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Re: AJ and Group

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Hi AJ,So much of what you say is similar to my story...and I truly wonder if once you reach menopause you will find the EN subsides and maybe stops all together. I was also told "it is autoimmune" but that was by a dermatologist who was by no means an EN expert. He guessed that as there was nothing else that he could find wrong with me.I have always needed a lot of sleep and

couldn't handle stress very well. That said, I have been under a lot of stress in the past 2 yrs. My hubby had a nervous breakdown when we lost a great deal of our savings in the 2008 stock market crash. Imagine watching the person you love, and have been married for many decades fall apart in front of your eyes --completely, and watching your life's savings dwindle to where you were left with little security ate age 60. Pretty stressful--but the EN didn't flare up at all!! In fact I got very little sleep during that period of time. And if I did sleep, I would wake up shaking with fear. My world, as I knew it, collapsed. Still no EN. The only other medical thing that changed was entering menopause. So I think that could have been my problem all along--excessive estrogen which caused me to have a late menopause and may have been triggering my EN. Things are getting better. My husband is on anti-depressants and is able to sleep. His personality is coming back as he puts things in perspective. And I feel blessed that we are still here and that the EN hasn't come back.Love,http://poems2order.wordpress.com/Please enter Erythema Nodosum.........Thanks!Subject: and GroupTo: erythema_nodosum_Group Date: Saturday,

October 9, 2010, 10:06 AM

Hi and All,

Thank you all for your recent posts. , If I end up in the position where I can work with the Medical Group's Doctors it would be only be a matter of time before I brought up my nodules. If I do, I will be sure to bring the information you provided!

It has been a while since I have actively pursued the cause of my nodular panniculitis. All my symptoms fall in line with EN, however there has been no clear cause or real title given to my struggle. In all honesty, I had given up a long time ago. I was tired of the biopsies and Dr's looking at me clueless. The only thing that was concluded was that the bouts were likely related to an autoimmune disorder of some kind. For many years I would go in for testing as they were leaning towards lupus. But I would like to mention that I was also told it could be from Strep to HIV- talk about a scare!

What I do know FOR SURE is that I seem to have alot less energy than the other people I know. I am prone to depression, anxiety, tire easily, my muscles ache sometimes with the weather, I have bad eyesight, and my body shuts down with stress. At the wink of an eye I can form a cold sore. Not pretty.To add to this list, my problems began around menstruation, age 12yrs old. Growing up I had chronic problems with Asthmatic Bronchitis and Strep throat. To date, each time I have an outbreak it is usually associated with sickness or trauma of any kind.

We all share a common theme that may or maynot be stemming from different problems. With this said, I am SO glad that we have each other to bond with. I find comfort in knowing that to know we all can releate with RED, TENDER, SWOLLEN, PAINFUL LUMPS are horrible all by themselves.

Love Always,

Anjanette (AJ)

Anjanette Viviano

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