find a LOT of empathy &

help. I am not on every day so you probably have had many replies to your

questions about POC..it is Pain On Contact.. LHend12826@...

[Guest guest]

Hi, Sheila,

So good to hear from you! You have been through a lot since you left

for New York. Congratuations on your remission!

I myself drink a lot of milk and eat yogurt and I'm wondering if that

affects my vulvar problems. It gives me something to experiment with.

Thank you for the suggestion.

I hope that you continue to feel better and to find love in a

relationship with someone who loves you back and is willing to show

you that love physically. I know how lonely it can be without that.

God bless you,

Olivia

ollie@...

Breezy300@... wrote:

>

> From: Breezy300@...

>

> Let me begin this by saying I have found some relief and even if you skip the

> details of the introduction, you may want to read on to the part where I start

> having sex . . .

>

> Hi, Everyone! I subscribed to this list in digest form so I have yet to

> receive any email, but I'm sure some of you were on Dr Glazer's list and may

> remember me. For those of you who don't, I suffer from vulvar vestibulitis--

> pain primarily on contact. My condition started when I was only 20 years old

> (I'm now 32), after taking a course of antibiotics for a simple vaginal

> infection. I feel fairly certain that the antibiotics triggered something in

> me which led to the vulvar vestibulitis. Even though I immediately returned

> to the doctor who prescribed the antibiotics for the BV, I was told that I was

> physically fine. After 9 years and countless doctors and nurse practitioners,

> I was FINALLY diagnosed. Like many of you, I believed that diagnosis would

> lead to my healing but it did not. I tried a tricyclic antidepressant to help

> my nerve endings " fire " correctly. When that didn't work, I was given a

> cortisteroid cream. When that failed, I was told that the next step would be

> surgery to remove the vestibule. I never went back to that doctor.

>

> Anyway, some of you may know that I had been in a fairly sexless relationship

> for the last 7 years. No, the relationship was NOT sexless b/c of my VV. My

> boyfriend at that time simply was not very interested in sex. However, I'm

> sure that my having VV enabled me to stay in a somewhat unhealthy relationship

> for as long as I did; similarly the sexless relationship helped me to ignore

> the condition because it does not hurt when I'm not having sex. But finally I

> faced that something had to change, so I left my boyfriend and went to NYC.

>

> Okay, here is the interesting part. In NYC, I became involved with a man.

> When we first attempted intercourse, the pain was excruciating. But I wanted

> to have intercourse so badly that I bit down and endured it. For the next

> week or so, every time we would have intercourse it would hurt initially, but

> once we got into it the pain seemed to subside enough that it was bearable . .

> .

>

> Well, the following week the pain seemed to be less right from the beginning

> of sex. And then the pain stopped all together!! This is WITHOUT the aid of

> any medicines or even lubricants! It appeared to be a spontaneous remission

> (which, according t.o some medical journals, do not really occur). Well, I'm

> one of these people who always says we should keep a food journal, but never

> does. However, I'll tell you the one thing that drastically changed in my

> diet while I was in NYC. Milk. I've been eating cereal with skim milk every

> morning for about as long as I can remember. I also drink milk at night

> sometimes. But in NYC, I didn't have access to a refrigerator, so I couldn't

> store milk. Instead I found myself eating muffins or eggs (at restaurants)

> for breakfast. I don't know for sure whether there is a dairy connection for

> me (I ate a fair amount of cheese), but something certainly happened!!

>

> I am now in Hawaii (and I'm SO SORRY for the people I was supposed to contact

> in NYC but didn't-- I was just dealing with too much at once), and I haven't

> had intercourse in about a week. Actually, I was suddenly having intercourse

> so frequently that I developed a UTI and had to take another course of

> antibiotics, which terrified me since I think that is the cause of all this to

> begin with. Anyway, I haven't really had sex since then, but my new man will

> be meeting me out here soon so I'll be able to find out where I'm at then.

> I'll let you all know how it goes!

>

> I should mention that as a child, I had an allergy to dairy products. I loved

> milk so much, though, that I kept sneaking it and my allergy seemed to clear

> up on its own. But now I wonder if it's just been manifesting itself in other

> ways. But, as I said, I don't know for sure whether dairy is the connection

> or not.

>

> Sorry this is so long and I hope none of it's too graphic. Looking forward to

> hearing from you all soon.

>

> Sheila

> Breezy300@...

[Guest guest]

Joan,

Hi, I have a very good doctor in Southboro , Mass. that diagnosed my VV. She

is an OB GYN familiar with VV. She has always been willing to listen to me

and to try most everything I have requested. I am in peri menopause and she

even agreed with the theory of using natural progesterone for heavy periods.

If you would like her number, she also has an office in Natick, I would be

happy to send it to you. She may know of someone in the Boston area that you

could go to.

Take care

Darlene

[Guest guest]

Hi Kay,

I am so happy that you joined this list. To everyone else on the list, Kay

is a dear friend of mine who I met online in another list. She encouraged me

to switch to her doctor, who she described as the top specialist in the area

for these types of problems. And I thought I was going to the top

specialist, who was grouchy, uncaring, and frustrating.

I am so glad that I switched doctors and I never would have heard of Dr. G if

it weren't for Kay. We all can learn so much from eachother!

Welcome Kay!

Sandi

[Guest guest]

Welcome to the list ! You'll find a lot of help here. When you have

a chance, we'd like to hear your story. Thanks.

Kathy

[Guest guest]

Welcome to the list ! You'll find a lot of help here. When you have

a chance, we'd like to hear your story. Thanks.

Kathy

[Guest guest]

take me off you list

limdahsrmn@...

no more email plaease

[Guest guest]

Hi

The question is why are you crashing. Are you taking any other diabetes

meds? Meds like diabeta or micronase make your body produce more insulin

and can make you go too low. I was on them at the beginning and quickly had

to come off, couldn't keep my sugars up! sheesh :/

Do you have a bedtime snack? Are you eating too little in an effort to lose

weight? Something is making you crash like that. Are you sure it is your

sugars? Do you have a meter and check? I had symptoms like that when I was

taking too high a dose of a blood pressure reducing drug (verapamil).. If

you have high blood pressure and begin to lose weight and eat better, you

may need to lower the dose.

Any other meds that you're taking?

Nothing like a good mystery

Metformin doesn't usually cause lows because its effect is to lessen your

cells resistance rather than cause you to create more insulin. However it

can indeed do a number on your gastrointestinal tract!! Have you thought of

Actos? It does the same thing but without the GI problems, also without

harming the liver.

Meenie

> Hello list:

> I'm a 50 year old Canadian woman, somewhat overweight (about 30 lbs), who

> was diagnosed as diabetic two years ago. I have metformin in the kitchen

> cupboard but have yet to use it. I control my sugar levels by a higher

> protein, lower carb diet, but my sugar levels are not stable by any

stretch

> of the imagination. I also suffer from crashes, usually at night, when I

> wake up, heart pounding, sweating and in an awful panic.

> My question is this...if I go on the medication will the crashes be

> eliminated? I have done some research on the net and am doubful that the

> meds will help. I hestitate to go on yet another medication, as I also

have

> irritable bowel syndrome, and don't want to aggravate my bowel, as well as

> having taken hypertension medication for about 10 years already.

> I still manage to lead a functional, fulfilling life. I enjoy shovelling

> snow (which we have a lot of today!!) and swimming and walking in the

> summer. Generally speaking I am a fit person, except that the extra weight

> refuses to come off and stay off.

>

> Thanks

> Taya

[Guest guest]

Hi again,

> The question is why are you crashing. Are you taking any other diabetes

> meds?

no

> Do you have a bedtime snack?

no, never think about it, sometimes I have a few potato chips but only about

5 and I can't eat any more.

>Are you eating too little in an effort to lose weight?

no, I'm never hungry. My sugars are ususally a little high before bedtime

(about 7.5).

>Are you sure it is your sugars? Do you have a meter and check?

yes, I do have a metre and I do check, and a few sips of orange juice will

stop the crash.

>I had symptoms like that when I was taking too high a dose of a blood

pressure reducing drug (verapamil).. If

> you have high blood pressure and begin to lose weight and eat better, you

may need to lower the dose.

can't do that, my dose is quite low already. I can't do without, but my low

doses do keep the pressure under control. I wish I would loose weight, it

would solve all my medical problems, but I don't eat a lot at one time ever,

and certainly not enough to maintain my body weight, but it simply will not

come off. Even exercise will not reduce my weight, but I have great muscular

tone, especially in my legs!

> Any other meds that you're taking?

no

> Nothing like a good mystery

one I can't seem to solve. My dr. has said stress is a major factor in my

case, but it's a vicious circle, crashes cause me great stress, and then I

crash more often. When my life is very quiet and boring (which doesn't

happen too often with three teens in the house and/or my own business), then

they occur less frequently.

> Metformin doesn't usually cause lows because its effect is to lessen your

> cells resistance rather than cause you to create more insulin. However it

> can indeed do a number on your gastrointestinal tract!! Have you thought

of

> Actos? It does the same thing but without the GI problems, also without

> harming the liver.

Will ask my dr. Thanks Meenie!

Taya

[Guest guest]

Hi again, Thea

You are so very right about stress!! It can do a real number on your sugars.

<sigh>

You say you don't eat much yet state your sugars are high at bedtime.

If you eat too little, your body sees it as a famine and goes into a

starvation mode - your liver will store all the glucose it can and as soon

as it sees your bg's lowering, it dumps the glucose in. This could be why

your bg's are high before bedtime even though you haven't eaten much. Then,

you go to bed and sleep ... as your bg begins to lower, your liver has

already used up it's stores and can't kick any in when you need it, so you

crash.

What do you eat during the day? Maybe you need to have more protein and

less carbs to stabilize your sugars and be sure to have a protein snack

before bed to help keep them stable.

When you crash, then have some high sugar thing to bring them up (like

orange juice) you are keeping y our bg's unstablized. The only way to get

them under control is to try and stabalize them and keep them fairly

constant. When your body is constantly trying to kick in extra insulin for

the highs and extra glucose from the liver for lows, your bg's will continue

to swing wildly.

Have you read Atkins " New Diet Revolution " or Eades " Protein Power " or Dr

Bernstein's " Diabetes Solution " ? They're real eye openers in the way your

body reacts to the highs and lows of glucose swings.

Meenie

[Guest guest]

Hi Debbie,

Welcome to the group

The answer to your question is yes, you can be hypoglycemic and have sugar

show up in your urine. This is the very reason that testing urine instead

of blood isn't a very accurate method

You may have been at 60 when they tested you, but you had probably been much

higher earlier.

Hypoglycemia is usually the first sign that your body is having trouble

handling sugar and diabetes is the next stop in the road.

Here is what is probably going on in your body... You've become insulin

resistant (ie: Type II diabetic) At first this doesn't show up when you're

tested because your body works hard to overcome it. The way it does this is

by making more and more insulin to overcome the resistance. Soon your body

has to make so much insulin to break down your cells resistance that, once

all that insulin does make its way in, you have a low. This is the stage

when you are having lows. It may or may not send you to the doctor. The

lows usually occur after eating a high carb meal, particularly a breakfast

of something like pancakes or a big ole bowl of oatmeal. The sugars in the

meal (and remember, carbs break down into sugar) cause your blood sugars to

peak fairly high, your body responds with a very large amount of insulin and

boom a couple of hours after eating you feel weak, dizzy/light-headed,

tense, mood swings to BAD. You go eat something and kaboom - you feel

better. So you learn to eat more often. You gain weight because your body

keeps telling you you're hungry - even if you just ate a big meal you are

soon cruisin the fridge looking for.... something. You have cravings.

They're a result of excess insulin.

As you gain weight you become more and more insulin resistant so the cycle

gets worse and worse til finally it shows up at the doctor's.

If you don't have a meter, you need to get one. Read " Protein Power " or

" Atkins New Diet Revolution " or Dr Bernstein's " Diabetes Solution " . These

books will explain in great detail why you feel the way you do and why your

body has been behaving the way it has. Real eye opening reading.

Meenie

> Hello Everyone,

> My name is Debbie and I live in Alabama. I have been having blood sugar

problems for about three years now, but my doctor always told me I was

hypoglycemic.

> In the last year, however, my blood sugar has been going up and down and I

have had a really hard time keeping it level. I try to eat right, drink

plenty of water, and walk one mile a day.

> I went to my doctor Monday and when they did the urinanalysis there was a

large amount of glucose in it. When the nurse tested my blood sugar it was

64. The doctor then tested me for diabetes. I am just a little confused how

there could be that much glucose in my urine and my blood sugar be low. Do

any of you know if hypoglycemics have glucose in their urine?

> I am supposed to go back next week for the results. I just have all of

these questions and I am driving myself crazy trying to get answers.

> Thanks in advance for any help you can give me.

> Debbie

>

>

>

>

>

[Guest guest]

Debbie...

Please heed my warning... I have been through this too. I was going to a

family Dr. at first it seemed that I was not diabetic when all along my

kidneys compensated for the foods I ate. I ate a fairly healthy diet and

had no problems.. if I ate more junk it probably would have manifested

sooner. My kidneys ended up in a condition called pylonephritus... I passed

so much sugar that the kidneys became infected from this. This is when I

was first diagnosed with diabetes. If you are having large sugar amounts in

your urine your kidneys can be damaged.. please make sure you go to an

Endochrinologist to get yourself checked out.

Introduction

Hello Everyone,

My name is Debbie and I live in Alabama. I have been having blood sugar

problems for about three years now, but my doctor always told me I was

hypoglycemic.

In the last year, however, my blood sugar has been going up and down and I

have had a really hard time keeping it level. I try to eat right, drink

plenty of water, and walk one mile a day.

I went to my doctor Monday and when they did the urinanalysis there was a

large amount of glucose in it. When the nurse tested my blood sugar it was

64. The doctor then tested me for diabetes. I am just a little confused how

there could be that much glucose in my urine and my blood sugar be low. Do

any of you know if hypoglycemics have glucose in their urine?

I am supposed to go back next week for the results. I just have all of

these questions and I am driving myself crazy trying to get answers.

Thanks in advance for any help you can give me.

Debbie

[Guest guest]

Meenie,

Thanks so much for the information. I have gone through the exact scenario that you described this morning after breakfast. I do have a monitor and keep my sugar levels checked when I feel strange. Unfortunately, when I feel dizzy the levels are usually low. My doctor did do a glycosylated hemoglobin test on me and said that he would have the results next week.

I have the book Dr. Bernstein's Diabetes Solution, and so much of the information contained in it sounds like what I am experiencing. I am so thankful for a list like this that I can talk to people who are going through the same thing.

I will let you all know what the doctor says next week.

Debbie

[Guest guest]

,

Thanks for the information. I am supposed to see my doctor again next week.

If the diagnosis is diabetes, I already have an endocrinologist that I can begin seeing. However, if the test doesn't show diabetes the endocrinologist will not take me without a referral.

I will let you all know what the doctor says next week. Thanks so much for your help.

Debbie

[Guest guest]

, thank you for posting this. You've talked about things I couldn't quite talk about yet.

{{{{{{{{Hugs}}}}}}}} I'm sorry for what has been taken from you.

Hugs,

Challis

Ive not responded in a long time...but this hit home with me...I also get them weird feelings...like my brain or behind my eyes gets a shock type feeling a spin a RUSH....like i lose a few seconds of time with it...and i must shake it off after...it strains the head or eyes a little...its a fast rush or electic buzz feeling....when im driving and it happens i get scared...its like them few seconds i lose...anything could happen...i dont like that feeling...takes me a few seconds or so after to get myself pulled together...ok, just wanted to say or i guess this bothers me so im replying...I also have had this pain behind the back of my head in the center under the bone...that makes my eyes hurt at times too...yet its a headache at the back of my head under the bone...its been worse since the spinal tap several weeks ago...almost constant...I also want to respond on the sex drive...I lost feeling there...and the orgasms feel different and not the same...they take longer...and that sexual feeling is harder to get and maintain....it just dont feel the same anymore....also my personality has changed...freinds of mine dont know me...i know I have changed too...I cant think the same ot talk the same im not funny or spontaneous...just to discus the basics I must or do all I must in a day to get by is too much...so why should i waste energy to small talk...I feel drunk all the time...Im depressed wondering if I ever will feel like the old me again...I miss her...I was a fun silly spontaneous out going person...now Im quiet...I like to sit alone...Im a home body, no more out with friends....home is where I feel safe and it requires less energy...I save all I can to be with my children at their sports and school activities...I feel so lost inside my brain...I find what Im looking for eventually mosttimes...but my memory scares me...and the internal tremors...thanks for listening to me vent...I love you guys and gals... Mordan

[Guest guest]

Hi Kerri,

My name is Challis and I'm here because of my Mother. She has MS and it seems I may as well. I've spent years not talking of my symptoms and just ignoring them as best I could. This was mostly due to my having no insurance. It's frustrating not being able to run tests you need.

I have begun the process and am hoping for something. I may not always have the insurance, but I'm ready for a dx if I can get one so am going through the testing while I can.

I hope you find something here that helps.

Challis

My name is Kerri. I am 32 and live in Texas. I don't know for sure if I have MS, but the Dr thinks so. I know the next step is to go to a neurologist, but I just don't have the money to do that and don't have insurance. I am hoping to get more information and some ideas of things I can do to help myself. In 2000 I started having muscle spasms. My husband thought I was having a seizure and I was pretty confused for a couple of days. I was admitted to the hospital and stayed there for 3 days and they ran and EEG and an MRI but everything was normal then. I was discharged and would have sporadic episodes of jerking movements (and still do sometimes) to my right arm and leg.In 2002, right after a hysterectomy, I had severe pain to my right eye with any movement. I went to a dr then and he wasn't concerned and it went away after about a month.In 2003 I again experienced pain in my right eye with movement but this time it was accompanied by a blind spot in the middle of my field of vision. I went to a neuro-opthamologist. At the time I was involved in a migrain medication study and he though that the blind spot was caused by damage to the optic nerve and that it 'might' have been caused by a severe migraine that I had that lasted over a month. These symptoms lasted about 2 months and then the vision started coming back, but still isn't 100% in that eye. In January of this year i was hospitalized for severe weekness and numbness to my lower extremities and my arms from about mid-forearm down. I was really week and could barely walk. They did another MRI in the hospital and found a lesion on my brain, but I don't know naythign else because the primary MD who was my admitting dr refered it to a neurologist who never followed up with me. I didn't have insurance so I couldn't go once I got out of the hospital. This Dr first brought up the possibility that it might be MS but I wasn't able to follow up. A PA I knew at a hospital where I worked out of (as a paramedic on the ambulance) suggested that it might be edema and told me to go on a low sodium diet (less that 1000 mg sodium a day) and when I did the symptoms were releived after about a month.Almost 3 weeks ago I woke up one morning with numbness to the left side of my face. At first the Dr thought it was a sinus infection and gave me an antibiotic and decongestant. There was no relief and he started reviewing in more detail my medical history and considering this episode and the above listed episodes, he concluded that it is probably MS but wants me to go to a neurologist to confirm. I just can't do that right now so until I can get insurance I am looking for information and maybe some therapies I can try at home that may relieve symptoms.Any thought would be greatly appreciated.ThanksKerri

[Guest guest]

Hi Kerri,

Do NOT fear... if it is ms you will handle it. Go to

www.copingandprevailing.com Send me your mailing address andI will send to

you. There is a lot that you can do to help yourself.

Regards,

Tom

Introduction

>

>

> My name is Kerri. I am 32 and live in Texas. I don't know for sure

> if I have MS, but the Dr thinks so. I know the next step is to go

> to a neurologist, but I just don't have the money to do that and

> don't have insurance. I am hoping to get more information and some

> ideas of things I can do to help myself.

>

> In 2000 I started having muscle spasms. My husband thought I was

> having a seizure and I was pretty confused for a couple of days. I

> was admitted to the hospital and stayed there for 3 days and they

> ran and EEG and an MRI but everything was normal then. I was

> discharged and would have sporadic episodes of jerking movements

> (and still do sometimes) to my right arm and leg.

>

> In 2002, right after a hysterectomy, I had severe pain to my right

> eye with any movement. I went to a dr then and he wasn't concerned

> and it went away after about a month.

>

> In 2003 I again experienced pain in my right eye with movement but

> this time it was accompanied by a blind spot in the middle of my

> field of vision. I went to a neuro-opthamologist. At the time I

> was involved in a migrain medication study and he though that the

> blind spot was caused by damage to the optic nerve and that

> it 'might' have been caused by a severe migraine that I had that

> lasted over a month. These symptoms lasted about 2 months and then

> the vision started coming back, but still isn't 100% in that eye.

>

> In January of this year i was hospitalized for severe weekness and

> numbness to my lower extremities and my arms from about mid-forearm

> down. I was really week and could barely walk. They did another

> MRI in the hospital and found a lesion on my brain, but I don't know

> naythign else because the primary MD who was my admitting dr

> refered it to a neurologist who never followed up with me. I didn't

> have insurance so I couldn't go once I got out of the hospital.

> This Dr first brought up the possibility that it might be MS but I

> wasn't able to follow up. A PA I knew at a hospital where I worked

> out of (as a paramedic on the ambulance) suggested that it might be

> edema and told me to go on a low sodium diet (less that 1000 mg

> sodium a day) and when I did the symptoms were releived after about

> a month.

>

> Almost 3 weeks ago I woke up one morning with numbness to the left

> side of my face. At first the Dr thought it was a sinus infection

> and gave me an antibiotic and decongestant. There was no relief and

> he started reviewing in more detail my medical history and

> considering this episode and the above listed episodes, he concluded

> that it is probably MS but wants me to go to a neurologist to

> confirm. I just can't do that right now so until I can get

> insurance I am looking for information and maybe some therapies I

> can try at home that may relieve symptoms.

>

> Any thought would be greatly appreciated.

>

> Thanks

> Kerri

>

>

>

>

>

>

>

>

[Guest guest]

Where in Texas are you? Most counties have an indigent care program and they will pay for doctors, tests and Medicine. If you are near a UTMB, they have their own indigent care programs and will charge according to income. For instance if they sent you to a clinic they may charge you 60 dollars but that will cover all the test the doctor orders...

I just got back from rheumatology at UTMB Galveston...the Dr. thinks I may have fibromyalgia [sp] or Hepatitis C...took lots of blood. I gave him my med history and he did not mention MS as a possibility, but ruled out Lupus which I was diagnosed with about 26 years ago... so that could be a good thing...I would prefer the fibro.. to Hep C. we will see, they want me back in 6 weeks...Cost to me $0., great doctor...priceless

Introduction>>> My name is Kerri. I am 32 and live in Texas. I don't know for sure> if I have MS, but the Dr thinks so. I know the next step is to go> to a neurologist, but I just don't have the money to do that and> don't have insurance. I am hoping to get more information and some> ideas of things I can do to help myself.>> In 2000 I started having muscle spasms. My husband thought I was> having a seizure and I was pretty confused for a couple of days. I> was admitted to the hospital and stayed there for 3 days and they> ran and EEG and an MRI but everything was normal then. I was> discharged and would have sporadic episodes of jerking movements> (and still do sometimes) to my right arm and leg.>> In 2002, right after a hysterectomy, I had severe pain to my right> eye with any movement. I went to a dr then and he wasn't concerned> and it went away after about a month.>> In 2003 I again experienced pain in my right eye with movement but> this time it was accompanied by a blind spot in the middle of my> field of vision. I went to a neuro-opthamologist. At the time I> was involved in a migrain medication study and he though that the> blind spot was caused by damage to the optic nerve and that> it 'might' have been caused by a severe migraine that I had that> lasted over a month. These symptoms lasted about 2 months and then> the vision started coming back, but still isn't 100% in that eye.>> In January of this year i was hospitalized for severe weekness and> numbness to my lower extremities and my arms from about mid-forearm> down. I was really week and could barely walk. They did another> MRI in the hospital and found a lesion on my brain, but I don't know> naythign else because the primary MD who was my admitting dr> refered it to a neurologist who never followed up with me. I didn't> have insurance so I couldn't go once I got out of the hospital.> This Dr first brought up the possibility that it might be MS but I> wasn't able to follow up. A PA I knew at a hospital where I worked> out of (as a paramedic on the ambulance) suggested that it might be> edema and told me to go on a low sodium diet (less that 1000 mg> sodium a day) and when I did the symptoms were releived after about> a month.>> Almost 3 weeks ago I woke up one morning with numbness to the left> side of my face. At first the Dr thought it was a sinus infection> and gave me an antibiotic and decongestant. There was no relief and> he started reviewing in more detail my medical history and> considering this episode and the above listed episodes, he concluded> that it is probably MS but wants me to go to a neurologist to> confirm. I just can't do that right now so until I can get> insurance I am looking for information and maybe some therapies I> can try at home that may relieve symptoms.>> Any thought would be greatly appreciated.>> Thanks> Kerri>>>>>>>>

[Guest guest]

Hey, : So glad you finally made it here. You're in the right place, that's for sure!!! Blessings to you.

"Blind Reason"

a novel of pharmaceutical intrigue

Think your antidepressant is safe? Think again. It's

Unsafe At Any Dose

[Guest guest]

Hi ,

Welcome to group.I don't know of any complete succes in getting back to normal but a lot of people have come close.It's been 4 years off of paxil for me this month and I am doing alot better than I was although I have to be honest I still feel like i have altzimers at times.My short term memory is not very good at all.You will get better over time 1 and a half years is not much time in the scope of what these poisons have done to you.The best thing you could do for yourself now is read the files and get yourself on some good vitamins and minerals and start to take care of you.You will get better much better than you are now it just takes time.

Hugs Ros

[Guest guest]

-this sounds like me last year- Let me assure you- YOU WILL GET

BETTER ! I also took Zoloft, and quit almost cold turkey, and believe

me, it was crummy. I had " zaps " for ever it seemed, and dizzyness, i

was sitting staring at nothing for what seemed hours on end, but now

I am slowly seeming to 'snap out of it' and I am beginning to feel

like my old self ( the good self) once more. I eat pretty well ( no

dieting for me during withdrawing) and I drink juices, tomato,

orange, grape, and water, and I try to get veggies everyday. I take

Vitamin A, c, B complex, calcium and magnesium supplements, and soy

milk also. Good luck, I was also surprised at the long length of time

it has been taking for me to feel normal again, if I would have

known, I never would have allowed my doc to give this junk to me in

the first place. I would have been better off just jogging or

something..who knows....anyhow, Godd Luck in your journey....L>C>--

In Withdrawal_and_Recovery , keith ledet

<heykeith1@y...> wrote:

> Hello All. My name is . I'm happy to have found a place to go

where people can relate to what I'm going through. I've been having

withdrawal problems for over a year and a half. I know many of you

were on Paxil. I was on Zoloft. I know most of the attention is on

Paxil withdrawal, but withdrawal can happen with any of the SSRI's,

and the symptoms are all similar. I have dizziness, vision problems

(visual lag, light sensitivity), concentration and memory problems,

unbearable anxiety, and some other problems. Although the physical

problems are very uncomfortable, I can tough those out. The hardest

ones to deal with are the concentration and memory problems. I'm 31,

and I feel like I have the brain of an 80 year old man. I have a lot

of anger of this. I feel like I'd gotten much better treatment and

understanding if I were a heroin addict. I'm confused about what to

try next. There are a lot of suggestions out there, but I don't know

where to start. The thing that depresses me the

> most about this is not knowing if it will ever end. I could bear

anything if I knew it would end someday. But I'm not so sure about

this. I haven't made much improvement in the year and a half, and I

sometimes hear horror stories of people who have suffered for years

and have not gotten better. Can anyone tell me of some success

stories of people who eventually got completely better? Am I on the

path to permanent problems? Thanks for listening. I welcome any

feedback.

>

> __________________________________________________

>

[Guest guest]

Say YES to Jogging!

Or swimming, or cycling, walking, or almost kind of exercise rather than psych meds. They did a study at Duke that proved that 30 minutes of exercise a day was as effective or more so than drugs. Of course exercise doesn't make the Drug Lords wheelbarrows full of money. God knows they wouldn't want us to be healthy because they don't make any money off healthy people.

"Blind Reason"

a novel of pharmaceutical intrigue

Think your antidepressant is safe? Think again. It's

Unsafe At Any Dose

[Guest guest]

Hi Dorothy.

Wow that's some cocktail your on Dorothy.You can get off these drugs and get your life back it will take a long time to do it safely.I am sure when Cath has a look at what you are taking she will give you a place to start that will help you .I know myself it's not fun staring at walls all day and not being able to get anything done .Sometimes it takes just picking one little task and doing it each day in one room, even if it takes a week to tidy it up.At the end of the day you will feel you have accomplished something.It's probably got to the point you feel overwhelmed at the thought of doing anything.It all starts with baby steps reclaiming your life.

Hugs Ros

[Guest guest]

Dear Dorothy,

You said:

<<I am 56, married and from Ohio. I have been on these drugs for at

least 10 yrs or more. I feel I was treated for issues in my life

with pills instead of talking it out or natural remedies. Now when I

go off the pills I get terrible withdrawls and go back on them again.

I want off of them so I can have my life back. I am on effexor,

resperidol,transxene, and trazodone. Most of the time I sit around

and stare or watch t.v. I don't take care of my personal hygeine like

I should. I don't get out of the house. I have no friends. I don't do

anything around the house. Before medications and shock treatments I

did things around the house, had frriends,went camping and

shoping,keeping the house spotless, and generally normal life things.

I also drove the car get my hair done, etc. Now I sit and stare. All

from these pills and treatments. I want off these drugs and want my

life back! Ask me anything you want, I'll try to answer.>>

** You'll be relieved to know that this something you can do but

it's going to take some serious time and first, some more information.

What are the doses of each drug are you taking? Are you taking any

supplements? Do you have any medical conditions? If so, do you take

any drugs for these and what drugs are they?

We're going to do this very slowly while first making sure your

body is fortified to go through this.

Regards,

[Guest guest]

I am taking efffexor 75mg 3x a day, resperidol 3mg, transxene 7.5 mg,trazodone100 mg, 1 each at bed time.

I am not taking any supplements.

I have diabetes. I take metiform 500mg 2x a day, glucitrol , and actos 1x a day.

Thanks,

Dorothy

Re: Introduction

Dear Dorothy, You said:<<I am 56, married and from Ohio. I have been on these drugs for at least 10 yrs or more. I feel I was treated for issues in my life with pills instead of talking it out or natural remedies. Now when I go off the pills I get terrible withdrawls and go back on them again. I want off of them so I can have my life back. I am on effexor, resperidol,transxene, and trazodone. Most of the time I sit around and stare or watch t.v. I don't take care of my personal hygeine like I should. I don't get out of the house. I have no friends. I don't do anything around the house. Before medications and shock treatments I did things around the house, had frriends,went camping and shoping,keeping the house spotless, and generally normal life things. I also drove the car get my hair done, etc. Now I sit and stare. All from these pills and treatments. I want off these drugs and want my life back! Ask me anything you want, I'll try to answer.>> ** You'll be relieved to know that this something you can do but it's going to take some serious time and first, some more information. What are the doses of each drug are you taking? Are you taking any supplements? Do you have any medical conditions? If so, do you take any drugs for these and what drugs are they? We're going to do this very slowly while first making sure your body is fortified to go through this.Regards,To subscribe to the off-topic list go to: http://groups.yahoo.com/group/socialWandR/