Guest guest Posted March 5, 1999 Report Share Posted March 5, 1999 Hi and everyone, Your comments just made me think about how I felt after my surgery, which unfortunately didn't work. While I was healing (stitches, etc) I still felt the same exact pain!!!! No change. The q-tip test was slightly better after the surgery, but my " constant pain " was precisely the same. That is just one more reasone why I think so much of my pain comes from the irritated urethral tissue. I am glad your surgery helped you!!!! Carolyn Re: surgery >From: Hengelsber@... > >I had a vestibulectomy about a year and a half ago. Before it I had pain when >I sat for lengths of time, I had shooting pains from my clitoris and from the >vestibule and the Q-Tit test was pretty painful. My doctor removed a very >small section and I felt almost instantly better (even with my stiches I could >already tell that it was better). Gradually I have felt better and better. >The Q-Tip test is virtually pain free now. Now I just have a stretching pain >with intercourse, which I'm trying to get rid of. Good luck with your >decision! > >P.S. My surgery was regular surgery done under local anesthesia in his >office. It wasn't laser surgery. I've heard some horror stories about laser >surgery. > > > >------------------------------------------------------------------------ >Have you visited our new web site? >http://www.onelist.com >Onelist: Helping to create Internet communities >------------------------------------------------------------------------ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 1999 Report Share Posted March 5, 1999 I had a vestibulectomy about a year and a half ago. Before it I had pain when I sat for lengths of time, I had shooting pains from my clitoris and from the vestibule and the Q-Tit test was pretty painful. My doctor removed a very small section and I felt almost instantly better (even with my stiches I could already tell that it was better). Gradually I have felt better and better. The Q-Tip test is virtually pain free now. Now I just have a stretching pain with intercourse, which I'm trying to get rid of. Good luck with your decision! P.S. My surgery was regular surgery done under local anesthesia in his office. It wasn't laser surgery. I've heard some horror stories about laser surgery. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 1999 Report Share Posted March 5, 1999 I had a vestibulectomy about a year and a half ago. Before it I had pain when I sat for lengths of time, I had shooting pains from my clitoris and from the vestibule and the Q-Tit test was pretty painful. My doctor removed a very small section and I felt almost instantly better (even with my stiches I could already tell that it was better). Gradually I have felt better and better. The Q-Tip test is virtually pain free now. Now I just have a stretching pain with intercourse, which I'm trying to get rid of. Good luck with your decision! P.S. My surgery was regular surgery done under local anesthesia in his office. It wasn't laser surgery. I've heard some horror stories about laser surgery. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 1999 Report Share Posted March 5, 1999 " I don't understand what you mean by the urethral tissue.. " Oh, I am referring to my " lumpy-bumpy " area....the painful mass that is " hooked onto " the roof of my vagina, but close to the entrance. It feels like it is in the way, and it is tender, and hurts worse after I touch it. It is the urethral tissue, and it hurts very much on me. I have no urinary problems. I do have classic vestibular pain, too - especially on contact, ie q-tip test or intercourse. Carolyn Re: surgery >From: Hengelsber@... > >I had a vestibulectomy about a year and a half ago. Before it I had pain when >I sat for lengths of time, I had shooting pains from my clitoris and from the >vestibule and the Q-Tit test was pretty painful. My doctor removed a very >small section and I felt almost instantly better (even with my stiches I could >already tell that it was better). Gradually I have felt better and better. >The Q-Tip test is virtually pain free now. Now I just have a stretching pain >with intercourse, which I'm trying to get rid of. Good luck with your >decision! > >P.S. My surgery was regular surgery done under local anesthesia in his >office. It wasn't laser surgery. I've heard some horror stories about laser >surgery. > > > >------------------------------------------------------------------------ >Have you visited our new web site? >http://www.onelist.com >Onelist: Helping to create Internet communities >------------------------------------------------------------------------ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 1999 Report Share Posted March 5, 1999 " I don't understand what you mean by the urethral tissue.. " Oh, I am referring to my " lumpy-bumpy " area....the painful mass that is " hooked onto " the roof of my vagina, but close to the entrance. It feels like it is in the way, and it is tender, and hurts worse after I touch it. It is the urethral tissue, and it hurts very much on me. I have no urinary problems. I do have classic vestibular pain, too - especially on contact, ie q-tip test or intercourse. Carolyn Re: surgery >From: Hengelsber@... > >I had a vestibulectomy about a year and a half ago. Before it I had pain when >I sat for lengths of time, I had shooting pains from my clitoris and from the >vestibule and the Q-Tit test was pretty painful. My doctor removed a very >small section and I felt almost instantly better (even with my stiches I could >already tell that it was better). Gradually I have felt better and better. >The Q-Tip test is virtually pain free now. Now I just have a stretching pain >with intercourse, which I'm trying to get rid of. Good luck with your >decision! > >P.S. My surgery was regular surgery done under local anesthesia in his >office. It wasn't laser surgery. I've heard some horror stories about laser >surgery. > > > >------------------------------------------------------------------------ >Have you visited our new web site? >http://www.onelist.com >Onelist: Helping to create Internet communities >------------------------------------------------------------------------ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 1999 Report Share Posted March 5, 1999 Dear Carolyn I don't understand what you mean by the urethral tissue..I am having alot of pain in my urethera.. I have a constant burning I don't know for sure if its IC.. But could you please explain it to me.. and I have no idear why the type on my puter has changed mid way strange!!!!!!!!!!!!! Carolyn Gutman-Dey wrote: > > > Hi and everyone, > > Your comments just made me think about how I felt after my surgery, which > unfortunately didn't work. While I was healing (stitches, etc) I still felt > the same exact pain!!!! No change. The q-tip test was slightly better > after the surgery, but my " constant pain " was precisely the same. That is > just one more reasone why I think so much of my pain comes from the > irritated urethral tissue. I am glad your surgery helped you!!!! > > Carolyn > > Re: surgery > > >From: Hengelsber@... > > > >I had a vestibulectomy about a year and a half ago. Before it I had pain > when > >I sat for lengths of time, I had shooting pains from my clitoris and from > the > >vestibule and the Q-Tit test was pretty painful. My doctor removed a very > >small section and I felt almost instantly better (even with my stiches I > could > >already tell that it was better). Gradually I have felt better and better. > >The Q-Tip test is virtually pain free now. Now I just have a stretching > pain > >with intercourse, which I'm trying to get rid of. Good luck with your > >decision! > > > >P.S. My surgery was regular surgery done under local anesthesia in his > >office. It wasn't laser surgery. I've heard some horror stories about > laser > >surgery. > > > > > > > >------------------------------------------------------------------------ > >Have you visited our new web site? > >http://www.onelist.com > >Onelist: Helping to create Internet communities > >------------------------------------------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 1999 Report Share Posted March 5, 1999 Dear Carolyn I don't understand what you mean by the urethral tissue..I am having alot of pain in my urethera.. I have a constant burning I don't know for sure if its IC.. But could you please explain it to me.. and I have no idear why the type on my puter has changed mid way strange!!!!!!!!!!!!! Carolyn Gutman-Dey wrote: > > > Hi and everyone, > > Your comments just made me think about how I felt after my surgery, which > unfortunately didn't work. While I was healing (stitches, etc) I still felt > the same exact pain!!!! No change. The q-tip test was slightly better > after the surgery, but my " constant pain " was precisely the same. That is > just one more reasone why I think so much of my pain comes from the > irritated urethral tissue. I am glad your surgery helped you!!!! > > Carolyn > > Re: surgery > > >From: Hengelsber@... > > > >I had a vestibulectomy about a year and a half ago. Before it I had pain > when > >I sat for lengths of time, I had shooting pains from my clitoris and from > the > >vestibule and the Q-Tit test was pretty painful. My doctor removed a very > >small section and I felt almost instantly better (even with my stiches I > could > >already tell that it was better). Gradually I have felt better and better. > >The Q-Tip test is virtually pain free now. Now I just have a stretching > pain > >with intercourse, which I'm trying to get rid of. Good luck with your > >decision! > > > >P.S. My surgery was regular surgery done under local anesthesia in his > >office. It wasn't laser surgery. I've heard some horror stories about > laser > >surgery. > > > > > > > >------------------------------------------------------------------------ > >Have you visited our new web site? > >http://www.onelist.com > >Onelist: Helping to create Internet communities > >------------------------------------------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 1999 Report Share Posted March 5, 1999 Dear Carolyn I don't understand what you mean by the urethral tissue..I am having alot of pain in my urethera.. I have a constant burning I don't know for sure if its IC.. But could you please explain it to me.. and I have no idear why the type on my puter has changed mid way strange!!!!!!!!!!!!! Carolyn Gutman-Dey wrote: > > > Hi and everyone, > > Your comments just made me think about how I felt after my surgery, which > unfortunately didn't work. While I was healing (stitches, etc) I still felt > the same exact pain!!!! No change. The q-tip test was slightly better > after the surgery, but my " constant pain " was precisely the same. That is > just one more reasone why I think so much of my pain comes from the > irritated urethral tissue. I am glad your surgery helped you!!!! > > Carolyn > > Re: surgery > > >From: Hengelsber@... > > > >I had a vestibulectomy about a year and a half ago. Before it I had pain > when > >I sat for lengths of time, I had shooting pains from my clitoris and from > the > >vestibule and the Q-Tit test was pretty painful. My doctor removed a very > >small section and I felt almost instantly better (even with my stiches I > could > >already tell that it was better). Gradually I have felt better and better. > >The Q-Tip test is virtually pain free now. Now I just have a stretching > pain > >with intercourse, which I'm trying to get rid of. Good luck with your > >decision! > > > >P.S. My surgery was regular surgery done under local anesthesia in his > >office. It wasn't laser surgery. I've heard some horror stories about > laser > >surgery. > > > > > > > >------------------------------------------------------------------------ > >Have you visited our new web site? > >http://www.onelist.com > >Onelist: Helping to create Internet communities > >------------------------------------------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 1999 Report Share Posted May 13, 1999 Heidi, I would like to emphasize the importance of limiting surgery to the proper candidates. I had a vestibulectomy in 1992 because it was recommended by the head of the GYN department of a prestigious teaching hospital. I have found that doctors are very misinformed on the subject. I suffer from vulvodynia and never had " only vulvar vestibulitis. " After I learned from my reading that I never should have had this surgery I went back to this doctor just to inform him of my experience. I am sure that he is still recommending this procedure to everyone with any kind of vulvar disorder. I would just hate to see anyone undergo this excruciating experience unnecessarily as I did. Heidi Walsh wrote: > > > Beckie is one of the lucky ladies who has found the right solution to > her vestibulitis. There are a couple of others who are currently on the > list (Sally) or who have recently left the list ( K) who also found > their answer with surgery. I'm soo happy for them and I hope that they > will chime in with their stories and continue to keep us posted on their > successes! > > Beckie commented: > > I did alot of research and found women with vestibulitis only have a > > 90% cure rate from a vestibulectomy. > > I just wanted to comment that the reported success rates from > vestibulectomy have significantly varied from 43%-100%. The way they > define success is varied too. It can mean that they had some amount of > relief from symptoms, considerable relief or complete relief. Anything > that is construed as relief is lumped (generally) into the " successes " > pile. Another factor is the issue of followup of these patients. Most > of the studies which have been published recently are commenting that > there is a serious need for follow up after surgery to be lengthier to > be sure that women don't have a recurrence of their symptoms or other > complications. > > That is not to say that surgery is not effective. It has the highest > success rate of any treatment available for vulvar vestibulitis and is > probably the most closely scrutinized treatment. Any good doctor, even > one who is renowned for surgery, would know that a patient should try > conservative methods before jumping into something like surgery. > > Marinoff and (experts in the world of vulvar pain) say that > surgery should be " reserved for use in patients with pain of at least > six months' duration, pain that partly or completely prevents sexual > intercouse and patients who have undergone failed treatments for a > specific subset of vulvodynia or in whom no cause can be established. " > > Beckie is 100% correct when she says that you should educate yourself > prior to making the decision. One of the things that I have found is > almost never mentioned when discussing surgery is the possible > complications. In any surgery there are risks (up to and including > death). Some of the complications include wound hematoma, partial or > complete wound opening, uneven healing requiring more surgery, and > narrowing or constriction of the Bartholin's duct with cyst formation. > > There are also several different types of surgery that are done for VVS. > They are vestibulectomy, modified vestibulectomy, perineoplasty, CO2 > Laser, Bartholin's gland excision, and even something called > Flashlamp-excited dye laser. The type of surgery that is right for you, > and whether you're even a good candidate for surgery is something that > may be difficult for someone to assess unless they are very experienced > with this condition and the available options for treatment. > > I have, myself, considered surgery. However there are a couple of major > factors which keep me from it. One is the fact that I would really not > have any idea who to trust with the surgery. The only vulvar specialist > in my area is the person who wouldn't allow me to try conservative > treatments and I don't trust her. The other factor is that according to > a journal article by Bornstein (a well-known expert in this area), women > who have vulvodynia *and* vulvar vestibulitis like I do have a higher > failure rate. He also found that women who have experienced pain since > their first sexual intercourse have a " significantly higher " chance of > failure. Maybe I will eventually resort to surgery anyway, but I will > be absolutely convinced that it's my last resort before I do it. > > This post was not meant to offend anyone who has found success with > surgery. I know that surgery is the right answer for some of us. I > just want to encourage everyone to be sure it is right for them before > they jump into it. > > Warmly, > > Heidi > mailto:dwalsh@... > http://www.angelfire.com/md/vulvardisorders > > ------------------------------------------------------------------------ > ONElist: bringing the world together. > http://www.onelist.com > Join a new list today! > ------------------------------------------------------------------------ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 1999 Report Share Posted May 13, 1999 Heidi, I would like to emphasize the importance of limiting surgery to the proper candidates. I had a vestibulectomy in 1992 because it was recommended by the head of the GYN department of a prestigious teaching hospital. I have found that doctors are very misinformed on the subject. I suffer from vulvodynia and never had " only vulvar vestibulitis. " After I learned from my reading that I never should have had this surgery I went back to this doctor just to inform him of my experience. I am sure that he is still recommending this procedure to everyone with any kind of vulvar disorder. I would just hate to see anyone undergo this excruciating experience unnecessarily as I did. Heidi Walsh wrote: > > > Beckie is one of the lucky ladies who has found the right solution to > her vestibulitis. There are a couple of others who are currently on the > list (Sally) or who have recently left the list ( K) who also found > their answer with surgery. I'm soo happy for them and I hope that they > will chime in with their stories and continue to keep us posted on their > successes! > > Beckie commented: > > I did alot of research and found women with vestibulitis only have a > > 90% cure rate from a vestibulectomy. > > I just wanted to comment that the reported success rates from > vestibulectomy have significantly varied from 43%-100%. The way they > define success is varied too. It can mean that they had some amount of > relief from symptoms, considerable relief or complete relief. Anything > that is construed as relief is lumped (generally) into the " successes " > pile. Another factor is the issue of followup of these patients. Most > of the studies which have been published recently are commenting that > there is a serious need for follow up after surgery to be lengthier to > be sure that women don't have a recurrence of their symptoms or other > complications. > > That is not to say that surgery is not effective. It has the highest > success rate of any treatment available for vulvar vestibulitis and is > probably the most closely scrutinized treatment. Any good doctor, even > one who is renowned for surgery, would know that a patient should try > conservative methods before jumping into something like surgery. > > Marinoff and (experts in the world of vulvar pain) say that > surgery should be " reserved for use in patients with pain of at least > six months' duration, pain that partly or completely prevents sexual > intercouse and patients who have undergone failed treatments for a > specific subset of vulvodynia or in whom no cause can be established. " > > Beckie is 100% correct when she says that you should educate yourself > prior to making the decision. One of the things that I have found is > almost never mentioned when discussing surgery is the possible > complications. In any surgery there are risks (up to and including > death). Some of the complications include wound hematoma, partial or > complete wound opening, uneven healing requiring more surgery, and > narrowing or constriction of the Bartholin's duct with cyst formation. > > There are also several different types of surgery that are done for VVS. > They are vestibulectomy, modified vestibulectomy, perineoplasty, CO2 > Laser, Bartholin's gland excision, and even something called > Flashlamp-excited dye laser. The type of surgery that is right for you, > and whether you're even a good candidate for surgery is something that > may be difficult for someone to assess unless they are very experienced > with this condition and the available options for treatment. > > I have, myself, considered surgery. However there are a couple of major > factors which keep me from it. One is the fact that I would really not > have any idea who to trust with the surgery. The only vulvar specialist > in my area is the person who wouldn't allow me to try conservative > treatments and I don't trust her. The other factor is that according to > a journal article by Bornstein (a well-known expert in this area), women > who have vulvodynia *and* vulvar vestibulitis like I do have a higher > failure rate. He also found that women who have experienced pain since > their first sexual intercourse have a " significantly higher " chance of > failure. Maybe I will eventually resort to surgery anyway, but I will > be absolutely convinced that it's my last resort before I do it. > > This post was not meant to offend anyone who has found success with > surgery. I know that surgery is the right answer for some of us. I > just want to encourage everyone to be sure it is right for them before > they jump into it. > > Warmly, > > Heidi > mailto:dwalsh@... > http://www.angelfire.com/md/vulvardisorders > > ------------------------------------------------------------------------ > ONElist: bringing the world together. > http://www.onelist.com > Join a new list today! > ------------------------------------------------------------------------ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 1999 Report Share Posted May 13, 1999 Heidi, I would like to emphasize the importance of limiting surgery to the proper candidates. I had a vestibulectomy in 1992 because it was recommended by the head of the GYN department of a prestigious teaching hospital. I have found that doctors are very misinformed on the subject. I suffer from vulvodynia and never had " only vulvar vestibulitis. " After I learned from my reading that I never should have had this surgery I went back to this doctor just to inform him of my experience. I am sure that he is still recommending this procedure to everyone with any kind of vulvar disorder. I would just hate to see anyone undergo this excruciating experience unnecessarily as I did. Heidi Walsh wrote: > > > Beckie is one of the lucky ladies who has found the right solution to > her vestibulitis. There are a couple of others who are currently on the > list (Sally) or who have recently left the list ( K) who also found > their answer with surgery. I'm soo happy for them and I hope that they > will chime in with their stories and continue to keep us posted on their > successes! > > Beckie commented: > > I did alot of research and found women with vestibulitis only have a > > 90% cure rate from a vestibulectomy. > > I just wanted to comment that the reported success rates from > vestibulectomy have significantly varied from 43%-100%. The way they > define success is varied too. It can mean that they had some amount of > relief from symptoms, considerable relief or complete relief. Anything > that is construed as relief is lumped (generally) into the " successes " > pile. Another factor is the issue of followup of these patients. Most > of the studies which have been published recently are commenting that > there is a serious need for follow up after surgery to be lengthier to > be sure that women don't have a recurrence of their symptoms or other > complications. > > That is not to say that surgery is not effective. It has the highest > success rate of any treatment available for vulvar vestibulitis and is > probably the most closely scrutinized treatment. Any good doctor, even > one who is renowned for surgery, would know that a patient should try > conservative methods before jumping into something like surgery. > > Marinoff and (experts in the world of vulvar pain) say that > surgery should be " reserved for use in patients with pain of at least > six months' duration, pain that partly or completely prevents sexual > intercouse and patients who have undergone failed treatments for a > specific subset of vulvodynia or in whom no cause can be established. " > > Beckie is 100% correct when she says that you should educate yourself > prior to making the decision. One of the things that I have found is > almost never mentioned when discussing surgery is the possible > complications. In any surgery there are risks (up to and including > death). Some of the complications include wound hematoma, partial or > complete wound opening, uneven healing requiring more surgery, and > narrowing or constriction of the Bartholin's duct with cyst formation. > > There are also several different types of surgery that are done for VVS. > They are vestibulectomy, modified vestibulectomy, perineoplasty, CO2 > Laser, Bartholin's gland excision, and even something called > Flashlamp-excited dye laser. The type of surgery that is right for you, > and whether you're even a good candidate for surgery is something that > may be difficult for someone to assess unless they are very experienced > with this condition and the available options for treatment. > > I have, myself, considered surgery. However there are a couple of major > factors which keep me from it. One is the fact that I would really not > have any idea who to trust with the surgery. The only vulvar specialist > in my area is the person who wouldn't allow me to try conservative > treatments and I don't trust her. The other factor is that according to > a journal article by Bornstein (a well-known expert in this area), women > who have vulvodynia *and* vulvar vestibulitis like I do have a higher > failure rate. He also found that women who have experienced pain since > their first sexual intercourse have a " significantly higher " chance of > failure. Maybe I will eventually resort to surgery anyway, but I will > be absolutely convinced that it's my last resort before I do it. > > This post was not meant to offend anyone who has found success with > surgery. I know that surgery is the right answer for some of us. I > just want to encourage everyone to be sure it is right for them before > they jump into it. > > Warmly, > > Heidi > mailto:dwalsh@... > http://www.angelfire.com/md/vulvardisorders > > ------------------------------------------------------------------------ > ONElist: bringing the world together. > http://www.onelist.com > Join a new list today! > ------------------------------------------------------------------------ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2000 Report Share Posted March 30, 2000 DJ, Good luck with your surgery tomorrow. Know my prayers will be with you. Let me know how you do, okay. Hugs, Tracey > [Original Message] > > To: <CRPSonelist> > Date: 03/30/2000 7:07:40 AM > Subject: Re: rsd Re: Back to work > > Hi Jo, > So how does it feel to be back at the job again? I know it is difficult > getting used to a schedule again and dealing with being on the clock and > not being able to take a break when you need to. What kind of work do > you do? I hope you have a sympathetic and understanding environment. It > helps pass the day quicker and makes it more enjoyable. How is your > husband doing? Has he started knee injections yet? I hope he gets some > relief and even if he does have signs of RSD it is early for him and the > blocks may send it into remission. Wouldn't that be great? > > I am getting ready for surgery tomorrow and am having pre-surgery jitters > I guess. I am already nervous and wondering if this is the right thing > to do. I know it will help as long as it does not set off the RSD. If > it does, I do have plenty of pain meds on hand and they are going to give > me a steady epidural drip during the surgery, I think. I will find out > tomorrow morning! I hope I have made the right decision. Take care, > DJ/Debbie > > ________________________________________________________________ > YOU'RE PAYING TOO MUCH FOR THE INTERNET! > Juno now offers FREE Internet Access! > Try it today - there's no risk! For your FREE software, visit: > http://dl.www.juno.com/get/tagj. > > ------------------------------------------------------------------------ > Get a NextCard Visa, in 30 seconds! > 1. Fill in the brief application > 2. Receive approval decision within 30 seconds > 3. Get rates as low as 2.9% Intro or 9.9% Fixed APR > Apply NOW! > http://click./1/975/0/_/706883/_/954428859/ > ------------------------------------------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 4, 2004 Report Share Posted September 4, 2004 Hi Ann, I was wondering when is your surgery? I believe you said September. I was also wondering about the implant; will it be attatched to the bladder? How big is it? Does it have metal in it that will set off the alarms at the airports etc? I know I am being nosy. What is the name of the implant again? Thanks LOVE AND HAPPINESS; FLOWERS AND BUTTERFLIESLYNN Quote Link to comment Share on other sites More sharing options...
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