Re: FROM LEE HOWE... UPDATE

[Guest guest]

Dear Lee,

You have my sympathies on your mom's passing. She was fortunate you were such a

loving daughter and staunch advocate. She and you are in my prayers.

Lin

Subject: Re: FROM LEE HOWE... UPDATE

To: LBDcaregivers

Date: Wednesday, July 23, 2008, 11:30 AM

Condolences Lee. Rest well now, heal and be glad your mom is finally over the

suffering.

>

> Thank you all for your input. It's shortly after midnight. As of

> 7:15pm.... her/our battle with LBD FINALLY ended. She took a turn for

> the worse at 10:30 am wednesday and it ended at 7:15pm Wednesday.

>

> Thank you... Lee

>

------------------------------------

Welcome to LBDcaregivers.

[Guest guest]

Lee,

I do sent my heartfelt condolences to you and your family. May your wonderful

memories carry you through.

Dena in SoCal

Mother (85) Existing with LBD in Residential Care Home

From: stimtimminss <stimdccnet (DOT) com>

Subject: Re: FROM LEE HOWE... UPDATE

To: LBDcaregivers@ yahoogroups. com

Date: Wednesday, July 23, 2008, 11:30 AM

Condolences Lee. Rest well now, heal and be glad your mom is finally over the

suffering.

>

> Thank you all for your input. It's shortly after midnight. As of

> 7:15pm.... her/our battle with LBD FINALLY ended. She took a turn for

> the worse at 10:30 am wednesday and it ended at 7:15pm Wednesday.

>

> Thank you... Lee

>

------------ --------- --------- ------

Welcome to LBDcaregivers.

[Guest guest]

Dear Lee,

Yes, you are in the beginning of recovery, but that is it, the beginning. You

will go

through many phases, and with each one will be a lessening of the immediate,

less of the

acute pain as the body and mind helps all you have gone through fade. It will

take time,

months for me, but I was a distance caregiver, not 24/7. Some here have not

gotten back

to a decent night's sleep after years of being released from Lewyville. I don't

know how

you can make that happen. Possibly through counselling, holistic venues? Just

know you

are not alone. Getting on with life after LBD can be a challenge but many of us

are here to

help you through it. It will take time. You are not alone.

Gibsons BC

Mother died Aug. 12, 2006 at age 92 after a 13 year decline from PDD.

> >

> > >

> >

> > > Thank you all for your input. It's shortly after midnight. As of

> >

> > > 7:15pm.... her/our battle with LBD FINALLY ended. She took a turn for

> >

> > > the worse at 10:30 am wednesday and it ended at 7:15pm Wednesday.

> >

> > >

> >

> > > Thank you... Lee

> >

> > >

> >

> >

> >

> > ------------ --------- --------- ------

> >

> >

> >

> > Welcome to LBDcaregivers.

> >

> >

> >

> >

[Guest guest]

Dear Lee-

Thinking of you especially today. I remember going through the motions of day

to day life after my dad passed away. There was so much involved in caregiving

that each day after his death I felt I was just floundering around forgetting

something of which I didn't know what it was. Several times I would pick up the

phone to schedule an " appointment " to find there were no more appointments to

schedule.

Then the following May I had a very dear cousin that passed away in his house of

a house fire. He was my age and everyone thought we were brother and sister.

He was very much a part of my heart and soul. It took years to realize I

couldn't call Joe, couldn't see him, couldn't hang out with him any more.

It is true, time heals all wounds. I still get the feelings of forgetting

something, wanting to schedule time together, times when my heart hurts. There

are still times when I wish a red flag had went up " before " the tears flow as it

hits me unannounced. Blind sided. It has been almost 6 years for my dad's

passing and over 5 years since Joe passed. Time will put life in perspective

for you again. Allow yourself the time to miss your mom, to grieve the loss you

are feeling.

Holding you close in thought and sending up prayers for you and your family-

Sandie

Des Moines, IA

dad, Merle, passed from LBD 9-20-02, age 65

-- " L . H. " wrote:

Thank you everybody. This site is a blessing to those that have just

been thrown into the unknowns of LBD. I made sure her obit stated Lewy

Body Dementia. Friday afternoon/night was the visitation. Plenty of

people mentioned they had never heard of such a thing. A few relatives

inquired how this was different than Alzheimers (which they just

ASSUMED she had). It's 1am as I type this... so this morning will be

her funeral.

I still struggle to sleep more than 2 hrs at a time. (which would

explain these late night posts I keep making) I keep wondering if I

will EVER get my screwed up sleep schedule straightened out. I

continue to FLY out of bed the moment I wake... RUSH into the family

room to check on her... only to remember... " oh yeah... she's not here

anymore "

I spent 15 minutes in basement yesterday, when I had a fleeting moment

of panic thinking I need to rush upstairs to check on her. I spent 15

minutes in garage yesterday afternoon and had the same fleeting moment

of panic.... only to realize.... I dont need to worry anymore.

These habits have been ingrained into me the last 3 yrs. In some

ways... it reminds me of Post Tramatic Stress Disorder. I do realize

that these panic habits will pass. But am amazed how many people are

clueless as to just how DIFFICULT it is.

Now that she is gone... I should be able to get some sleep... but it

just isn't happening. (and that is super frustrating in itself)

Now that she is gone... I should be able to go fishing... but how many

panic attack moments will I have while doing it?

Now that she is gone... I should be able to relax... but these

fleeting moments of panic make it feel impossible.

I now consider myself to be in the " Recovery " Phase of Life.

>

> >

>

> > Thank you all for your input. It's shortly after midnight. As of

>

> > 7:15pm.... her/our battle with LBD FINALLY ended. She took a turn for

>

> > the worse at 10:30 am wednesday and it ended at 7:15pm Wednesday.

>

> >

>

> > Thank you... Lee

>

> >

>

>

>

> ------------ --------- --------- ------

>

>

>

> Welcome to LBDcaregivers.

>

>

>

>