Re: Glutathione - any contraindications - Leon - Owens

March 1, 2006

Perhaps Leon and Owens will contribute to this thread.

Owens has started a sulfurstories group because a year or so ago,

some of us began tracking anecdotal reports of asd kids who had other

than postive reactions to supplements and/or antibiotics high in

sulfur. Part of my interest was prompted by a friend with SJS and the

SJS literature that includes descriptions about sulfasalazine as one of

the known (very rare) triggers of SJS.

Bottom line seems to be that although GSH is safe for 99% or more of ASD

kids (speculational percentage), there may be a tiny subgroup with

adverse reactions to GSH.

March 1, 2006

,

It may be hard to believe it, but sulfurstories has already started its

fourth year and has 840 members. I opened this list years ago in order to

network people outside autism circles with autism parents dealing with

sulfur issues. I had the inkling (which was correct) that adults with

sulfur issues may have learned a lot we needed to know. I also wanted to

learn if patient experiences would reveal holes that existed in our

understanding of the sulfur system and I am delighted that the list has

been helpful in that regard.

Sulfurstories has become a wonderful place of sharing ideas and experiences

with sulfur supplements and has subscribers with lots of conditions

including chronic fatigue syndrome. With an archive of close to 8000

messages, we just might have talked about issues that would be of interest

and would help someone having issues with glutathione or any other

sulfur-related supplement.

For the convenience of listmates here, I am putting below the intro to the

list from its homepage. I'd be delighted to see some newcomers!

I'll try to catch up with this thread and see if I can make a useful

contribution.

Sulfurstories: Description

The role of sulfur in biology has been overlooked through the years, but

there are many disease processes where the sulfur chemistry is under

particular stress. Dietary supplements which try to meet this need can be

wonderful for some and cause surprising adverse reactions in others. Right

now, we don't know enough about what may cause this difference in response,

but we will get to that understanding faster by sharing our stories.

This list is set up as a forum for people who have seen very positive or

very negative responses to sulfur supplements of various sorts. Discussions

of biomedical diagnostic testing are welcomed and encouraged, and people

may also share abstracts from research articles, when relevant.

Supplements discussed on this list will include:

MSM

N-acetylcysteine

taurine

sulfate (epsom salts, primarily)

biotin

thiamine

SAMe

methionine

L-cysteine

glutathione

alpha lipoic acid

glucosamine sulfate

chondroitin sulfate

DMSA or DMPS

and things that support sulfur pathways

such as:

pantothenic acid

molybedenum

magnesium

glutamine

B6 (pyridoxine)

folic acid

Vitamin B12

DMG or TMG (betaine)

niacinamide

iron

Attempts to sell or market products via this list will not be allowed, and

listmates involved with sales or manufacture of supplements will need to

disclose that connection in the signature line of their posts.

Let's keep an atmosphere of positive sharing. Discussions that make the

atmosphere different from positive must be taken off the list. Please

indicate a diagnosis (if relevant)in your signature line, but that is not

required.

At 06:55 AM 3/1/2006 -0700, you wrote:

>Perhaps Leon and Owens will contribute to this thread.

>

> Owens has started a sulfurstories group because a year or so ago,

>some of us began tracking anecdotal reports of asd kids who had other

>than postive reactions to supplements and/or antibiotics high in

>sulfur. Part of my interest was prompted by a friend with SJS and the

>SJS literature that includes descriptions about sulfasalazine as one of

>the known (very rare) triggers of SJS.

>

>Bottom line seems to be that although GSH is safe for 99% or more of ASD

>kids (speculational percentage), there may be a tiny subgroup with

>adverse reactions to GSH.

>

March 1, 2006