Guest guest Posted October 25, 1999 Report Share Posted October 25, 1999 Hello, just me again. I read your other mail and we haven't had to pay for a thing. RISE Early Intervension i beleive was paid for by Amy's medicaid. She starts pre-school on her 3rd birthday in a month and RISE stops coming. They all will be greatly missed. Amy will be receiving her therapies threw school now. We don't have to pay for pre-school either. Although i beleive the state is required to pay for any schooling she gets(that costs$$) till she's 21. After all they are the ones that require she starts pre-schoolat age 3. But if the ANB works for you then see about the medicaid for ANB too. We were fortunate to have this for her. she's had 7 surgeries and countless appointments,tests, and the therapy that is threw RISE and MICE and The Bureu of Special Medical services, All of wich we never saw a bill. Amy is also exetremely developmently delayed. It wasn't till her 2nd birthday that she started to show any interest in even trying to play with toys. this past year has been amazing. Its almost like she's been progressing like she should have her first year. seems like everytime one of her therapists come(once a week) i have something new that she's doing to tell them about! She was always so shy and sweet(still is!) quiet and just happy with whatever was going on. In a matter of 1 month, She got her walker and took off with more self confidence than i've ever seen. I thought i'd never see the day when this innocent, quiet little girl woul throw herself on the floor kicking and screaming over a toy, or over anything for that matter! Now i see it everyday! Again I hope this helps! Kerrie Amy 3 ChARgE Re: (no subject) >From: RobinAlanT@... > >: > >YAY!!! - I have found another Virginia CHARGE family. I am new to the list >(about a month & a half now). My daughter Ally with Charge is extremely >handicapped (deaf/blind , extreme developmental delay, seizure disorder) when >I called to get SSI benefits i was denied based on FAMILY income. The cutoff >for a family of three was somewhere in the low $30,000 dollar a year range - >i think. Was i told wrong - Ally obviously has no income but all i had was a >phone conversation with an SSI person i never pursued it further (i thought >there was no hope) Do you know differently. Sure would be nice to get some >help. Also are you having to pay for Early Intervention - we are. > >Robin mom to Ally (14 mths) ChARgE > > >>For information about the CHARGE Syndrome Foundation or to become a member please contact marion@.... > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 1999 Report Share Posted October 25, 1999 Robin, hi i am from Virgina where are you at . Sherry mom to Miranda (5 CHARGE) wife to Re: (no subject) > From: RobinAlanT@... > > : > > YAY!!! - I have found another Virginia CHARGE family. I am new to the list > (about a month & a half now). My daughter Ally with Charge is extremely > handicapped (deaf/blind , extreme developmental delay, seizure disorder) when > I called to get SSI benefits i was denied based on FAMILY income. The cutoff > for a family of three was somewhere in the low $30,000 dollar a year range - > i think. Was i told wrong - Ally obviously has no income but all i had was a > phone conversation with an SSI person i never pursued it further (i thought > there was no hope) Do you know differently. Sure would be nice to get some > help. Also are you having to pay for Early Intervention - we are. > > Robin mom to Ally (14 mths) ChARgE > > > > For information about the CHARGE Syndrome Foundation or to become a member please contact marion@.... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 1999 Report Share Posted October 29, 1999 Jeanie, Awesome! Watch out! Next she's gonna head for the door! Janet Wife to Matt Mom to & (CHaRGEr) 7, nne 2 1/2 Mom to 16 months. Weymouth, Massachusetts, USA <A HREF= " http://members.aol.com/jpm4189/page/index.htm " >Our Family Homepage</ A> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 1999 Report Share Posted October 29, 1999 Jeanie, That's wonderful news! Look out, there is a whole new world out there when they are on their feet! didn't walk until she was 8 1/2 and is still making up for lost time. Sheryl, Mom to Mitch 13 and 13 CHARGE Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 1999 Report Share Posted October 29, 1999 DeeDee, That is wonderful news! I am so glad for you and Bryce. I hope everything works out well with the implant, my daughter is not eligible as her hearing loss is not profound in both ears, but had they been, we'd have gone that route as well. Mom to Kennedy 20 mos old CHARGEr, 10, 8, and wife to Graeme New Brunswick, Canada Visit the " Weir homepage " at: http://www.geocities.com/SunsetStrip/Palms/5716 ICQ #1426476 (no subject) From: JDDUngetheim@... We had big news today. Bryce, who is profoundly deaf in both ears, just got approved for a cochlear implant. He will have surgery on December 3rd and then get his electrode " hooked up " right around Christmastime. He will hear Christmas carols and bells and Ho Ho Ho! Suddenly I am in the Christmas spirit! I'll keep you all posted as to our progress. Has anyone out there gone this route? Deedee, who can't wait to tell my son that I love him! Mom to Blake (5) and Bryce (21/2), CHaRGE) --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 1999 Report Share Posted October 29, 1999 GO Miss MacKenzie !!!!! Ok Jeanie.. how many Kleenexes did you go through ??? <G> Casey Mom to Dawn 20 HH, Ken 10 ADHD, 7 CHARGE ICQ 728514 AIM ZeeCasey CHARGE Web Page: http://www.geocities.com/Heartland/1220 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 1999 Report Share Posted October 29, 1999 Go MacKenzie!! No stoppin' you now!! Jackie Kenley in San Francisco Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2006 Report Share Posted April 13, 2006 Welcome Amy! Sounds like you're doing awesome! This is a pretty great group! We do challenges to keep you motivated and friendships to keep you strong. You're right God is great! anything is possible with him! Good to have you. Quote Link to comment Share on other sites More sharing options...
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