new doctor

[Guest guest]

Amy

 just hold on as July is not that far away. also find some time to rest as you

can only push so far I know as I am the king of pushing to far and being forced

to shut down but I think Larry ,Tom, and Kirk are trying to take that title from

me . What they do not know is I will give it to them and all that comes with it

LOL

hugs

 

the  redneck

Marty G.

 To learn about Stills Disease  http://www.stillsdisease.org/stills_info

For conservitive minded people  http://www.americac2c.orgThe problem is not that

people are taxed too little, the problem is that government spends too much.

Reagan 

 I predict future happiness for Americans if they can prevent the government

from wasting the labors of the people under the pretense of taking care of them.

Jefferson

 

 

 

 

[Guest guest]

Hi everyone

went to a new doctor on July 15 she seem very interest in my disease she know

about it and is willing to help me the problem is my old rheumy has  not sent my

records to her. so she had to go by what is happening to me and what i could

remember what drugs and what test I have had blood work is something she is

waiting on cause she don't want to run the same  test. So I have to wait for him

to send my records. She did put me back on prednisone but I only took it for 4

days it was giving me chest pains so I quite taking it it was only 10mg

so she going to put me on something else I don't know what it is yet I am

flaring I can hardly walk and I try to rest as much as possible. Also went to

social security yesterday and try to up my date on when I can get on ssdi and

the guy said I would not get ssi cause my  husband makes to much money and for

ssdi I would only get a small amount and my daughter would not get anything I

looked at him and said I make more money working then what you guys want to give

me and it going to kill me I have to keep working I can't live on what they want

to give me My doctor can't believe I'm still working I looked at he and said it

hard I come home exhausted and don't want to do anything. She said she would

sign any paper work for  my disability but like I said I can't live on that and

they said they want to know about my life insurance and our cars and anything

else we have I can't believe they want all of that we got all of this before I

was sick and now it

sounds like they want to take it away from us I just cried yesterday and told

my husband how am I suppose to live on what they say. He told me they have to be

wrong and it wont be look at until October I can't wait that long I even asked

the agent can't you move up the date he said no. I'm feeling so depressed right

now what else can go wrong I just cry all the time now and my daughter just goes

to her room. Husband just wants to fight and I just ignore him and he gets so po

at me I just cry more my body said its enough and can't take it anymore I tell

that to my husband and he tell me to grow up and don't be so high and mighty I

tell him I'm not high and mighty he get weird all the time he tell me he  loves

me all the time and I don't say it back I can't how can you love someone when

they want to yell at you and he says he's not yelling at me but my daughter said

today why was he yelling at you this time I told her I don't know I was ignoring

him but

that what my life all about Oh the doctor did not like when I told her I lost

15 pounds in a week and I was not trying and as of Wednesday of this week I lost

another 5 pounds Well I got to take my daughter for her allergy shot got to get

ready talk you all later Love Always Amy from Pa

[Guest guest]

Hang in there, Amy. It will work out. I know it seems impossible now, but it

will. I can't tell you when or how or anything you'd like to hear, but it will

work out eventually. I know I cut my hours down to 1/2 days and have recently

decided and spoken with my boss that I will not be returning to full-time work

again. It's hard adjusting to not enough income, but it can and does happen. I

still get irritated when I want to do something that costs money or buy

something. I used to not have to worry about it. My husband's income paid the

bills, and mine was savings and extra spending money. Now that's changed. The

economy has made it where his income doesn't always pay all the bills. I have

to work to make sure we have enough money to pay the bills. I can't work

full-time. If I do, there's nothing left of me to be me, to be a wife, to be a

mom, to tend to the house, nothing. I think it's rediculous how difficult it is

for people to get ssdi when it's obvious they really need it. Keep your chin

up. Someone is always there for you, even if it's not that obvious.

April

[Guest guest]

Amy,

So sorry to hear of your current problem with Social Security. I believe that

some members have had good help from lawyers that specialize in SS Disability.

They do not take any upfront fees (by law) and will take an amount set by law of

your back payments when your are approved. From what I understand, it is

reasonable. Maybe someone else from the group will be able to add more details

that may point you in the right direction. It does sound like you are getting

the run around, but that is not my area of expertise.

I feel very fortunate that I am still able to work full time, for the most part.

You can always email me privately also. I hope you can get some assitance and

that your new doctor will be able to help your condition.

I am in PA too. We live about 45 miles wes of Philly. Where are you near?

Tom (fuzzy)

>

> Hi everyone

> went to a new doctor on July 15 she seem very interest in my disease she know

about it and is willing to help me the problem is my old rheumy has  not sent my

records to her. . Also went to social security yesterday and try to up my date

on when I can get on ssdi and the guy said I would not get ssi cause my  husband

makes to much money and for ssdi I would only get a small amount and my daughter

would not get anything I looked at him and said I make more money working then

what you guys want to give me and it going to kill me I have to keep working I

can't live on what they want to give me

[Guest guest]

Amy:

 okay thanks to Tom I now know what you were asking and I may be of some help so

sorry I did not read this sooner ( me bad LOL)

1st ssi is based on how much money is incoming to the house hold so yes there is

a line if you cross it you do not get it sad fact but true .

2nd SSDI is based on your work record and on so many quarters of reported income

and that is how it is set for the amount. now for some it can be a bit and

others very little . Also some states like calif have a suplamentry income add

on that if you meat there guide line you can get . now for my self I can say I

live on way way less then I made working fact is way under 50% less and I do

mean way under. is it easy nope not at all. I worked for almost 3 years to get

ssdi and I had to use a lawyer in the end. as Tom said the majority of there

cost is out of your back pay and there fee is set by socil secerity. the lawyer

also has to be on there aproved list and do not worry ost that say they do ssi

are. there may be some small fees as I had for office things and what not but

that for me was only about a few hunderd dollars and my back pay was for almost

three years so when i did get it it was a larg chunk but it was also gone paying

back all I had barrowed

to live on during that time also. As for the kids I had two under 18 at the

time there share is less then what you would get and again based on the work

formula they use . now if they are over 18 forget it no matter what unless there

still in high school full time and once there end school for what ever reson so

dose there checks also end. now SSDI is not enough to live on as we are used to

that i know and for most it is survivel money at best if that. I know on mine

some how I did manage to get an apartment and pay some of my bills but nothing

out of living expenses so yes my credit is wacked big time. I made a chouse

credit rating or shelter and food . Houseing and eating won . medical is also

not easy to get at time and paces but at lest you do have some covrage after the

waiting period. also ssdi has a waiting period I belive of 6 months before the

first check so keep all of that in mind but in the long run any is better then

nothing and yes it

hurts but as I learnd I also found out what was needed for real and what was

not . what I could do with out and how to enjoy some very cheap simple little

things like having some extra cash for gas to take a drive things like that. yes

not all rossy and all of that but again some thing is better then nothing and

the stress and worry of making it or not the working or not if it is hurting you

then sort out what is inportant life family or money and things . harsh yes but

so is living on ssdi

good luck and ask all you want as it was 9 years ago now for me when i started

that fight and won but i still have all my paper work from them

 hugs

 

the  redneck

Marty G.

 To learn about Stills Disease  http://www.stillsdisease.org/stills_info

For conservitive minded people  http://www.americac2c.orgThe problem is not that

people are taxed too little, the problem is that government spends too much.

Reagan 

 I predict future happiness for Americans if they can prevent the government

from wasting the labors of the people under the pretense of taking care of them.

Jefferson