Re: carbatrol

[Guest guest]

Good Morning Edna,

How are you this morning? And the girls, how are they?

Have you gotten any questions answered?

's Ms is probably worse in the summer because heat often gives a bad reaction; a little different for each of us but I think the most common is weakness and the increase of pain.

How is the tempeture in Washington's summers?

You and yours are in my prayers

May God bless in all matters

Lynn (Moderator/Helper)wishing you and yoursLove and Happiness;Flowers and Butterflies

Re: carbatrol

My daughter has been on Tegretol for many years and I requested that she be switched to Carbatrol. She is on 200 mg at night. She began the Neurontin, Carbatrol and naltrexone the same day and hasn't been crying as much.What does the Topamax do for MS? My other daughter takes Topamax for seizures and it was a miracle drug for a child who needed a miracle so badly.Edna and (age 24) in WA stateAt 11:29 AM 8/20/2004 -0500, you wrote:

Hi,Was wondering if anyone has ever been on Carbatrol?I am now on it, 200mg starting out, at night. Helping with the strangling, banding, that has increased in my arm.Hopefully will be able to decrease Topamax too.Thanks for your replies,Kim in Nebraska

[Guest guest]

Hi Lynn,

Last summer and this summer, where we live in WA state (on the border of

Portland, OR) we have had record high temperatures. Last year I

told and that if it was as hot the next year as it was last

year I would get central air conditioning put in. I

knew already this May that we would get the central a/c put in and it was

was done in June. It has been so nice for both the girls since

neither of them have been able to tolerate heat throughout their

lives. It has been nice for me to not have to lift the heavy window

a/c in and out of the windows.

My other daughter, , often gets very red and hot on her skin and the

same thing now happens to .

does seem to be weaker now. We went to the Josh Groban

concert last night and we needed a strong fellow to get into the

van because her legs were like jello.

Edna, and , too

Good

Morning Edna,

How are you this

morning? And the girls, how are they?

Have you gotten

any questions answered?

's Ms is

probably worse in the summer because heat often gives a bad reaction; a

little different for each of us but I think the most common is weakness

and the increase of pain.

How is the

tempeture in Washington's summers?

[Guest guest]

Good Morning Edna, and ;

I am sure the centeral air is a blessing.

We only have the one room air and we do not take it out of the window. When that side of the room was where I spent most of my time wanted the air up on High. Now his hospital bed is over there and he turns it off everyday shortly after he sits down there. LOL but the good part of that is that the heat also is on that side of the room so I may not be burning up in the winter either. has copd and diabetes as well as high blood pressure. He is finally aware of just how serious he is and is trying to follow the rules about eating and exercise and breathing treatments.

Did you all enjoy the concert? I understand that they are a lot of fun and I am sure that I would have enjoyed going if I had gotten the chance or should I say made the chance to go. I know my children love them. I have been to a few restaurants and bars just to listen to the bands. Some of which I knew members or leaders of. In one case I knew the Mother of the leader and she had no way to get there and it was within an hours drive so I took her. I did so enjoy this visits so I am sure I would have enjoyed the concerts also.

, when you gets red and hot is it in one place or all over? My forehead gets red and I breakout in a sweat first on the forehead and then all over and I think my bp goes up. The last visit to my gp it happened while I was being examed.

, I have had Jello legs and that is not fun but I have sit down in the stores before because it would happen all of a sudden and I did not want to fall. That was fun in a way just to watch the people as they walked by.

Edna, I know you were asking someone else about the banding but I will share my latest banding which is still going on. My right leg about 1 1/2 inches below the knee it feels like a wide rubberband is tight there. Anyway that is my interpretation of banding.

Make it a good day and May you enjoy the blessing of God.

wishing you and yoursLove and Happiness;Flowers and Butterflies

Lynn (Moderator/Helper)

Re: carbatrol

Hi Lynn,Last summer and this summer, where we live in WA state (on the border of Portland, OR) we have had record high temperatures. Last year I told and that if it was as hot the next year as it was last year I would get central air conditioning put in. I knew already this May that we would get the central a/c put in and it was was done in June. It has been so nice for both the girls since neither of them have been able to tolerate heat throughout their lives. It has been nice for me to not have to lift the heavy window a/c in and out of the windows. My other daughter, , often gets very red and hot on her skin and the same thing now happens to . does seem to be weaker now. We went to the Josh Groban concert last night and we needed a strong fellow to get into the van because her legs were like jello.Edna, and , too

Good Morning Edna,How are you this morning? And the girls, how are they?Have you gotten any questions answered? 's Ms is probably worse in the summer because heat often gives a bad reaction; a little different for each of us but I think the most common is weakness and the increase of pain. How is the tempeture in Washington's summers?

[Guest guest]

Hi Lynn,

The concert was okay. had a huge seizure right before Josh

came out to sing, so our big Josh fan, , missed the whole

thing. We go to concerts whenever any come along that I think

and would like, and some that they may not like.

didn't like it too much so we probably wouldn't attend another

one, but Josh Groban is a wonderful singer. He had an orchestra

with him and had a local school choir sing a song with him.

I'll answer your question for , since she cannot do it for

herself. When gets red it is only where something has been

touching her, although her left cheek (the redness does not extend to her

ear) is red and hot a lot.

Thanks for the interpretation of banding. I wish could

indicate in some way where she hurts, but the Neurontin must be helping

her because she doesn't cry all day now.

This week we will be going to the Oregon state fair, which will thrill

(she doesn't like going), but we go every year. loved

going to Disneyland every year when I had a babysitter for .

loved all of it, including the plane trip, which always made me

nauseated.

Edna, and , too

At 11:32 AM 8/29/2004 -0500, you wrote:

Good

Morning Edna, and ;

I am sure the centeral air is a blessing.

We only have the one room air and we do not take it out of the

window. When that side of the room was where I spent most of my

time wanted the air up on High. Now his hospital bed is over

there and he turns it off everyday shortly after he sits down

there. LOL but the good part of that is that the heat

also is on that side of the room so I may not be burning up in the winter

either. has copd and diabetes as well as high

blood pressure. He is finally aware of just how serious he is and

is trying to follow the rules about eating and exercise and breathing

treatments.

Did you all enjoy

the concert? I understand that they are a lot of fun and I am sure

that I would have enjoyed going if I had gotten the chance or should I

say made the chance to go. I know my children love them. I

have been to a few restaurants and bars just to listen to the

bands. Some of which I knew members or leaders of. In one

case I knew the Mother of the leader and she had no way to get there and

it was within an hours drive so I took her. I did so enjoy

this visits so I am sure I would have enjoyed the concerts

also.

, when

you gets red and hot is it in one place or all over? My forehead

gets red and I breakout in a sweat first on the forehead and then all

over and I think my bp goes up. The last visit to my gp it happened

while I was being examed.