RE: RE: Happy to hear your starting to feel better and have a good doc on your side...

October 18, 2004

Dear ,

Thank God, you have a good doc you can count on...that makes all the difference

in the world...see when i originally hurt myslef, i knew nothing about pain

meds, at all, and have never ever done any type of these drugs before...so when

she kept telling me this was ok, i just believed her but she really was not an

asset to me getting better at all, alls she did is medicate me for a year, and

then drop me like a hot potatoe when i told her that i was getting severly ill

and was frightened for my life, do you know that i called her about 7 times, to

help me get off these things, and she refused to call me back, so i did it cold

turkey, and the pharmacy was very angry at her, and also told me, i could have

gone into seizures...but, you see i had not choice at all, cause my body was

shutting down on me...i am just so happy for you and you sound so much more

upbeat than earlier...you take care of yourself and i am also so happy you

called your doc, always without a doubt, when in doubt

about a med, the doc is the first one to call....thank god again, that they

really listened to you....sending sunshine your way, and hope all continues to

get better minute by minute...janine

October 19, 2004

Hello Janine,

Thank you for the email.

I'm sorry to be responding so late, but I had an appt. with a neurologist today

for a second opinion and I am so glad that I did. It turns out that the previous

neurologist that I saw read my EMG wrong and I do not have demylenating

peripheral neuropathy at all. Also, I will not eventually become paralyzed as I

was previously told. This doc I saw today has his Phd, so I believe him over the

other one. I am so pumped. What a burden taken off of my shoulders. I still have

the pain, no doubt, but I don't live with the fear of eventually becoming

totally dependent on my sweet wife.

It sounds like you went thru nine kinds of h, e double l with your other doc.

There is no excuse for a doctor to act that way. I would of reported her to the

medical board.

Thanks again and pain free blessings,

Authors Webpage:

http://www.AuthorsDen.com/Huber

Huber@...

October 27, 2004

Extraneous Text deleted by Moderator

Dear Janine, It's been a while since I've been able to get on line. I just

read your post and I would like to know what withdrawal is like, in detail. It

looks like that might be fix'n (southerner) to happen to me. My doctor talked

me into trying oxycontin for 3 months and now he is getting freaked everytime he

has to write the perscription. I take 5, 80mg. a day. I wish I could get down

from there. When I have asked him about going through withdrawal and starting

back on a low dose he says my condition would have me back up there and it

wouldn't be worth it.

When I first went on this drug, I got my life back and everytime we upped the

dose, but, I am on this amount now, for the last year and a half, and still in a

lot of pain. All the pain docs and clinics here have to offer are injs. I had

those years ago, didn't help and I have problems with the connective tissue and

joints all over my body. I don't see a reason to stay on such a high dose and

still be in this amount of pain, living in terror that he is not going to allow

me to have my meds one month. Sometimes I fall asleep without taking one late

enough, or sleep too late; and wake up in the morning in such pain that I can't

walk, it feels like I am walking on shards of glass. Sometimes, I wonder if

that is withdrawal and not the " real " pain. I used to be able to go to half of

the drug, take a " vacation " , but now, I have my son all the time and have to

take care of all kinds of stuff during this going on two year divorce.

This month my doctor wrote the script for two days later than it was due and his

nurse said, " he thinks you're taking 6 a day, he is not going to change it. " I

went to the drugstore and got a printout and there is no way, I checked all the

dates and dosages and he is nuts.

So, now I am scared and I have been called a liar and feel like I must be a

junkie. I did get in touch with the hospital pain clinic and if my doc will

refer me, it sounds like that's probably where I should be instead of the pain

practices around here. As my doctor said this is a progressive, degenerative

disease. I will never get any better, only worse. I'm not that old, I want to

hold my youngests' child so I need a real pain doc that knows all about meds and

other ways to block pain. Someone that is creative.

I also wish I knew what the long term damage these drugs are doing. I know

they're not as bad as all the tylenol, advil, and aspirin I was taking at the

same time or the car wreck I had when I was in so much pain I pulled out in

front of a car

I don't know what to do.

Thanks, Pam

October 27, 2004

Fellow pain suffers:

I know how frustrating it is to loose any medication which helps and to be

labled as a druggie. With fibro, RSD, and denegerative arthritis in my spine,

few doctors know how to handle my case let alone how to diagnosis me.

I somewhat understand the fear of being without pain meds but i've gotten to the

point where none of the pain or muscle relaxants help any more. Morphine well

makes me not care but it isn't the answer. Fearing pain I understand. Fearing

lack of understanding I also understand. But you have to find the strength

within yourself to go on, whether or not you have meds. Now I know this may

sound harsh but its true. Pain sufferers are some of the strongest people in the

world many just don't realize it. We are under stressors and pressure no one but

another pain sufferer can understand.

If you ever need to chat you can message me on yahoo seems i've lost my msn

connection somehow. I hope this helps.

Respectfully,

Lin`Owen

Pam McGrath wrote: