Re: GFCF daughter too thin--please help

[Guest guest]

Hi Molly,

as far as I remember Goat's milk still has casein. So I would try

Coconut milk instead and nutbutters (cashew, almond and peanutbutter).

Hope that might help, what does your little daugther weigh?

Sabine in CA

Molly Tarbox wrote:

> My 5.5 year old daughter is GF/CF and has been for over a year. She has

> always been small but I am concerned that she seems to have very little

> body fat in fact her muscles are clearly visible when she is naked-her

> calves from running and tip toeing, her abs from holding herself

> straight when you pick her up, etc. Her OT says she is often in a state

> of arousal so she does not have low tone problems. She is in the 13% for

> weight and while she has never been big for her age, I am wondering if

> there are some additional fats that she could be getting. I give her cod

> liver oil and sometimes fish oil. I use ghee and cocoanut oil for

> cooking and baking but don't add a huge amount.

>

> I remember seeing some posts recently about goats milk or something to

> get in more dairy fats. Maybe I'm remembering incorrectly. I would

> appreciate any feedback or help on this so much. I am fearful that my

> ex-husband will want to take her off the diet. I have reminded him of

> her terrible diarreah and distended stomach and poor eating habits

> before the diet. I think his own fear may make him succumb to the idea

> that kids need milk.

>

> Thanks, Molly

>

>

>

[Guest guest]

My son was really skinny too (now he is still small, but not skinny) and tried

organic almond butter. He loves it and eats it with everything - on rice

cakes, dipping veggies and fruits, etc.

GFCF daughter too thin--please help

My 5.5 year old daughter is GF/CF and has been for over a year. She has

always been small but I am concerned that she seems to have very little

body fat in fact her muscles are clearly visible when she is naked-her

calves from running and tip toeing, her abs from holding herself

straight when you pick her up, etc. Her OT says she is often in a state

of arousal so she does not have low tone problems. She is in the 13% for

weight and while she has never been big for her age, I am wondering if

there are some additional fats that she could be getting. I give her cod

liver oil and sometimes fish oil. I use ghee and cocoanut oil for

cooking and baking but don't add a huge amount.

I remember seeing some posts recently about goats milk or something to

get in more dairy fats. Maybe I'm remembering incorrectly. I would

appreciate any feedback or help on this so much. I am fearful that my

ex-husband will want to take her off the diet. I have reminded him of

her terrible diarreah and distended stomach and poor eating habits

before the diet. I think his own fear may make him succumb to the idea

that kids need milk.

Thanks, Molly

[Guest guest]

Thanks for the suggestions. She used to eat almond butter but lately

wants her bread/pancakes/waffles plain. I'll try to reintroduce it. She

does like nuts and understands that they have protein because she will

ask for her favorite pretzels and say " I'll have some nuts for protein,

Mom. " She weighs 36 lbs. She also has 's Syndrome which impacts

her height (she is in the 3% even with taking growth hormone shots) but

not her weight. At her last endocrinologist appointment the doctor was

fine with her height and weight but he did not see her naked and her

lack of body fat.

Thanks again, Molly in CA

Re: GFCF daughter too thin--please help

Hi Molly,

as far as I remember Goat's milk still has casein. So I would try

Coconut milk instead and nutbutters (cashew, almond and peanutbutter).

Hope that might help, what does your little daugther weigh?

Sabine in CA

Molly Tarbox wrote:

> My 5.5 year old daughter is GF/CF and has been for over a year. She

has

> always been small but I am concerned that she seems to have very

little

> body fat in fact her muscles are clearly visible when she is naked-her

> calves from running and tip toeing, her abs from holding herself

> straight when you pick her up, etc. Her OT says she is often in a

state

> of arousal so she does not have low tone problems. She is in the 13%

for

> weight and while she has never been big for her age, I am wondering if

> there are some additional fats that she could be getting. I give her

cod

> liver oil and sometimes fish oil. I use ghee and cocoanut oil for

> cooking and baking but don't add a huge amount.

>

> I remember seeing some posts recently about goats milk or something to

> get in more dairy fats. Maybe I'm remembering incorrectly. I would

> appreciate any feedback or help on this so much. I am fearful that my

> ex-husband will want to take her off the diet. I have reminded him of

> her terrible diarreah and distended stomach and poor eating habits

> before the diet. I think his own fear may make him succumb to the idea

> that kids need milk.

>

> Thanks, Molly

>

>

>

[Guest guest]

Avocado is high in fat and nutrient-rich.

>

> Reply-To: csb-autism-rx

> Date: Sat, 4 Mar 2006 14:50:37 -0800

> To: <csb-autism-rx >

> Subject: RE: GFCF daughter too thin--please help

>

> Thanks for the suggestions. She used to eat almond butter but lately

> wants her bread/pancakes/waffles plain. I'll try to reintroduce it. She

> does like nuts and understands that they have protein because she will

> ask for her favorite pretzels and say " I'll have some nuts for protein,

> Mom. " She weighs 36 lbs. She also has 's Syndrome which impacts

> her height (she is in the 3% even with taking growth hormone shots) but

> not her weight. At her last endocrinologist appointment the doctor was

> fine with her height and weight but he did not see her naked and her

> lack of body fat.

>

> Thanks again, Molly in CA

>

[Guest guest]

My son was always pretty thin but last year he got so thin that lots of

people noticed it. I started giving him digestive enzymes and he

gained some and grew a lot. He is 12 so he was due to grow lots but it

worried me that he was on the verge of this and so thin, really going

sideways on the weight part of the growth chart for a while. Try to

slip those calories in where ever you can.

H.

> My 5.5 year old daughter is GF/CF and has been for over a year. She has

> always been small but I am concerned that she seems to have very

> little

> body fat in fact her muscles are clearly visible when she is naked-her

> calves from running and tip toeing, her abs from holding herself

> straight when you pick her up, etc. Her OT says she is often in a

> state

> of arousal so she does not have low tone problems. She is in the 13%

> for

> weight and while she has never been big for her age, I am wondering if

> there are some additional fats that she could be getting. I give her

> cod

> liver oil and sometimes fish oil. I use ghee and cocoanut oil for

> cooking and baking but don't add a huge amount.

[Guest guest]

We add a little olive oil (or whatever else...coconut, etc) to cooked

cereal, soups, mashed squash, etc to make them taste richer & add

calories. If she will eat avocado that is quite rich, I don't

personally like it, but I add a whole pureed avocado to homemade

broccoli soup and it adds a lot of body.

Other add-ins we use:

Homemade veggie soup: make it thick, almost like a stew, take 1/3,

puree and add back in, that way the broth is much richer

Make rice & rice pasta in veggie or chicken broth instead of water

1/2 cup steamed squash, carrot or pumkin added to muffin recipes

If she's ok with nuts and seeds, we also add chopped walnuts and

organic sunflower seeds to cereal or cereal bars, muffins

More calories, more fats

V

>

> My 5.5 year old daughter is GF/CF and has been for over a year. She

has

> always been small but I am concerned that she seems to have very

little

> body fat in fact her muscles are clearly visible when she is naked-

her

> calves from running and tip toeing, her abs from holding herself

> straight when you pick her up, etc. Her OT says she is often in a

state

> of arousal so she does not have low tone problems. She is in the

13% for

> weight and while she has never been big for her age, I am wondering

if

> there are some additional fats that she could be getting. I give

her cod

> liver oil and sometimes fish oil. I use ghee and cocoanut oil for

> cooking and baking but don't add a huge amount.

>

> I remember seeing some posts recently about goats milk or something

to

> get in more dairy fats. Maybe I'm remembering incorrectly. I would

> appreciate any feedback or help on this so much. I am fearful that

my

> ex-husband will want to take her off the diet. I have reminded him

of

> her terrible diarreah and distended stomach and poor eating habits

> before the diet. I think his own fear may make him succumb to the

idea

> that kids need milk.

>

> Thanks, Molly

>

>

>

[Guest guest]

> Also, I don't know what your pancake recipe is, but substituting some

> almond flour in it will also add calories, fats, protein.

Adding ground flax seed and using coconut milk ups the fat and calories too.

Plus it's really yummy.

Lynne

[Guest guest]

That's a good possibility.

Try these:

Cyrus's Favorite Peanut Butter Cookies (Grandma Style)

GF/CF/soy, egg, corn, sugar, vanilla free

Preheat oven to 325 degrees. Prepare baking sheets. (cover baking

sheet with foil and lightly spray with GF/CF olive cooking spray.

Measure dry ingredients into a medium to large bowl.

3 cups almond flour

¼ teaspoon salt

½ teaspoon stevia plus

½ teaspoon baking soda

In a separate measuring cup, combine the wet ingredients.

½ cup honey

½ cup peanut butter (no additives…our health food store has a grinder

on-site)

2 Tablespoons almond milk (no sweeteners)

½ teaspoon cider vinegar (not apple cider flavored, actual apple

cider vinegar)

Blend wet ingredients with a mixer and add dry ingredients, mix

together until smooth and consistent. (Will be thick and sticky,

similar to traditional spritz dough.)

Roll into balls ¾ - 1 " , press with fork tines to flatten. Bake @ 325

degrees for 13-14 minutes. Cookies will be soft and harden as they

cool. Makes 3 dozen. Store in airtight container.

Variation: For holidays, we press them flat using the discs from a

cookie press to make a holiday design. Earthenware cookie stamps also

work very well.

If you notice grumpy behavior because of the cookies, reduce the

honey to ¼ cup and add ¼ cup (liquid) unflavored gelatin mixed

according to package instructions. The cookies will be browner and a

bit chewier but still good!

OR substitute ¼ cup applesauce for ¼ cup of the honey & omit the

almond milk.

Also, for the pancakes, I add different fruits instead of part of

whatever liquid to vary the flavor or thin them with water to make a

crepe for rolling up PB or fruit filling.

V

> >

> > > My 5.5 year old daughter is GF/CF and has been for over a year.

> She

> > has

> > > always been small but I am concerned that she seems to have very

> > little

> > > body fat in fact her muscles are clearly visible when she is

> naked-her

> > > calves from running and tip toeing, her abs from holding herself

> > > straight when you pick her up, etc. Her OT says she is often in

a

> > state

> > > of arousal so she does not have low tone problems. She is in

the

> 13%

> > for

> > > weight and while she has never been big for her age, I am

> wondering if

> > > there are some additional fats that she could be getting. I

give

> her

> > cod

> > > liver oil and sometimes fish oil. I use ghee and cocoanut oil

for

> > > cooking and baking but don't add a huge amount.

> > >

> > > I remember seeing some posts recently about goats milk or

> something to

> > > get in more dairy fats. Maybe I'm remembering incorrectly. I

would

> > > appreciate any feedback or help on this so much. I am fearful

> that my

> > > ex-husband will want to take her off the diet. I have reminded

> him of

> > > her terrible diarreah and distended stomach and poor eating

habits

> > > before the diet. I think his own fear may make him succumb to

the

> idea

> > > that kids need milk.

> > >

> > > Thanks, Molly

> > >

> > >

> > >

[Guest guest]

Prior to last May, not one doctor had ever looked into why my

daughter was so thin and somewhat small for her age. I was told as

long as she was growing that she was fine. [i must add that KKI

wanted to do growth hormone shots when she was very young and never

did, thank goodness] For several years, she had horrible GI problems.

Again, not one doctor seemed concerned. Her dx was possible IBD. She

was prescribed 2 different meds and they did nothing. She used to

wear clothes for atleast 3 years in a row.

Last May 2005, I urged the previous pediatrician to look at my

daughter as she looked like " the walking dead. " He ran bloodwork

immediately after examination. We were told that our daughter had

malabsorption. We immediately went GFCF. And we started a variety of

vitamins and supplements. On 4-21-04, weighed 73 pounds, on

May 10, 2005, she weighed 76 pounds. currently weighs 101

pounds and still not an ounce overweight and has grown in height as

well. She has been med free close to a year and has made tremendous

strides in school. has a milk and wheat allergy and possible

egg allergy. [since her first and last flu vax in 2004, eggs now

disagree with her.]

She made honor roll for the first time ever and is now reading to the

class. Everything has changed for the better including her

confidence. She is even working on growing her nails. We are still

unsure of what/why and how. All we know is that between the diet and

supplements, has become a new kid though not fully recovered

but pretty darn close. is 14.5 years.

We actually missed the last LDN study due to our twins issues. They

are on the spectrum as well. And are 21.5 months. We are working on

them, too. And their brother, , 11 years old w/ADHD and ODD.

www.babyhomepages.net/thegillespiefamily/

>

> My 5.5 year old daughter is GF/CF and has been for over a year. She

has

> always been small but I am concerned that she seems to have very

little

> body fat in fact her muscles are clearly visible when she is naked-

her

> calves from running and tip toeing, her abs from holding herself

> straight when you pick her up, etc. Her OT says she is often in a

state

> of arousal so she does not have low tone problems. She is in the

13% for

> weight and while she has never been big for her age, I am wondering

if

> there are some additional fats that she could be getting. I give

her cod

> liver oil and sometimes fish oil. I use ghee and cocoanut oil for

> cooking and baking but don't add a huge amount.

>

> I remember seeing some posts recently about goats milk or something

to

> get in more dairy fats. Maybe I'm remembering incorrectly. I would

> appreciate any feedback or help on this so much. I am fearful that

my

> ex-husband will want to take her off the diet. I have reminded him

of

> her terrible diarreah and distended stomach and poor eating habits

> before the diet. I think his own fear may make him succumb to the

idea

> that kids need milk.

>

> Thanks, Molly

>

>

>

[Guest guest]

Prior to last May, not one doctor had ever looked into why my

daughter was so thin and somewhat small for her age. I was told as

long as she was growing that she was fine. [i must add that KKI

wanted to do growth hormone shots when she was very young and never

did, thank goodness] For several years, she had horrible GI problems.

Again, not one doctor seemed concerned. Her dx was possible IBD. She

was prescribed 2 different meds and they did nothing. She used to

wear clothes for atleast 3 years in a row.

Last May 2005, I urged the previous pediatrician to look at my

daughter as she looked like " the walking dead. " He ran bloodwork

immediately after examination. We were told that our daughter had

malabsorption. We immediately went GFCF. And we started a variety of

vitamins and supplements. On 4-21-04, weighed 73 pounds, on

May 10, 2005, she weighed 76 pounds. currently weighs 101

pounds and still not an ounce overweight and has grown in height as

well. She has been med free close to a year and has made tremendous

strides in school. has a milk and wheat allergy and possible

egg allergy. [since her first and last flu vax in 2004, eggs now

disagree with her.]

She made honor roll for the first time ever and is now reading to the

class. Everything has changed for the better including her

confidence. She is even working on growing her nails. We are still

unsure of what/why and how. All we know is that between the diet and

supplements, has become a new kid though not fully recovered

but pretty darn close. is 14.5 years.

We actually missed the last LDN study due to our twins issues. They

are on the spectrum as well. And are 21.5 months. We are working on

them, too. And their brother, , 11 years old w/ADHD and ODD.

www.babyhomepages.net/thegillespiefamily/

>

> My 5.5 year old daughter is GF/CF and has been for over a year. She

has

> always been small but I am concerned that she seems to have very

little

> body fat in fact her muscles are clearly visible when she is naked-

her

> calves from running and tip toeing, her abs from holding herself

> straight when you pick her up, etc. Her OT says she is often in a

state

> of arousal so she does not have low tone problems. She is in the

13% for

> weight and while she has never been big for her age, I am wondering

if

> there are some additional fats that she could be getting. I give

her cod

> liver oil and sometimes fish oil. I use ghee and cocoanut oil for

> cooking and baking but don't add a huge amount.

>

> I remember seeing some posts recently about goats milk or something

to

> get in more dairy fats. Maybe I'm remembering incorrectly. I would

> appreciate any feedback or help on this so much. I am fearful that

my

> ex-husband will want to take her off the diet. I have reminded him

of

> her terrible diarreah and distended stomach and poor eating habits

> before the diet. I think his own fear may make him succumb to the

idea

> that kids need milk.

>

> Thanks, Molly

>

>

>

[Guest guest]

Prior to last May, not one doctor had ever looked into why my

daughter was so thin and somewhat small for her age. I was told as

long as she was growing that she was fine. [i must add that KKI

wanted to do growth hormone shots when she was very young and never

did, thank goodness] For several years, she had horrible GI problems.

Again, not one doctor seemed concerned. Her dx was possible IBD. She

was prescribed 2 different meds and they did nothing. She used to

wear clothes for atleast 3 years in a row.

Last May 2005, I urged the previous pediatrician to look at my

daughter as she looked like " the walking dead. " He ran bloodwork

immediately after examination. We were told that our daughter had

malabsorption. We immediately went GFCF. And we started a variety of

vitamins and supplements. On 4-21-04, weighed 73 pounds, on

May 10, 2005, she weighed 76 pounds. currently weighs 101

pounds and still not an ounce overweight and has grown in height as

well. She has been med free close to a year and has made tremendous

strides in school. has a milk and wheat allergy and possible

egg allergy. [since her first and last flu vax in 2004, eggs now

disagree with her.]

She made honor roll for the first time ever and is now reading to the

class. Everything has changed for the better including her

confidence. She is even working on growing her nails. We are still

unsure of what/why and how. All we know is that between the diet and

supplements, has become a new kid though not fully recovered

but pretty darn close. is 14.5 years.

We actually missed the last LDN study due to our twins issues. They

are on the spectrum as well. And are 21.5 months. We are working on

them, too. And their brother, , 11 years old w/ADHD and ODD.

www.babyhomepages.net/thegillespiefamily/

>

> My 5.5 year old daughter is GF/CF and has been for over a year. She

has

> always been small but I am concerned that she seems to have very

little

> body fat in fact her muscles are clearly visible when she is naked-

her

> calves from running and tip toeing, her abs from holding herself

> straight when you pick her up, etc. Her OT says she is often in a

state

> of arousal so she does not have low tone problems. She is in the

13% for

> weight and while she has never been big for her age, I am wondering

if

> there are some additional fats that she could be getting. I give

her cod

> liver oil and sometimes fish oil. I use ghee and cocoanut oil for

> cooking and baking but don't add a huge amount.

>

> I remember seeing some posts recently about goats milk or something

to

> get in more dairy fats. Maybe I'm remembering incorrectly. I would

> appreciate any feedback or help on this so much. I am fearful that

my

> ex-husband will want to take her off the diet. I have reminded him

of

> her terrible diarreah and distended stomach and poor eating habits

> before the diet. I think his own fear may make him succumb to the

idea

> that kids need milk.

>

> Thanks, Molly

>

>

>

[Guest guest]

I got a bit behind in keeping up with the list, but for my son, the

switch to SCD brought on the weight. The carbohydrates in the

GF/CF/SF diet like corn and rice were iritating the lining of the

intestines and the food was not being properly absorbed. Along with

the use of enzymes to break the food into tiny pieces that could make

it more easily into the bloodstream, SCD was a wonderful intervention

that brought much needed weight to my son.

Good Luck.

>

> My 5.5 year old daughter is GF/CF and has been for over a year. She

has

> always been small but I am concerned that she seems to have very

little

> body fat in fact her muscles are clearly visible when she is naked-

her

> calves from running and tip toeing, her abs from holding herself

> straight when you pick her up, etc. Her OT says she is often in a

state

> of arousal so she does not have low tone problems. She is in the

13% for

> weight and while she has never been big for her age, I am wondering

if

> there are some additional fats that she could be getting. I give

her cod

> liver oil and sometimes fish oil. I use ghee and cocoanut oil for

> cooking and baking but don't add a huge amount.

>

> I remember seeing some posts recently about goats milk or something

to

> get in more dairy fats. Maybe I'm remembering incorrectly. I would

> appreciate any feedback or help on this so much. I am fearful that

my

> ex-husband will want to take her off the diet. I have reminded him

of

> her terrible diarreah and distended stomach and poor eating habits

> before the diet. I think his own fear may make him succumb to the

idea

> that kids need milk.

>

> Thanks, Molly

>

>

>