Guest guest Posted October 11, 2008 Report Share Posted October 11, 2008 Dear Gladys, The tears are pouring out of my eyes as I read this. I wish there was something I could do to ease your and Ruthie's pain. It is the most awful thing to go through - for your MOm and for you. My heart and prayers are with you. Many hugs, Helene > > .... was aptly named. For those who don't know, her name is Grace and she > has handled this whole journey with more Grace and courage than I have ever > seen in my life. She will forever be my hero. > > I believe her journey is approaching its end. Her catheter bag has been > empty for most of the day today and she has had the most horrendous case of > diarrhea I have ever seen in my entire life. She doesn't know us and her > eyes look " feverish " even though the thermometer says she has no fever. > > She hasn't had much to drink all day and the only think she would eat > amounted to about 3 tbls. of cheese noodles. The diarrhea continues > unabated despite us now having given her 4 Immodium. > > Ruthie and I are both going to be sleeping in there from here on out. I > just told Mom again how very much I love her and that I will miss her very > much, but that I know this is what she wants. You have no idea how > desperately I want to hook up an IV and put in a feeding tube. I know its > stupid. I know it would be unfair to her and I won't do it because I know > she didn't want it, but God, I'm not ready to let her > go!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! I don't think I've ever been this > heartbroken. > > Gladys > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2008 Report Share Posted October 11, 2008 Gladys, I am so sorry. > > .... was aptly named. For those who don't know, her name is Grace and she > has handled this whole journey with more Grace and courage than I have ever > seen in my life. She will forever be my hero. > > I believe her journey is approaching its end. Her catheter bag has been > empty for most of the day today and she has had the most horrendous case of > diarrhea I have ever seen in my entire life. She doesn't know us and her > eyes look " feverish " even though the thermometer says she has no fever. > > She hasn't had much to drink all day and the only think she would eat > amounted to about 3 tbls. of cheese noodles. The diarrhea continues > unabated despite us now having given her 4 Immodium. > > Ruthie and I are both going to be sleeping in there from here on out. I > just told Mom again how very much I love her and that I will miss her very > much, but that I know this is what she wants. You have no idea how > desperately I want to hook up an IV and put in a feeding tube. I know its > stupid. I know it would be unfair to her and I won't do it because I know > she didn't want it, but God, I'm not ready to let her > go!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! I don't think I've ever been this > heartbroken. > > Gladys > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2008 Report Share Posted October 11, 2008 Gladys; I'm so very sorry to hear of her decline, but the signs are very ominous right now. You know you have done your best to help her through this horrible disease, and your family as well. Please be at peace with what is happening, as she will be at peace herself. June Subject: Re: My precious Mom..... To: LBDcaregivers Date: Saturday, October 11, 2008, 8:47 PM Gladys, I am so sorry. > > .... was aptly named. For those who don't know, her name is Grace and she > has handled this whole journey with more Grace and courage than I have ever > seen in my life. She will forever be my hero. > > I believe her journey is approaching its end. Her catheter bag has been > empty for most of the day today and she has had the most horrendous case of > diarrhea I have ever seen in my entire life. She doesn't know us and her > eyes look " feverish " even though the thermometer says she has no fever. > > She hasn't had much to drink all day and the only think she would eat > amounted to about 3 tbls. of cheese noodles. The diarrhea continues > unabated despite us now having given her 4 Immodium. > > Ruthie and I are both going to be sleeping in there from here on out. I > just told Mom again how very much I love her and that I will miss her very > much, but that I know this is what she wants. You have no idea how > desperately I want to hook up an IV and put in a feeding tube. I know its > stupid. I know it would be unfair to her and I won't do it because I know > she didn't want it, but God, I'm not ready to let her > go!!!!!!!!!! !!!!!!!!! !!!!!!!!! !!!!!! I don't think I've ever been this > heartbroken. > > Gladys > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2008 Report Share Posted October 11, 2008 Gladys ~ I'm so sorry that things have taken such a turn. You are all in my prayers for strength to get through this. Even though we don't want to see our LO's suffer, we still keep hoping in our heart of hearts that something miraculous is going to happen and there will be a turn-around. I have to keep telling myself that my mom is facing God's ultimate healing...the taking of her home to Him...the restoring of her to perfection. *hugs* Jannis Redefining Normal Every Day Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2008 Report Share Posted October 12, 2008 Gladys I am so sorry you are at this point. It is so very difficult. While you aren't ready to let her go, you are still doing the very thing she needs. She must love you very much for what you are doing. You love her enough to put her needs above your own. My heart goes out to you and Ruthie. Prayers and good thoughts are going up tonight that this is very peaceful for your Mom. Hugs, Donna R Caregave for Mom (after I brought her from WI to MI) for 3 years and 4th year in a nh. She was almost 89 when she died in '02. No dx other than mine. My precious Mom..... ..... was aptly named. For those who don't know, her name is Grace and she has handled this whole journey with more Grace and courage than I have ever seen in my life. She will forever be my hero. I believe her journey is approaching its end. Her catheter bag has been empty for most of the day today and she has had the most horrendous case of diarrhea I have ever seen in my entire life. She doesn't know us and her eyes look " feverish " even though the thermometer says she has no fever. She hasn't had much to drink all day and the only think she would eat amounted to about 3 tbls. of cheese noodles. The diarrhea continues unabated despite us now having given her 4 Immodium. Ruthie and I are both going to be sleeping in there from here on out. I just told Mom again how very much I love her and that I will miss her very much, but that I know this is what she wants. You have no idea how desperately I want to hook up an IV and put in a feeding tube. I know its stupid. I know it would be unfair to her and I won't do it because I know she didn't want it, but God, I'm not ready to let her go!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! I don't think I've ever been this heartbroken. Gladys Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2008 Report Share Posted October 12, 2008 Gladys my heart breaks for you and Ruthie. It is always too soon to say goodbye, but your love for her has overshadowed your own grief in your choice to let her be released from her pain no matter how difficult it is for you... My prayers are with your family at this time. His, Sherry www.owly.net daughter of , (mis?)diagnosed with AD in 2005, descent slowed by Aricept; diagnosed with LBD March 2008, in a wonderful NH 1/2 mile from my house. We're learning to live with Lewy... ----- Original Message ----- > .... was aptly named. For those who don't know, her name is Grace and she > has handled this whole journey with more Grace and courage than I have > ever > seen in my life. She will forever be my hero. > > I believe her journey is approaching its end. Her catheter bag has been > empty for most of the day today and she has had the most horrendous case > of > diarrhea I have ever seen in my entire life. She doesn't know us and her > eyes look " feverish " even though the thermometer says she has no fever. > > She hasn't had much to drink all day and the only think she would eat > amounted to about 3 tbls. of cheese noodles. The diarrhea continues > unabated despite us now having given her 4 Immodium. > > Ruthie and I are both going to be sleeping in there from here on out. I > just told Mom again how very much I love her and that I will miss her very > much, but that I know this is what she wants. You have no idea how > desperately I want to hook up an IV and put in a feeding tube. I know its > stupid. I know it would be unfair to her and I won't do it because I know > she didn't want it, but God, I'm not ready to let her > go!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! I don't think I've ever been this > heartbroken. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2008 Report Share Posted October 12, 2008 Gladys, It's not the destination. It's the journey. You have taken your Mother on a very loving journey. Continue to allow your love for your Mother to be your guide. Kat in IL, caregiver to Mom, Jane, 86, brainstem stroke survivor 2/06, dx LBD 3/08 My precious Mom..... ..... was aptly named. For those who don't know, her name is Grace and she has handled this whole journey with more Grace and courage than I have ever seen in my life. She will forever be my hero. I believe her journey is approaching its end. Her catheter bag has been empty for most of the day today and she has had the most horrendous case of diarrhea I have ever seen in my entire life. She doesn't know us and her eyes look " feverish " even though the thermometer says she has no fever. She hasn't had much to drink all day and the only think she would eat amounted to about 3 tbls. of cheese noodles. The diarrhea continues unabated despite us now having given her 4 Immodium. Ruthie and I are both going to be sleeping in there from here on out. I just told Mom again how very much I love her and that I will miss her very much, but that I know this is what she wants. You have no idea how desperately I want to hook up an IV and put in a feeding tube. I know its stupid. I know it would be unfair to her and I won't do it because I know she didn't want it, but God, I'm not ready to let her go!!!!!!!!!! !!!!!!!!! !!!!!!!!! !!!!!! I don't think I've ever been this heartbroken. Gladys Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2008 Report Share Posted October 12, 2008 Gladys, We care. I'm glad you're staying with her. This will be so hard, but the love is so good. So many don't have that. G Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2008 Report Share Posted October 13, 2008 Gladys, please know that you & your precious mom are in my thoughts & prayers... None of us was or will be ready when the time comes. I know I sure wasn't w/ my mom as it sounds like the same for you... I, too, was tempted when they asked if we wanted a breathing tube put down her throat - but we denied that... I'm sure in retrospect it was the best decision. You've done soooooooo much for your mom and I'm sure she's appreciating every little thing that you do for her. You can never say enough " I Love Yous " And she'll hear every one of them... > > .... was aptly named. For those who don't know, her name is Grace and she > has handled this whole journey with more Grace and courage than I have ever > seen in my life. She will forever be my hero. > > I believe her journey is approaching its end. Her catheter bag has been > empty for most of the day today and she has had the most horrendous case of > diarrhea I have ever seen in my entire life. She doesn't know us and her > eyes look " feverish " even though the thermometer says she has no fever. > > She hasn't had much to drink all day and the only think she would eat > amounted to about 3 tbls. of cheese noodles. The diarrhea continues > unabated despite us now having given her 4 Immodium. > > Ruthie and I are both going to be sleeping in there from here on out. I > just told Mom again how very much I love her and that I will miss her very > much, but that I know this is what she wants. You have no idea how > desperately I want to hook up an IV and put in a feeding tube. I know its > stupid. I know it would be unfair to her and I won't do it because I know > she didn't want it, but God, I'm not ready to let her > go!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! I don't think I've ever been this > heartbroken. > > Gladys > > Quote Link to comment Share on other sites More sharing options...
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