Re: GoodSearch and GoodShop

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Here are our stats to date on GoodSearch and GoodShop. Anyone anywhere can use it and it won't cost you a penny.http://www.goodsearch.com/nonprofit/erythema-nodosum-research-fund-nord.aspxLove,http://poems2order.wordpress.com/Please enter Erythema Nodosum.........Thanks!

,I couldn't agree more with your post! I have been a member for a whileAnd have been turned off by the guilt tripping for donations. I too feel we will find our own solutions.Group our job is to provide support. Period. There are new people who are struggling, PLEASE remember that and find another way to raise donations. Let's remember the goal of this group before we lose more members.Best,ML GemmillEN 1975 Sent via BlackBerry from T-Mobile

From: "nicolepentz2" <snpentzhotmail (DOT) com>

Sender: erythema_nodosum_ Group@yahoogroup s.com

Date: Wed, 21 Jul 2010 08:51:43 -0000

To: <erythema_nodosum_ Group@yahoogroup s.com>

ReplyTo: erythema_nodosum_ Group@yahoogroup s.com

Subject: [erythema_nodosum_ Group] Give money?

Trudi, Thank you for voicing some of my feelings too. I have only joined this group recently, and this is my first posting. Joining this group is a tentative thing for me, yes, I would love to find out more about EN, especially what people are doing, have done, have read about, ect. The tone of the asking for money for the "cause" has really put me off. I've never been a member of a Yahoo group that requires money, either implicitly or explicitly. Maybe some do. I would not have joined if I had known this was the case. Saying it is not required but then laying that heap of pressure on everyone is a kind of passive aggressive thing that I have very little tolerance for. What I expected from joining this group is that I would meet people who know more about this than me, not that I would be instantly guilt tripped to give to someone's favorite organization (which I know NOTHING about). The flip side of me joining and hoping for answers

is that if I come up with something that helps this condition, or information that I think is potentially useful, I will share it with you all freely and without any obligation or implied sense that you "OWE" me. I have no faith in medical research finding the answer to this, considering the billions of dollars that have been given to cancer societies, to no avail. Why does anyone think a few dollars of "feel good" is going to further medical science? Exactly what clinical trials are proposed that need to be done? How, and by whom will they be conducted?? or will the donations just fund some Administrators to think about and possibly decide that? Because the non-profit administrator' s salary is not something I can afford, and I am not interested in joining a "club." IMO, If you want to spend money on EN research, something more useful is to start your own EN research group, or become one, and buy subscriptions to medical journals in

English, Chinese, Russian, German, Spanish or French, depending on your abilities to read each, to start. Then scour them and their back issues for pertinent information. Report to the group, written essays surveying each weeks efforts at amassing more knowledge. Besides that, I consider this group of people sharing subjective experiences of what they have tried and the results of that, to be a contribution toward the body of knowledge re. EN and maybe someday it will come together into yet another journal article, with more clues for those who are seekers of a benificent truth. Sincerely, and with best wishes to you all to find your own solutions.