Re: Compression bandages

[Guest guest]

I used wet-to-dry also. Prototopic underneith and often had special dressings

topped with gauze wrap. changed at least twice a day, more if ulcerating.

jeff,

pg,

cd,

imed

>

> Luke

> I change my dressing twice a day too. I do wet dressings with a dry over the

top. Wet is Sponge gauge with asectic acid and distilled water 1 oz of white

vinegar to 32 oz of water. When the dressing is dry for several hours it becomes

more painful. I pour solution over dry bandage before removeing. Pour and remove

slowly keep pouring until the bandage come off with very little or no force.

About 10 minutes after putting a new bandage on it always feels bettter. If it

is breaking out or really raw I have to lower the vinegar amount a little. I am

do the whirlpool (leg in the water). They put asetic in water they can also put

salt in which is like saltine solutuion (that helps the pain). The first week it

hurt but now I am going on the third week almost no pain and the ulcer is really

healing Almost no leakage and the ulcer has raised up at least 2 skin layers.

The yellow drainage stuff is all gone.

> Dianne

[Guest guest]

Hi Jeff,

You refer to list a priorities when it comes to treatment of PG. I missed that post. Could you repeat them again for me?

Thanks, .

Re: Compression bandages

Luke,Ok, so, not sure if you are agreeing or not. But in any case, I never used those. Both of my derms, highly knowledgeable about PG found that the cleaning using lavage and whirlpool was impairative. So that is what i am suggesting, the bandage goes and get some good wound care. Wound care is about number 3 on my list of priorities.The cost, well, let me tell ya, nuttin is free. Since when do you get free lunches in UK and we don't in the US? Just being sarcastic here. Part of the reason your taxes are so much higher than ours. But with over a 1.4 Trillion dollar debt, I am sure we will catch up to ya real fast! The point that I wanted to make is this. I higher cost treatment does not always equate to better care. It can be the worst care as you and I have learned. Remember my list of priorties when it comes to treatments. You will have to advocate for yourself using that list. Not saying you aren't or won't, just saying that this list comes from some extremely knowledgeable and respected sources. Ya, you "could" stumble on some far out or even common treatment that solves everything to your amazement, but that is not current research and practice. You don't know how many times I have seen snake oil ads for "bowel cleansing" for us CD'ers. I know, I prolly will offend someone he BTW, what is that type of bandage used for normally? I know its not PG. I know PG treatments are robbed from other condition treatments, in fact, I think all of them are.jeff,pg,cd,imed>> Hi Jeff> > I know the compression maybe doesnt make sense, I cant say that it has worked or not in my case, I dont know if the ulcers would be worse without it or wether the bandage rubbing is causing problems. I intend to change dermatologists very soon and to get a complete new view of the problem.> In terms of expense, you forgot again that im in UK, expense isnt a factor since its all free. I havent been offered lavage or whirlpool treatments and in fact the bandages mean I cant soak my leg, the nurses give it a bit of a rinse when they change the bandages but it hasnt had a proper wash in about 2 years!!> Your opinion is certainly valid and common sense would tend to agree with you, maybe it depends on the type of ulcers, size, wether they are dry or moist and also on leakage etc. I know that when I started using them, the ulcers were leaking through several layers of normal bandages, after a few weeks of compression the leakage seemed to be less.> > Point taken on long posts, will edit all future ones, thanks for the reminder.> > As far as pathergy goes, my horse escaped before the stable door was bolted, I suspect again that anyone who has gone the surgery route was misdiagnosed or assumptions were made before PG was diagnosed. In my case I was unlucky enough to be sent to see a plastic surgeon who was only interested in surgical treatments. In summary, correct diagnosis is the most important thing for everyone, it certainly would have saved me a lot of pain.> > Luke

[Guest guest]

,

Ok. Its late and I am thinking off the top of my head here, so let me give that

a shot:

1. Go to a university medical treatment facility. The place where doctors go

to medical school, and specifically dermatology.

2. Wound care. Remember " Pathergy " if you come across any doctors with a

scaple in their hand.

3. Systemic treatments. Chemos and Biologics are the biggest ones out there

and are most often now considered first line defense.

I keep thinking I had a 4th. I might have to go back and find that post to Luke

now.

Jeff,

pg,

cd,

imed

>

> Hi Jeff,

> You refer to list a priorities when it comes to treatment of PG. I missed

that post. Could you repeat them again for me?

> Thanks, .

[Guest guest]

Hi Luke,

What you describe re your bandaging is pretty much the same way they are treating my legs with the cotton wool wadding with a light tensor bandage on top (I think 25% tension), then a cotton sleeve called blue line to hold everything in. Of course this is put on over the inadine and viscopaste.

Re: Compression bandages

Luke,Just between you, me, and the fence post, I would not wear a compression bandage for PG. I can't tell you why, except that from what I see and know about PG, your response makes sense---its not doing anything. So what is the purpose behind the compression bandage? I would give up that hugely expensive bandaging for a little lavage or whirlpool time, I think that would do it much more good.Nothing very scientific here, just MHI. It doesn't sit right with me.jeff,pg,cd,imed>> I have been getting bandaged twice a week now for about 18 months and I am starting to wonder wether its actually effective. The bandage is thick and stops me moving my ankle properly or wearing proper shoes. My question is... Does anyone else have experience of compression bandages being used to treat PG ( and EN where suitable ) and if so, did they help? Of course I know I need bandages of some sort and I am told that the compression ones ( possibly called something else in USA?? ) are what is normally used. It consists of a thick layer of cotton wool wadding over suitable wound dressings then 2 layers of cotten bandages and a thick stretchy outer layer, overall the thing looks a bit like a thin plaster cast but is more flexible than plaster.> > Thanks> > Luke>

[Guest guest]

I wore compression stockings for my PG and though it was painful to get them on,

I felt they did help reduce swelling -- which ultimately let the ulcers heal. I

put them on and off each day of course..

My legs were quite swollen when my PG was as its worst..

Kathy

> >

> > I have been getting bandaged twice a week now for about 18 months and I am

starting to wonder wether its actually effective. The bandage is thick and stops

me moving my ankle properly or wearing proper shoes. My question is... Does

anyone else have experience of compression bandages being used to treat PG ( and

EN where suitable ) and if so, did they help? Of course I know I need bandages

of some sort and I am told that the compression ones ( possibly called something

else in USA?? ) are what is normally used. It consists of a thick layer of

cotton wool wadding over suitable wound dressings then 2 layers of cotten

bandages and a thick stretchy outer layer, overall the thing looks a bit like a

thin plaster cast but is more flexible than plaster.

> >

> > Thanks

> >

> > Luke

> >

>