Guest guest Posted June 2, 2010 Report Share Posted June 2, 2010 Hi ,I did this test and it has helped me a lot. A super lot.I would get so frustrated every time I'd try to detox because I'd take the supplements everyone else said worked fabulously for them. I'd feel better for a short period then would crash -- hard. I finally stopped taking all detox support because it would just come back to bite me.When I had the results of my methylation pathway test interpreted, I have some major speed bumps in the pathway itself followed by a real show stopper after the fact.My methylation pathway has the slowest path possible for several reasons. But the real show stopper turned out to be that I'm missing the SUOX gene which tells the body how to produce the enyzme that converts sulfites to sulfates so the body can actually dump toxins. (3% of the population has this mutation.) No wonder I would always crash when I'd take sulfur based detox support! All I have to do is take molybdenum to replace the missing enzyme. So easy! And big pay offs.Having this information has been a real plus. Even though my chemical sensitivity is in a place right now where I cannot take the support supplements I need for the methylation pathway, I can take the molybdenumm and sulfur detox supplements to strengthen the glutathione and sulfation pathways. What a blessing! I can detox better than ever before by strengthening the sulfur pathways -- now that my body can actually dump the garbage it rounds up using the molybdenum.I hope this email makes sense -- I'm not going to proof read it -- too tired. If you have questions, please let me know. :-) This test was so much more valuable to me than the genomics profiles -- the same one you did.Have a nice evening,Kara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2010 Report Share Posted June 2, 2010 hi susani did it and like kara think it was the best thing i've done. i've been sicker and sicker and unable to tolerate things that kill the bacteria, and kept pounding myself with 'detoxers' that were making me worse. i have a mess of complicated gene mutations and for me it is a very slow and expensive protocol but i have my hopes pinned on it. it is much much better than the genova test, and you get a huge amount of inforamtion with it, including a set of supps suggestions for each gene mutation. best 500$ i ever spent. xoxoxsusie Has anyone had the Methylation Panel done that can be found at www.HolisticHeal.com I talked to a Doctor who said that she finally got well once she had this test done and interpreted, because she learned how to bypass the pathways that weren't working and access other detox pathways in order to detox properly. I am considering having this test run mid July to see if it can help. I have had the Genomadetoxi profile run, but it did not give me good comprehensive information that would be useful. If you have done this test, I would love to hear your thoughts on it's usefulness. It is expensive, but might be very helpful in recovering from Lyme. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2010 Report Share Posted June 2, 2010 oh! some more thoughts, susan: i found out that all the good meats and raw goat kefir and fermented foods and tons of greens i was eating were all wrong for my system until i can get the detox working better. and that i couldn't handle the methyls, like methylcobalamin, that the methylation pathway is blocked and needs to be sidled around. and that high glutamate foods aren't good for me (like the millions of fresh garden peas i eat all summer, the bone broths, pectin, etc) so all the b vits and b12 were just making me worse. totally counter-intuitive. hard to get my diet straight, but i will do anything anything to get out of this horrible pit.you've probably seen rich van konynenburg's simplified 5 protocol, a short cut of the amy yasko protocol? i tried it and couldn't handle it so decided to take the yasko test. if you do testing through her (can get really $) she writes comments on your tests when you get them back. in spite of all the fabulous food and supps i eat i found out that i am very deficient in amino acids, have some sort of gut bacteria, low minerals, etc...the test verified for me the experience i was having. i hadn't realized how subtly i was feeling battered by docs and people insisting i do this or that to kill the bugs, or that i had to keep plugging through (that approach has nearly killed me!) or that i wasn't getting well for some psychological/spiritual reason, agh! and the test also hinted deeply about my own family, where the adhd crops up, the parkinson's in my father and uncle, my sister's bizarre reactions to drugs, etc.when you get your results let me know, ok?xoxosusie Has anyone had the Methylation Panel done that can be found at www.HolisticHeal.com I talked to a Doctor who said that she finally got well once she had this test done and interpreted, because she learned how to bypass the pathways that weren't working and access other detox pathways in order to detox properly. I am considering having this test run mid July to see if it can help. I have had the Genomadetoxi profile run, but it did not give me good comprehensive information that would be useful. If you have done this test, I would love to hear your thoughts on it's usefulness. It is expensive, but might be very helpful in recovering from Lyme. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2010 Report Share Posted June 2, 2010 Thanks Kara, I am excited about doing this test. The detoxygenomic profile that I did was not comprehensive enough and I want to see what specific supplements that I can take to detox better too. I think having this information will be invaluable. BTW. do you do any NAET for your chemical sensitivities? It really does help me even if it is only a temprorary fix. I am thinking that NAET might help you if you have not tried it. I have a particular problem with all petrochemicals which includes practically everything that shoes are made of. I clear the allergies and the inflammation in the bottom of my foot goes away, when I wear shoes for awhile it comes back. Going barefoot is not an option since I have vinyl flooring and hardwoods that are coated in Polyurethane finish. I finally found a site called Rawganique that sells shoes made of Hemp and natural rubber, no plastics or chemical glues. I am hoping that his will be the answer to my foot problem. One other thing, can you tell me if I need to get a blood draw for this test, or can they use Saliva? I am leaving to go to Mexico on Tuesday and I thought I might order the test and have it overnighted to me as it takes 8 weeks to process, if I don't have to find a lab to draw my blood. Thanks, > > Hi , > > I did this test and it has helped me a lot. A super lot. > > I would get so frustrated every time I'd try to detox because I'd take the supplements everyone else said worked fabulously for them. I'd feel better for a short period then would crash -- hard. I finally stopped taking all detox support because it would just come back to bite me. > > When I had the results of my methylation pathway test interpreted, I have some major speed bumps in the pathway itself followed by a real show stopper after the fact. > > My methylation pathway has the slowest path possible for several reasons. But the real show stopper turned out to be that I'm missing the SUOX gene which tells the body how to produce the enyzme that converts sulfites to sulfates so the body can actually dump toxins. (3% of the population has this mutation.) No wonder I would always crash when I'd take sulfur based detox support! All I have to do is take molybdenum to replace the missing enzyme. So easy! And big pay offs. > > Having this information has been a real plus. Even though my chemical sensitivity is in a place right now where I cannot take the support supplements I need for the methylation pathway, I can take the molybdenumm and sulfur detox supplements to strengthen the glutathione and sulfation pathways. What a blessing! I can detox better than ever before by strengthening the sulfur pathways -- now that my body can actually dump the garbage it rounds up using the molybdenum. > > I hope this email makes sense -- I'm not going to proof read it -- too tired. If you have questions, please let me know. :-) This test was so much more valuable to me than the genomics profiles -- the same one you did. > > Have a nice evening, > Kara > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2010 Report Share Posted June 2, 2010 Thanks , I am glad that it has been so helpful to you and Kara. Even though I have rifed for several years and have gotten pretty close to getting well, I still cannot rid myself of my chemical sensitivities to plastics. I am currently doing coffee enemas with Glutathione drops as I have read that Glutathione helps to carry out the plastics from the system, but like you, I feel like I am spinning my wheels. Anyway, this may be the missing piece to my puzzle. I hope you are doing better. Be well, > > oh! some more thoughts, susan: > > i found out that all the good meats and raw goat kefir and > fermented foods and tons of greens i was eating were all wrong for > my system until i can get the detox working better. and that i > couldn't handle the methyls, like methylcobalamin, that the > methylation pathway is blocked and needs to be sidled around. and > that high glutamate foods aren't good for me (like the millions of > fresh garden peas i eat all summer, the bone broths, pectin, etc) so > all the b vits and b12 were just making me worse. totally counter- > intuitive. hard to get my diet straight, but i will do anything > anything to get out of this horrible pit. > > you've probably seen rich van konynenburg's simplified 5 protocol, a > short cut of the amy yasko protocol? i tried it and couldn't handle > it so decided to take the yasko test. if you do testing through > her (can get really $) she writes comments on your tests when you get > them back. in spite of all the fabulous food and supps i eat i > found out that i am very deficient in amino acids, have some sort of > gut bacteria, low minerals, etc... > > the test verified for me the experience i was having. i hadn't > realized how subtly i was feeling battered by docs and people > insisting i do this or that to kill the bugs, or that i had to keep > plugging through (that approach has nearly killed me!) or that i > wasn't getting well for some psychological/spiritual reason, agh! > and the test also hinted deeply about my own family, where the adhd > crops up, the parkinson's in my father and uncle, my sister's > bizarre reactions to drugs, etc. > > when you get your results let me know, ok? > > xoxo > susie > > > > > >> > >> Has anyone had the Methylation Panel done that can be found at > >> www.HolisticHeal.com I talked to a Doctor who said that she > >> finally got well once she had this test done and interpreted, > >> because she learned how to bypass the pathways that weren't > >> working and access other detox pathways in order to detox > >> properly. I am considering having this test run mid July to see if > >> it can help. I have had the Genomadetoxi profile run, but it did > >> not give me good comprehensive information that would be useful. > >> If you have done this test, I would love to hear your thoughts on > >> it's usefulness. It is expensive, but might be very helpful in > >> recovering from Lyme. > >> > >> > >> > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2010 Report Share Posted June 2, 2010 Hi ,On the test, it is just a finger prick and then fill in little dots with blood. Then let dry and mail off. So no blood lab needed! :-)Yes, I do NAET! :-) I'm currently doing 2 a week. They are really helping me. A LOT. We've almost gotten rid of "herxing" altogether because the bulk of my herxes was simply my body responding inappropriately to the die off and toxins. I still do have herxes but they are very mild and pass quickly. I still have to give my body time to dump the toxins though. So muscle test myself for treatment frequency.Your difficulties with shoes is really the pits. I have a hard time with shoes, too. Have to off gas them for a year before I can wear them and always must wear socks. Even with sandals. I can't have my skin directly in contact with the shoe or I have symptoms. Maybe when I get further along in my NAET treatments that will go away. :-)The results of your methylation pathway test will be invaluable to you. It is a really good idea to get with a practitioner who knows how to interpret them correctly and get you started off on the right foot. The list of supplements to take that comes with the test results did not mean diddly squat to me. It was just way too much to tackle. I got with a practioner who interpreted them and told me which supplements I needed to start to build the "foundation" and get things opened up and moving in the right direction. Then we added other things in addition to those later on.But like I said in my first reply, I am currently not able to take the supplements for the methylation pathway. Just the molybdenum and sulfur supplements to strengthen the other pathways. But that's OK. I will be able to get the methylation pathway supports going soon enough. The bartonella was causing me such anxiety I just couldn't tolerate them. But the bart is MUCH better so maybe I can get going on the supps in the next few months. :-)Have a great day and happy travels!Kara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2010 Report Share Posted June 4, 2010 Does anyone know how I can find a practitioner who can interpret the methylation test results and treat appropriately? Thanks. Sally A. Schreiber ________________________________ From: Lyme_and_Rife on behalf of Kara Carey Sent: Wed 6/2/2010 12:27 PM To: Lyme_and_Rife Subject: Re: Re: Methylation Panel Hi , On the test, it is just a finger prick and then fill in little dots with blood. Then let dry and mail off. So no blood lab needed! :-) Yes, I do NAET! :-) I'm currently doing 2 a week. They are really helping me. A LOT. We've almost gotten rid of " herxing " altogether because the bulk of my herxes was simply my body responding inappropriately to the die off and toxins. I still do have herxes but they are very mild and pass quickly. I still have to give my body time to dump the toxins though. So muscle test myself for treatment frequency. Your difficulties with shoes is really the pits. I have a hard time with shoes, too. Have to off gas them for a year before I can wear them and always must wear socks. Even with sandals. I can't have my skin directly in contact with the shoe or I have symptoms. Maybe when I get further along in my NAET treatments that will go away. :-) The results of your methylation pathway test will be invaluable to you. It is a really good idea to get with a practitioner who knows how to interpret them correctly and get you started off on the right foot. The list of supplements to take that comes with the test results did not mean diddly squat to me. It was just way too much to tackle. I got with a practioner who interpreted them and told me which supplements I needed to start to build the " foundation " and get things opened up and moving in the right direction. Then we added other things in addition to those later on. But like I said in my first reply, I am currently not able to take the supplements for the methylation pathway. Just the molybdenum and sulfur supplements to strengthen the other pathways. But that's OK. I will be able to get the methylation pathway supports going soon enough. The bartonella was causing me such anxiety I just couldn't tolerate them. But the bart is MUCH better so maybe I can get going on the supps in the next few months. :-) Have a great day and happy travels! Kara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2010 Report Share Posted June 4, 2010 Hi Kara When you get a chance can you share what specific sulphur detox supplements you are using..So glad this test shined some light on things for you Thanks for your time nancy Hi ,I did this test and it has helped me a lot. A super lot.I would get so frustrated every time I'd try to detox because I'd take the supplements everyone else said worked fabulously for them. I'd feel better for a short period then would crash -- hard. I finally stopped taking all detox support because it would just come back to bite me. When I had the results of my methylation pathway test interpreted, I have some major speed bumps in the pathway itself followed by a real show stopper after the fact.My methylation pathway has the slowest path possible for several reasons. But the real show stopper turned out to be that I'm missing the SUOX gene which tells the body how to produce the enyzme that converts sulfites to sulfates so the body can actually dump toxins. (3% of the population has this mutation.) No wonder I would always crash when I'd take sulfur based detox support! All I have to do is take molybdenum to replace the missing enzyme. So easy! And big pay offs. Having this information has been a real plus. Even though my chemical sensitivity is in a place right now where I cannot take the support supplements I need for the methylation pathway, I can take the molybdenumm and sulfur detox supplements to strengthen the glutathione and sulfation pathways. What a blessing! I can detox better than ever before by strengthening the sulfur pathways -- now that my body can actually dump the garbage it rounds up using the molybdenum. I hope this email makes sense -- I'm not going to proof read it -- too tired. If you have questions, please let me know. :-) This test was so much more valuable to me than the genomics profiles -- the same one you did. Have a nice evening,Kara Quote Link to comment Share on other sites More sharing options...
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