RE: Weakness---EXTREMLY LENGTHT Sorry :(

March 30, 2004

LeAnn, I have to say, I know exactly what you mean about the Dr. giving you a cold shoulder. My first neuro was very cold. Maybe in this profession they feel as though they have to be. They may not open up too often because most of the time they deal with pretty bleak cases? Any way I didn't care for the way he treated me at all. I'm a person damn it, not a file!! I HATE it when a Dr. walks into a room, looks at you and then the file to read your name. If you don't remember my name then read it before you enter the room idiot!!! (O.K., now I'm venting?) So I changed to a female Dr. I thought maybe we would asssociate better. She was worse! She ended up having personal problems that she forgot to leave at home. She basiclly told me flat out that I was going to live a terrible life full of pain and frustration. There was nothing she'd be able to do for me, so I'd just have to start my injections

and get on daily oral steroids if I even wanted a chance. Bitch!!! I had a shrink to talk to me about the way I was feeling emtionally. Not her. So I dumped her quick!!!!! Finally, I was referred to a Dr. by a woman whom I met on a whim. (the light at the end of my tunnel...God doing his work making sure that things always work out the way they should) She was a nurse who just so happened to work w/ MS patients in Chicago. She gave me the name and number of a Dr. just 20 mins. away from me! "She's the best", she said. That was the truth!!! I love my Dr. She loves me too. She loves all of her patients. Twice a year she has a Summer and Christmas party for us. She sent me flowers (to my house) when I had the baby! She's great. My point is that you have to keep searching until your Dr. finds you. No one will ever look out for you as well you do, so don't sell yourself short by

settling. Ever!

p.s. as far as the nurse, i never saw her again and noone knew who i was talking about when i wanted to send a thank you card. i'll get a hold of her one day, until then the search continues.sunflowers042001 wrote:

Hello to everyone! First, just wanted to apologize, I haven't posted or replyed very much lately, cause I've been very busy, sorry. Second, I have a question or so, First let me say again that I'm in that probable stage of MS, I have an appoitment with the Mayo clinic here in sdale with the MS specialist people. Which, I'm very excited about. Second, I need to do a little venting before I ask my question to all you wonderful 'ears' out there:). I has an 'attack' yesturday at work. I was venting to my boss about some issues that happned on saturday with a vet, when, I suddenly started having vision problems and feeling very weak. I went outside to get some air and to just relax a little, thinking that it may go away, however, after relaxing for an hour or so, it didn't go away, matter

of fact, it got worse. I went numb in my legs and was unable to walk. My neuro is apprx. an hour away from where I work, so, I called him first, left a urgent message and then called my husband to come and pick me up. So, since my neuro told me at my last visit to just come in when my issues flare up. So, I did, when I got there I told the recep. what was going on, as if it wasn't obviouse, and she then got an attitude and said that I would have to wait until the end of the day after all of his regular appts. It was about 12 in the afternoon. Then my neuro came walking up and she said that I was here and he told her while I was right there that I would have to wait to squeeze me in somewhere. I was very upset and so was my husband. In my opinion, he was standing right there and he could of at least saw the situation and said something to me, any way, we waited for 2 hours in

his office, then we left. I was so upset by the lack of caring and the rudness and the awful attitude, that I decided that I was never going to see him again! Around 5, the numbness, vision, unable to walk with out assistance, and speech was so bad, that it was off to the ER. Where we waited for 4 hours. The doctor who saw me there first comment was, "so you're having prblems with breathing?" I said "NO, I'm having diffuculty with walking and ect... Then he said "Well I don't know what I'm going to do with you. I fix broken bones and unless that's your problem, there is nothing I can do. You need to see a Neurologist." Then he went to go pull my records since I was in the hospital in July to see what tests were done. I told his nurse that I wasn't at this hospital, that I was at a diffrent one. She said ok. An hour and a half goes by when the doctor tells me he

can't find me in the system. I told him that I had told his nurse that I was at a diffrent hospital. He said that she had not told him that it was going to be a little loner. My husbanb and I had had enough and it was 1:30 in the morning, and so, I discharged myself and left, but, not before them telling me by doing so, that I could possibly die. I just rolled my eyes and left. So, today abour mid-day, I am now able to walk with my crutch and my vision and what not is better. Does stress bring on flare ups like that? and then suddenly get better? I'm confused, but then, that's generally all the time anyway Anyway thanks for listening to me vent, it's nice that everyone here I'm sure can relate to this horrible ordeal and understands my frutration. Again, I'm sorry for this being so very long. Thanks for listening. :)LeAnn

March 30, 2004

LeAnn, YES, stress can bring symptoms on. It's not a "true" exasperation per my neuro unless your symptoms got A LOT worse or have new symptoms. She calls them pseudo-exasperations. That's all I have are the pseudo's. I call them flares. Pseudo-exasperation is too hard to say...lol I don't blame you for not wanting to see your neuro again. I don't think I would want to either. They always say come in, but I don't think they think we will....lol I'm sorry you had to go through all of that.

When is your appt at Mayo?

Good luck

I just got lost in thought. It was unfamiliar territory.

-- Weakness---EXTREMLY LENGTHT Sorry

Hello to everyone! First, just wanted to apologize, I haven't posted or replyed very much lately, cause I've been very busy, sorry. Second, I have a question or so, First let me say again that I'm in that probable stage of MS, I have an appoitment with the Mayo clinic here in sdale with the MS specialist people. Which, I'm very excited about. Second, I need to do a little venting before I ask my question to all you wonderful 'ears' out there:). I has an 'attack' yesturday at work. I was venting to my boss about some issues that happned on saturday with a vet, when, I suddenly started having vision problems and feeling very weak. I went outside to get some air and to just relax a little, thinking that it may go away, however, after relaxing for an hour or so, it didn't go away, matter of fact, it got worse. I went numb in my legs and was unable to walk. My neuro is apprx. an hour away from where I work, so, I called him first, left a urgent message and then called my husband to come and pick me up. So, since my neuro told me at my last visit to just come in when my issues flare up. So, I did, when I got there I told the recep. what was going on, as if it wasn't obviouse, and she then got an attitude and said that I would have to wait until the end of the day after all of his regular appts. It was about 12 in the afternoon. Then my neuro came walking up and she said that I was here and he told her while I was right there that I would have to wait to squeeze me in somewhere. I was very upset and so was my husband. In my opinion, he was standing right there and he could of at least saw the situation and said something to me, any way, we waited for 2 hours in his office, then we left. I was so upset by the lack of caring and the rudness and the awful attitude, that I decided that I was never going to see him again! Around 5, the numbness, vision, unable to walk with out assistance, and speech was so bad, that it was off to the ER. Where we waited for 4 hours. The doctor who saw me there first comment was, "so you're having prblems with breathing?" I said "NO, I'm having diffuculty with walking and ect... Then he said "Well I don't know what I'm going to do with you. I fix broken bones and unless that's your problem, there is nothing I can do. You need to see a Neurologist." Then he went to go pull my records since I was in the hospital in July to see what tests were done. I told his nurse that I wasn't at this hospital, that I was at a diffrent one. She said ok. An hour and a half goes by when the doctor tells me he can't find me in the system. I told him that I had told his nurse that I was at a diffrent hospital. He said that she had not told him that it was going to be a little loner. My husbanb and I had had enough and it was 1:30 in the morning, and so, I discharged myself and left, but, not before them telling me by doing so, that I could possibly die. I just rolled my eyes and left. So, today abour mid-day, I am now able to walk with my crutch and my vision and what not is better. Does stress bring on flare ups like that? and then suddenly get better? I'm confused, but then, that's generally all the time anyway Anyway thanks for listening to me vent, it's nice that everyone here I'm sure can relate to this horrible ordeal and understands my frutration. Again, I'm sorry for this being so very long. Thanks for listening. :)LeAnn

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March 30, 2004

Oh yes LeAnn I can very much say from my personal experience that stress will bring out my symptoms! My kitty got sick a couple of days ago. While inside my heart I knew it was nothing serious, I still had a mini-flare just from the stress of that -- got the electrical shocks the weak knees feeling like they were going to buckle, the vertigo --- this lasted for a couple of days. I will sometimes feel like I am going to faint or that I am going to vomit if someone just happens to say a cross word to me....... Can we say sensitive?????

Take a deep breath, relax, and all will be okay

Portia

http://www.cathobbyist.com/

All things for cats and cat's humans

Helpful Advice, Support, Great Chats and a Free Photo Gallery

Super Forums, Great Bookstore and a Fabulous Feline Art Gallery

Special Support for Pet Loss

http://forums.pethobbyist.com/

-- Weakness---EXTREMLY LENGTHT Sorry

Hello to everyone! First, just wanted to apologize, I haven't posted

or replyed very much lately, cause I've been very busy, sorry.

Second, I have a question or so, First let me say again that I'm in

that probable stage of MS, I have an appoitment with the Mayo clinic

here in sdale with the MS specialist people. Which, I'm very

excited about. Second, I need to do a little venting before I ask my

question to all you wonderful 'ears' out there:). I has an 'attack'

yesturday at work. I was venting to my boss about some issues that

happned on saturday with a vet, when, I suddenly started having

vision problems and feeling very weak. I went outside to get some

air and to just relax a little, thinking that it may go away,

however, after relaxing for an hour or so, it didn't go away, matter

of fact, it got worse. I went numb in my legs and was unable to

walk. My neuro is apprx. an hour away from where I work, so, I

called him first, left a urgent message and then called my husband to

come and pick me up. So, since my neuro told me at my last visit to

just come in when my issues flare up. So, I did, when I got there I

told the recep. what was going on, as if it wasn't obviouse, and she

then got an attitude and said that I would have to wait until the end

of the day after all of his regular appts. It was about 12 in the

afternoon. Then my neuro came walking up and she said that I was

here and he told her while I was right there that I would have to

wait to squeeze me in somewhere. I was very upset and so was my

husband. In my opinion, he was standing right there and he could of

at least saw the situation and said something to me, any way, we

waited for 2 hours in his office, then we left. I was so upset by

the lack of caring and the rudness and the awful attitude, that I

decided that I was never going to see him again! Around 5, the

numbness, vision, unable to walk with out assistance, and speech was

so bad, that it was off to the ER. Where we waited for 4 hours. The

doctor who saw me there first comment was, "so you're having prblems

with breathing?" I said "NO, I'm having diffuculty with walking and

ect... Then he said "Well I don't know what I'm going to do with

you. I fix broken bones and unless that's your problem, there is

nothing I can do. You need to see a Neurologist." Then he went to

go pull my records since I was in the hospital in July to see what

tests were done. I told his nurse that I wasn't at this hospital,

that I was at a diffrent one. She said ok. An hour and a half goes

by when the doctor tells me he can't find me in the system. I told

him that I had told his nurse that I was at a diffrent hospital. He

said that she had not told him that it was going to be a little

loner. My husbanb and I had had enough and it was 1:30 in the

morning, and so, I discharged myself and left, but, not before them

telling me by doing so, that I could possibly die. I just rolled my

eyes and left. So, today abour mid-day, I am now able to walk with

my crutch and my vision and what not is better. Does stress bring on

flare ups like that? and then suddenly get better? I'm confused,

but then, that's generally all the time anyway Anyway thanks for

listening to me vent, it's nice that everyone here I'm sure can

relate to this horrible ordeal and understands my frutration. Again,

I'm sorry for this being so very long. Thanks for listening.

LeAnn

March 30, 2004

Hi LeAnn

I have a feeling the heat got to youand caused the troubles.

My biggest trouble with my MS is the heat. I have missed several of my son's ball games because of the heat, it really bothers me that much. I use a walker to get around since I don't have any balance and the heat causes my legs to get really weak. It almost feels like I am standing in concrete it is so hard for me to move.

I also find if my home gets up to about 77 or 78 degree's I will start having troubles with my legs.

Last summer we went to visit my parents and it was warm that day but my parents had the doors open for fresh air. If I did not have my MS it would have been fine. I sat in the corner of the room working on my mothers computer and within a few hours I felt weak in the legs and also disoriented and a little on the angry side. I eventually told my wife we have to get out of here. We got in the car where it was airconditioned and within a few minutes I felt fine again.

Last spring at this same time we went to Florida for a vacation during my son's spring break and we visited Disney World on a Wednesday and they have a daily Disney Parade. I made a big mistake not getting out of the sun. I used my wheelchair to get around that day the heat was so hard on me I could not walk for about 6 weeks. I was really worried I would be in a wheelchair the rest of my life.

I was lucky because my leg troubles cleared up.

Here are a few photo's of our Disney trip.

http://groups.msn.com/MSersLifeExtra/disneyphotos.msnw

The worse part about my MS is the heat because I love a warm day.

Try to avoid the heat it might help out. Some use cooling vest and Shirley last summer told about a cooling item she puts around her neck.

Bill (Indiana)

Weakness---EXTREMLY LENGTHT Sorry

Hello to everyone! First, just wanted to apologize, I haven't posted or replyed very much lately, cause I've been very busy, sorry. Second, I have a question or so, First let me say again that I'm in that probable stage of MS, I have an appoitment with the Mayo clinic here in sdale with the MS specialist people. Which, I'm very excited about. Second, I need to do a little venting before I ask my question to all you wonderful 'ears' out there:). I has an 'attack' yesturday at work. I was venting to my boss about some issues that happned on saturday with a vet, when, I suddenly started having vision problems and feeling very weak. I went outside to get some air and to just relax a little, thinking that it may go away, however, after relaxing for an hour or so, it didn't go away, matter of fact, it got worse. I went numb in my legs and was unable to walk. My neuro is apprx. an hour away from where I work, so, I called him first, left a urgent message and then called my husband to come and pick me up. So, since my neuro told me at my last visit to just come in when my issues flare up. So, I did, when I got there I told the recep. what was going on, as if it wasn't obviouse, and she then got an attitude and said that I would have to wait until the end of the day after all of his regular appts. It was about 12 in the afternoon. Then my neuro came walking up and she said that I was here and he told her while I was right there that I would have to wait to squeeze me in somewhere. I was very upset and so was my husband. In my opinion, he was standing right there and he could of at least saw the situation and said something to me, any way, we waited for 2 hours in his office, then we left. I was so upset by the lack of caring and the rudness and the awful attitude, that I decided that I was never going to see him again! Around 5, the numbness, vision, unable to walk with out assistance, and speech was so bad, that it was off to the ER. Where we waited for 4 hours. The doctor who saw me there first comment was, "so you're having prblems with breathing?" I said "NO, I'm having diffuculty with walking and ect... Then he said "Well I don't know what I'm going to do with you. I fix broken bones and unless that's your problem, there is nothing I can do. You need to see a Neurologist." Then he went to go pull my records since I was in the hospital in July to see what tests were done. I told his nurse that I wasn't at this hospital, that I was at a diffrent one. She said ok. An hour and a half goes by when the doctor tells me he can't find me in the system. I told him that I had told his nurse that I was at a diffrent hospital. He said that she had not told him that it was going to be a little loner. My husbanb and I had had enough and it was 1:30 in the morning, and so, I discharged myself and left, but, not before them telling me by doing so, that I could possibly die. I just rolled my eyes and left. So, today abour mid-day, I am now able to walk with my crutch and my vision and what not is better. Does stress bring on flare ups like that? and then suddenly get better? I'm confused, but then, that's generally all the time anyway Anyway thanks for listening to me vent, it's nice that everyone here I'm sure can relate to this horrible ordeal and understands my frutration. Again, I'm sorry for this being so very long. Thanks for listening. :)LeAnn

March 30, 2004

Hello LeAnn,

I just wanted to say how sorry I am for all that you've been through!! I

think doctors are getting worse than politicians/so-called " public

servants " -who think WE work for them instead of being the other way around.

I know you'd never get a dime, but you should still send " bills " to everyone

who treated you so badly, just to get your point across that your time, and

most of all, your health - are so very important too. I've heard of people,

especially professionals such as lawyers, who have sent " bills " to doctors

who left them sitting for hours needlessly, and sometimes they've sued in

court to collect these " bills " , and they've won!! So I'd say it's worth a

try, just for your own satisfaction - let them get their blood pressure up

for once.

Rita

March 31, 2004

LeAnn, You are in my prayers as well, it must be very hard on you right now and I pray that it all works out for the best!!

Hugs,http://andcoverageforall.info Owner/Founder And Coverage For All 2 Yahoo Grouphttp://health.groups.yahoo.com/group/ACFA2/

March 31, 2004

LeAnn,

Stress in fact can bring on some of the problems that you have recently experienced. However, it is not necessarily the only cause. Ms is very tricky. Go to www.copingandprevailing.com If you cannot afford to pay for the books send me your mailing address and I will send them to you. There is a lot that you can do to help yourself with ms, a whole lot.

Regards,

Tom

March 31, 2004

They would

be a rare doctor indeed that could remember their patients names. Most doctors and their practice decent

every six minutes they can possibly remember all the people they see, a

specially those that are in the specialties such as neurology. You realize that

neurologists are the second most sued specialists; only OB/GYNs

Are more

likely to be soon.

I used to

work and a level one trauma center; as a vampire {proper name “Phlebotomist”},

and you deliberately did not want to remember a patient’s name but rather

always check your paperwork against the name ban on their wrist because you

didn’t want to mis-identify the blood sample to the wrong person; that could

have fatal results.

Trusted me,

if you think your doctor knows you well, he just has a very good social history

in your file and glanced at before he walked into the room.

Tom Carr

-----Original

Message-----

From: Maldonado

Sent: Tuesday, March 30, 2004 8:22

PM

To: MSersLife

Subject: Re:

Weakness---EXTREMLY LENGTHT Sorry

LeAnn, I have

to say, I know exactly what you mean about the Dr. giving you a cold

shoulder. My first neuro was very cold. Maybe in this profession

they feel as though they have to be. They may not open up too often

because most of the time they deal with pretty bleak cases? Any way I

didn't care for the way he treated me at all. I'm a person damn it, not a

file!! I HATE it when a Dr. walks into a room, looks at you and then the

file to read your name. If you don't remember my name then read it before

you enter the room idiot!!! (O.K., now I'm venting?) So I changed

to a female Dr. I thought maybe we would asssociate better. She was

worse! She ended up having personal problems that she forgot to leave at

home. She basiclly told me flat out that I was going to live a terrible

life full of pain and frustration. There was nothing she'd be able to do

for me, so I'd just have to start my injections and get on daily oral steroids

if I even wanted a chance. Bitch!!! I had a shrink to talk to me about the

way I was feeling emtionally. Not her. So I dumped her

quick!!!!! Finally, I was referred to a Dr. by a woman whom I met on a

whim. (the light at the end of my tunnel...God doing his work making sure

that things always work out the way they should) She was a nurse who just

so happened to work w/ MS patients in Chicago. She gave me the name and

number of a Dr. just 20 mins. away from me! " She's the best " ,

she said. That was the truth!!! I love my Dr. She loves me

too. She loves all of her patients. Twice a year she has a Summer

and Christmas party for us. She sent me flowers (to my house) when I had

the baby! She's great. My point is that you have to keep searching

until your Dr. finds you. No one will ever look out for you as well you

do, so don't sell yourself short by settling. Ever!

p.s. as

far as the nurse, i never saw her again and noone knew who i was talking

about when i wanted to send a thank you card. i'll get a hold of her one

day, until then the search continues.

sunflowers042001

wrote:

Hello to everyone! First, just wanted to apologize, I

haven't posted