Jump to content
RemedySpot.com

Re: (unknown)

Rate this topic


Guest guest

Recommended Posts

Tommi,

What do they say about her pain? Do they acknowledge

it, say they need to study it more, anything at all?

Or do they just blow it off?

-

--- tommigrl1 wrote:

> Well,

> They admitted my daughter to the hospital, and her

> she sits in pain!

> I can't believe that in this day and age anyone

> should sit in a

> hospital in pain! They tried to send her home, but I

> told them that

> if they didn't want to treat her, send her somewhere

> that they will,

> the NSG's said they couldn't help her. So, I told

> them they did it to

> her, so help her! So, they forward her to pain team!

>

>

> Thanks for listening!

> Tommi

>

>

__________________________________________________

Link to comment
Share on other sites

Tommi,

Is there any way for you to take her to another group

of neurosurgeons? I drive an hour to get to mine

because the doctors closer to me, well, let's just say

I don't have much faith in their abilities.

It is so important that you find a nsg. experienced

with pediatric tethered cord. If you do, he will

recognize the symptoms immediately and will know what

to do. Don't stop looking until you find one! Your

poor daughter. Geez! If I were you, I'd be spitting

mad, too. I probably would have had the cops called

on me to remove me from that doctor's ass, I'd be so

far up it screaming!!!

--- tommi wrote:

> Well,

> After my persistence, they seem to be patronizing

> me,

> they said for her to do rehab, well that more then

> they said before. They are pretty much just blowing

> her pain off saying that they will probably never

> know

> what, or where the pain is from. I read the article

> about (I'm sure I am going to spell this wrong),

> archonditis, and I brought that to thier attention,

> but they said that there was no way it could be

> that.

> So, I asked about the " other symptoms " , and she has

> been complaing of 3 of them, tingling in her feet,

> and

> numbness there too. Also, she has had this awful

> itch.

> Well, I think I have about had it here, we have been

> her for 4 days, and they are sending her home

> tomorrow, with a we can't do anything for her

> comment!

>

> Thanks for letting me vent!

> Tommi

> --- Weaver wrote:

> > Tommi,

> >

> > What do they say about her pain? Do they

> > acknowledge

> > it, say they need to study it more, anything at

> all?

> >

> > Or do they just blow it off?

> >

> >

> > -

> > --- tommigrl1 wrote:

> > > Well,

> > > They admitted my daughter to the hospital, and

> her

> > > she sits in pain!

> > > I can't believe that in this day and age anyone

> > > should sit in a

> > > hospital in pain! They tried to send her home,

> but

> > I

> > > told them that

> > > if they didn't want to treat her, send her

> > somewhere

> > > that they will,

> > > the NSG's said they couldn't help her. So, I

> told

> > > them they did it to

> > > her, so help her! So, they forward her to pain

> > team!

> > >

> > >

> > > Thanks for listening!

> > > Tommi

> > >

> > >

> >

> >

> > __________________________________________________

> >

Link to comment
Share on other sites

OK , when can you be here?? :)

The NSG that is following her is the best, and I drive

over an hour to see him. He is I think someone on this

list called him the " guru " , of pediatric NSG's. I just

don't quit understand, why they are treating it like

they have never heard of this pain before, when here I

sit almost every night reading a post from some of

these no one's who have this pain! Isn't that

something, thanks for the " inspiring " words!

Have a good one,

Tommi

--- Weaver wrote:

> Tommi,

>

> Is there any way for you to take her to another

> group

> of neurosurgeons? I drive an hour to get to mine

> because the doctors closer to me, well, let's just

> say

> I don't have much faith in their abilities.

>

> It is so important that you find a nsg. experienced

> with pediatric tethered cord. If you do, he will

> recognize the symptoms immediately and will know

> what

> to do. Don't stop looking until you find one! Your

> poor daughter. Geez! If I were you, I'd be

> spitting

> mad, too. I probably would have had the cops called

> on me to remove me from that doctor's ass, I'd be so

> far up it screaming!!!

>

>

> --- tommi wrote:

> > Well,

> > After my persistence, they seem to be patronizing

> > me,

> > they said for her to do rehab, well that more then

> > they said before. They are pretty much just

> blowing

> > her pain off saying that they will probably never

> > know

> > what, or where the pain is from. I read the

> article

> > about (I'm sure I am going to spell this wrong),

> > archonditis, and I brought that to thier

> attention,

> > but they said that there was no way it could be

> > that.

> > So, I asked about the " other symptoms " , and she

> has

> > been complaing of 3 of them, tingling in her feet,

> > and

> > numbness there too. Also, she has had this awful

> > itch.

> > Well, I think I have about had it here, we have

> been

> > her for 4 days, and they are sending her home

> > tomorrow, with a we can't do anything for her

> > comment!

> >

> > Thanks for letting me vent!

> > Tommi

> > --- Weaver wrote:

> > > Tommi,

> > >

> > > What do they say about her pain? Do they

> > > acknowledge

> > > it, say they need to study it more, anything at

> > all?

> > >

> > > Or do they just blow it off?

> > >

> > >

> > > -

> > > --- tommigrl1 wrote:

> > > > Well,

> > > > They admitted my daughter to the hospital, and

> > her

> > > > she sits in pain!

> > > > I can't believe that in this day and age

> anyone

> > > > should sit in a

> > > > hospital in pain! They tried to send her home,

> > but

> > > I

> > > > told them that

> > > > if they didn't want to treat her, send her

> > > somewhere

> > > > that they will,

> > > > the NSG's said they couldn't help her. So, I

> > told

> > > > them they did it to

> > > > her, so help her! So, they forward her to pain

> > > team!

> > > >

> > > >

> > > > Thanks for listening!

> > > > Tommi

> > > >

> > > >

> > >

> > >

> > >

> __________________________________________________

> > >

Link to comment
Share on other sites

Have you asked him why he isn't treating her pain? I

would. And I wouldn't be nice about it. I would just

ask if he thinks her pain isn't as important because

she's a child, and why isn't he treating it. I get so

angry at doctors who act like parents are just idiots.

My daughter's orthopedic doctor was like that. He

actually had the nerve to tell me that maybe I just

didn't notice the 30 degree curve in her spine. ?!?!?!

I said " Did you look at her? How do you suppose I'd

have missed that? " He was trying to convince me she

had scoliosis all this time instead of just since her

injury. I made so many snide comments to this man.

My daughter almost peed her pants laughing every time

we had to go see him.

Actually, being rude may not be helpful, but I would

just ask it of him out loud. Why are you ignoring her

pain?

--- tommi wrote:

> OK , when can you be here?? :)

> The NSG that is following her is the best, and I

> drive

> over an hour to see him. He is I think someone on

> this

> list called him the " guru " , of pediatric NSG's. I

> just

> don't quit understand, why they are treating it like

> they have never heard of this pain before, when here

> I

> sit almost every night reading a post from some of

> these no one's who have this pain! Isn't that

> something, thanks for the " inspiring " words!

> Have a good one,

> Tommi

> --- Weaver wrote:

> > Tommi,

> >

> > Is there any way for you to take her to another

> > group

> > of neurosurgeons? I drive an hour to get to mine

> > because the doctors closer to me, well, let's just

> > say

> > I don't have much faith in their abilities.

> >

> > It is so important that you find a nsg.

> experienced

> > with pediatric tethered cord. If you do, he will

> > recognize the symptoms immediately and will know

> > what

> > to do. Don't stop looking until you find one!

> Your

> > poor daughter. Geez! If I were you, I'd be

> > spitting

> > mad, too. I probably would have had the cops

> called

> > on me to remove me from that doctor's ass, I'd be

> so

> > far up it screaming!!!

> >

> >

> > --- tommi wrote:

> > > Well,

> > > After my persistence, they seem to be

> patronizing

> > > me,

> > > they said for her to do rehab, well that more

> then

> > > they said before. They are pretty much just

> > blowing

> > > her pain off saying that they will probably

> never

> > > know

> > > what, or where the pain is from. I read the

> > article

> > > about (I'm sure I am going to spell this wrong),

> > > archonditis, and I brought that to thier

> > attention,

> > > but they said that there was no way it could be

> > > that.

> > > So, I asked about the " other symptoms " , and she

> > has

> > > been complaing of 3 of them, tingling in her

> feet,

> > > and

> > > numbness there too. Also, she has had this awful

> > > itch.

> > > Well, I think I have about had it here, we have

> > been

> > > her for 4 days, and they are sending her home

> > > tomorrow, with a we can't do anything for her

> > > comment!

> > >

> > > Thanks for letting me vent!

> > > Tommi

> > > --- Weaver wrote:

> > > > Tommi,

> > > >

> > > > What do they say about her pain? Do they

> > > > acknowledge

> > > > it, say they need to study it more, anything

> at

> > > all?

> > > >

> > > > Or do they just blow it off?

> > > >

> > > >

> > > > -

> > > > --- tommigrl1 wrote:

> > > > > Well,

> > > > > They admitted my daughter to the hospital,

> and

> > > her

> > > > > she sits in pain!

> > > > > I can't believe that in this day and age

> > anyone

> > > > > should sit in a

> > > > > hospital in pain! They tried to send her

> home,

> > > but

> > > > I

> > > > > told them that

> > > > > if they didn't want to treat her, send her

> > > > somewhere

> > > > > that they will,

> > > > > the NSG's said they couldn't help her. So, I

> > > told

> > > > > them they did it to

> > > > > her, so help her! So, they forward her to

> pain

> > > > team!

> > > > >

> > > > >

> > > > > Thanks for listening!

> > > > > Tommi

> > > > >

> > > > >

> > > >

> > > >

> > > >

> > __________________________________________________

> > > >

Link to comment
Share on other sites

Have you asked him why he isn't treating her pain? I

would. And I wouldn't be nice about it. I would just

ask if he thinks her pain isn't as important because

she's a child, and why isn't he treating it. I get so

angry at doctors who act like parents are just idiots.

My daughter's orthopedic doctor was like that. He

actually had the nerve to tell me that maybe I just

didn't notice the 30 degree curve in her spine. ?!?!?!

I said " Did you look at her? How do you suppose I'd

have missed that? " He was trying to convince me she

had scoliosis all this time instead of just since her

injury. I made so many snide comments to this man.

My daughter almost peed her pants laughing every time

we had to go see him.

Actually, being rude may not be helpful, but I would

just ask it of him out loud. Why are you ignoring her

pain?

--- tommi wrote:

> OK , when can you be here?? :)

> The NSG that is following her is the best, and I

> drive

> over an hour to see him. He is I think someone on

> this

> list called him the " guru " , of pediatric NSG's. I

> just

> don't quit understand, why they are treating it like

> they have never heard of this pain before, when here

> I

> sit almost every night reading a post from some of

> these no one's who have this pain! Isn't that

> something, thanks for the " inspiring " words!

> Have a good one,

> Tommi

> --- Weaver wrote:

> > Tommi,

> >

> > Is there any way for you to take her to another

> > group

> > of neurosurgeons? I drive an hour to get to mine

> > because the doctors closer to me, well, let's just

> > say

> > I don't have much faith in their abilities.

> >

> > It is so important that you find a nsg.

> experienced

> > with pediatric tethered cord. If you do, he will

> > recognize the symptoms immediately and will know

> > what

> > to do. Don't stop looking until you find one!

> Your

> > poor daughter. Geez! If I were you, I'd be

> > spitting

> > mad, too. I probably would have had the cops

> called

> > on me to remove me from that doctor's ass, I'd be

> so

> > far up it screaming!!!

> >

> >

> > --- tommi wrote:

> > > Well,

> > > After my persistence, they seem to be

> patronizing

> > > me,

> > > they said for her to do rehab, well that more

> then

> > > they said before. They are pretty much just

> > blowing

> > > her pain off saying that they will probably

> never

> > > know

> > > what, or where the pain is from. I read the

> > article

> > > about (I'm sure I am going to spell this wrong),

> > > archonditis, and I brought that to thier

> > attention,

> > > but they said that there was no way it could be

> > > that.

> > > So, I asked about the " other symptoms " , and she

> > has

> > > been complaing of 3 of them, tingling in her

> feet,

> > > and

> > > numbness there too. Also, she has had this awful

> > > itch.

> > > Well, I think I have about had it here, we have

> > been

> > > her for 4 days, and they are sending her home

> > > tomorrow, with a we can't do anything for her

> > > comment!

> > >

> > > Thanks for letting me vent!

> > > Tommi

> > > --- Weaver wrote:

> > > > Tommi,

> > > >

> > > > What do they say about her pain? Do they

> > > > acknowledge

> > > > it, say they need to study it more, anything

> at

> > > all?

> > > >

> > > > Or do they just blow it off?

> > > >

> > > >

> > > > -

> > > > --- tommigrl1 wrote:

> > > > > Well,

> > > > > They admitted my daughter to the hospital,

> and

> > > her

> > > > > she sits in pain!

> > > > > I can't believe that in this day and age

> > anyone

> > > > > should sit in a

> > > > > hospital in pain! They tried to send her

> home,

> > > but

> > > > I

> > > > > told them that

> > > > > if they didn't want to treat her, send her

> > > > somewhere

> > > > > that they will,

> > > > > the NSG's said they couldn't help her. So, I

> > > told

> > > > > them they did it to

> > > > > her, so help her! So, they forward her to

> pain

> > > > team!

> > > > >

> > > > >

> > > > > Thanks for listening!

> > > > > Tommi

> > > > >

> > > > >

> > > >

> > > >

> > > >

> > __________________________________________________

> > > >

Link to comment
Share on other sites

  • 6 months later...
Guest guest

I am behind in Email, but did want to say this..............hopefully you

have found all theh Complications that you will have by now that were

related to the Surgery. She is quite a ways out from Surgery, so I

personally don't think any Complications that are related to the Surgery

itself should still be cropping up. I would think that those types of

Complications would have all shown up by now.

Just some advice from Brande.

Me :)

Nebraska, USA

mymocha@...

She has gotten surgery which was a lamenectomy on jan

> 29 and she is having so many complications from this. The incision on her

> back has not even healed completely yet.She has cast on her legs to

stretch

> the muscles and tendons that causes her to walk on her tip-toes. My

daughter

> still cannot be potty trained. I was wondering what other complications

can

> I expect from this?

Link to comment
Share on other sites

Guest guest

I am behind in Email, but did want to say this..............hopefully you

have found all theh Complications that you will have by now that were

related to the Surgery. She is quite a ways out from Surgery, so I

personally don't think any Complications that are related to the Surgery

itself should still be cropping up. I would think that those types of

Complications would have all shown up by now.

Just some advice from Brande.

Me :)

Nebraska, USA

mymocha@...

She has gotten surgery which was a lamenectomy on jan

> 29 and she is having so many complications from this. The incision on her

> back has not even healed completely yet.She has cast on her legs to

stretch

> the muscles and tendons that causes her to walk on her tip-toes. My

daughter

> still cannot be potty trained. I was wondering what other complications

can

> I expect from this?

Link to comment
Share on other sites

Guest guest

I am behind in Email, but did want to say this..............hopefully you

have found all theh Complications that you will have by now that were

related to the Surgery. She is quite a ways out from Surgery, so I

personally don't think any Complications that are related to the Surgery

itself should still be cropping up. I would think that those types of

Complications would have all shown up by now.

Just some advice from Brande.

Me :)

Nebraska, USA

mymocha@...

She has gotten surgery which was a lamenectomy on jan

> 29 and she is having so many complications from this. The incision on her

> back has not even healed completely yet.She has cast on her legs to

stretch

> the muscles and tendons that causes her to walk on her tip-toes. My

daughter

> still cannot be potty trained. I was wondering what other complications

can

> I expect from this?

Link to comment
Share on other sites

  • 7 months later...

Thanks ! I appreciate it. We have completely changed our way

of living thanks to this program.

Darren

> Congratulations Darren! You and your girlfriend are

> doing fantastic!

>

>

Link to comment
Share on other sites

Thanks Anne! We are very proud of ourselves and we are not done

yet...we plan to keep going and are determined to win a challenge.

Darren

> Darren:

>

> Big congrats to you and your girlfriend! Those are some serious

results and you both should be soooooo proud of yourselves. I will

have to check out the pictures, they always shock me with the

drastic changes people make. I hope you guys will enjoy your

new " selves " for years to come!!

>

> Anne

> (unknown)

>

>

Link to comment
Share on other sites

  • 4 years later...
Guest guest

and Lesley Tierra are both in Santa Cruz, Ca. Check out the American

Herbalists' Guild for others and addresses

Boys

(unknown)

A clinet wants a herbalist around Santa Barbara, Ca. Does anyone know?

Thanks

J Fidler, MCPP, (RH) AHG

Herbalist

Link to comment
Share on other sites

  • 6 months later...

Dear Nicola,

Although this book is predominantly aimed at women, Susun Weed's " Breast

Cancer, Breast <http://www.breasthealthcancerprevention.com/> Health the

Wise Woman Way " is full of interesting and helpful advice.

The following are not herb-related but may be of interest to look into. The

first looks at vitamin D and its role in health - it seems likely that many

of us are very deficient in a vitamin that now seems to have many roles in

keeping us healthy - not helped by the current fear of sunlight and the

insistence on low-fat diets!

http://www.naturalnews.com/025495.html vitamin D

If you Google vitamin D and cancer you come up with many references you can

follow up.

I have an internet friend who developed breast cancer after the death of her

daughter from breast cancer. Although, worryingly, I've not heard from her

recently this has led me to have a look around for relevant info. As I do

very little with herbs nowadays the information is more related to the

energy medicine side of my practice. It means looking at cancer in a very

different light to the way we are used to, and one that resonates with me

when I consider the history of those who I know have had or have cancer. The

following references to the German New Medicine advocate a very different

approach to cancer.

http://articles.mercola.com/sites/articles/archive/2007/08/21/a-new-view-of-

cancer-german-new-medicine.aspx

http://germannewmedicine.ca/documents/welcome.html

Two books that I have found very interesting on how the mind/body connection

can be strongly affected, positively or negatively, by our emotions and

thoughts are:

" The Genie in Your Genes <http://www.genieinyourgenes.com/index.html> " by

Dawson Church

" The

<http://www.amazon.co.uk/Biology-Belief-Unleashing-Consciousness-Miracles/dp

/0975991477> Biology of Belief " by Bruce Lipton

This is one of the reasons I believe that energy medicine techniques such as

EFT, can be very effective, either as a stand-alone or in conjunction with

any other healing modality that might be in use, whether herbal or

allopathic. They work on the underlying emotional causes/triggers, while the

herbs, etc can help to consolidate the physical healing, if that makes any

sense?

This might not be quite what you were looking for but I work on the basis

that all knowledge may come in useful, so hope that you find it helpful.

Kind Regards,

www.EFT-Reiki.com

www.EFT-not-HRT.com " Menopause - Hormonal Balance With EFT " eBook

_____

From: ukherbal-list [mailto:ukherbal-list ]

On Behalf Of nicola tew

Sent: 28 February 2009 13:11

To: ukherbal-list

Subject: (unknown)

Thanks for replies to 'herbs and chemo' query. Ann Maire - apricot

kernals? I would be very interested to learn more and to learn more about

what herbs you have found so successful. A few people have also recommended

tumeric....

Research has uncovered the following herbs to be CI with oncovin -

goldenseal, licorice, sage, chamomile (!!?), borage, SJW, echinacea and

possibly alkaloid containing herbs (although this was extrapolated from

pharmacological data)

My patient has reduced liver functioning, liver tumor and now breast tumor.

Since being on herbs (mainly liver, adapogen and emotional support) the

liver has been stable, the liver tumor also stable - not getting better not

getting worse, the breast tumor has been growing and fast. The patient is

super healthy and has a positive attitude. He takes prescription pain

killers for another problem and has already reduced down to the lowest dose

possibe to reduce burden on the liver but retain quality of life.

I would like to continue to support the liver with milk thistle and was also

thinking of withania, panax and skullcap. What do you think? Your comments

are most welcome. As are any herbal / other recommendations for liver /

breast cancer / managing S/E of chemotherapy.

Thanks in advance.

All the best,

Nicola

Link to comment
Share on other sites

  • 1 month later...
Guest guest

Dear Shar,

Happy for you that the weather is fine, I know for myself that helps but sorry

you have to see doctors you don't like.

____________________________________________________________

Click here for free information on how to reduce your debt by filing for

bankruptcy.

http://thirdpartyoffers.netzero.net/TGL2241/fc/BLSrjpYYr0A6NjfVbohIe2xCyUpG5lJ0L\

0HQ9lIatVOLXIgdW3reNSyof4U/

Link to comment
Share on other sites

  • 4 months later...

I look forward to hearing about it! I want you to know that when someone told me to do this. I thought they were crazy.But that particular outbreak was so over the top painful and my lumps were so huge I was desperate.I was literally floored by the relief. And to see them diminish in days was so exciting. Now everyone in myfamily drinks it and my nephews who are ball players use it on their sore muscles and injuries. I do not fully understand the reason why it works so well. I just know, for me and others, it has beena huge relief. So research it and all the health issues it can help. For some reason it doesn't work with any otherACV I've tried. The Organic ACV with the Mother in it has the most healing properties.Currently my friend who has a Maltese Shitzu with chronic allergies and itching has been spraying a 50/50 mixture of Organic ACV with purified water and it has dramatically stopped itching and healing of her rashes and wounds from excessive itching. Naturally you want to be careful if you have open wounds; but diluted in purified water you can heal the burning lumps. There have beennumerous reports of this. I never had open wounds. I had blistering though when they merged and got very, very hot.I am so thankful for this stuff I can't even tell you. Wishing you a speedy healing of your lumps.best,ml ML GemmillWriter - Creative Ideatorlittlesumo@... Thank you Louise. I will let you know how it works for me.

Link to comment
Share on other sites

  • 2 weeks later...

Very Well Said Donna……..I

feel exactly the same way J

From:

erythema_nodosum_Group

[mailto:erythema_nodosum_Group ] On Behalf Of donna hawkins

Sent: Tuesday, September 22, 2009

8:50 AM

To:

erythema_nodosum_Group

Subject:

(unknown)

Hi everyone.I just feel I need to reply

about the self confidence thing and about what your legs look like.I have the

funniest looking legs from the years I have had EN.I also had a DVT..clot in my

left leg so it is larger than the other leg.I get ankle swelling in that leg

all the time.There is dimples in the calf from damage to the skin from repetive

EN.You must wear skirts , dresses shorts whatever ..I mean we live this life

once.If others are looking..it truly is their problem.We are all much deeper people

than what our body looks like.I am a nurse..and I have seen burns on people's

faces, there is people that have no limbs, wheelchair bound folks.There is

people so skinny cause they are dying from cancer.There is always someone out

there far worse than some funny looking legs.So...those cute outfits ..fancy

skorts..don't deny yourself the fun of wearing those.Life is way to short

to worry about someone looking at your legs.

Donna..EN 19 years or more now

Ask a question on any topic and get answers from real people. Go to

Yahoo! Answers.

Link to comment
Share on other sites

Donna...I agree with you 100%. Enjoy life.

 

Hi everyone.I just feel I need to reply about the self confidence thing and about what your legs look like.I have the funniest looking legs from the years I have had EN.I also had a DVT..clot in my left leg so it is larger than the other leg.I get ankle swelling in that leg all the time.There is dimples in the calf from damage to the skin from repetive EN.You must wear skirts , dresses shorts whatever ..I mean we live this life once.If others are looking..it truly is their problem.We are all much deeper people than what our body looks like.I am a nurse..and I have seen burns on people's faces, there is people that have no limbs, wheelchair bound folks.There is people so skinny cause they are dying from cancer.There is always someone out there far worse than some funny looking legs.So...those cute outfits ..fancy skorts..don't deny yourself the fun of wearing those.Life is way to short to worry about someone looking at your legs.

Donna..EN 19 years or more now

Ask a question on any topic and get answers from real people. Go to Yahoo! Answers.

Link to comment
Share on other sites

  • 3 months later...

Donna- I am a lab manager so I can totally relate to diagnosing myself. I have gotten so frustrated with doctors I don't even go any more for the erythemia. They don't understand it, so I get the feeling they don't care. I just tolerate it. Thankful for my good days, and tolerate the bad days. People at the hospital have gotten used to the fact some days I look like death, and others I am fine. I don't get sent to the ED to be checked out any more.

I dont know if anyone else is having this, but I think they are showing up on my arms as well now. I have lumps and nodules on my arms that hurt just like the ones on my legs. Does anyone else have this on their arms as well as their legs?

Subject: (unknown)To: erythema_nodosum_Group Date: Monday, January 11, 2010, 8:52 AM

Hi, The last few years I just go from variouso degrees of flare ups.I am never free of nodosoms and i tolerate them on the most part..depends where they are.The last month my left leg has been very swollen..and I tried the stockings again.I once had a DVT in that leg...I couldn't tolerate the stockings on the nodosom and the bumps that the nodosoms have left my leg tissues in.I went back to the doctor to be re investigated as my flare ups have become worse in recent years.I now have an elevated rheumatoid factor but normal sed rates so I was sent to one rheumatoidologist that wouldn't do anything for me..and now am going to see a different one on friday.The weirdest part is..the swelling that I have had for over a month has decided to go away..although the nodosoms are still there.I am like a lot of you...a little frustrated as it is difficult to tell a doctor what is happening.I am fatigued..but tolerate the pain.I do wish I could wear the

compresions stockings though for the edema as I worry about blood clots again.I had them in my lungs as well.

I am a nurse and tend to try and diagnose myself a lot.I am frustrated at times..but with other ailments I have experienced I tolerate the nodosom and think..hey you are alive!..

Thanks for typing back I may try the ice ..I prefer warm baths to sooth the achiness though

Donna

The new Internet Explorer® 8 - Faster, safer, easier. Optimized for Yahoo! Get it Now for Free!

Link to comment
Share on other sites

  • 2 weeks later...

I don't speak spanish but I tried using my translation widget. En la parte inferior de este email a la derecha - haga clic la conexión se dan de baja. La palabra inglesa es unsubscribe.To: Soundsensitivity Sent: Thu, January 21, 2010 1:18:38 PMSubject: Re: (unknown)

Is there anyone in the group who can explain, in Spanish, how to leave the group?

Hello. Please. I can´t to continue in the sesion yahoo grups, Sound sensibility.I need "darme de baja", exit, dead in your group.Because for the English, i say spanish.¡¡¡¡¡¡¡¡Thank you!!!!!!.

Switch to: Text-Only, Daily Digest • Unsubscribe • Terms of Use

.

Link to comment
Share on other sites

thank you!! I needed to hear that!!To: Soundsensitivity From: gizziecookie@...Date: Fri, 22 Jan 2010 06:16:27 +0000Subject: (unknown)

 

Pia, I hope you go. The movie is absolutely amazing. Keep an open mind. I have learned to once again enjoy movies at the theater. In fact, I just wrote about that here in response to someone else: http://health.groups.yahoo.com/group/Soundsensitivity/message/15015 Don't let your fear overtake your thoughts. Focus on the movie, and absorb it all in. I think you will really like it :)

>

>

> I guess you have all heard about Avatar...my husband already saw it...wants me to see it...I hear it is amazing...I live in NYC...IMAX...3D...the whole thing...our plan was for tomorrow at 10:30am...I figured...the movie has been out there for a while...kids will be in school...but you just never know...how crowded can it be? Tonight I told him that hey, I am not really very excited to see this movie....he gets me!! Told me to decide in the morning...if I go ...I will bring ear plugs with me....then plant my coat around my head so I cannot see anyone around me...sucks!!!Also...I live on the top floor of our apartment building...the guy downstairs...God bless him...has been coughing really badly for YEARS now...I cannot believe how long he has been coughing...since I have been unemployed for a little over a year now...I am home alot...and I hear him...coughing like crazy...it is not really bothering me so much yet...I am more amazed that he is still alive...plus, tonight I was babysitting and got home late...it is now after midnight...he is still coughing his brains out!!! I wonder what is wrong with him...and this has been going on for years now...unbelievable!!!Thanks for letting me vent!!!

> __________________________________________________________

> Hotmail: Powerful Free email with security by Microsoft.

> http://clk.atdmt.com/GBL/go/196390710/direct/01/

>

Hotmail: Free, trusted and rich email service. Get it now.

Link to comment
Share on other sites

I'd like to add, too, Pia; I've just been to see Avatar 3D a few days ago with my Dad, and I was absolutely fine, no complaints at all. =)I hope you enjoy it and best of luck!Sent using BlackBerry® from OrangeDate: Fri, 22 Jan 2010 01:43:22 -0500To: <soundsensitivity >Subject: RE: (unknown) thank you!! I needed to hear that!!To: Soundsensitivity From: gizziecookieDate: Fri, 22 Jan 2010 06:16:27 +0000Subject: (unknown) Pia, I hope you go. The movie is absolutely amazing. Keep an open mind. I have learned to once again enjoy movies at the theater. In fact, I just wrote about that here in response to someone else: http://health.groups.yahoo.com/group/Soundsensitivity/message/15015 Don't let your fear overtake your thoughts. Focus on the movie, and absorb it all in. I think you will really like it :)>> > I guess you have all heard about Avatar...my husband already saw it...wants me to see it...I hear it is amazing...I live in NYC...IMAX...3D...the whole thing...our plan was for tomorrow at 10:30am...I figured...the movie has been out there for a while...kids will be in school...but you just never know...how crowded can it be? Tonight I told him that hey, I am not really very excited to see this movie....he gets me!! Told me to decide in the morning...if I go ...I will bring ear plugs with me....then plant my coat around my head so I cannot see anyone around me...sucks!!!Also...I live on the top floor of our apartment building...the guy downstairs...God bless him...has been coughing really badly for YEARS now...I cannot believe how long he has been coughing...since I have been unemployed for a little over a year now...I am home alot...and I hear him...coughing like crazy...it is not really bothering me so much yet...I am more amazed that he is still alive...plus, tonight I was babysitting and got home late...it is now after midnight...he is still coughing his brains out!!! I wonder what is wrong with him...and this has been going on for years now...unbelievable!!!Thanks for letting me vent!!! >__________________________________________________________> Hotmail: Powerful Free email with security by Microsoft.> http://clk.atdmt.com/GBL/go/196390710/direct/01/>Hotmail: Free, trusted and rich email service. Get it now.

Link to comment
Share on other sites

yes, Valerian stinks big time...when I take a tablet...I have to leave the room!!I feel bad for the coughing guy...have not heard him now for a while...but I can tell that pretty soon I will be yelling and banging...that's just how I roll......To: Soundsensitivity From: perfectkiss07@...Date: Sat, 23 Jan 2010 02:44:06 +0000Subject: (unknown)

 

You're so kind compared to how I was when I lived in NYC.

I tried to live on top floors but didn't always have that sort of luck.

At one point I lucked into sharing a recording studio loft a few blocks from Park and where I worked.

I thought "Yes I can roll out of bed at 8:15 and grab breakfast on the way to work all refreshed" (insert sound of life coming to a crashing halt).

So the first morning at 5am, my loft bed that put me close to the ceiling centered me right under what sounded like Zebras having a salsa dancing contest on the wood floor above me.

6:30am they stopped but the floor below me, a business, then decided house music at the highest decibel known to man was the appropriate soundtrack for their own murders. I kid, they're still alive.

Our elevator stopped at each floor opening into each loft so I zipped down and asked them to take it down a notch that we actually sleep upstairs. Lip service was all I got.

It kept happening. I was getting no sleep and starting to lose it.

One evening after they left, I took a water gun and filled it with valerian root tincture. If you've ever smelled this foul odor, you undoubtedly know what I did next.

The gate that keeps you out of their loft when the elevator stopped on their floor was just a gate. One could still mercilessly shoot horrific liquids all about their carpet through it, and one did =)

Man did that stink. Music stopped for a week. I endured maybe three months tops then bailed.

I'm vicious if people are mean, and it is mean to play horrible music at that hour.

I would ask your landlord what the deal is with the coughing neighbor. Ask if he's gonna kick anytime soon and if so, advertise the apartment at the deaf college up there. I know there's one cuz I rode the train with those kids all the time. Deaf people make great neighbors, unless they have emphysema or lung cancer of course.

>

>

> I guess you have all heard about Avatar...my husband already saw it...wants me to see it...I hear it is amazing...I live in NYC...IMAX...3D...the whole thing...our plan was for tomorrow at 10:30am...I figured...the movie has been out there for a while...kids will be in school...but you just never know...how crowded can it be? Tonight I told him that hey, I am not really very excited to see this movie....he gets me!! Told me to decide in the morning...if I go ...I will bring ear plugs with me....then plant my coat around my head so I cannot see anyone around me...sucks!!!Also...I live on the top floor of our apartment building...the guy downstairs...God bless him...has been coughing really badly for YEARS now...I cannot believe how long he has been coughing...since I have been unemployed for a little over a year now...I am home alot...and I hear him...coughing like crazy...it is not really bothering me so much yet...I am more amazed that he is still alive...plus, tonight I was babysitting and got home late...it is now after midnight...he is still coughing his brains out!!! I wonder what is wrong with him...and this has been going on for years now...unbelievable!!!Thanks for letting me vent!!!

> __________________________________________________________

> Hotmail: Powerful Free email with security by Microsoft.

> http://clk.atdmt.com/GBL/go/196390710/direct/01/

>

Hotmail: Free, trusted and rich email service. Get it now.

Link to comment
Share on other sites

  • 3 weeks later...

That would be fantastic.....I should invest in something like that and create my own music! Most likely my ears should be the ONLY one that ever hears it though. :)

(unknown)

Vicki,

I had years of piano lessons, so I can read music. HOWEVER, I cannot improvise it. And then there are people - and maybe you are one of those - who can learn to improvise, without reading music. I took piano lessons a couple years ago, after a 25-year hiatus, and my teacher talked of acquaintenances who were excellent piano players who could not read music.

I have an electronic 88-key piano, which doesn't take up much space and you plan plug in headphones and no one but you can hear it.

Link to comment
Share on other sites

Join the conversation

You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.

Loading...
×
×
  • Create New...