Re: Let your Voice be heard about EN on TV!!

[Guest guest]

,

the link does not work. But I did reg. but can't find the "vote". I tired to contact them years ago, and it didn't work for me as I had a job. Now I have none but no money to get there LOL how ironic is that?

Debbie

To: erythema_nodosum_Group Sent: Tue, January 26, 2010 7:52:11 PMSubject: Let your Voice be heard about EN on TV!!

Hi Everyone,Do you enjoy "The Doctors" TV show? Steve and I watch it nearly every day. I just posted EN as a topic to air on the show. This would give us a huge boost in reaching others who have EN, alerting the medical community about EN and fund raising for EN research! Just go to this site and click on "vote" to put EN on TV. Post your comments as well! You will have to create a user name and password at The Doctors website. It only takes a minute and gets immediately sent to your email address. I hope you will help us get the word out. We need to put an END to EN!http://www.thedoctorstv.com/produce/idea_comment/3970Love,idio EN '68 in remission now

[Guest guest]

Hi Debbie,Here is the right link:http://www.thedoctorstv.com/produceUnder "Recent Ideas" you will see my entry for EN. You must be logged on to vote. Just click on the "vote" and leave a message. Did that work for you?Love,http://poems2order.wordpress.com/Please enter Erythema Nodosum.........Thanks!-

Your email settings: Individual Email|Traditional

Change settings via the Web (Yahoo! ID required)

Change settings via email: Switch delivery to Daily Digest | Switch to Fully Featured

Visit Your Group |

Yahoo! Groups Terms of Use

|

Unsubscribe

[Guest guest]

All - It really is easy to do this voting. It will take a maximum of 5 minutes

to register and vote (they hardly want any information - just enough to make

sure you can't vote twice). Then, if you want to, you can write your own

comments like I did. Anyway, there are nearly 2500 of us - let's get our votes

in and see EN broadcast on television!

[Guest guest]

Thanks Debbie. By the way, have any of you noticed the number of " ideas " that

are for Sarcoidosis? Tons. And they have lots of votes. Also there is one for

Crohn's. I wonder if we can link them somehow??

>

> Pat,

> Perhaps I was wrong on the one point. It has been crazy as I was trying to

type the comment, then had to redo it, all with my hubby trying to hurry me up

so I would not be late for an appointment 45 minutes away. I was, rescheduled

it, but I guess it is only the 10 points.

> Sorry~

> Debbie en 5-7

>

>

>

>

>

[Guest guest]

I noticed that too, Pat. I think the best we can do is vote for all of them and

write a comment about how EN is related to them and should be included in any

program about it. I did that on a sarc. " idea " .

Love,

http://poems2order.wordpress.com/

>

> Thanks Debbie. By the way, have any of you noticed the number of " ideas " that

are for Sarcoidosis? Tons. And they have lots of votes. Also there is one for

Crohn's. I wonder if we can link them somehow??

>

[Guest guest]

I would get on their posts and connect en to one of our many triggers. I tried on one of them but it said I had to sign/log in. I did do that, so not sure if you needed to be for each topic, but I don't think so. I know posted on another post. We will just have to keep trying, and trying and try some more.

Group, this is something to possibly help us, and it will only cost you time. For those who have no money (like myself) these days, this is one way to show support for and all her hard work on this list.

Thank you in advance!

Debbie en 5-07

To: erythema_nodosum_Group Sent: Thu, January 28, 2010 5:49:58 AMSubject: Re: Let your Voice be heard about EN on TV!!

Thanks Debbie. By the way, have any of you noticed the number of "ideas" that are for Sarcoidosis? Tons. And they have lots of votes. Also there is one for Crohn's. I wonder if we can link them somehow??>> Pat,> Perhaps I was wrong on the one point. It has been crazy as I was trying to type the comment, then had to redo it, all with my hubby trying to hurry me up so I would not be late for an appointment 45 minutes away. I was, rescheduled it, but I guess it is only the 10 points. > Sorry~> Debbie en 5-7> > > > >

[Guest guest]

Its easy to do, even those of us who arent in USA can vote. Any chance I can be

the one to suggest that PG is considered as an associated condition? I havent

seen the show that you are talking about and I doubt its really aimed at people

like me ( mid 30's single male ), but medical shows usually like a little bit of

'gross' and there arent many conditions that can compete with PG for the 'gross'

factor. Anyway, regardless of all that, im glad that I could vote and support

and maybe publicise EN a bit.

Luke

>

> I would get on their posts and connect en to one of our many triggers. I tried

on one of them but it said I had to sign/log in. I did do that, so not sure if

you needed to be for each topic, but I don't think so. I know posted on

another  post. We will just have to keep trying, and trying and try some more.

> Group, this is something to possibly help us, and it will only cost you time.

For those who have no money (like myself) these days, this is one way to show 

support for and all her hard work on this list.

> Thank you in advance!

> Debbie en 5-07

[Guest guest]

To: erythema_nodosum_Group Sent: Thu, January 28, 2010 3:10:11 PMSubject: Re: Re: Let your Voice be heard about EN on TV!!OK group, I have another request or idea from you. How many of you belong to another group online? Or even your coworkers, family. Ask that they join the vote for EN.

I just put out a request to another group I belong to online. Not sure how many will do it, but even 1 vote is one more then we had, right?

We can do it, so let's do it!!!

Good luck!

Debbie

From: <patriciatalmage@ yahoo.com>To: erythema_nodosum_ Group@yahoogroup s.comSent: Thu, January 28, 2010 5:49:58 AMSubject: [erythema_nodosum_ Group] Re: Let your Voice be heard about EN on TV!!

Thanks Debbie. By the way, have any of you noticed the number of "ideas" that are for Sarcoidosis? Tons. And they have lots of votes. Also there is one for Crohn's. I wonder if we can link them somehow??>> Pat,> Perhaps I was wrong on the one point. It has been crazy as I was trying to type the comment, then had to redo it, all with my hubby trying to hurry me up so I would not be late for an appointment 45 minutes away. I was, rescheduled it, but I guess it is only the 10 points. > Sorry~> Debbie en 5-7> > > > >

[Guest guest]

Also, there are 2400 of us to vote...and so far only 14 have done so. Let's get

out the vote!

> >

> > Pat,

> > Perhaps I was wrong on the one point. It has been crazy as I was trying to

type the comment, then had to redo it, all with my hubby trying to hurry me up

so I would not be late for an appointment 45 minutes away. I was, rescheduled

it, but I guess it is only the 10 points.

> > Sorry~

> > Debbie en 5-7

> >

> >

> >

> >

> >

>

>

>

> OK group, I have another request or idea from you. How many of you belong to

another group online? Or even your coworkers, family. Ask that they join the

vote for EN.

>

[Guest guest]

Hi Luke,Thanks for your vote and comment! Why don't you start a new "idea for the Doctors": Pyoderma Gangrenosum--the ulceration from Hell.It is true that PG is not a common disorder, but people do need to be aware that ulcerations that don't heal need to be tended to quickly. Maybe the Doctors could include PG in a segment on types of skin ulcerations including diabetic ulcers.And please, Members, vote and comment on our EN entry for The Doctors TV show!http://www.thedoctorstv.com/produce/idea_comment/3970#commentsLove,http://poems2order.wordpress.com/Please enter Erythema Nodosum.........Thanks!Subject: Re: Let your Voice be heard about EN on TV!!To: erythema_nodosum_Group Date: Thursday, January 28, 2010, 3:27 PMIts easy to do, even those of us who arent in USA can vote. Any chance I can be the one to suggest that PG is considered as an associated condition? I havent seen the show that you are talking about and I doubt its really aimed at people like me ( mid 30's single male ), but medical shows usually like a little bit of 'gross' and there arent many conditions that can compete with PG for the 'gross' factor. Anyway, regardless of all that, im glad that I could vote and

support and maybe publicise EN a bit.Luke>> I would get on their posts and connect en to one of our many triggers. I tried on one of them but it said I had to sign/log in. I did do that, so not sure if you needed to be for each topic, but I don't think so. I know posted on another post. We will just have to keep trying, and trying and try some more. > Group, this is something to possibly help us, and it will only cost you time. For those who have no money (like myself) these days, this is one way to show support for and all her hard work on this list. > Thank you in advance! > Debbie en

5-07------------------------------------You can help Erythema Nodosum Research. Just go to http://www.goodsearch.com/ and under the I'm Supporting section enter Erythema Nodosum Research Fund. Every time you use Goodsearch to search, a penny will be donated to EN Research. NOW you can also GoodShop for Erythema Nodosum. All your favorites including Amazon.com will donate when you specify Erythema Nodosum as who you GoodShop for. So sign up today, and be sure to tell your friends, family and co-workers. Let's find a cure for Erythema Nodosum!

[Guest guest]

Hi .

While I agree with you, having an idea for PG and EN on there means people can

only vote for one or the other, since there are more EN members, it makes more

sense for the PG people to support EN. Im sure other PG members feel the same

and its pointless splitting us up and lowering the chances of either EN or PG

being used in the show.

I do like that descriprion though 'the ulceration from hell'. Maybe I will make

that the title of a book that I will write about PG. Just joking, I would be a

rubbish author, so if theres any shadow writers out there, let me know!!!

Luke

>

> Hi Luke,

> Thanks for your vote and comment! Why don't you start a new " idea for the

Doctors " : Pyoderma Gangrenosum--the ulceration from Hell.

> It is true that PG is not a common disorder, but people do need to be aware

that ulcerations that don't heal need to be tended to quickly. Maybe the Doctors

could include PG in a segment on types of skin ulcerations including diabetic

ulcers.

>

> And please, Members, vote and comment on our EN entry for The Doctors TV show!

> http://www.thedoctorstv.com/produce/idea_comment/3970#comments

>

> Love,

>

> http://poems2order.wordpress.com/

[Guest guest]

Luke, one can vote for many " ideas " on the site. I just went through (the hard

way until I found the search in the upper right corner) and voted for many of

the " sarcoidosis " ideas, plus commented in each about the link with EN. You (or

you and who is so good with words...) could put up an additional " idea "

for PG and we could all vote for that too! You just can't vote for the same

" idea " more than once.

Go for it! As of a few minutes ago, 17 of us have voted for the EN " idea " .

Pat

> >

> > Hi Luke,

> > Thanks for your vote and comment! Why don't you start a new " idea for the

Doctors " : Pyoderma Gangrenosum--the ulceration from Hell.

> > It is true that PG is not a common disorder, but people do need to be aware

that ulcerations that don't heal need to be tended to quickly. Maybe the Doctors

could include PG in a segment on types of skin ulcerations including diabetic

ulcers.

> >

> > And please, Members, vote and comment on our EN entry for The Doctors TV

show!

> > http://www.thedoctorstv.com/produce/idea_comment/3970#comments

> >

> > Love,

> >

> > http://poems2order.wordpress.com/

>

[Guest guest]

I voted for the sacroidosis and the EN ideas. Or maybe it was that I voted by posting the EN idea, but I think you can vote for as many ideas as you want, but only once for each idea.By the way, I am a writer and I have several books already written. Looking for a publisher who would take a chance on an "unknown." My books are more in the whimsical style--written in rhymed verse about my cat's adventures. Anyone with "connections" out there? I promise part of the profits to go to EN research ;-)Love,http://poems2order.wordpress.com/Please enter Erythema Nodosum.........Thanks!