Guest guest Posted July 18, 2008 Report Share Posted July 18, 2008 Dear Janet, Oh, your poor dear hsuband. How very sad he sounded. And this must have been hard to hear for you. When my mom goes through these moments, it's more difficult to say good by and leave. We do know that emotions fluctuate for our loved ones just as they do for any of us. My mom's MD has had to remind me that just because mom has LBD, she hasn't lost all her desire for a " normal " life, and that she'll express feelings just like anyone else. Such comments from time to time are not clinical signs of depression. I That said, yes Lexapro, is okay in LBD - my mom has been on it for 5 years. There are several others: I don't have it with me, but see Dr. Boeve's article on okay anti-Ds - he lists a few. There are treatment guidelines for dosages - lesser amounts for older people, and always have the pharmacist do a meds eval to ensure a new med works with current meds. We are finding now with my mom that true " depression " is not her issue as much as anxiety. That prompts many of her comments, such as: 'I don'[t want to die. " " Don't leave me. " " All my friends are gone. " " What's going to happen to me? " Lexapro, and several other anti-Ds, also seem to help with anxiety, if you find this is what's happening to such an extent that your husband''s quality of life is affected. As Ativan is not an anti-D, no one should try to prescribe it. But you are SO right - just say no to all benzos. My mom's comments on this score are much more intense, and pop out from nowher, ealong with other behavioral/spoken symptoms - when she is developing a UTI. So it's always follow up time on that issue, too. Let us know how your husband is doing. Both of you are always in my thoughts! Lin Subject: depression To: LBDcaregivers Date: Friday, July 18, 2008, 10:31 AM Yesterday, I was visiting Jim at the nh. It's the first time I have ever seen him actually depressed. Everything was as usual earlier in the evening. I took him to an outdoor concert in a shopping plaza that we go to weekly. I pull up in a hanicap parking space right next to the concert. The space has been there every week for us. Amazing! I put the top down on the convertible and we are right amongst the concert. He enjoys it. We got back to the nh after the concert and he got ready for bed and fell asleep very fast. It was around 8:30PM. I sit and read a book next to his bed until around 10PM, because almost like clock work around 9:30PM, he will wake up and have to go to the bathroom. He will hold on for as long as possible and he gets very restless. I know if I wasn't there to take him, he would hold on for a very long time and then release in his diaper and be in a wet diaper all night. I think this helps to contribute to his frequent UTIs, so I stay to bring him to the toilet one last time before he falls asleep for the night. He woke up his usual time around 9:30PM to go to the bathroom, so I took him in and brought him back to bed only this time he did not fall back to sleep. He was saying things like it was time for him to go and that he didn't want to leave me. I told him it's ok, I'll be fine but I will miss him and I told him I love him very much and he smiled and said, " thank you " He said he felt like crying. I told him it's ok to cry, but he didn't cry. He told me he was a coward and didn't want to leave this world. It went on like this for a good hour and a half. He didn't want me to walk out of the room and when I told him I have to go, it was then 11PM, he screamed for me to come back and said, " don't leave! " Just yesterday, he was joking and laughing with everyone. All the staff was saying what a great mood he is in. Not just yesterday, but the last few days. Last night tore me apart to see him like that. How this disease fluctuates! If this continues he may have to be put on an antidepressent. I WILL NOT ALLOW ATIVAN and they already have that on their charts at the nh. What is recommended for LBD as an antidepressant? Is Lexapro recommended? I know it is not a benzodiazepine. If this kind of behavior continues, I might have to think of putting him on an antidepressant. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2008 Report Share Posted July 18, 2008 Dear Janet, Oh, your poor dear hsuband. How very sad he sounded. And this must have been hard to hear for you. When my mom goes through these moments, it's more difficult to say good by and leave. We do know that emotions fluctuate for our loved ones just as they do for any of us. My mom's MD has had to remind me that just because mom has LBD, she hasn't lost all her desire for a " normal " life, and that she'll express feelings just like anyone else. Such comments from time to time are not clinical signs of depression. I That said, yes Lexapro, is okay in LBD - my mom has been on it for 5 years. There are several others: I don't have it with me, but see Dr. Boeve's article on okay anti-Ds - he lists a few. There are treatment guidelines for dosages - lesser amounts for older people, and always have the pharmacist do a meds eval to ensure a new med works with current meds. We are finding now with my mom that true " depression " is not her issue as much as anxiety. That prompts many of her comments, such as: 'I don'[t want to die. " " Don't leave me. " " All my friends are gone. " " What's going to happen to me? " Lexapro, and several other anti-Ds, also seem to help with anxiety, if you find this is what's happening to such an extent that your husband''s quality of life is affected. As Ativan is not an anti-D, no one should try to prescribe it. But you are SO right - just say no to all benzos. My mom's comments on this score are much more intense, and pop out from nowher, ealong with other behavioral/spoken symptoms - when she is developing a UTI. So it's always follow up time on that issue, too. Let us know how your husband is doing. Both of you are always in my thoughts! Lin Subject: depression To: LBDcaregivers Date: Friday, July 18, 2008, 10:31 AM Yesterday, I was visiting Jim at the nh. It's the first time I have ever seen him actually depressed. Everything was as usual earlier in the evening. I took him to an outdoor concert in a shopping plaza that we go to weekly. I pull up in a hanicap parking space right next to the concert. The space has been there every week for us. Amazing! I put the top down on the convertible and we are right amongst the concert. He enjoys it. We got back to the nh after the concert and he got ready for bed and fell asleep very fast. It was around 8:30PM. I sit and read a book next to his bed until around 10PM, because almost like clock work around 9:30PM, he will wake up and have to go to the bathroom. He will hold on for as long as possible and he gets very restless. I know if I wasn't there to take him, he would hold on for a very long time and then release in his diaper and be in a wet diaper all night. I think this helps to contribute to his frequent UTIs, so I stay to bring him to the toilet one last time before he falls asleep for the night. He woke up his usual time around 9:30PM to go to the bathroom, so I took him in and brought him back to bed only this time he did not fall back to sleep. He was saying things like it was time for him to go and that he didn't want to leave me. I told him it's ok, I'll be fine but I will miss him and I told him I love him very much and he smiled and said, " thank you " He said he felt like crying. I told him it's ok to cry, but he didn't cry. He told me he was a coward and didn't want to leave this world. It went on like this for a good hour and a half. He didn't want me to walk out of the room and when I told him I have to go, it was then 11PM, he screamed for me to come back and said, " don't leave! " Just yesterday, he was joking and laughing with everyone. All the staff was saying what a great mood he is in. Not just yesterday, but the last few days. Last night tore me apart to see him like that. How this disease fluctuates! If this continues he may have to be put on an antidepressent. I WILL NOT ALLOW ATIVAN and they already have that on their charts at the nh. What is recommended for LBD as an antidepressant? Is Lexapro recommended? I know it is not a benzodiazepine. If this kind of behavior continues, I might have to think of putting him on an antidepressant. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2008 Report Share Posted July 18, 2008 Jan: Hope Jim is doing better today. Darrell was very depressed, even when he was still at home. He was taking Celexa and Lexapro, don't remember which was first, and then they changed it. It didn't completely remove the depression, though. This was a man who was never depressed; always had an upbeat, optomistic attitude about everything, so it was hard to see the depression. When he was home, he would tell me to get a gun and shoot him or that he was going to run out into the street in front of a car. Sometimes after a nap, he would be fine, and apparently never remembered what had previously happened. I don't know anything about Zoloft or Paxil. Take care. June C > > Subject: depression > To: LBDcaregivers > Date: Friday, July 18, 2008, 10:31 AM > Yesterday, I was visiting Jim at the nh. It's the first > time I have ever seen him actually depressed. > Everything was as usual earlier in the evening. I took him > to an outdoor concert in a shopping plaza that we go to > weekly. I pull up in a hanicap parking space right next to > the concert. The space has been there every week for us. > Amazing! I put the top down on the convertible and we are > right amongst the concert. He enjoys it. We got back to the > nh after the concert and he got ready for bed and fell > asleep very fast. It was around 8:30PM. I sit and read a > book next to his bed until around 10PM, because almost like > clock work around 9:30PM, he will wake up and have to go to > the bathroom. He will hold on for as long as possible and > he gets very restless. I know if I wasn't there to take > him, he would hold on for a very long time and then release > in his diaper and be in a wet diaper all night. I think > this helps to contribute to his frequent UTIs, so I stay > to bring him to the toilet one last time before he falls > asleep for the night. He woke up his usual > time around 9:30PM to go to the bathroom, so I took him in > and brought him back to bed only this time he did not fall > back to sleep. > He was saying things like it was time for him to go and > that he didn't want to leave me. I told him it's > ok, I'll be fine but I will miss him and I told him I > love him very much and he smiled and said, " thank > you " He said he felt like crying. I told him it's > ok to cry, but he didn't cry. He told me he was a > coward and didn't want to leave this world. It went on > like this for a good hour and a half. He didn't want me > to walk out of the room and when I told him I have to go, it > was then 11PM, he screamed for me to come back and said, > " don't leave! " > Just yesterday, he was joking and laughing with everyone. > All the staff was saying what a great mood he is in. Not > just yesterday, but the last few days. Last night tore me > apart to see him like that. How this disease fluctuates! If > this continues he may have to be put on an antidepressent. > I WILL NOT ALLOW ATIVAN and they already have that on their > charts at the nh. What is recommended for LBD as an > antidepressant? Is Lexapro recommended? I know it is not a > benzodiazepine. If this kind of behavior continues, I might > have to think of putting him on an antidepressant. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2008 Report Share Posted July 19, 2008 Jan, So sorry to hear, after such a good time, Jim had a bad night. Or you had a bad one. Wonder what made him think like that after such a nice evening, unless he was dreaming. Hugs, And give Jim one too. Donna R Caregave for Mom (after I brought her from WI to MI) for 3 years and 4th year in a nh. She was almost 89 when she died in '02. No dx other than mine. depression Yesterday, I was visiting Jim at the nh. It's the first time I have ever seen him actually depressed. Everything was as usual earlier in the evening. I took him to an outdoor concert in a shopping plaza that we go to weekly. I pull up in a hanicap parking space right next to the concert. The space has been there every week for us. Amazing! I put the top down on the convertible and we are right amongst the concert. He enjoys it. We got back to the nh after the concert and he got ready for bed and fell asleep very fast. It was around 8:30PM. I sit and read a book next to his bed until around 10PM, because almost like clock work around 9:30PM, he will wake up and have to go to the bathroom. He will hold on for as long as possible and he gets very restless. I know if I wasn't there to take him, he would hold on for a very long time and then release in his diaper and be in a wet diaper all night. I think this helps to contribute to his frequent�UTIs, so I stay to bring him to the toilet one last time before he falls asleep for the night. He woke up his usual time around 9:30PM to go to the bathroom, so I took him in and brought him back to bed only this time he did not fall back to sleep. He was saying things like it was time for him to go and that he didn't want to leave me. I told him it's ok,�I'll be fine but I will miss him�and I told him I love him very much and he smiled�and said, " thank you " He said he felt like crying. I told him it's ok to cry, but he didn't cry. He told me he was a coward and didn't want to leave this world. It went on like this for a good hour and a half. He didn't want me to walk out of the room and when I told him I have to go, it was then 11PM, he screamed for me to come back and said, " don't leave! " Just yesterday, he was joking and laughing with everyone. All the staff was saying what a great mood he is�in. Not just yesterday, but the last few days. Last night tore me apart to see him like that. How this disease fluctuates! If this continues he may have to be put on an antidepressent. I WILL NOT ALLOW ATIVAN and they already have that on their charts at the nh. What is recommended for LBD as an antidepressant? Is Lexapro recommended? I know it is not a benzodiazepine. If this kind of behavior continues, I might have to think of putting him on an antidepressant. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2008 Report Share Posted July 22, 2008 Jan, I have just read this letter. That is exactly what I am concerned about with Don. If he says don't leave, or take me home, I might do either one. It tore me up to read your letter, because I know how I would have felt, and you love your Jim the way I love Don. I don't think I could stand it. This disease is tearing everyone up one way or another. It is horrid! I am so sorry Jan. Love you a lot, Imogene In a message dated 7/18/2008 10:32:11 AM Central Daylight Time, janetcolello@... writes: Yesterday, I was visiting Jim at the nh. It's the first time I have ever seen him actually depressed. Everything was as usual earlier in the evening. I took him to an outdoor concert in a shopping plaza that we go to weekly. I pull up in a hanicap parking space right next to the concert. The space has been there every week for us. Amazing! I put the top down on the convertible and we are right amongst the concert. He enjoys it. We got back to the nh after the concert and he got ready for bed and fell asleep very fast. It was around 8:30PM. I sit and read a book next to his bed until around 10PM, because almost like clock work around 9:30PM, he will wake up and have to go to the bathroom. He will hold on for as long as possible and he gets very restless. I know if I wasn't there to take him, he would hold on for a very long time and then release in his diaper and be in a wet diaper all night. I think this helps to contribute to his frequent UTIs, so I stay to bring him to the toilet one last time before he falls asleep for the night. He woke up his usual time around 9:30PM to go to the bathroom, so I took him in and brought him back to bed only this time he did not fall back to sleep. He was saying things like it was time for him to go and that he didn't want to leave me. I told him it's ok, I'll be fine but I will miss him and I told him I love him very much and he smiled and said, " thank you " He said he felt like crying. I told him it's ok to cry, but he didn't cry. He told me he was a coward and didn't want to leave this world. It went on like this for a good hour and a half. He didn't want me to walk out of the room and when I told him I have to go, it was then 11PM, he screamed for me to come back and said, " don't leave! " Just yesterday, he was joking and laughing with everyone. All the staff was saying what a great mood he is in. Not just yesterday, but the last few days. Last night tore me apart to see him like that. How this disease fluctuates! If this continues he may have to be put on an antidepressent. I WILL NOT ALLOW ATIVAN and they already have that on their charts at the nh. What is recommended for LBD as an antidepressant? Is Lexapro recommended? I know it is not a benzodiazepine. If this kind of behavior continues, I might have to think of putting him on an antidepressant. **************Get fantasy football with free live scoring. Sign up for FanHouse Fantasy Football today. (http://www.fanhouse.com/fantasyaffair?ncid=aolspr00050000000020) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2009 Report Share Posted June 13, 2009 Hi I have suffered from bronchiectasis for a long time. The disease gets me down. It is so ongoing. I feel as if I never get a break from it. My family is unsupportive & I feel very alone at times. Does anyone else have these feelings? Eliza Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2009 Report Share Posted June 13, 2009 Hi I have bronki and mac and is very severe, my family is supportive but I still get depressed and also anxiety I take medine for it and get counseling once a week and it help, don't feel bad because you cough,I cough constantly and to stranger I just tell them that is chronic. Good luck Myriam To: bronchiectasis Sent: Saturday, June 13, 2009 1:25:18 PMSubject: Re: Depression >> Hi> > I have suffered from bronchiectasis for a long time. The disease gets me down. It is so ongoing. I feel as if I never get a break from it. My family is unsupportive & I feel very alone at times.> > Does anyone else have these feelings?> > Eliza>Hi Eliza:I have a similar problem, my family treats me like I have a bad cold and it will go away some day,I also stay away from social circles and old friends because it is embarrasing to me to be coughing all the time and I do cough a lot although I do keep my schedule for cleaning my lungs every day. I have found that being outdoors by myself is therapeutic, I can cough all I want, and it also helps me clear my lungs much better than a flutter. Don't be discourage, accept your condition, adjust your needs and make the best of it.Ruth Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2009 Report Share Posted June 20, 2009 Hi Eliza, Feeling ‘depressed’ (ie not clinical Depression) is common w/ chronic conditions such as bronch. I got so sick of having drs & hospital write me off as depressed I asked for assessment, & provide whatever treatment if applicable (same goes for ‘anxiety’ label) & began to ‘investigate’ this phenomenon. It seems chronic fatigue is common along with lots - usually inflammatory – problems, eg: arthritis, sinusitis, reflux, bowel irritation.... & more. As if bronch isn’t enough & it never takes a holiday, even if you try to! .....many times in hospital & don’t get a phone call from siblings, much less a visit! And when you’re in & out lots even friends begin to fall away, except a faithful few. Sadly, I think most of us understand this only too well.... Ruth’s wise words...acceptance. Accepting your condition means it’s easier for others to be more accepting.... I’m now much more comfortable in ‘explaining’ my cough as ‘it’s not contagious, just a chronic condition I have’, and if asked I found it easier to say ‘it’s one I’ve had all my life, & ends up a bit similar to CF tho not as bad...’ I also try to remind myself, when feeling at my worst, that nothing is permanent, it will pass.... And this site is an enormous help – all of us have to deal with this at some level... Happy breathing J Joy -- -- " Wealth is nothing, position is nothing, fame is nothing. Who you become inside is everything. What happens to you is not as important as how you react to what happens. " Quote Link to comment Share on other sites More sharing options...
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