Re: OT: 10 yr old daughter w/lyme plagued with involuntary twitching.

[Guest guest]

,

How can you not feel helpless while she it struggling? All you can do it keep

working at it. The antibiotics eventually do damage to all of us and we look for

other things. I had really good luck with Nutramedix (the limited Cowden

protocol). It is also basically tasteless so easier for a child to take and

something like Cumanda is antibaterial, antimicrobial and kills yeast. Pinella

and Burbur will also help detox her. I twitched quite a bit.

I take trace minerals as well as they helped me. I rife and eventually my

headaches did for the most part go away.

What co-infections does she have?

Tamara

>

> My daughter has been having a difficult time with treatment. I still coil her

intermittently but I found CS inaffective for her. She can't tolerate most

antibiotics and developes intestinal bleeding which goes away when the

antibiotic is stopped but now she has developed involuntary muscle tightening in

her face and neck. It is heart wrenching to watch...Does anyone have experience

with this? She also has constant headaches as well. I am usually pretty

optimistic and hopeful but watching my child struggle so much has left me

feeling quite helpless. Thanks for the input.

>

> Juli

>

[Guest guest]

hi juliso sorry your daughter is going through this. was she on iv? tamara's suggestion for cowden sounds good to me, very easy to control. doyou have lots of detoxers that she can take? best to you bothxosusie My daughter has been having a difficult time with treatment. I still coil her intermittently but I found CS inaffective for her. She can't tolerate most antibiotics and developes intestinal bleeding which goes away when the antibiotic is stopped but now she has developed involuntary muscle tightening in her face and neck. It is heart wrenching to watch...Does anyone have experience with this? She also has constant headaches as well. I am usually pretty optimistic and hopeful but watching my child struggle so much has left me feeling quite helpless. Thanks for the input. Juli

[Guest guest]

Hi Juli. I have the face/neck stuff. For me, it's a complex issue.

Bartonella, mycoplasma and Lyme are involved for me. Coiling has been a

tremendous help.

My daughter (now 4) had Lyme and Bart as well. I have found the Cowden herbs

(specifically Samento, Cowden and Burbur) to be very effective for her along

with coiling, transfer factor, and a strict gluten-free and low-sugar diet. She

is symptom free 99% of the time now. I have some info I found that a doctor for

autistic children put together on giving the Cowden's to children, send me an

email if you would like me to email you the link.

You should probably consider a good probiotic regiman for your daughter too, if

you don't already have her on one.

Good luck,

Stacey

>

> My daughter has been having a difficult time with treatment. I still coil her

intermittently but I found CS inaffective for her. She can't tolerate most

antibiotics and developes intestinal bleeding which goes away when the

antibiotic is stopped but now she has developed involuntary muscle tightening in

her face and neck. It is heart wrenching to watch...Does anyone have experience

with this? She also has constant headaches as well. I am usually pretty

optimistic and hopeful but watching my child struggle so much has left me

feeling quite helpless. Thanks for the input.

>

> Juli

>

[Guest guest]

Tamara,

Thanks for the input...my Lyme I can handle but I lose all perspective with my child. The Cowden protocol is on my list as I work my way down. I am looking at her most recent bloodwork which came in today and she repeatedly tests for 1-2 bands with Lyme and negative for all co-infections. Althought the f-scan picks up babesia and erlichia. So I treat for whatever I can. Did you feel like the twitches were related to your headache?

Glad to know your headaches went away...it is a challenge to get throught the day with chronic pain for sure.

Thanks so much,

juli

To: Lyme_and_Rife Sent: Thu, April 29, 2010 1:45:29 PMSubject: Re: OT: 10 yr old daughter w/lyme plagued with involuntary twitching.

, How can you not feel helpless while she it struggling? All you can do it keep working at it. The antibiotics eventually do damage to all of us and we look for other things. I had really good luck with Nutramedix (the limited Cowden protocol). It is also basically tasteless so easier for a child to take and something like Cumanda is antibaterial, antimicrobial and kills yeast. Pinella and Burbur will also help detox her. I twitched quite a bit. I take trace minerals as well as they helped me. I rife and eventually my headaches did for the most part go away. What co-infections does she have? Tamara >> My daughter has been having a difficult time with treatment. I still coil her

intermittently but I found CS inaffective for her. She can't tolerate most antibiotics and developes intestinal bleeding which goes away when the antibiotic is stopped but now she has developed involuntary muscle tightening in her face and neck. It is heart wrenching to watch...Does anyone have experience with this? She also has constant headaches as well. I am usually pretty optimistic and hopeful but watching my child struggle so much has left me feeling quite helpless. Thanks for the input.> > Juli>

[Guest guest]

I am giving her alot of green powder, epsom salt baths, we try sauna but she is not so into it, neuroantitox and detoxode. I definately need some kid friendly detox methods.

Thanks for your input...I so appreciate this forum at times like this!

juli

To: Lyme_and_Rife Sent: Thu, April 29, 2010 2:01:37 PMSubject: Re: OT: 10 yr old daughter w/lyme plagued with involuntary twitching.

hi juli

so sorry your daughter is going through this. was she on iv? tamara's suggestion for cowden sounds good to me, very easy to control. doyou have lots of detoxers that she can take?

best to you both

xo

susie

My daughter has been having a difficult time with treatment. I still coil her intermittently but I found CS inaffective for her. She can't tolerate most antibiotics and developes intestinal bleeding which goes away when the antibiotic is stopped but now she has developed involuntary muscle tightening in her face and neck. It is heart wrenching to watch...Does anyone have experience with this? She also has constant headaches as well. I am usually pretty optimistic and hopeful but watching my child struggle so much has left me feeling quite helpless. Thanks for the input. Juli

[Guest guest]

Hi Juli,

No I don't think that the twitches were related to my headaches. My headaches

were really migraines that I have fought with on and of my whole life and came

on 100% with lyme. My twitches were not just on my face. Many believe that

twitches get better with magnesium I think that is only part of the picture.

I think the nutramedix herbals will give her some relief. You don't have to

start with them all if money is an issue. I would just start with Cumanda and

some Burbur for detox and then see how she does. Its works really well with

rife.

It gave me relief. I felt better. I always questioned weather or not I was

putting the bugs into cysts but in the end it did not matter. I needed relief.

The Cumanda works on different microbes and is also an anti-inflammatory which

really helped as well.

Keep us posted.

Tamara

> >

> > My daughter has been having a difficult time with treatment. I still coil

her intermittently but I found CS inaffective for her. She can't tolerate most

antibiotics and developes intestinal bleeding which goes away when the

antibiotic is stopped but now she has developed involuntary muscle tightening in

her face and neck. It is heart wrenching to watch...Does anyone have experience

with this? She also has constant headaches as well. I am usually pretty

optimistic and hopeful but watching my child struggle so much has left me

feeling quite helpless. Thanks for the input.

> >

> > Juli

> >

>

[Guest guest]

Hi Juli,My son had continuous facial and neck twitching for a long time and it was due to over-load of lyme and co-infections. It did go away eventually, thank God. You have to get on a protocol that works for your daughter and systematically kill and detox. We have never done antibiotics and I don't believe that they are a good solution for long-term tick born illness. We have a colloidal silver generator but only use CS in emergencies and not as a protocol. We pulse and rotate protocols every 6 mos to a year, so we have done salt-c, vit-c iv's, rife, cowden, mms, garlic. We support and detox with organic food, clean water, supplements and homeopathy. I know it's very hard to watch but don't panic because it does go away. Gotta kill the bugs starting slow and gradually build up to higher levels so that you don't over-stress her system. Lydia My daughter has been having a difficult time with treatment. I still coil her intermittently but I found CS inaffective for her. She can't tolerate most antibiotics and developes intestinal bleeding which goes away when the antibiotic is stopped but now she has developed involuntary muscle tightening in her face and neck. It is heart wrenching to watch...Does anyone have experience with this? She also has constant headaches as well. I am usually pretty optimistic and hopeful but watching my child struggle so much has left me feeling quite helpless. Thanks for the input. Juli

[Guest guest]

Hi Juli,

Sorry to hear your daughter is dealing with this disease... Abx's are tough for

many, so she is pretty normal when it comes to them... They are not at all

pleasant to take, sometimes they help, sometimes they don't so much.

One of the best things she can use for muscles and nerves is magnesium,

specifically magnesium oil is what I have found very helpful. Often the muscle

tightening is the heart muscle and magnesium can relieve this. Mag oil would be

my first choice for any muscle condition.. Is she taking Vit E? This may also

help.

Most healthy people are magnesium deficient, more so for chronically ill folks

and even more so for Lymies as the bacteria, Bb, consumes a lot of our

magnesium.. I treat with both mag citrate, powder form, and mag oil and this has

helped me a lot... Many on our group us these products also.

There are many brands of mag oil, the purest mag oil comes from the ancient

Zechstein seabed in Europe. There are several sellers of this mag oil, Swanson

by far has the lowest prices. Most who initially use this must cut it 50% with

distilled water as it can cause itching and burning, i would suggest this.

Simply take a clean container and pour out 1/2 the bottle, save for later. Fill

the remaining mag oil bottle with distilled water.. shake and pump several

sprays into the palm of the hand and apply to the area affected... This can be

applied all over the body daily or just parts of the body... After 20 minutes of

sitting on the skin, either shower or wet towel it off.

http://www.swansonvitamins.com/Search?keyword=magnesium+oil & doSearch=true & ntt= & n\

=0 & ntk=Level1 & x=0 & y=0

http://www.swansonvitamins.com/SWU339/ItemDetail?n=0

http://ezinearticles.com/?Whats-All-the-Buzz-About-Magnesium-Oil? & id=1718838

Here is a lot of good info on mag oil, this brand is very expensive and is

similar to Swanson's brand above at a much lower cost:

http://www.ancient-minerals.com/

http://www.integratedhealth.com/hpdspec/magnesium-oil.html

>>>MAGNESIUM CHLORIDE (MgCl2)

SOME BENEFITS / APPLICATIONS......

EASES HEADACHES AND MIGRAINE HEADACHES

.....Topical application of magnesium oil simultaneously provides energy and

relaxes muscles. <<<<

http://www.diagnose-me.com/treat/T138573.html

>>>>Tryptophan can be a useful and safe pain reliever. It has been shown most

helpful for dental pain, headaches (migraines in particular)>>>>

The mag oil may also help with the headaches. Another product, L-Tryptophan is

also excellent for migraines, within 1 week of using this, my 20 yr bout of

migraines started ending, today they are practically gone. This along with the

mag oil is a one - two punch for headaches... I seldom have a headache now.

This is the 1000mg dose, it can be broken in half and there is a cost advantage

to buying this dose. Typically it is taken in doses of 500 - 2000mg daily, not

sure if it is different for a child.

http://www.swansonvitamins.com/NWF253/ItemDetail?n=0

Sorry for all the info...

Hope this helps,

Jim

>

> My daughter has been having a difficult time with treatment. I still coil her

intermittently but I found CS inaffective for her. She can't tolerate most

antibiotics and developes intestinal bleeding which goes away when the

antibiotic is stopped but now she has developed involuntary muscle tightening in

her face and neck. It is heart wrenching to watch...Does anyone have experience

with this? She also has constant headaches as well. I am usually pretty

optimistic and hopeful but watching my child struggle so much has left me

feeling quite helpless. Thanks for the input.

>

> Juli

>

[Guest guest]

Hi Juli,

This is how my Lyme symptoms first manifested themselves. I started with

extreme tension in the back of my head and skull. Then suddenly it turned into

an involuntary twitch and then eventually became a full blown head tremor. I am

hoping that the tremor will resolve with lots of heavy metal detoxification and

by eliminating Mycoplasma Fermentens. I am close to having eliminated Lyme

entirely with a coil machine and the head tremor is still there. I think that

the neurological stuff at least in my case are more likely to be Mycoplasma

Fermentens related. I guess Bartonella can also cause this.

>

> My daughter has been having a difficult time with treatment. I still coil her

intermittently but I found CS inaffective for her. She can't tolerate most

antibiotics and developes intestinal bleeding which goes away when the

antibiotic is stopped but now she has developed involuntary muscle tightening in

her face and neck. It is heart wrenching to watch...Does anyone have experience

with this? She also has constant headaches as well. I am usually pretty

optimistic and hopeful but watching my child struggle so much has left me

feeling quite helpless. Thanks for the input.

>

> Juli

>

[Guest guest]

Susie,

She has not been on IV yet but I am really hoping to not have to go there. I am ordering some burbur and maybe a couple of other things from Nutrimedex but she is currently taking detoxode, green powder, sauna and epsom salt baths but she could always do more detox. Thanks for all of the input...I will take any and all of it!

Juli

To: Lyme_and_Rife Sent: Thu, April 29, 2010 2:01:37 PMSubject: Re: OT: 10 yr old daughter w/lyme plagued with involuntary twitching.

hi juli

so sorry your daughter is going through this. was she on iv? tamara's suggestion for cowden sounds good to me, very easy to control. doyou have lots of detoxers that she can take?

best to you both

xo

susie

My daughter has been having a difficult time with treatment. I still coil her intermittently but I found CS inaffective for her. She can't tolerate most antibiotics and developes intestinal bleeding which goes away when the antibiotic is stopped but now she has developed involuntary muscle tightening in her face and neck. It is heart wrenching to watch...Does anyone have experience with this? She also has constant headaches as well. I am usually pretty optimistic and hopeful but watching my child struggle so much has left me feeling quite helpless. Thanks for the input. Juli

[Guest guest]

Thanks Tamara...I am ordering her supplements tomorrow! I am certain she has co-infections but she can't tolerate antibiotic treatment for an of them. Three days on Doxy and five days on Zithromax caused intestinal bleeding. She is tolerating Amoxicillin right now but it's just a temporary bandaid. But we are rifing so we will keep doing tht and add some of the additional Cowden tincures.

Thanks, Juli

To: Lyme_and_Rife Sent: Thu, April 29, 2010 1:45:29 PMSubject: Re: OT: 10 yr old daughter w/lyme plagued with involuntary twitching.

, How can you not feel helpless while she it struggling? All you can do it keep working at it. The antibiotics eventually do damage to all of us and we look for other things. I had really good luck with Nutramedix (the limited Cowden protocol). It is also basically tasteless so easier for a child to take and something like Cumanda is antibaterial, antimicrobial and kills yeast. Pinella and Burbur will also help detox her. I twitched quite a bit. I take trace minerals as well as they helped me. I rife and eventually my headaches did for the most part go away. What co-infections does she have? Tamara >> My daughter has been having a difficult time with treatment. I still coil her

intermittently but I found CS inaffective for her. She can't tolerate most antibiotics and developes intestinal bleeding which goes away when the antibiotic is stopped but now she has developed involuntary muscle tightening in her face and neck. It is heart wrenching to watch...Does anyone have experience with this? She also has constant headaches as well. I am usually pretty optimistic and hopeful but watching my child struggle so much has left me feeling quite helpless. Thanks for the input.> > Juli>

[Guest guest]

Lydia,

How did you get your son to take the salt/c, what protocols did you find most effective and how is he doing now?

Juli

To: Lyme_and_Rife Sent: Thu, April 29, 2010 3:40:50 PMSubject: Re: OT: 10 yr old daughter w/lyme plagued with involuntary twitching.

Hi Juli,

My son had continuous facial and neck twitching for a long time and it was due to over-load of lyme and co-infections. It did go away eventually, thank God. You have to get on a protocol that works for your daughter and systematically kill and detox. We have never done antibiotics and I don't believe that they are a good solution for long-term tick born illness. We have a colloidal silver generator but only use CS in emergencies and not as a protocol. We pulse and rotate protocols every 6 mos to a year, so we have done salt-c, vit-c iv's, rife, cowden, mms, garlic. We support and detox with organic food, clean water, supplements and homeopathy.

I know it's very hard to watch but don't panic because it does go away. Gotta kill the bugs starting slow and gradually build up to higher levels so that you don't over-stress her system.

Lydia

My daughter has been having a difficult time with treatment. I still coil her intermittently but I found CS inaffective for her. She can't tolerate most antibiotics and developes intestinal bleeding which goes away when the antibiotic is stopped but now she has developed involuntary muscle tightening in her face and neck. It is heart wrenching to watch...Does anyone have experience with this? She also has constant headaches as well. I am usually pretty optimistic and hopeful but watching my child struggle so much has left me feeling quite helpless. Thanks for the input. Juli

[Guest guest]

Juli, it's so difficult with children.  Have you tried 'Calm' magnesium powder for her muscle tightness?  My kids don't mind the taste, some of them mix it with juice or add a little Stevia.

 

If she will swallow capsules, you can pack the salt in them. Just be careful, because too much salt at once will upset the stomach - even with food - as we found out on the way to school with my son vomiting down the freeway. :-0

 

:-)

[Guest guest]

Hi ,

Remember to start slow with the antimicrobial and shake it before you put it in

water. I can't tell you how much these tinctures helped me when I was at my

worst.

Keep me posted.

Tamara

> >

> > My daughter has been having a difficult time with treatment. I still coil

her intermittently but I found CS inaffective for her. She can't tolerate most

antibiotics and developes intestinal bleeding which goes away when the

antibiotic is stopped but now she has developed involuntary muscle tightening in

her face and neck. It is heart wrenching to watch...Does anyone have experience

with this? She also has constant headaches as well. I am usually pretty

optimistic and hopeful but watching my child struggle so much has left me

feeling quite helpless. Thanks for the input.

> >

> > Juli

> >

>

[Guest guest]

Hi Juli

Chronic pain & muscle spasms (sometimes really intense in my

throat/neck) were my primary symptoms for many years. HBOT (30+

sessions) was somewhat helpful. I also like baths with magnesium

chloride flakes and baking soda (I usually use 8 cups of baking soda -

4 - 1# boxes). The baking soda will help to alkalize..

Can you find a DO or physical therapist that is trained in OMT

(osteopathic manipulation) or cranio-sacral therapy? If you daughter

has active trigger points some docs do trigger point injections to

relieve referred muscle pain/spasms - or acupressure (w/o needles) --

see books by Bonnie Prudden (Pain Erasure). I found most of these

modalities very helpful. I also tried shiatsu and acupuncture too

with some relief.

Good luck! Please let us know if any suggestions were helpful...

Kendra

> My daughter has been having a difficult time with treatment.  I still coil her

intermittently but I found CS inaffective for her.  She can't tolerate most

antibiotics and developes intestinal bleeding which goes away when the

antibiotic is stopped but now she has developed involuntary muscle tightening in

her face and neck.  It is heart wrenching to watch...Does anyone have experience

with this?  She also has constant headaches as well.  I am usually pretty

optimistic and hopeful but watching my child struggle so much has left me

feeling quite helpless.  Thanks for the input.

>

> Juli

[Guest guest]

Hi ,The salt/c was easy since he really loves it. I made up batches of flavored stevia water with Vit C Foundation powder and Himilayan salt and he drinks it down willingly. We still do it in a very scaled down way.I pulse protocols. Cowden herbs got rid of the horrible twitching but as soon as I stopped the herbs it came back quickly. We did Cowden for a year. Homeopathy and rifing with gb4000 have lasting effects for us with no negative side effects and that is what we do right now. MMS and colloidal silver are good in a pinch and I use these sparingly.He is doing really well as long as I keep up with a protocol. Sometimes I don't treat him with anything because he is doing so well (pure laziness on my part) and then after after a month or two symptoms start to slowly re-surface. So the name of the game is to try things, switch things around but never get lazy for too long. Five years ago he was so sick that I thought that he would either die or be institutionalized so being at a point where I forget to treat him is amazing.Regards,Lydia Lydia, How did you get your son to take the salt/c, what protocols did you find most effective and how is he doing now? Juli From: Lydia Flynn <bflynn2optonline (DOT) net>To: Lyme_and_Rife Sent: Thu, April 29, 2010 3:40:50 PMSubject: Re: OT: 10 yr old daughter w/lyme plagued with involuntary twitching. Hi Juli, My son had continuous facial and neck twitching for a long time and it was due to over-load of lyme and co-infections. It did go away eventually, thank God. You have to get on a protocol that works for your daughter and systematically kill and detox. We have never done antibiotics and I don't believe that they are a good solution for long-term tick born illness. We have a colloidal silver generator but only use CS in emergencies and not as a protocol. We pulse and rotate protocols every 6 mos to a year, so we have done salt-c, vit-c iv's, rife, cowden, mms, garlic. We support and detox with organic food, clean water, supplements and homeopathy. I know it's very hard to watch but don't panic because it does go away. Gotta kill the bugs starting slow and gradually build up to higher levels so that you don't over-stress her system. Lydia My daughter has been having a difficult time with treatment. I still coil her intermittently but I found CS inaffective for her. She can't tolerate most antibiotics and developes intestinal bleeding which goes away when the antibiotic is stopped but now she has developed involuntary muscle tightening in her face and neck. It is heart wrenching to watch...Does anyone have experience with this? She also has constant headaches as well. I am usually pretty optimistic and hopeful but watching my child struggle so much has left me feeling quite helpless. Thanks for the input. Juli

[Guest guest]

hi, my daughter also had uncontrolled twitching and i found that giving her magnesium supplements were what really helped, but i also gave her b12 and b6. the twitching can be caused by magnesium deficiency according to harold buhner. it worked like a charm! i would be happy to look up the dosage if anyone needs. janet

To: Lyme_and_Rife From: bflynn2@...Date: Thu, 6 May 2010 11:54:51 -0400Subject: Re: OT: 10 yr old daughter w/lyme plagued with involuntary twitching.

Hi ,

The salt/c was easy since he really loves it. I made up batches of flavored stevia water with Vit C Foundation powder and Himilayan salt and he drinks it down willingly. We still do it in a very scaled down way.

I pulse protocols. Cowden herbs got rid of the horrible twitching but as soon as I stopped the herbs it came back quickly. We did Cowden for a year. Homeopathy and rifing with gb4000 have lasting effects for us with no negative side effects and that is what we do right now. MMS and colloidal silver are good in a pinch and I use these sparingly.

He is doing really well as long as I keep up with a protocol. Sometimes I don't treat him with anything because he is doing so well (pure laziness on my part) and then after after a month or two symptoms start to slowly re-surface. So the name of the game is to try things, switch things around but never get lazy for too long. Five years ago he was so sick that I thought that he would either die or be institutionalized so being at a point where I forget to treat him is amazing.

Regards,

Lydia

Lydia,

How did you get your son to take the salt/c, what protocols did you find most effective and how is he doing now?

Juli

From: Lydia Flynn <bflynn2optonline (DOT) net>To: Lyme_and_Rife Sent: Thu, April 29, 2010 3:40:50 PMSubject: Re: OT: 10 yr old daughter w/lyme plagued with involuntary twitching.

Hi Juli,

My son had continuous facial and neck twitching for a long time and it was due to over-load of lyme and co-infections. It did go away eventually, thank God. You have to get on a protocol that works for your daughter and systematically kill and detox. We have never done antibiotics and I don't believe that they are a good solution for long-term tick born illness. We have a colloidal silver generator but only use CS in emergencies and not as a protocol. We pulse and rotate protocols every 6 mos to a year, so we have done salt-c, vit-c iv's, rife, cowden, mms, garlic. We support and detox with organic food, clean water, supplements and homeopathy.

I know it's very hard to watch but don't panic because it does go away. Gotta kill the bugs starting slow and gradually build up to higher levels so that you don't over-stress her system.

Lydia

My daughter has been having a difficult time with treatment. I still coil her intermittently but I found CS inaffective for her. She can't tolerate most antibiotics and developes intestinal bleeding which goes away when the antibiotic is stopped but now she has developed involuntary muscle tightening in her face and neck. It is heart wrenching to watch...Does anyone have experience with this? She also has constant headaches as well. I am usually pretty optimistic and hopeful but watching my child struggle so much has left me feeling quite helpless. Thanks for the input. Juli

Hotmail is redefining busy with tools for the New Busy. Get more from your inbox. See how.

[Guest guest]

Hi Janet,You might want to look into mag-oil, too, (not really an oil, but a liquid that you spray onto skin which is then absorbed). Great stuff. Jim will tell you all about it.Be well,Léna hi, my daughter also had uncontrolled twitching and i found that giving her magnesium supplements were what really helped, but i also gave her b12 and b6. the twitching can be caused by magnesium deficiency according to harold buhner. it worked like a charm! i would be happy to look up the dosage if anyone needs. janet To: Lyme_and_Rife From: bflynn2optonline (DOT) netDate: Thu, 6 May 2010 11:54:51 -0400Subject: Re: OT: 10 yr old daughter w/lyme plagued with involuntary twitching. Hi , The salt/c was easy since he really loves it. I made up batches of flavored stevia water with Vit C Foundation powder and Himilayan salt and he drinks it down willingly. We still do it in a very scaled down way. I pulse protocols. Cowden herbs got rid of the horrible twitching but as soon as I stopped the herbs it came back quickly. We did Cowden for a year. Homeopathy and rifing with gb4000 have lasting effects for us with no negative side effects and that is what we do right now. MMS and colloidal silver are good in a pinch and I use these sparingly. He is doing really well as long as I keep up with a protocol. Sometimes I don't treat him with anything because he is doing so well (pure laziness on my part) and then after after a month or two symptoms start to slowly re-surface. So the name of the game is to try things, switch things around but never get lazy for too long. Five years ago he was so sick that I thought that he would either die or be institutionalized so being at a point where I forget to treat him is amazing. Regards, Lydia Lydia, How did you get your son to take the salt/c, what protocols did you find most effective and how is he doing now? Juli From: Lydia Flynn <bflynn2optonline (DOT) net>To: Lyme_and_Rife Sent: Thu, April 29, 2010 3:40:50 PMSubject: Re: OT: 10 yr old daughter w/lyme plagued with involuntary twitching. Hi Juli, My son had continuous facial and neck twitching for a long time and it was due to over-load of lyme and co-infections. It did go away eventually, thank God. You have to get on a protocol that works for your daughter and systematically kill and detox. We have never done antibiotics and I don't believe that they are a good solution for long-term tick born illness. We have a colloidal silver generator but only use CS in emergencies and not as a protocol. We pulse and rotate protocols every 6 mos to a year, so we have done salt-c, vit-c iv's, rife, cowden, mms, garlic. We support and detox with organic food, clean water, supplements and homeopathy. I know it's very hard to watch but don't panic because it does go away. Gotta kill the bugs starting slow and gradually build up to higher levels so that you don't over-stress her system. Lydia My daughter has been having a difficult time with treatment. I still coil her intermittently but I found CS inaffective for her. She can't tolerate most antibiotics and developes intestinal bleeding which goes away when the antibiotic is stopped but now she has developed involuntary muscle tightening in her face and neck. It is heart wrenching to watch...Does anyone have experience with this? She also has constant headaches as well. I am usually pretty optimistic and hopeful but watching my child struggle so much has left me feeling quite helpless. Thanks for the input. Juli Hotmail is redefining busy with tools for the New Busy. Get more from your inbox. See how.