Guest guest Posted November 27, 1998 Report Share Posted November 27, 1998 Hi everyone, I am scheduled to have a vestibulectomy on Dec.15. I would love to here from anyone who has had the surgery and describe your recovery. , thank you for sharing your story with me. Thanks Beckie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 1998 Report Share Posted November 28, 1998 Dear Everyone Who has asked about surgery: I had a vestibulectomy last Friday. I felt that I had reached the point in the course of my problem that I needed to try this possible solution. Things went pretty well. My doctor is absolutely wonderful, and I trust him completely. He says that he feels good about how things went, and now we just have to wait and see. He also did an exploratory laparoscopy at the same time, for endometriosis. He did find some, but it was a very small area, and he was able to remove it completely. For you ladies who are wondering about the recovery, however, I can't tell you what it's like to recover from just the vestibulectomy! So far though, it really hasn't been as bad as I thought it might be. It isn't fun, but hopefully it will be worth it! I will have to do some biofeedback and dilator therapy to deal with the vaginismus (levator muscle spasms) that have developed secondary to the vestibulitis, but I'm very hopeful and will keep you all posted. So far so good! If any of you who are contemplating the surgery (I know a few of you wanted more info) want to contact me, I can give you more details as I experience them! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 1998 Report Share Posted December 8, 1998 : Good point. Isn't part of the necessity of this type of therapy due to the build up of scar tissue and the fact that after a vestibulectomy, the skin from the vagina is stretched out? I think I've read that. Heidi > An interesting note: My doc told me that part of my recovery from > surgery would entail dilator/biofeedback therapy. He said that the > body learns to tighten up the vaginal muscles on contact after many > experiences with it being painful. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 18, 1998 Report Share Posted December 18, 1998 Beckie, I'm so glad to hear that your surgery went okay. I know from experience that it is pretty miserable, but I felt A LOT better pretty quickly after the first week and a half - two weeks. There is hope! Tomorrow marks 4 weeks post-op for me, and I'm feeling so much better than I even imagined possible right after the surgery! If you don't already have one, get yourself a donut pillow to sit on. After your tummy isn't so sore and you can be up more, the cushion is a life-saver for your bottom. I'm glad your bladder is okay, but I'm so sorry about the pelvic pain. Sounds like a trial for you. My only advice for your peri pain is ice and sitz baths. I thought the ice was the most helpful for the first week or so. I also feel like it helped with the swelling. It took 2 weeks or so for my swelling to go down. I also used cold water for the baths for a few days and then gradually used warmer water as I felt better. Also, if you aren't doing so already, get some stool softeners and USE THEM!! The anesthesia can make you pretty constipated, and you're sore enough down there already. By the way, I also had an unexplained fever for a few days afterward and absolutely awful nausea. I finally had to spend 2-3 days very drugged up on Phenergan suppositories to be able to keep pain meds down at all. It helps if you can keep them down, and anti-inflammatories also, if your doc gave you some. Good luck! I 'm thinking of you and praying for your quick recovery. If I can be of any help to answer questions, feel free to contact me. At 07:27 PM 12/17/98 -0500, you wrote: >From: RAL341@... > >Hello Everyone, >I am writing to update you on what is happening with me. I had my surgery on >tuesday. I had a vestibulectomy, laparoscopy, and cystoscopy. What an >experience this has been! > >First, the vestibulectomy. I am in alot of pain from that! My vulva is very >swollen and purple. Not much helps for the pain. I have been doing sitz's >baths, ice and vicodin for pain. The pain was not that bad the first day but >the next day I could not sit. I guess all the meds from the anesthsia went out >of my body and the pain came in full force. My doctor said to expect this pain >for a good 2 - 4 weeks. Not fun! > >The cystoscopy showed that my bladder is normal. That is one thing to be >thankful for. That caused me to have severe burning with urination the first >day. It felt like razor blades. One thing that helped was to squirt water on >my vulva with a peri bottle as I urinated. > >Last, the laparoscopy. I had what is called conscious pain mapping. They >inserted the laparascope while I was under anesthsia then they woke me up. I >do not really remember this though. My doctor found that uterus, ovaries, >tubes, etc. are extremely painful. It is known as chronic pelvic pain >syndrome. All the nerves that go to my pelvic organs are abnormal and transmit >constant pain. They do not know why this happens. My doctor said the first >treatment is physical therapy, pain medicine, and maybe an epidural. >Surgically they can cut the nerves or do a hysterectomy but the success rate >for this is not good. It only helps some people. My doctor said for right now >it is going to be trial and error. To learn more on this condition you can >look up the international pelvic pain society. ( I think Heidi added this to >her list of resources) My doctor is Dr. Fred , he was the vice president >of this organization but is now the president. > >My recovery so far has been tough. I have severe muscle pain that my doctor >said is from the pain mapping. I was in so much pain that I kept trying to >move during the surgery. They had me strapped down so I was fighting against >the restraints. Thank God I do not remember it. When I told my doctor today, >he said I probably pulled several muscles. I also have been constantly >vomiting and had a fever of 100. I called my doctor this morning and he wanted >to see me right away. When I saw him though, he said everything was fine and >gave me some phenergan for the nausea. That has helped. > >Well, sorry this is so long. I thought some of you might want to know what >this has been like in case you are considering surgery. I do not regret having >it because I am finally getting some answers. please feel free to email me >personally or through the list with any questions. > >Beckie > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > >------------------------------------------------------------------------ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 18, 1998 Report Share Posted December 18, 1998 Beckie, I'm so sorry to hear about all that you had to go through. I can't imagine how much pain you must be in, but I hope it subsides as quickly as possible. You have my sympathy and all my good wishes and prayers are with you. Thanks for sharing your experience with us and good luck with a successful and speedy recovery. Janis Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 18, 1998 Report Share Posted December 18, 1998 I am starting to feel overwhelmed and was wondering if any of you have heard stories about women getting better. I hear the stats on biofeedback and estrace and all, but no one on the list seems to have success stories. I am getting depressed. Anyone out there? - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 18, 1998 Report Share Posted December 18, 1998 Dear , Depresion and feeling all kinds of desperate feelings are normal when your in the position your in. Thats the first thing to keep in mind. The second is most everyone without exception finds some kind of relief. I spent 18 months in bed in so much pain I could not even raise a glass to my mouth without pain. I had to lay in one position propped up on pillows and my husband had to wash and dress me. Now I'm up and driving places. I take care of 80-90% of the things I need to do. I have divorced my abusive ex and am in love and loved by a wonderful man. I have wonderful sex on a steady basis. Not pain free but very low pain.I have every hope for more recovery. I know this may sound strange but everyday of my life I'm delighted to put on my own shoes! Please remember in the bad moments it just takes time to find what works for you and for it to start working. Brightest Blessings, Shirley. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 18, 1998 Report Share Posted December 18, 1998 Beckie, I'm glad to hear that everything went well. The pain you are experiencing is normal for your first few days post-op. You should start feeling much better very soon. I can remember feeling a major improvement after the first week, of course you had other procedures done that factor into the discomfort you are feeling, despite that, I'm sure you will " turn the corner " very soon, and will be feeling much better. Just continue with all the little comfort measures, especially those sitz baths! E-mail me if you have any questions. Best wishes ---------- > From: RAL341@... > To: VulvarDisordersonelist; vulvarpainforum@... > Subject: surgery > Date: Thursday, December 17, 1998 7:27 PM > > From: RAL341@... > > Hello Everyone, > I am writing to update you on what is happening with me. I had my surgery on > tuesday. I had a vestibulectomy, laparoscopy, and cystoscopy. What an > experience this has been! > > First, the vestibulectomy. I am in alot of pain from that! My vulva is very > swollen and purple. Not much helps for the pain. I have been doing sitz's > baths, ice and vicodin for pain. The pain was not that bad the first day but > the next day I could not sit. I guess all the meds from the anesthsia went out > of my body and the pain came in full force. My doctor said to expect this pain > for a good 2 - 4 weeks. Not fun! > > The cystoscopy showed that my bladder is normal. That is one thing to be > thankful for. That caused me to have severe burning with urination the first > day. It felt like razor blades. One thing that helped was to squirt water on > my vulva with a peri bottle as I urinated. > > Last, the laparoscopy. I had what is called conscious pain mapping. They > inserted the laparascope while I was under anesthsia then they woke me up. I > do not really remember this though. My doctor found that uterus, ovaries, > tubes, etc. are extremely painful. It is known as chronic pelvic pain > syndrome. All the nerves that go to my pelvic organs are abnormal and transmit > constant pain. They do not know why this happens. My doctor said the first > treatment is physical therapy, pain medicine, and maybe an epidural. > Surgically they can cut the nerves or do a hysterectomy but the success rate > for this is not good. It only helps some people. My doctor said for right now > it is going to be trial and error. To learn more on this condition you can > look up the international pelvic pain society. ( I think Heidi added this to > her list of resources) My doctor is Dr. Fred , he was the vice president > of this organization but is now the president. > > My recovery so far has been tough. I have severe muscle pain that my doctor > said is from the pain mapping. I was in so much pain that I kept trying to > move during the surgery. They had me strapped down so I was fighting against > the restraints. Thank God I do not remember it. When I told my doctor today, > he said I probably pulled several muscles. I also have been constantly > vomiting and had a fever of 100. I called my doctor this morning and he wanted > to see me right away. When I saw him though, he said everything was fine and > gave me some phenergan for the nausea. That has helped. > > Well, sorry this is so long. I thought some of you might want to know what > this has been like in case you are considering surgery. I do not regret having > it because I am finally getting some answers. please feel free to email me > personally or through the list with any questions. > > Beckie > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > ------------------------------------------------------------------------ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 18, 1998 Report Share Posted December 18, 1998 beckie thinking of you and hope you will be feeling much better soon love, Pat Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 1999 Report Share Posted January 4, 1999 Beckie, I'm so sorry to hear that you're having problems with your stitches. What type of sutures did your doctor use? I had problems with mine also, not because they separtated, but because the sharp ends rubbed the skin off and cut the tissue up. In the research that I did before my surgery, I did come across some studies that mentioned suture separation as a significant problem, but when I asked my doctor (who does 2-3 a month) about it, he said he's never had it happen to one of his patients, so maybe there are different suturing techiniques and materials being used. I wish there was something I could do for you - hang in there and I hope things improve for you soon. POC, VVS, recent vestibulectomy At 11:24 AM 12/29/1998 -0500, you wrote: >From: RAL341@... > >Hi everyone, >I just wanted to update you on my recovery since my surgery. I went to my >doctor yesterday, and my sutures have started to seperate and I am not healing >at all. Also, the side that seperated is very red. He said I have to stay off >of my feet and rest. I guess I have been doing to much with the holidays and >all. It is just very hard for me to just sit! So, I go back to him in 3 weeks >and hopefully I will be healing by then. If not, I don't know what he will do. >Its pretty depressing that after 2 weeks I am not healing. Has anyone else who >had a vestibulectomy had this problem? Well, I guess that is it. > >Beckie >(recent vestibulectomy, POC) > >------------------------------------------------------------------------ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 1999 Report Share Posted January 18, 1999 RAL 34l: I have JUST sent you THREE posts, congratualting you & wishing the best..but the ykeep coming back & I have had the RAL34l on each one...???\ Enahoo..am so very happy for you & wish you continual bliss! Lorane Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 1999 Report Share Posted February 3, 1999 This is what I have heard about surgery. If you have pure vulva Vestibulitis surgery on the vestibule sometimes helps to varying degrees. I have spoken to several women who are pain free after the removal of vestibule tissue and remain so after a while. One lady was pain free after 9 years. Heidi's theory makes sense to me more than the few ladies I have spoken to who have had successful surgery. I think the few women who have such excellent results are the exception and not the rule. After all we do not know ALL the reasons for vulva pain nor do we always know what is causing any one persons pain. We can guess and make very good informed decisions but who really knows? I myself have oxalate problems. I know this to be a truth because I have reduced my pain significantly on the low oxalate diet and by using the supplements that go along with this treatment. I do defiantly also think it is not the only reason for my pain. The other reasons are still unknown and/or suspected. In short I agree with the reasoning about surgery. If you do not treat what's causing damage, pain and irritation in the first place then the damage, pain and irritation is just going to come back. My $.02 worth. Now I will ask ladies who have had surgery to tell what they know :-) Blessings, Shirley. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 1999 Report Share Posted February 3, 1999 This is what I have heard about surgery. If you have pure vulva Vestibulitis surgery on the vestibule sometimes helps to varying degrees. I have spoken to several women who are pain free after the removal of vestibule tissue and remain so after a while. One lady was pain free after 9 years. Heidi's theory makes sense to me more than the few ladies I have spoken to who have had successful surgery. I think the few women who have such excellent results are the exception and not the rule. After all we do not know ALL the reasons for vulva pain nor do we always know what is causing any one persons pain. We can guess and make very good informed decisions but who really knows? I myself have oxalate problems. I know this to be a truth because I have reduced my pain significantly on the low oxalate diet and by using the supplements that go along with this treatment. I do defiantly also think it is not the only reason for my pain. The other reasons are still unknown and/or suspected. In short I agree with the reasoning about surgery. If you do not treat what's causing damage, pain and irritation in the first place then the damage, pain and irritation is just going to come back. My $.02 worth. Now I will ask ladies who have had surgery to tell what they know :-) Blessings, Shirley. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 1999 Report Share Posted February 3, 1999 asked a great question: >Another consideration is, do the docs really know why they are doing the >surgery? > >This is really interesting, and I would also like to know if anyone has the >answer. In my case, as I understood it, Dr. Goetsch was taking away the sensitive tissue. Simple as that. Bad tissue....go away.....no pain. That's the formula. I also thought that one of her theories she was going on was that the " bad tissue " (my term!) was, in some cases, something one was born with. I was sold on that! Carolyn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 1999 Report Share Posted February 3, 1999 , I had saved your message about the success of your surgery because I wanted to write a " congratulations " letter! I have to admit some feelings of jealousy, but other than that how could I feel anything BUT positive about a woman getting out of the hell of having VV -- especially for as long as you have had it? And I know how that feels... I felt so happy for you (after the tinge of jealousy passed.) I have been busy setting up the EO group, so I hadn't gotten around to writing you. I also do think that I have lots of " healthy bitterness " about the surgery option being suggested to me without my doc. pushing for other treatments first, and even not having a clear diagnoses made. And I am sorry if I am venting some of that on the list which only adds to the feeling that a lot of us are against surgery. This whole thing is so confusing. I just don't understand why it works for some and not for others. And that seems true for every treatment. I have my theories, but.... Even though it didn't work for me, I would totally recommend it for certain women who have tried so many things AND they fit the criteria for having a high success rate, and it's a good surgeon etc. (I have read the horror stories.) I know that you agree that surgery is a last, and serious, option. But you also know that it HAS worked for lots of women! It sure makes sense to try if you look at the numbers that are published - I am talkiing about vestibulitis, here. Even if you cut the numbers in half due to skeptism it isn't bad odds. Even though I was pretty ignorant when I made my surgery decision, I wasn't a babe in the woods, either. I read the stats and looked at how long I had had the problem, and it was a respected doctor, and the surgery has worked for so many women. I mean, this is a fact. So even though it didn't work for me I think there were some good reasons to try it. Well, I am rambling. I just have so much anger about how the doctors all seem to have different opinions and we are all stuck in the middle, or worse, used as guinue pigs. It sounds like what we all agree on is that we need to come down hard on doctors who recommend surgery without trying lots of other things first, and without having a good diagnosis. I would love to hear more about your case if you want to email me off of the forum. Your case was pure vestibulitis, right? Carolyn ---- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 1999 Report Share Posted February 3, 1999 From DLitzfletc@... I'm glad to hear that you are doing well. It sounds like you may fit in the early onset group. I tend to respond to people who are asking questions about something I have experienced or researched because it seems to relate directly to me. I do not seem to have much in common with your experience. I wholeheartedly believe we are a diverse group with probable four or so distinct patterns that are all getting labelled the same thing. I reiterate every time I share ideas with people that they need to make decisions based upon their personal experience as what works for me or doesn't work for me may not effect them in the same way. Again---congratulations on your success and I look foward to hearing that things continue to move foward for you in a positive manner. As for the maybe the pain will return comments---I don't think so as I have a scar from my hysterectomy in my vagina but do not have any pain there like I did before the surgery. I think surgery works for those that have symptoms that it is appropriate for and are ready to accept the postsurgery challenge, both mentally and physically. If you decide not to continue to post on list about your progress I would be interested in staying in touch off list. Hang in there and know that there are others on list that are silently supporting you. Deb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 1999 Report Share Posted February 3, 1999 Hi all, Here's my two cents worth. What has always bothered me about surgery is that they don't find out and address the root cause of the problem but I realize for some women the cause can't be found. But going in and cutting out tissue would only work if there were something inside the tissue that was causing the pain. It would make more sense to find out what that something was and treat it versus cutting out tissue. What Heidi says about nerve endings makes sense to me. Think about it. Any time I've had tissue cut out and it has healed it has left scar tissue. At first the scar tissue is kind of numb but as time goes on it begins to feel just like regular skin. Makes me wonder if that's what's happening with women who initially have good results with surgery but then have symptoms reappear after time has elapsed. Like I said, it's just my .02. Robin Surgery I have a question regarding the surgery issue which I'm not sure anyone will have an answer to, but I'm going to ask anyway. Is it possible that after surgery your nerve endings are not good indicators of pain because of the trauma they've endured and so will make it feel like you have no pain now, but as time goes on, you will end up in pain again? I've heard this theory before and I'm probably not using the right terminology - but I hope you get the point of the question. What do you think? Heidi ------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 1999 Report Share Posted February 3, 1999 Hi all, Here's my two cents worth. What has always bothered me about surgery is that they don't find out and address the root cause of the problem but I realize for some women the cause can't be found. But going in and cutting out tissue would only work if there were something inside the tissue that was causing the pain. It would make more sense to find out what that something was and treat it versus cutting out tissue. What Heidi says about nerve endings makes sense to me. Think about it. Any time I've had tissue cut out and it has healed it has left scar tissue. At first the scar tissue is kind of numb but as time goes on it begins to feel just like regular skin. Makes me wonder if that's what's happening with women who initially have good results with surgery but then have symptoms reappear after time has elapsed. Like I said, it's just my .02. Robin Surgery I have a question regarding the surgery issue which I'm not sure anyone will have an answer to, but I'm going to ask anyway. Is it possible that after surgery your nerve endings are not good indicators of pain because of the trauma they've endured and so will make it feel like you have no pain now, but as time goes on, you will end up in pain again? I've heard this theory before and I'm probably not using the right terminology - but I hope you get the point of the question. What do you think? Heidi ------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 1999 Report Share Posted February 3, 1999 My surgery was done in Aug. 1998. My pain has slowly decreased as time goes by, not increased. In addition to that, my primary symptoms were tearing and burning of the perineal tissue upon penetration. The tearing has resolved as well. That would have nothing to do with damaged nerve endings. I'd also like to add that I have been living with vulvar vestibulitis for 13 years and have tried every conservative treatment out there, and nothing worked. This is the only thing that has. For the first time in 13 long years I don't feel like the weight of the world is resting on my shoulders. I feel good about myself again. I realize that everyone has a right to their own opinion, but I am living proof that this does work when done for the appropriate symptoms. And finally, I would NEVER encourage anyone to jump feet first into surgery without having exhausted every other treatment available first. This has been a long process for me. Not only did I live with this longer than most women on this list, but I agonized over whether or not to have surgery for a good long time. During that time I formed a network of local and e-mail VV sufferer's who have had this surgery as well, with long term results. For me this was my last hope for trying to make myself better. I don't understand why I am not hearing more supportive comments. ---------- > > To: 'VulvarDisordersonelist' > Subject: Re: Surgery > Date: Wednesday, February 03, 1999 4:35 PM > > > > Hi all, > > Here's my two cents worth. What has always bothered me about surgery is > that they don't find out and address the root cause of the problem but I > realize for some women the cause can't be found. But going in and cutting > out tissue would only work if there were something inside the tissue that > was causing the pain. It would make more sense to find out what that > something was and treat it versus cutting out tissue. > > What Heidi says about nerve endings makes sense to me. Think about it. Any > time I've had tissue cut out and it has healed it has left scar tissue. At > first the scar tissue is kind of numb but as time goes on it begins to feel > just like regular skin. Makes me wonder if that's what's happening with > women who initially have good results with surgery but then have symptoms > reappear after time has elapsed. > > Like I said, it's just my .02. > > Robin > > Surgery > > > > > I have a question regarding the surgery issue which I'm not sure anyone > will have an answer to, but I'm going to ask anyway. > > Is it possible that after surgery your nerve endings are not good > indicators of pain because of the trauma they've endured and so will > make it feel like you have no pain now, but as time goes on, you will > end up in pain again? I've heard this theory before and I'm probably > not using the right terminology - but I hope you get the point of the > question. > > What do you think? > Heidi > > ------------------------------------------------------------------------ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 1999 Report Share Posted February 3, 1999 My surgery was done in Aug. 1998. My pain has slowly decreased as time goes by, not increased. In addition to that, my primary symptoms were tearing and burning of the perineal tissue upon penetration. The tearing has resolved as well. That would have nothing to do with damaged nerve endings. I'd also like to add that I have been living with vulvar vestibulitis for 13 years and have tried every conservative treatment out there, and nothing worked. This is the only thing that has. For the first time in 13 long years I don't feel like the weight of the world is resting on my shoulders. I feel good about myself again. I realize that everyone has a right to their own opinion, but I am living proof that this does work when done for the appropriate symptoms. And finally, I would NEVER encourage anyone to jump feet first into surgery without having exhausted every other treatment available first. This has been a long process for me. Not only did I live with this longer than most women on this list, but I agonized over whether or not to have surgery for a good long time. During that time I formed a network of local and e-mail VV sufferer's who have had this surgery as well, with long term results. For me this was my last hope for trying to make myself better. I don't understand why I am not hearing more supportive comments. ---------- > > To: 'VulvarDisordersonelist' > Subject: Re: Surgery > Date: Wednesday, February 03, 1999 4:35 PM > > > > Hi all, > > Here's my two cents worth. What has always bothered me about surgery is > that they don't find out and address the root cause of the problem but I > realize for some women the cause can't be found. But going in and cutting > out tissue would only work if there were something inside the tissue that > was causing the pain. It would make more sense to find out what that > something was and treat it versus cutting out tissue. > > What Heidi says about nerve endings makes sense to me. Think about it. Any > time I've had tissue cut out and it has healed it has left scar tissue. At > first the scar tissue is kind of numb but as time goes on it begins to feel > just like regular skin. Makes me wonder if that's what's happening with > women who initially have good results with surgery but then have symptoms > reappear after time has elapsed. > > Like I said, it's just my .02. > > Robin > > Surgery > > > > > I have a question regarding the surgery issue which I'm not sure anyone > will have an answer to, but I'm going to ask anyway. > > Is it possible that after surgery your nerve endings are not good > indicators of pain because of the trauma they've endured and so will > make it feel like you have no pain now, but as time goes on, you will > end up in pain again? I've heard this theory before and I'm probably > not using the right terminology - but I hope you get the point of the > question. > > What do you think? > Heidi > > ------------------------------------------------------------------------ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 1999 Report Share Posted February 3, 1999 , I support you in deciding to have surgery. Only you know what is right for you body and I am so glad it worked for you. I am so sorry there has been way more negative energy around surgery than positive on the list. It sounds like you researched thoroughly and made an informed decision. Cheers to your success!!! Smiles, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 1999 Report Share Posted February 3, 1999 , I support you in deciding to have surgery. Only you know what is right for you body and I am so glad it worked for you. I am so sorry there has been way more negative energy around surgery than positive on the list. It sounds like you researched thoroughly and made an informed decision. Cheers to your success!!! Smiles, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 1999 Report Share Posted February 3, 1999 Shirley, I understand what you are saying when you write: .. " I think the few women who have such excellent results are the exception and not the rule. " But, couldn't we say that about many of the treatments for VV? Just my 2 cents..... Smiles, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 1999 Report Share Posted February 3, 1999 Shirley, I understand what you are saying when you write: .. " I think the few women who have such excellent results are the exception and not the rule. " But, couldn't we say that about many of the treatments for VV? Just my 2 cents..... Smiles, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 1999 Report Share Posted February 3, 1999 ---------- > > To: beannie@... > Subject: RE: Re: Surgery > Date: Wednesday, February 03, 1999 5:24 PM > > (and others who have had surgery): > > Please do NOT think that I am being unsupportive by questioning a theory that I > have heard passed around!! I am just trying to gain some more understanding of > this vicious condition and the possible treatments. I am supportive of every > person on this list and respect you all as intelligent women who make informed > decisions on what treatments to pursue. I really don't think that anyone else > who has voiced their opinion is being unsupportive either, but rather just > sharing their opinions as I requested that they do. We owe it to ourselves and > each other to explore ALL our options and the positives, negatives, and > possibilities involved. > > With that being said, I must admit that Robin pretty much hit it right on the > head when she brought up her cut finger being numb theory. That is exactly what > brought this to mind - and then when Becky posted about having no pain with > dilation of her vagina but experiencing bleeding - it made me wonder. I > recently cut my finger badly and deeply and it is still numb. This was done > over a week ago, so I can only imagine what it would be like to have major > surgery and the trauma that the nerve endings would experience. > > Regarding 's comment about it not being a nerve ending issue - with all due > respect, doesn't every kind of invasion/surgery/cutting/wounding process affect > the nerve endings? > > Again - please don't interpret my questions as negative or unsupportive. I'm > just trying to understand. > > Warmly, > Heidi > > ___________________________________________________________________ > Sent via Fetchmail - free email service at http://www.fetchmail.com > Quote Link to comment Share on other sites More sharing options...
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