Guest guest Posted October 2, 2004 Report Share Posted October 2, 2004 Norma, For the swelling, have they tried a Jobst stocking... It is a pressure stocking that helps reduce swelling. I am not sure what length you would need (they have them for the foot, up to the knee, up to the hip, and similarly for the hand and arms). I also am not sure if you need a prescription, but that may be something to consider. Hope it Helps Bekkah Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2004 Report Share Posted December 13, 2004 Yup.. family should be there for family…. 4 years ago I took over the mortgage for my mother, paid all her bills. Now, I cannot work and was denied any further short term benefits & the last check came before thanksgiving…I am appealing but who knows what & /or when that will have a resolution. So, now that I can no longer pay her bills, let alone mine, she is saying she wants to move out and will no longer be able to ‘help’ me pay her house note but will not sign off the house. My point? Family should be there when you need help but the reality is too often quite the opposite, kick ‘em when their down’. Do not let them make your life decisions; you know how you feel and what you need to get to what I call ‘the close to normal’. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2005 Report Share Posted January 13, 2005 Dee wrote: > I am Dee from Calif. I am new. I am tired so I will share more on > another day. Hi Dee from California. Welcome to the Chronic Pain group. I'm sorry you need to join us, but glad you found us. -- Lyndi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2005 Report Share Posted January 13, 2005 Dee wrote: I am Dee from Calif. I am new. I am tired so I will share more on another day. Hey Dee, Get some rest and then tell us more about yourself please. I look forward to getting to know you better. Take care, Caitlin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 16, 2009 Report Share Posted December 16, 2009 Welcome Shereen Our mailing list gets more Global all the time. As always we're sorry that you had to look for us, but happy that we are here to help as much as we can. You said your doctor told you that none of the birthcontrol methods will work. Did she explain why they wouldn't work? We have had many young women who were on biologics ( methotrexate etc) and were using birthcontrol methods. I suppose if the meds will counter-act the birthcontrol drugs you may have to resort to using condoms, and the spermicides. I hope that we'll hear more from you in the coming days... Regards Cat ________________________________ To: Stillsdisease Sent: Wed, December 16, 2009 4:29:09 PM Subject: Hi  Hi every one, my name is Shereen, I am 27 years old girl from Egypt, working as a mechanical engineer. I had the AOSD a year ago, began with fever and pain all over my body, then two weeks later the rash came on, I take sulpiride, methotrexate, Oscal, Folic acid, plaquenil and Bone one. I am engaged and should get married within a year, I asked my doctor what will be the best way to postpone the pregnancy and she said none will work, I really can't have kids in the beginning of my marriage and don't know what to do. Also I am losing my hair and I tried many things to get it back but nothing worked with me. I really need to share this with u because no one around me really understand what I am going through... __________________________________________________________________ Connect with friends from any web browser - no download required. Try the new Yahoo! Canada Messenger for the Web BETA at http://ca.messenger.yahoo.com/webmessengerpromo.php Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2009 Report Share Posted December 17, 2009 Hi Shereen. Welcome to the group. Sorry you have the disease that brought you here, but hope we can give you our support. As CAT said there may be other women who are in the same boat as you. I have not specifically seen much info related to birth control. As far as your hair, I wish there was something that could offset it. Some who have been on methotrexate have experienced hair loss and many others have not. I had lost most of my hair before going on methotrexate but did not seem to lose more while on it. Maybe someone in the group may have come across something that may help. I do know that making sure that you supplement your folic acid at the right time around the methotrexate dosing may help but it looks like you have that covered. Again, welcome. Tom from PA (USA) > > Hi every one, my name is Shereen, I am 27 years old girl from Egypt, working as a mechanical engineer. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 18, 2009 Report Share Posted December 18, 2009 Shereen Welcome from this redneck also. As Tom said I to lost a lot of my hair but I do not know if it was my moms genes and man baldness or the MTX but it did start before I was on MTX so I lean more its moms fault. LOL.. As for help well woman can get away with wigs and things easier then men but I find hats work really well and if they have things like Deer on them that even better. all joking aside I really do not know what to say except for if its in the front tell them your a thinker if its in the back tell them your a lover and if its front to back well tell them nothing because they will just think your a lover . Okay this time no joke but no answer also I do know that for some it can make hair fall out and others it may not at all and many fall in the middle some wear also. I look at it this way even thou I joke about it I would love to have my hair back as I do not have a head for baldness but being its a no go for me I just say this is me and who I am like it or not its still better then how things were before when I had more hair and also a lot more pain and problems health wise. If this is one of the things I have to give up so be it. yes easer for a man to say I know but it is also my belief in life that out side looks will fade and change and its never for the best but the person we are in side never changes and that is who we really are after all and if some one can not see that then there shallow and losing out on a lot of life by placing importance on what nature is not kind to compared to the person who is always inside never changing! Hugs and good luck finding your answer as ya never know like all things just because it did not work for me dose not mean it will not work for you or the other way around also. the redneck Marty G. ________________________________ From: drwooly2006 Sent: Thu, December 17, 2009 6:04:44 PM Subject: Re: Hi Hi Shereen. As far as your hair, I wish there was something that could offset it. Some who have been on methotrexate have experienced hair loss and many others have not. I had lost most of my hair before going on methotrexate but did not seem to lose more while on it. Maybe someone in the group may have come across something that may help. I do know that making sure that you supplement your folic acid at the right time around the methotrexate dosing may help but it looks like you have that covered. Again, welcome. Tom from PA (USA) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2010 Report Share Posted October 22, 2010 I get some thing from Sinamail telling me that, but it goes to my spam box and I just delete it. Apparently it is an automated response that gets sent when a mailbox is full. So the member gets emails from the group and it generates this msg which is sent back to the group [i think]. I just put this member on " moderated " and hopefully that will stop it ;-) We are so taking care of business here today ;-) Love, idio EN '68 in Remission now. > > > > > > Subject: FW: HI > > To: erythema_nodosum_group > > Date: Friday, October 22, 2010, 1:32 PM > > > > > > > > > > Have just seen this in my inbox? Is this legitimate? > > > > To: > > From: pbcwinsor@... > > Date: Fri, 22 Oct 2010 04:59:49 +0100 > > Subject: HI > > > > > > How are you ? I just flew to Spain because one of my close > > friends had an accident here. She has bad health now and waiting for > > a surgery. I don't have much cash left here while I have problems > > with my credit cards. Therefore I am sending you this email to ask > > if you can lend me some cash. > > I'm sorry to bother you but this is urgent. I will pay you back when > > I return home. > > I need 1,200.00 Euro ( one thousand two hundred Euro . > > International bank transfer takes too long, so for quick transfer in > > minutes please send the money via Western Union Service with the > > details below: > > First name: a - Last name : Winsor > > Address : PuertodeSanta49 > > City: Madrid > > Country: Spain > > To avoid any delays may be caused, please send me correct Money > > Transfer Control Number ( MTCN) as soon as u done > > > > Thanks a lot > > > > > > a Winsor > > 6 Brettgrave > > Epsom > > Surrey > > KT198QY > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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