Re: My precious Mom.....

[Guest guest]

Dear Gladys,

The tears are pouring out of my eyes as I read this. I wish there

was something I could do to ease your and Ruthie's pain. It is the

most awful thing to go through - for your MOm and for you. My heart

and prayers are with you.

Many hugs,

Helene

>

> .... was aptly named. For those who don't know, her name is Grace

and she

> has handled this whole journey with more Grace and courage than I

have ever

> seen in my life. She will forever be my hero.

>

> I believe her journey is approaching its end. Her catheter bag has

been

> empty for most of the day today and she has had the most horrendous

case of

> diarrhea I have ever seen in my entire life. She doesn't know us

and her

> eyes look " feverish " even though the thermometer says she has no

fever.

>

> She hasn't had much to drink all day and the only think she would

eat

> amounted to about 3 tbls. of cheese noodles. The diarrhea continues

> unabated despite us now having given her 4 Immodium.

>

> Ruthie and I are both going to be sleeping in there from here on

out. I

> just told Mom again how very much I love her and that I will miss

her very

> much, but that I know this is what she wants. You have no idea how

> desperately I want to hook up an IV and put in a feeding tube. I

know its

> stupid. I know it would be unfair to her and I won't do it because

I know

> she didn't want it, but God, I'm not ready to let her

> go!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! I don't think I've ever been

this

> heartbroken.

>

> Gladys

>

>

[Guest guest]

Gladys, I am so sorry.

>

> .... was aptly named. For those who don't know, her name is Grace and she

> has handled this whole journey with more Grace and courage than I have ever

> seen in my life. She will forever be my hero.

>

> I believe her journey is approaching its end. Her catheter bag has been

> empty for most of the day today and she has had the most horrendous case of

> diarrhea I have ever seen in my entire life. She doesn't know us and her

> eyes look " feverish " even though the thermometer says she has no fever.

>

> She hasn't had much to drink all day and the only think she would eat

> amounted to about 3 tbls. of cheese noodles. The diarrhea continues

> unabated despite us now having given her 4 Immodium.

>

> Ruthie and I are both going to be sleeping in there from here on out. I

> just told Mom again how very much I love her and that I will miss her very

> much, but that I know this is what she wants. You have no idea how

> desperately I want to hook up an IV and put in a feeding tube. I know its

> stupid. I know it would be unfair to her and I won't do it because I know

> she didn't want it, but God, I'm not ready to let her

> go!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! I don't think I've ever been this

> heartbroken.

>

> Gladys

>

>

[Guest guest]

Gladys;  I'm so very sorry to hear of her decline, but the signs are very

ominous right now.  You know you have done your best to help her through this

horrible disease, and your family as well.  Please be at peace with what is

happening, as she will be at peace herself.

 

June 

Subject: Re: My precious Mom.....

To: LBDcaregivers

Date: Saturday, October 11, 2008, 8:47 PM

Gladys, I am so sorry.

>

> .... was aptly named. For those who don't know, her name is Grace and she

> has handled this whole journey with more Grace and courage than I have ever

> seen in my life. She will forever be my hero.

>

> I believe her journey is approaching its end. Her catheter bag has been

> empty for most of the day today and she has had the most horrendous case of

> diarrhea I have ever seen in my entire life. She doesn't know us and her

> eyes look " feverish " even though the thermometer says she has no fever.

>

> She hasn't had much to drink all day and the only think she would eat

> amounted to about 3 tbls. of cheese noodles. The diarrhea continues

> unabated despite us now having given her 4 Immodium.

>

> Ruthie and I are both going to be sleeping in there from here on out. I

> just told Mom again how very much I love her and that I will miss her very

> much, but that I know this is what she wants. You have no idea how

> desperately I want to hook up an IV and put in a feeding tube. I know its

> stupid. I know it would be unfair to her and I won't do it because I know

> she didn't want it, but God, I'm not ready to let her

> go!!!!!!!!!! !!!!!!!!! !!!!!!!!! !!!!!! I don't think I've ever been this

> heartbroken.

>

> Gladys

>

>

[Guest guest]

Gladys ~

 

I'm so sorry that things have taken such a turn.  You are all in my prayers for

strength to get through this.

 

Even  though we don't want to see our LO's suffer, we still keep hoping in our

heart of hearts that something miraculous is going to happen and there will be a

turn-around.  I have to keep telling myself that my mom is facing God's ultimate

healing...the taking of her home to Him...the restoring of her to perfection. 

 

*hugs* 

Jannis

Redefining Normal Every Day

[Guest guest]

Gladys

I am so sorry you are at this point. It is so very difficult. While you aren't

ready to let her go, you are still doing the very thing she needs. She must

love you very much for what you are doing. You love her enough to put her needs

above your own.

My heart goes out to you and Ruthie. Prayers and good thoughts are going up

tonight that this is very peaceful for your Mom.

Hugs,

Donna R

Caregave for Mom (after I brought her from WI to MI) for 3 years and 4th year in

a nh.

She was almost 89 when she died in '02. No dx other than mine.

My precious Mom.....

..... was aptly named. For those who don't know, her name is Grace and she

has handled this whole journey with more Grace and courage than I have ever

seen in my life. She will forever be my hero.

I believe her journey is approaching its end. Her catheter bag has been

empty for most of the day today and she has had the most horrendous case of

diarrhea I have ever seen in my entire life. She doesn't know us and her

eyes look " feverish " even though the thermometer says she has no fever.

She hasn't had much to drink all day and the only think she would eat

amounted to about 3 tbls. of cheese noodles. The diarrhea continues

unabated despite us now having given her 4 Immodium.

Ruthie and I are both going to be sleeping in there from here on out. I

just told Mom again how very much I love her and that I will miss her very

much, but that I know this is what she wants. You have no idea how

desperately I want to hook up an IV and put in a feeding tube. I know its

stupid. I know it would be unfair to her and I won't do it because I know

she didn't want it, but God, I'm not ready to let her

go!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! I don't think I've ever been this

heartbroken.

Gladys

[Guest guest]

Gladys my heart breaks for you and Ruthie. It is always too soon to say

goodbye, but your love for her has overshadowed your own grief in your

choice to let her be released from her pain no matter how difficult it is

for you... My prayers are with your family at this time.

His,

Sherry

www.owly.net

daughter of , (mis?)diagnosed with AD in 2005, descent slowed by

Aricept; diagnosed with LBD March 2008, in a wonderful NH 1/2 mile from my

house. We're learning to live with Lewy...

----- Original Message -----

> .... was aptly named. For those who don't know, her name is Grace and she

> has handled this whole journey with more Grace and courage than I have

> ever

> seen in my life. She will forever be my hero.

>

> I believe her journey is approaching its end. Her catheter bag has been

> empty for most of the day today and she has had the most horrendous case

> of

> diarrhea I have ever seen in my entire life. She doesn't know us and her

> eyes look " feverish " even though the thermometer says she has no fever.

>

> She hasn't had much to drink all day and the only think she would eat

> amounted to about 3 tbls. of cheese noodles. The diarrhea continues

> unabated despite us now having given her 4 Immodium.

>

> Ruthie and I are both going to be sleeping in there from here on out. I

> just told Mom again how very much I love her and that I will miss her very

> much, but that I know this is what she wants. You have no idea how

> desperately I want to hook up an IV and put in a feeding tube. I know its

> stupid. I know it would be unfair to her and I won't do it because I know

> she didn't want it, but God, I'm not ready to let her

> go!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! I don't think I've ever been this

> heartbroken.

[Guest guest]

Gladys,

It's not the destination.  It's the journey.  You have taken your Mother on a

very loving journey.  Continue to allow your love for your Mother to be your

guide.

Kat in IL, caregiver to Mom, Jane, 86, brainstem stroke survivor 2/06, dx LBD

3/08

My precious Mom.....

..... was aptly named. For those who don't know, her name is Grace and she

has handled this whole journey with more Grace and courage than I have ever

seen in my life. She will forever be my hero.

I believe her journey is approaching its end. Her catheter bag has been

empty for most of the day today and she has had the most horrendous case of

diarrhea I have ever seen in my entire life. She doesn't know us and her

eyes look " feverish " even though the thermometer says she has no fever.

She hasn't had much to drink all day and the only think she would eat

amounted to about 3 tbls. of cheese noodles. The diarrhea continues

unabated despite us now having given her 4 Immodium.

Ruthie and I are both going to be sleeping in there from here on out. I

just told Mom again how very much I love her and that I will miss her very

much, but that I know this is what she wants. You have no idea how

desperately I want to hook up an IV and put in a feeding tube. I know its

stupid. I know it would be unfair to her and I won't do it because I know

she didn't want it, but God, I'm not ready to let her

go!!!!!!!!!! !!!!!!!!! !!!!!!!!! !!!!!! I don't think I've ever been this

heartbroken.

Gladys

[Guest guest]

Gladys,

We care. I'm glad you're staying with her. This will be so hard, but

the love is so good. So many don't have that.

G

[Guest guest]

Gladys, please know that you & your precious mom are in my thoughts &

prayers... None of us was or will be ready when the time comes. I

know I sure wasn't w/ my mom as it sounds like the same for you... I,

too, was tempted when they asked if we wanted a breathing tube put

down her throat - but we denied that... I'm sure in retrospect it was

the best decision.

You've done soooooooo much for your mom and I'm sure she's

appreciating every little thing that you do for her. You can never

say enough " I Love Yous " And she'll hear every one of them...

>

> .... was aptly named. For those who don't know, her name is Grace

and she

> has handled this whole journey with more Grace and courage than I

have ever

> seen in my life. She will forever be my hero.

>

> I believe her journey is approaching its end. Her catheter bag has

been

> empty for most of the day today and she has had the most horrendous

case of

> diarrhea I have ever seen in my entire life. She doesn't know us

and her

> eyes look " feverish " even though the thermometer says she has no

fever.

>

> She hasn't had much to drink all day and the only think she would

eat

> amounted to about 3 tbls. of cheese noodles. The diarrhea continues

> unabated despite us now having given her 4 Immodium.

>

> Ruthie and I are both going to be sleeping in there from here on

out. I

> just told Mom again how very much I love her and that I will miss

her very

> much, but that I know this is what she wants. You have no idea how

> desperately I want to hook up an IV and put in a feeding tube. I

know its

> stupid. I know it would be unfair to her and I won't do it because

I know

> she didn't want it, but God, I'm not ready to let her

> go!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! I don't think I've ever been

this

> heartbroken.

>

> Gladys

>

>