Re: Notes from BodyBio Biomedical Conference and Mercury/ A...

May 10, 2001

Please...do not apologize for your post! I know that there are MANY on this

list that would like to have the BodyBio/ Kane subject banned

forever. I am not one of those people! I have a number of friends that have

run her tests and followed her suggestions...and their children do FANTASTIC

on all of it! It wasn't until the very last " suggestion " from the testing

was followed that they saw immediate improvement in their

children...improvement that I have been fighting and praying for for years!

One of them found out that their son has a form of acidosis...and if she

hadn't KNOWN that, a nurse practitioner would have treated for his extremely

bad dysbiosis/yeast problems...not knowing that the treatment would have

exasperated his problems.

Mercury/heavy metals may be the cause of his problems...but just jumping into

chelation for htis particular child would have been DISASTROUS to say the

least.

I always say...to each his own...but lets not rule out BodyBio without

getting BOTH SIDES of the story!

All My Best,

May 11, 2001

My idea has always been that there should be a BodyBio egroup just as there

are secretin, ABA, diet, homeopathy, FGF, etc. egroups. This group has a

wealth of knowledge on chelation, but rarely if ever do I see a post on

these other topics. So while they all have some relation, each should have

its own format. I didn't join the secretin and FGF group until we did those

therapies. I think the same applies here, stick with a general topic.

[ ] Re: Notes from BodyBio Biomedical Conference and

Mercury/ A...

> We are on a list devoted to an intensely controversial topic - autism

> from mercury intoxication.

>

> While some people may have had bad experiences with another intensely

> controversial topic - the BodyBio program - let's just leave it at

> statements of fact regarding experiences or proper theoretical

> discussions of the program, rather than getting all bent out of shape

> (as many people no doubt do about how we irresponsibly discuss mercury

> as a cause of autism).

>

> relevant facts I have learned are:

>

> Some kids do respond to the program.

>

> Some kids do not respond to the program.

>

> The program is very difficult to follow.

>

> The program is too expensive for some.

>

> Some people who have been critical of the program have received

> nastygrams from Dr. Kane's attorney.

>

> It is at least alleged that Dr. Kane appeared on this list under a

> pseudonym, posting assorted information.

>

> If anyone thinks this is innacurate, please do let me know.

>

> Andy

>

> > Please...do not apologize for your post! I know that there are MANY

> on this

> > list that would like to have the BodyBio/ Kane subject

> banned

> > forever. I am not one of those people! I have a number of friends

> that have

> > run her tests and followed her suggestions...and their children do

> FANTASTIC

> > on all of it! It wasn't until the very last " suggestion " from the

> testing

> > was followed that they saw immediate improvement in their

> > children...improvement that I have been fighting and praying for for

> years!

> > One of them found out that their son has a form of acidosis...and if

> she

> > hadn't KNOWN that, a nurse practitioner would have treated for his

> extremely

> > bad dysbiosis/yeast problems...not knowing that the treatment would

> have

> > exasperated his problems.

> > Mercury/heavy metals may be the cause of his problems...but just

> jumping into

> > chelation for htis particular child would have been DISASTROUS to

> say the

> > least.

> > I always say...to each his own...but lets not rule out BodyBio

> without

> > getting BOTH SIDES of the story!

> > All My Best,

> >

> > [Non-text portions of this messag

>

> =======================================================

>

May 11, 2001

We are on a list devoted to an intensely controversial topic - autism

from mercury intoxication.

While some people may have had bad experiences with another intensely

controversial topic - the BodyBio program - let's just leave it at

statements of fact regarding experiences or proper theoretical

discussions of the program, rather than getting all bent out of shape

(as many people no doubt do about how we irresponsibly discuss mercury

as a cause of autism).

relevant facts I have learned are:

Some kids do respond to the program.

Some kids do not respond to the program.

The program is very difficult to follow.

The program is too expensive for some.

Some people who have been critical of the program have received

nastygrams from Dr. Kane's attorney.

It is at least alleged that Dr. Kane appeared on this list under a

pseudonym, posting assorted information.

If anyone thinks this is innacurate, please do let me know.

Andy

> Please...do not apologize for your post! I know that there are MANY

on this

> list that would like to have the BodyBio/ Kane subject

banned

> forever. I am not one of those people! I have a number of friends

that have

> run her tests and followed her suggestions...and their children do

FANTASTIC

> on all of it! It wasn't until the very last " suggestion " from the

testing

> was followed that they saw immediate improvement in their

> children...improvement that I have been fighting and praying for for

years!

> One of them found out that their son has a form of acidosis...and if

she

> hadn't KNOWN that, a nurse practitioner would have treated for his

extremely

> bad dysbiosis/yeast problems...not knowing that the treatment would

have

> exasperated his problems.

> Mercury/heavy metals may be the cause of his problems...but just

jumping into

> chelation for htis particular child would have been DISASTROUS to

say the

> least.

> I always say...to each his own...but lets not rule out BodyBio

without

> getting BOTH SIDES of the story!

> All My Best,

>

> [Non-text portions of this messag

May 13, 2001

AndyCutler@... wrote:

> relevant facts I have learned are:

>

> Some kids do respond to the program.

>

> Some kids do not respond to the program.

>

> The program is very difficult to follow.

>

> The program is too expensive for some.

>

> Some people who have been critical of the program have received

> nastygrams from Dr. Kane's attorney.

>

> It is at least alleged that Dr. Kane appeared on this list under a

> pseudonym, posting assorted information.

>

> If anyone thinks this is innacurate, please do let me know.

>

> Andy

Dear Andy,

I disagree. I'll email you privately.

Charlene

May 15, 2001

Hi! Andy, I have just returned from the DAN Conference, and I learned

of poor Charlene having a hard time here, so I thought that I would

re-join, and see what was happening. I saw your post, so I will

respond.

>

> relevant facts I have learned are:

>

> Some kids do respond to the program.

SOME KIDS RECOVER ON THE BODYBIO PROTOCOL

>

> Some kids do not respond to the program.

SADLY THAT IS TRUE, THE ELIMINATION OF HYDROGENATED OILS, IS VERY

HARD TO DO, IT IS ALMOST IMPOSSIBLE TO FIND ANYTHING IN THE

GROCERY STORE THAT DOES NOT CONTAIN SOME PARTIALLY HYDROGENATED

OILS, EVEN SOME OF THE GLUTEN FREE CASEIN FREE FOODS CONTAIN

PROCESSED OILS. I SPOKE WITH A REPRESENTATIVE OF THE GFCF FOODS,

AT HIS BOOTH, AND HE TOLD ME THAT IT WAS TOO EXPENSIVE TO USE

THE COLD PRESSED OILS.

>

> The program is very difficult to follow.

I HAVE STARTED A LIST (AUTISM-CHALLENGE) FOR ANYONE THAT IS

HAVING PROBLEMS, UNDERSTANDING WHEN OR HOW TO GIVE THE SUPPLEMENTS,

AND RECIPES THAT ARE GLUTEN AND CASIEN FREE THAT THE FOODS/oils CAN

BE ADDED. EVERYONE IS WELCOME TO JOIN, IF THEY ARE TRULY INTERESTED

IN UNDERSTANDING AND USING THE DIET. THIS LIST BELONGS TO IT'S

MEMBERS, AND THEY DECIDE IF YOU CAN JOIN. THEY ARE SERIOUS ABOUT

HELPING THEIR CHILDREN, AND UNDERSTANDING THE FATTY ACID ISSUES.

>

> The program is too expensive for some.

DR.KANE CHARGES $75 OR $99, THAT IS FOR BODYBIO.

THE BLOOD TESTS, AS MANY OF YOU KNOW, IS COVERED BY SOME

INSURANCE COMPANIES. DR.KANE SELLS E-LYTE ELECTROLYTES,

E-LYTE LIQUID MINERALS, AND THE NEW BODYBIO BALANCE THAT

CONTAINS OMEGA 6:OMEGA 3 4:1 RATIO HI-LIGNAN ORGANIC

SUNFLOWER & FLAX SEED OIL, THAT MONEY GOES TO PAY FOR BODYBIO.

>

> Some people who have been critical of the program have received

> nastygrams from Dr. Kane's attorney.

DR.KANE LOVES TO HEAR CRITCISM ABOUT HER PROGRAM, SHE WILL IMPROVE

ON ANYTHING THAT ANYONE FINDS ANNOYING, WHAT SHE IS NOT HAPPY ABOUT

IS THAT PEOPLE WERE SAYING THAT SHE DIDN'T HAVE A PH.D..

> It is at least alleged that Dr. Kane appeared on this list under a

> pseudonym, posting assorted information.

I READ ALL OF " BEN'S " POSTS, THERE WAS NEVER A MENTION OF BODYBIO,

BUT I WILL SAY THAT SHE IS AGAINST THE USE OF DMSA. WHAT IS REALLY

FUNNY IS THAT I HAVE BEEN A LISTOWNER FOR MANY A YEARS, AND PEOPLE

DO THIS ALL THE TIME. THEY WANT THE RIGHT OF PRIVACY. IF SHE DID

DO THIS, I DON'T SEE HOW SHE USED IT IN A BAD WAY, NOT LIKE I HAVE

SEEN OTHERS DO THIS JUST TO GET REVENGE ON SOMEONE THAT THEY DIDN'T

LIKE.

>

I " volunteered " to hand out Bodybio information at the exhibit,

mostly I wanted to go to the conference to meet my internet parent

friends, which unfortunately there were only a few. I enjoyed

being at the exhibit booth so much that I stayed. I got to meet

Dr.Bill Shaw, Jon Pangborn, Dr.Woody McGinnis, Dr.Sidney Baker,

Dr.Rimland, Dave from Kirkman's, and many many more, that were

all VERY nice to me, and I enjoyed every minute of talking with them.

Dr.Kane sent to the hotel boxes of materials on E-lyte electrolytes,

E-lyte liquid minerals, the bodybio balance, I copied my son's

test results, and Dr.Kane supplied me with more, we had the story

of Dr.Kane's first recovery from autism, and Charlene's story.

Plus copies of Dr.Kane's detoxification program, that mostly

the physicians were grabbing up, and my son's test results.

I was disappointed that many of the parents were only interested

in getting the E-lyte liquid zinc and not the other minerals like

the potassium, manganese, molybdenum, chromium that most of them

may also need. I was also disappointed that so many parents were

not aware of the benefits of the electrolyte balance formula.

I was extremely concerned after Dr. Stoll's speech when

the parents flocked to our booth the Nordic Naturals for just

the cod-liver oil, when I know that there are other essential

fatty acids, that are just as important. I was impressed when

Dr.Sidney Baker came to the booth to inquire about the mercury

content in Nordic Naturals cod-liver oil. Bonnie their

representative, explained the process of extracting the mercury,

and showed him the laboratory testing that was done on the

cod-liver before it was shipped out. Each batch is tested twice.

Everyone was very nice to me, and once others knew that we

were handing out Dr.Kane's materials most everything disappeared.

I saved a few copies aside to take home to some parents that I

know, but just about everything was taken. It may seem on the

internet that Dr.Kane or Bodybio is controversial, but I saw nothing

like that at the conference. Best, Carlton, Forrest's Mom

May 15, 2001

<<DR.KANE CHARGES $75 OR $99, THAT IS FOR BODYBIO.

THE BLOOD TESTS, AS MANY OF YOU KNOW, IS COVERED BY SOME

INSURANCE COMPANIES. DR.KANE SELLS E-LYTE ELECTROLYTES,

E-LYTE LIQUID MINERALS, AND THE NEW BODYBIO BALANCE THAT

CONTAINS OMEGA 6:OMEGA 3 4:1 RATIO HI-LIGNAN ORGANIC

SUNFLOWER & FLAX SEED OIL, THAT MONEY GOES TO PAY FOR BODYBIO.>>

Thanks for clarifying this information. I'd like to add my 2 cents

worth to the discussion.

I paid $69 to BodyBio for the blood test ANALYSIS. I have been trying to

remember how much the actual lab test was if I had done it with the lab kit

that my doctor got in a mail package for all the BodyBio testing (now I

recall, it was $99)- instead it cost about $120 through the hospital lab

where I work (Legacy Health System- Portland OR). I chose this route because

my insurance covers labs done at the hospital 100%.

I paid $325 for the RBC Fatty Acid Analysis ($200 of that went to

Kennedy-Krieger for the test itself- I think that is the wholesale cost to

doctors for the test, and yes, I have a copy of the results that KK sent my

son's doctor). We have repeated the blood test analysis, so I've spent a

whole $263 so far at BodyBio (and consults for my physician are free!). I

can't for the life of me figure out how some people think BodyBio is ripping

people off. (Oh, and don't forget how it was posted that they built their

" fancy " facility off of the poor parents who have been duped.)

I've been paying wholesale through Emerson for my e-lyte and liquid minerals

($9.25 for the electrolytes, minerals are $27.95). I'm sure even though, as

an RN getting it at wholesale, that Emerson must be making something off it,

so they must have sold millions of dollars worth to parents of kids with

autism! (Some people seem to think that BodyBio is only in business to rip

off parents of kids with autism and that it is an internet business.)

Actually, there are lots of doctors that have found the BodyBio testing and

recommendations useful for a multitude of medical problems. They like the

individualized recommendations that are based on each person's test results.

I have attended 2 conferences where Dr. Kane spoke (but not the one that

Charlene was at). She is well respected among the alternative medicine groups

of AAEM and ACAM, and I have personally talked to several of these physicians

during breaks.

I just don't get all the furor that comes up everytime Dr. Kane's name is

mentioned. It is usually 3 or 4 people who always bring this up. I find it

rather interesting that after about 10 months of this business (by the way,

it started last May on the St. 's list and gone on from there- I've been

on a multitude of lists for close to 3 years now), that Wendi just now piped

up to say she was also taken by these people- why didn't she say something

when this subject came up before on this list?

There are many controversial treatments on the autism lists that work for

some of our kids. I've never heard anyone say they were injured or ripped off

or lost money by doing AIT (about$1500) or ABA (I think around $2000/ month)

or even Dr Aguilar's treatment (I think that was posted to be around

$1000/month). Yet, there are plenty of people who have lost money on months

or years of ABA, who AIT did little for, or who were injured by Dr. Aguilar's

treatment. (I talked with a lady at one conference who knows a neurologist in

California who has treated kids who got severe encephalitis from this

treatment and never fully recovered.)

Again, I just don't get what the problem is! If I, or someone else wants to

spend around $500 for 2 lab tests and specialized reading of them and buy the

supplements and try it for a while, what is wrong with that? That amount of

money is a drop in the bucket compared to some of these other treatments. Why

does this have to start up, over and over again?

Wendi, as well as some of the others, have posted that they've done several

of the other treatments I mentioned above, as well as other therapies and

also various supplements. I guess they've got more money than I do. I'd

rather go with something that's relatively cheap that works for my child,

thank you.

By the way, for those of you who don't know, is 17 years old. We've

tried a variety of treatments, been in lots of studies, etc., and I will tell

all of you that he is better now following the BodyBio plan than he was with

anything else we tried. Needless to say, after all these years and money

spent on this, that, and the other thing that I carefully look into

everything we try. I spend much of my free time (that was until the nursing

shortage hit Portland a few months ago) on the internet looking into the

various treatments, supplements, medications, etc., that come up on these

groups, and I have yet to find anything so reasonable and scientifically

supported as the personalized plan my child is on.

<<Everyone was very nice to me, and once others knew that we

were handing out Dr.Kane's materials most everything disappeared.

I saved a few copies aside to take home to some parents that I

know, but just about everything was taken. It may seem on the

internet that Dr.Kane or Bodybio is controversial, but I saw nothing

like that at the conference. Best, Carlton, Forrest's Mom>>

Thanks, for posting this. Again, I just don't get it! I asked medical

professionals at several conferences I've been at about their opinion of Dr.

Kane. I told a few why I was asking and they looked at me like I had a huge

tumor growing out of my head, or maybe my skin was green or something! They

said they had never heard of this nonsense, so I guess it's just on the

autism e-mail groups.

<<Message: 24

Date: Tue, 15 May 2001 03:15:34 -0000

From: AndyCutler@...

Subject: Re: Notes from BodyBio Biomedical Conference and Mercury/ A...

> > Some kids do not respond to the program.

> SADLY THAT IS TRUE, THE ELIMINATION OF HYDROGENATED OILS, IS VERY

> HARD TO DO, IT IS ALMOST IMPOSSIBLE TO FIND ANYTHING IN THE

> GROCERY STORE THAT DOES NOT CONTAIN SOME PARTIALLY HYDROGENATED

> OILS, EVEN SOME OF THE GLUTEN FREE CASEIN FREE FOODS CONTAIN

> PROCESSED OILS. I SPOKE WITH A REPRESENTATIVE OF THE GFCF FOODS,

> AT HIS BOOTH, AND HE TOLD ME THAT IT WAS TOO EXPENSIVE TO USE

> THE COLD PRESSED OILS.

I've been doing it for myself for years, and for Sheldon for a while

and it isn't particularly difficult.

> >

Andy, I'm glad you see the benefit in doing this, but I'm sure the general

public and also many on even this list can't be bothered. I'm on several

autism e-mail groups and you'd be surprised at how many can't be bothered

with something so simple (or with trying the GF/CF diet despite the multiple

doctors now presenting this information at DAN!, Autism Oasis, and various

other conferences as well as the well documented information available on the

internet). I posted before about hydrogenated oils, and I'll be to happy to

again, if people are interested.

Ruth

May 15, 2001

> > Some kids do not respond to the program.

> SADLY THAT IS TRUE, THE ELIMINATION OF HYDROGENATED OILS, IS VERY

> HARD TO DO, IT IS ALMOST IMPOSSIBLE TO FIND ANYTHING IN THE

> GROCERY STORE THAT DOES NOT CONTAIN SOME PARTIALLY HYDROGENATED

> OILS, EVEN SOME OF THE GLUTEN FREE CASEIN FREE FOODS CONTAIN

> PROCESSED OILS. I SPOKE WITH A REPRESENTATIVE OF THE GFCF FOODS,

> AT HIS BOOTH, AND HE TOLD ME THAT IT WAS TOO EXPENSIVE TO USE

> THE COLD PRESSED OILS.

I've been doing it for myself for years, and for Sheldon for a while

and it isn't particularly difficult.

> >

> > The program is very difficult to follow.

> I HAVE STARTED A LIST (AUTISM-CHALLENGE) FOR ANYONE THAT IS

> HAVING PROBLEMS, UNDERSTANDING WHEN OR HOW TO GIVE THE SUPPLEMENTS,

> AND RECIPES THAT ARE GLUTEN AND CASIEN FREE THAT THE FOODS/oils CAN

> BE ADDED. EVERYONE IS WELCOME TO JOIN, IF THEY ARE TRULY INTERESTED

> IN UNDERSTANDING AND USING THE DIET. THIS LIST BELONGS TO IT'S

> MEMBERS, AND THEY DECIDE IF YOU CAN JOIN. THEY ARE SERIOUS ABOUT

> HELPING THEIR CHILDREN, AND UNDERSTANDING THE FATTY ACID ISSUES.

> >

> > The program is too expensive for some.

> DR.KANE CHARGES $75 OR $99, THAT IS FOR BODYBIO.

> THE BLOOD TESTS, AS MANY OF YOU KNOW, IS COVERED BY SOME

> INSURANCE COMPANIES. DR.KANE SELLS E-LYTE ELECTROLYTES,

> E-LYTE LIQUID MINERALS, AND THE NEW BODYBIO BALANCE THAT

> CONTAINS OMEGA 6:OMEGA 3 4:1 RATIO HI-LIGNAN ORGANIC

> SUNFLOWER & FLAX SEED OIL, THAT MONEY GOES TO PAY FOR BODYBIO.

> >

> > Some people who have been critical of the program have received

> > nastygrams from Dr. Kane's attorney.

>

> DR.KANE LOVES TO HEAR CRITCISM ABOUT HER PROGRAM, SHE WILL IMPROVE

> ON ANYTHING THAT ANYONE FINDS ANNOYING, WHAT SHE IS NOT HAPPY ABOUT

> IS THAT PEOPLE WERE SAYING THAT SHE DIDN'T HAVE A PH.D..

Assorted people have said that about me, too. I just tell them to

call the degree check line at the Princeton registrar's office - I

don't threaten to sue them.

> > It is at least alleged that Dr. Kane appeared on this list under a

> > pseudonym, posting assorted information.

>

> I READ ALL OF " BEN'S " POSTS, THERE WAS NEVER A MENTION OF BODYBIO,

> BUT I WILL SAY THAT SHE IS AGAINST THE USE OF DMSA. WHAT IS REALLY

> FUNNY IS THAT I HAVE BEEN A LISTOWNER FOR MANY A YEARS, AND PEOPLE

> DO THIS ALL THE TIME. THEY WANT THE RIGHT OF PRIVACY. IF SHE DID

> DO THIS, I DON'T SEE HOW SHE USED IT IN A BAD WAY, NOT LIKE I HAVE

> SEEN OTHERS DO THIS JUST TO GET REVENGE ON SOMEONE THAT THEY DIDN'T

> LIKE.

I agree this kind of thing is often done, is hard to figure out, and

didn't get too wild in this particular case. Note the way I phrased

what I said, please.

> I " volunteered " to hand out Bodybio information at the exhibit,

> mostly I wanted to go to the conference to meet my internet parent

> friends, which unfortunately there were only a few. I enjoyed

> being at the exhibit booth so much that I stayed. I got to meet

> Dr.Bill Shaw, Jon Pangborn, Dr.Woody McGinnis, Dr.Sidney Baker,

> Dr.Rimland, Dave from Kirkman's, and many many more, that were

> all VERY nice to me, and I enjoyed every minute of talking with

them.

> Dr.Kane sent to the hotel boxes of materials on E-lyte

electrolytes,

> E-lyte liquid minerals, the bodybio balance, I copied my son's

> test results, and Dr.Kane supplied me with more, we had the story

> of Dr.Kane's first recovery from autism, and Charlene's story.

> Plus copies of Dr.Kane's detoxification program, that mostly

> the physicians were grabbing up, and my son's test results.

> I was disappointed that many of the parents were only interested

> in getting the E-lyte liquid zinc and not the other minerals like

> the potassium, manganese, molybdenum, chromium that most of them

> may also need. I was also disappointed that so many parents were

> not aware of the benefits of the electrolyte balance formula.

> I was extremely concerned after Dr. Stoll's speech when

> the parents flocked to our booth the Nordic Naturals for just

> the cod-liver oil, when I know that there are other essential

> fatty acids, that are just as important. I was impressed when

> Dr.Sidney Baker came to the booth to inquire about the mercury

> content in Nordic Naturals cod-liver oil. Bonnie their

> representative, explained the process of extracting the mercury,

> and showed him the laboratory testing that was done on the

> cod-liver before it was shipped out. Each batch is tested twice.

> Everyone was very nice to me, and once others knew that we

> were handing out Dr.Kane's materials most everything disappeared.

> I saved a few copies aside to take home to some parents that I

> know, but just about everything was taken. It may seem on the

> internet that Dr.Kane or Bodybio is controversial, but I saw nothing

> like that at the conference. Best, Carlton, Forres

May 15, 2001

Andy, I hope that you know that I put my response in caps, just

because I thought it would be easier to read. I think you have

been very understanding, and I don't have a problem with anything

that you have written. The message that came from the attorney,

was just to tell them to stop it, they certainly could make contacts

to retrieve that information. That wasn't the purpose in doing

what they did, it was to ruin Dr.Kane's reputation, and to run

her off of the internet, they accomplished everything that they

set out to do. However, they ran me off too, and I had done nothing

wrong, all that I wanted to do was to talk about how my son improved

on the supplements and the entire program. I wanted to help others.

That was the only thing that Charlene wanted too.

Best, Forrest's Mom

May 15, 2001

Thank you! Ruth, I have been guilty of scorning AIT and the Ease disc

for what they charge, and when I read the responses, I felt terrible

about what I had written. After all, here I was scaring everyone to

death and there are children that greatly benefit from this treatment.

I never want to hurt anyone else, so I only say something about

that treatment when I am asked, and even then I always mention,

that it was only our experience, that others have had great success.

I learned later about some things that we could have done to make

the treatment work for us, and I would be willing to give it another

try now.

Dr.Kane and I have tried to find out why some people wanted to

do this, and truly we have no real answers, there is a couple of

reasons that we suspect, but nothing proof positive.

Dr.Kane has her price down as low as it will go, that is why

she had to supplement Bodybio's income with product sales, after all

someone has to pay the employees and the electric bill, or Bodybio

would close down.

I would sure like to know some tips on how to find foods that do

not contain hydrogenated oils, it would help out the members of

the Autism-Challenge, and me too! For example, potato chips!!

Best, Forrest's Mom

PS sorry about the caps, I forgot about that!

May 15, 2001

The one comment I have is some people inability to hear critism about

BodyBio. I know nothing about it and I am glad to hear when kids make

progress and I am very willing to look into it. I get scared when people

start defending it in a cultish way (by attacking other treatments). It

should stand up to critism, that would make it more viable. Andy,

chelation, GFCF, vaccines, etc.. all get scrutinized under a microscope

and have still survived. My guess is if BodyBio is a promising treatment

then it will survive. So let them critize, just share your experience

and we parents will take it ALL into consideration when making decisions

about our children. This ongoing " conversation " is becoming too negative

and useless. Vicky

RMart620@... wrote:

>

> <<DR.KANE CHARGES $75 OR $99, THAT IS FOR BODYBIO.

>

> THE BLOOD TESTS, AS MANY OF YOU KNOW, IS COVERED BY SOME

>

> INSURANCE COMPANIES. DR.KANE SELLS E-LYTE ELECTROLYTES,

>

> E-LYTE LIQUID MINERALS, AND THE NEW BODYBIO BALANCE THAT

>

> CONTAINS OMEGA 6:OMEGA 3 4:1 RATIO HI-LIGNAN ORGANIC

>

> SUNFLOWER & FLAX SEED OIL, THAT MONEY GOES TO PAY FOR BODYBIO.>>

>

> Thanks for clarifying this information. I'd like to add my 2

> cents

> worth to the discussion.

>

> I paid $69 to BodyBio for the blood test ANALYSIS. I have been trying

> to

> remember how much the actual lab test was if I had done it with the

> lab kit

> that my doctor got in a mail package for all the BodyBio testing (now

> I

> recall, it was $99)- instead it cost about $120 through the hospital

> lab

> where I work (Legacy Health System- Portland OR). I chose this route

> because

> my insurance covers labs done at the hospital 100%.

>

> I paid $325 for the RBC Fatty Acid Analysis ($200 of that went to

> Kennedy-Krieger for the test itself- I think that is the wholesale

> cost to

> doctors for the test, and yes, I have a copy of the results that KK

> sent my

> son's doctor). We have repeated the blood test analysis, so I've spent

> a

> whole $263 so far at BodyBio (and consults for my physician are

> free!). I

> can't for the life of me figure out how some people think BodyBio is

> ripping

> people off. (Oh, and don't forget how it was posted that they built

> their

> " fancy " facility off of the poor parents who have been duped.)

>

> I've been paying wholesale through Emerson for my e-lyte and liquid

> minerals

> ($9.25 for the electrolytes, minerals are $27.95). I'm sure even

> though, as

> an RN getting it at wholesale, that Emerson must be making something

> off it,

> so they must have sold millions of dollars worth to parents of kids

> with

> autism! (Some people seem to think that BodyBio is only in business to

> rip

> off parents of kids with autism and that it is an internet business.)

>

> Actually, there are lots of doctors that have found the BodyBio

> testing and

> recommendations useful for a multitude of medical problems. They like

> the

> individualized recommendations that are based on each person's test

> results.

> I have attended 2 conferences where Dr. Kane spoke (but not the one

> that

> Charlene was at). She is well respected among the alternative medicine

> groups

> of AAEM and ACAM, and I have personally talked to several of these

> physicians

> during breaks.

>

> I just don't get all the furor that comes up everytime Dr. Kane's name

> is

> mentioned. It is usually 3 or 4 people who always bring this up. I

> find it

> rather interesting that after about 10 months of this business (by the

> way,

> it started last May on the St. 's list and gone on from there-

> I've been

> on a multitude of lists for close to 3 years now), that Wendi just now

> piped

> up to say she was also taken by these people- why didn't she say

> something

> when this subject came up before on this list?

>

> There are many controversial treatments on the autism lists that work

> for

> some of our kids. I've never heard anyone say they were injured or

> ripped off

> or lost money by doing AIT (about$1500) or ABA (I think around $2000/

> month)

> or even Dr Aguilar's treatment (I think that was posted to be around

> $1000/month). Yet, there are plenty of people who have lost money on

> months

> or years of ABA, who AIT did little for, or who were injured by Dr.

> Aguilar's

> treatment. (I talked with a lady at one conference who knows a

> neurologist in

> California who has treated kids who got severe encephalitis from this

> treatment and never fully recovered.)

>

> Again, I just don't get what the problem is! If I, or someone else

> wants to

> spend around $500 for 2 lab tests and specialized reading of them and

> buy the

> supplements and try it for a while, what is wrong with that? That

> amount of

> money is a drop in the bucket compared to some of these other

> treatments. Why

> does this have to start up, over and over again?

>

> Wendi, as well as some of the others, have posted that they've done

> several

> of the other treatments I mentioned above, as well as other therapies

> and

> also various supplements. I guess they've got more money than I do.

> I'd

> rather go with something that's relatively cheap that works for my

> child,

> thank you.

>

> By the way, for those of you who don't know, is 17 years old.

> We've

> tried a variety of treatments, been in lots of studies, etc., and I

> will tell

> all of you that he is better now following the BodyBio plan than he

> was with

> anything else we tried. Needless to say, after all these years and

> money

> spent on this, that, and the other thing that I carefully look into

> everything we try. I spend much of my free time (that was until the

> nursing

> shortage hit Portland a few months ago) on the internet looking into

> the

> various treatments, supplements, medications, etc., that come up on

> these

> groups, and I have yet to find anything so reasonable and

> scientifically

> supported as the personalized plan my child is on.

>

> <<Everyone was very nice to me, and once others knew that we

>

> were handing out Dr.Kane's materials most everything disappeared.

>

> I saved a few copies aside to take home to some parents that I

>

> know, but just about everything was taken. It may seem on the

>

> internet that Dr.Kane or Bodybio is controversial, but I saw nothing

>

> like that at the conference. Best, Carlton, Forrest's Mom>>

>

> Thanks, for posting this. Again, I just don't get it! I asked

> medical

> professionals at several conferences I've been at about their opinion

> of Dr.

> Kane. I told a few why I was asking and they looked at me like I had a

> huge

> tumor growing out of my head, or maybe my skin was green or something!

> They

> said they had never heard of this nonsense, so I guess it's just on

> the

> autism e-mail groups.

>

> <<Message: 24

>

> Date: Tue, 15 May 2001 03:15:34 -0000

>

> From: AndyCutler@...

>

> Subject: Re: Notes from BodyBio Biomedical Conference and Mercury/

> A...

>

> > > Some kids do not respond to the program.

>

> > SADLY THAT IS TRUE, THE ELIMINATION OF HYDROGENATED OILS, IS VERY

>

> > HARD TO DO, IT IS ALMOST IMPOSSIBLE TO FIND ANYTHING IN THE

>

> > GROCERY STORE THAT DOES NOT CONTAIN SOME PARTIALLY HYDROGENATED

>

> > OILS, EVEN SOME OF THE GLUTEN FREE CASEIN FREE FOODS CONTAIN

>

> > PROCESSED OILS. I SPOKE WITH A REPRESENTATIVE OF THE GFCF FOODS,

>

> > AT HIS BOOTH, AND HE TOLD ME THAT IT WAS TOO EXPENSIVE TO USE

>

> > THE COLD PRESSED OILS.

>

> I've been doing it for myself for years, and for Sheldon for a while

>

> and it isn't particularly difficult.

>

> > >

>

> Andy, I'm glad you see the benefit in doing this, but I'm sure the

> general

> public and also many on even this list can't be bothered. I'm on

> several

> autism e-mail groups and you'd be surprised at how many can't be

> bothered

> with something so simple (or with trying the GF/CF diet despite the

> multiple

> doctors now presenting this information at DAN!, Autism Oasis, and

> various

> other conferences as well as the well documented information available

> on the

> internet). I posted before about hydrogenated oils, and I'll be to

> happy to

> again, if people are interested.

>

> Ruth

>

May 15, 2001

>>Again, I just don't get it! I asked medical

>>professionals at several conferences I've been at about their

opinion of Dr.

>>Kane. I told a few why I was asking and they looked at me like

I had a huge

>>tumor growing out of my head, or maybe my skin was green or

something! >>They

>>said they had never heard of this nonsense, so I guess it's

just on the

>>autism e-mail groups.

Ruth,

Perhaps part of the problem might be that the BodyBio system is

a

biomedical system developed for physicians, not for parents or

patients.

Often physicians

order the tests but never call for consultation so that a unique

protocol can

be set up. The BodyBio system also will not work if the child is

not well

fed--

if donuts and margarine and high sugar intake are continued

then the child's

progress is limited. The success of the information provided in

the BodyBio

program has a great deal to do with the physician's ability to

explain and

support the parent in the fine art of nutrition. Many physicians

struggle

with nutrition with all their patients -- adults and children. Thus

BodyBio has

a support team of parents for physicians whose patients parents

need extra

help. Any parent who is struggling with their doctor to glean as

much as

possible from their child's test results is free to call BodyBio and

they

will offer this

resource as to a parent who is supportive to the parent / doctor

needing

help with nutritional intervention. There is no charge for this

service.

Normally, all nutrients and dietary changes are introduced in

phases to

slowly change the diet over into whole, natural foods so it is not

overwhelming to the parent and child.

Body Bio has no records of any person who had 'no response' to

nutritional

intervention

however, there are many who had 'no response' that in the end it

is revealed

that they did not change the diet or get the nutrients into the child.

Many

physicians just dont have time to sit with a parent and work

through all the

concerns of changing the diet. Dr. Cartaxo spends 3 to 4 HOURS

doing this.

Of course, she has a high success rate with children with

autism! My old DAN! physician would have probably been willing

to order the tests for me, but would have been at a great loss as

to how to interpret them. And given the size of his practice, it just

might be impossible for him to take the time necessary to

understand the nutritional fundamentals behind the protocol. He

thought the whole food allergy issue was nonsense, until his

own NT daughter turned up with some severe reactions.

Perhaps some of the misunderstanding (and resentment) just

comes from the fact that this is a rather time-intensive individual

approach to a child's unique bio-chemistry. And unfortunately,

we here in the United States, have been raised on a *cookie

cutter* one-size-fits-all approach to disease.

May 15, 2001

Dear ,

I appreciate you sharing in an effort to help others.

While I have really tried to stay far away from the BB controversy

(too volitile for me), I have noted that Dr. Kane is, apparently,

" anti " chelation. I have wondered why. If she were " neutral " or

undecided that would be a different. But, since chelation

appears to greatly help many kids, to be AGAINST it seems odd to me.

Then again, I haven't heard what she has to say (just a few 2nd

hand references)--- so perhaps she is not actually against it?

I also have to be careful not to " scorn " things that did not work

as well as I would have liked (such as NAET--- which actually HELPED

me, but not decisively). And plenty of things cost big money,

so that, in itself, is not a reason to write something off. As

you have said, we each do our research, decide which things to try,

and then go by experience (whether results are worth the cost and

inconvienince etc.)

best,

Moria

(my references to " trying things " pertain to trying them MYSELF;

I do not have any children)

At 05:50 AM 5/15/2001 -0000, you wrote:

>Thank you! Ruth, I have been guilty of scorning AIT and the Ease disc

>for what they charge, and when I read the responses, I felt terrible

>about what I had written. After all, here I was scaring everyone to

>death and there are children that greatly benefit from this treatment.

> I never want to hurt anyone else, so I only say something about

>that treatment when I am asked, and even then I always mention,

>that it was only our experience, that others have had great success.

> I learned later about some things that we could have done to make

>the treatment work for us, and I would be willing to give it another

>try now.

> Dr.Kane and I have tried to find out why some people wanted to

>do this, and truly we have no real answers, there is a couple of

>reasons that we suspect, but nothing proof positive.

> Dr.Kane has her price down as low as it will go, that is why

>she had to supplement Bodybio's income with product sales, after all

>someone has to pay the employees and the electric bill, or Bodybio

>would close down.

> I would sure like to know some tips on how to find foods that do

>not contain hydrogenated oils, it would help out the members of

>the Autism-Challenge, and me too! For example, potato chips!!

> Best, Forrest's Mom

>PS sorry about the caps, I forgot about that!

May 15, 2001

We order ours from Blooming Prairie--a big natural and organic foods

organization with warehouses in Iowa City and Minneapolis. I'm sure they

are on-line. We get all kinds of non-hydrogenated stuff from them,

including crackers and cereals.

Barb