Guest guest Posted June 1, 2009 Report Share Posted June 1, 2009 Hi, Where do you live? Yes, Lymes Disease is an EN trigger, but is mostly confined to the South Western US, right? Love, idio. EN '68 in remission now > > Today I went to my orthopedic doctor whom I had not seen since 12/2008. When I told him about the episode of EN that I had from January to March he was questioning me about Lyme disease as he said that most of the time EN is from lyme disease or something similar. I had not been told that and was pleasantly surprised when he asked me if I had been tested for Lymes which I had not. Has anybody else been told that EN could be a different effect from Lyme's? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2009 Report Share Posted June 2, 2009 I knew the connection. I was tested for it,especially since I live in Wisconsin.We have lots of deer ticks. It was negative. Sandy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2009 Report Share Posted June 2, 2009 Nope,deer ticks(cause of Lymes) are found everywhere there are deer.I saw a map online one time where it showed where it was the most prevalent. Sandy ~~~~~~~~~~~~~~~~ > Hi, > Where do you live? Yes, Lymes Disease is an EN trigger, but is mostly > confined to the South Western US, right? > Love, > > idio. EN '68 in remission now > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2010 Report Share Posted March 8, 2010 CHECK YOUR IODINE LEVELS! If you have been tired and sluggish, not able to sleep well, also check your adrenals (cortisol levels), If you have been using a chlorinated pool and/or hot tub the chlorine can bind to the iodine receptors and wreak havoc with body if iodine is low. You can get back to health by detoxing and slowly titrating iodine supplements to replace much needed iodine. Easy fix but many drs may not know or be willing to research. You may need to find a restorative endocrinologist if your dr isn't knowledgeable re iodine. Google iodine deficiency and look at all of the problems it can cause. It may not list EN but I was treated for EN for years with SSKI which contains iodine and it would go away temporarily (dr never knew why it worked) but after finding a dr who will work with me to correct the issue permanently I am on my way to health again! > > I have just been told that I have EN I am female age 51 have been a very healthy female went to the doctors and told me that I had EN took blood test and all came back normal so does not know why I have took this. I have red lumps all over my shins and ankles but the pain I have in my ankles, wrists, elbows, and aches and pains all over is really getting me down. the doctor told me bed rest would help and I stayed in bed for 2 days and this helped alot but when I got up and went about my business the next day I was back to square one and my pains were back again I have now had this for 2 weeks. I hope this is a one of as my doctor told me that this could happen and it will go away as quickley as it came but after reading some members story's this has really made me scared. > > Margaret > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 2010 Report Share Posted April 16, 2010 Hi I'm new to the group. I was diagnosed with En in Jan. My ankles (both) swelled about three times the size. I never got the sores that everyone talks about. After the swelling went down my ankles turned purple from the En. The doctor says I may have an overactive Immune system causing this. She says if it doesnt slow on its own I may have to start Chemotherapy drugs. My feet are so sore I cant walk on them for more than 20 minutes at atime. they sent me to a podiatrist who says I have planter flaitits He gave me cortisone shots in both feet and sent me to therapy. I never had problems with my feet before my ankles swelled. Has anyone had problems like this? They have me on Prednisone and nuerotin but it still hurts. I really need to get back to work so if any one knows of something I can use to get rid of the pain please let me know Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2010 Report Share Posted April 17, 2010 Hi Tina, Come to think of it, my ankles were swollen a few months beforeI broke out with the lumps. I was very sore and tired, but being in Disneyland, I was not going to miss the rides I so enjoyed, but did go back and rest a few times during trip. I was also told I had PF and had trouble walking, feet being so sore. But I also have very high arches, and that is probably what made them say the PF. OH well, what are we to do? I have been on Pred and a cream they gave for the lumps, the pred made me feel wonderful for the first few days...then the 'roid rage' came on, eyes became blurry, and so tense. I was told to quit the pred cold turkey, not good, but I was a mess. Right now, I am unemployeed, and can rest when ever I need to. Still suffer with some pain to a degree, but nothing like the early months. I hope you find comfort and know we are all here for each other. We are tying to get funding to find a cure. It is 100% tax write off, and the info is somewhere on the site, or can help. If you do not have money to donate, use the Good Search search engine, for any and everything on the net, it gets us a penny each time it is used, and they say a penny earned is a penny saved. Also has a link for The Doctor's TV show to help us get the word out about EN Please help out any way you can. Thanks again and good luck...a cure is around the corner with the help of each and every one of us. Debbie EN 5-07 To: erythema_nodosum_Group Sent: Fri, April 16, 2010 9:56:18 AMSubject: EN Hi I'm new to the group. I was diagnosed with En in Jan. My ankles (both) swelled about three times the size. I never got the sores that everyone talks about. After the swelling went down my ankles turned purple from the En. The doctor says I may have an overactive Immune system causing this. She says if it doesnt slow on its own I may have to start Chemotherapy drugs. My feet are so sore I cant walk on them for more than 20 minutes at atime. they sent me to a podiatrist who says I have planter flaitits He gave me cortisone shots in both feet and sent me to therapy. I never had problems with my feet before my ankles swelled. Has anyone had problems like this? They have me on Prednisone and nuerotin but it still hurts. I really need to get back to work so if any one knows of something I can use to get rid of the pain please let me know Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2010 Report Share Posted December 31, 2010 Hey there , Great minds thing alike lol I joined this group for .... A week ago .... Its cool and a good thing .... Subject: Re: ENTo: erythema_nodosum_Group Date: Thursday, December 30, 2010, 11:34 AM Hi Diane, Below is the "Member Questionnaire". You may simply copy/paste it and fill in your answers and send it back. If you would prefer to just write about your EN experience that is ok too. When received, I will add your questionnaire to the "Member Medical History" files we maintain on this site--be assured no one can see this except our members-- NOT anyone who is surfing the web. Wishing you and all our members a happy day! Love, 1. Your name and age: 2. Your location 3. Your email address: 4. Your Yahoo ID 5. Describe your erythema nodosum/PG symptoms or, if you do not have EN or PG, please explain why you wish to join this group. 6. List any other health conditions. 7. State what medications or treatments you take for EN, and their effectiveness: 8. When did you first get erythema nodosum or PG? 9. How long have you had erythema nodosum or PG? 10. Do you agree to treat all EN members with respect? 11.Do you agree to post NO advertisements for any products or services? 12. How did you find this Group? (Google, Yahoo, Ask Jeeves Search, referral from another group or person etc.) > > Hi, > I don't think I gave my case history when I joined the group. I am having a flare up at the moment and would like to share my history . . . . how do I do this please ? > Thanks, Diane. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 2011 Report Share Posted April 14, 2011 I am new to this group too. I had my first outbreak of EN about a month ago---painful lumps/nodules on my lower legs, both front and back, combined with headache, fatigue, muscle and joint pain. All of my bloodwork was nagative including CBC, CMP and autoimmune panel. I was put on prednisone for 10 days followed by a broad spectrum antiobiotic. The inital lumps went away after a couple of wks. New ones suddenly appeared about 4 days ago, fewer in number and size and less painful this time. I still have some muscle and joint pain However, I am optimistic as this " flare " was less severe than the first occurrence. Just frustrated that the cause of my EN has not been identified and really hoping that this is not a chronic condition for me. This site is very helpful in learning about EN as my doctor wasn't too knowledgable either. > > hiya im pretty newish to the group and i just want to thank you for this site. I ve had these nasty sore lumps on both my legs now since October last year. My doctor told me they only lasted for about six weeks and that they would go on their own 6 months av now passed and there's been no change. Obviously he was wrong. I ve have learnt more from this site than what the doctor knows. Thank you > Quote Link to comment Share on other sites More sharing options...
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