Guest guest Posted August 17, 2004 Report Share Posted August 17, 2004 Dearest Sheli, what awful and scary news!!! I can only imagine how disturbed you must feel. You know I am a strong believer in the power of prayer and believe me you will be getting the works. Try to imagine healing angels all around you.....enfolding you with their magnificent wings....The Holy Spirit will be inside you...all you have to do is ask..... God will watch over you constantly and give you the strength and courage you need. If you are a church goer ask your minister to anoint you. Mine came over after my surgeries....and did that. And I think it helped with the pain and the adjustment. Remember what says. If God brought you to it He will bring you through it. I wish I could give you a big hug in person. I would like to suggest that at 10 tonight...I'm on central standard time in Indiana....why don't we all imagine ourselves in a group around Sheli....and give her all the love and support that we can. Love to all, Cam Prayers Needed... Hi Everyone... For those that pray, I am asking for your prayers. I had a doctor's appointment yesterday and some of the tests came back a bit disturbing. They did a CRP, high sensitivity test and mine came back that I have some extreme inflammation, which could be heart / artery related, or could be something like Rheumatoid Arthritis. I have never wished so hard for RA, but I would much rather it be that than the heart. It categorized me as " high cardiovascular risk " and luckily I already had a n appt. scheduled with my heart doctor (I have a mitral valve prolapse) this week as I have been having chest pain and heaviness and pain in my arm... so at least I do not have to wait 3 weeks to see him. It is just seeing something that says I am a high cardiovascular risk that scares me, and if it is it s very high because high risk starts at a count of 3.1 and I am at 9.3...and it only goes to 10.0. Needless to say, the doctor looked at me and said well, you definately have something major going on now in addition to the fibro and cfs, and wanted me to see the rheumy too. Had the ANA all off the charts again too, as well as a couple other odds and ends... So, in a nutshell, that is where I am at... and I know the power of prayer all too well, so I just wanted ya'll to add this to the list. I am so blessed to have a group that I can do this with. Thank you all so much for that. As for the ongoing saga with the disability and then wanting me to cut 13 years off and say it began in 2000...well, God is looking after me there because this AM I won that battle. The woman called and left a message saying I still needed to use the 2000 date because I had worked prior to then. I called her back and said I will not swear by penalty of perjury to a lie, and that I had had periods of time where I could not work and even missed 123, and 80 days consecutively my junior and senior years of HS because of the disease. She finally gave in and said okay, use the 1987 date. I cannot tell you how proud of myself I was for standing up to them and demanding they use the original date. I hope everyone is having a good day, and no flares... I will go for now and try and get some things done around here as the way I feel today it is going to be very slow and a very long day. The fear of the heart thing brought on yet more chest pain and a migraine to boot, so for the most part, next to doing a few things with Tristan and washing a few dishes I think I will just rest a bit... Many hugs all... Sheli 1. While it is wonderful to share our experiences with everyone on the list as to what treatments do and don't work for us, pls always check with your dr. Some treatments are dangerous when given along with other meds as well as to certain health conditions or just dangerous in general. 2. If you are in a difficult situation (doesn't matter what it is) pls don't be afraid to ask for help. It is the first step to trying to make that situation better. Have a nice day everyone. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2004 Report Share Posted August 17, 2004 Hi ... Thanks so much for the prayers and the congrats... I am definately feeling prayed for at the moment...have not had chest paind since early morning and that is a relief. I am sorry you are flaring today... I know about that over doing... wish we were all rich so we could afford someone to do the overdoing for us on those days! Try to rest up so you do not end up in bed for a week. Am sending prayers your way too. Hugs- Sheli Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2004 Report Share Posted August 17, 2004 Well not possible to stay in bed for a week, my boss would fire me!! We have to have a doctor's note even for missing ONE day. So taking sick days are far and few between. But I do appreciate the good wishes **hugs** > Hi ... > > Thanks so much for the prayers and the congrats... I am definately > feeling prayed for at the moment...have not had chest paind since > early morning and that is a relief. Quote Link to comment Share on other sites More sharing options...
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