Guest guest Posted October 2, 2004 Report Share Posted October 2, 2004 Hi ! Did you go to the Diamond HA clinic? It seems everyone who goes there (myself included) gets told the same thing: it's your analgesic meds causing your pain, so let's detox you, and put you on MAOIs. Nothing directly against the docs at that clinic, but please think this through carefully before getting into it! They always jump to detox, which is a horrible shock to the system (especially when dealing with other pain besides HA). And then they jump to MAOI's, which can have horrible consequences if mixed with certain other meds...i.e., Demerol (ER pain drug of choice around here) on top of MAOIs can actually kill you. And personally, I question any mode of treatment immediately recommended for so many diverse people, who all have different pain types, different med regimens, and different medical histories. That said, opiods can still cause rebound HAs which trigger even worse migraines. In my experience, the rebounds are always very different than the usual pain...my usual chronic migraine is on my left temple, the rebounds are on my right and respond to no meds whatsoever. That sort of thing, even a subtle difference...but usually, the lack of anything working is a good sign of rebounds. Tyl 4, which I've also been taking daily for years, has never caused rebounds in me; neither has morphine. But even two days straight of taking Vicodin or Percocet will. It's a matter of formulation, I think, and which one your body can best tolerate. If you feel the pain isn't controlled enough by the opiods you're on, and you get that feeling of wanting to crawl out of your skin, then perhaps *slowly weaning* you off of Tyl 4 and Duragesic (and onto different opiod formulations, or different analgesics altogether) could be a good choice. Just my two cents (sense?)... Best wishes for better days, Raven Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2004 Report Share Posted October 2, 2004 I used to get terrible headaches from the duragesic. I would go to the hospital and they would give me toradol with an anti-nausea medicine and the headaches would go away within minutes. They also would add something to reduce the hyperness from the anti-nausea medicine. I would recommend that you switch from duragesic to avinza. Your head will be much clearer and you will feel better. At least I did. You can write me at conz11@... for more info if needed. Thanks, -Jeff Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2004 Report Share Posted October 2, 2004 , I am on Morphine, Dilaudid, and Vicoden. I was on Duragesic, but my skin is too thin and I absorb too much... When I was first of the medicines I had to occassional headache, I was told that was just my body getting used to the drugs. Now, I get migranes when my pain gets bad... At a 8/10 light and sound bother me. If my pain ever reaches a 9/10 I get light sensitive, noise sensitive, temperature sensitive to the point I need to be in a silent room with lights off and with several blankets keeping me warm, especially over my head... At a 10/10, I am ready to cut my own head off... The head aches were explained to me that because the pain chemicals from my back cause constriction of the blood vessels all over, but most ... The blood vessels constricting means not as much oxygen gets to the tissue and the headache begins... I am not sure what a " rebound headache " is? Is it like " rebound pain " where because your body gets used to your pain being under control, when the pain comes back it seems worse? If that is the headache, I don't get rebound heaches, but I get rebound pain! BADLY! My headaches vary based on how much pain I am in. My pain has been bad for the past almost 3 weeks. I have had 5 migranes... But then I have gone 3 or 4 months without having one. It all depends on how under control my pain is! My doctors have tried detoxing me three times for various reasons including to see if that would help reuce my migranes. The detox wasn't bad. The easiest way it was explained to me is you aren't addicted. You won't go through the cravings and the psychological sympotms. I did go through temperature changes (freezing one minute, burning up the next). I didn't experience nausea, vommiting, diarrhea, or any of the other symptoms. And no, detoxing didn't help my headaches in fact it made them worse, my theory, is because the pain was worse! I would ask to speak with a pharmacologist, a and pharmamcist before you decided to do this detox situation. The pharacologist will explain what other drugs may be able to help your pain while not interfering with getting you off opiates and he will be the one to give you the most common side effects. The pharmacist will help you make a plan for reacting to the side effects. The rest of your medical team should be able to make you feel comfortable with the prognosis. They should also help create a plan for what drugs to put you back on after your " detox " . If you have any specific questions or want to hear more about my story, please feel free to email me privately! Where in IL are you? What hospital is suggesting this? Blessed Be Bekkah in MI Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2004 Report Share Posted October 2, 2004 I have been told I have rebound headaches for pretty much everything I have tried - ergotamine, imitrex, fioricet, ... - by many doctors. I think the rebound answer is an easy cop out, and it is a textbook answer, so many doctors fall back on it. But, I think you will probably find it will not work. But, it is worth the try, likely. There is always the possibility it will work, and the downside is small. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2004 Report Share Posted October 4, 2004 I agree with you Raven. It seems that the doctor should be looking at all kinds of reasons for your headaches to occur. Have you had a CAT scan of your head done or at least x-rays of your neck? There are a zillion reasons why people have headaches. It seems odd that detox is the first thing they want to do. Kaylene Nothing directly against the docs >at that clinic, but please think this through carefully before getting into >it! They always jump to detox, which is a horrible shock to the system >(especially when dealing with other pain besides HA). > >Just my two cents (sense?)... >Best wishes for better days, >Raven > > _________________________________________________________________ On the road to retirement? Check out MSN Life Events for advice on how to get there! http://lifeevents.msn.com/category.aspx?cid=Retirement Quote Link to comment Share on other sites More sharing options...
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