Guest guest Posted August 3, 1999 Report Share Posted August 3, 1999 It is a hidden illness. Not to say that it is the cause of all of our problems, but I have found that treatment for depression makes ACM a little easier to bear.I have to agree with on this. Also, if you have clinical depression once, you will probably have it again at some point in your life. Take the medecine and be glad that you can treat this aspect of chronic illness. Cherry Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 1999 Report Share Posted August 3, 1999 It is a hidden illness. Not to say that it is the cause of all of our problems, but I have found that treatment for depression makes ACM a little easier to bear.I have to agree with on this. Also, if you have clinical depression once, you will probably have it again at some point in your life. Take the medecine and be glad that you can treat this aspect of chronic illness. Cherry Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 1999 Report Share Posted October 13, 1999 Barbra, I probably wouldn't be of much help to you as Kennedy is only 20 months old and I've got a long way to go to get to where you are at, but I was in a state when she was about 7 months old where I was SICK to death of CHARGE, CHARGE, and more CHARGE. I just took a month off from the list, tried to limit appointments and everything as best I could and tried to get some " oomph " back to get back into it. This summer, when I took the summer off from all appointments and stopped thinking about everything all the time, and just took the kids and " went " , that was a really great refresher too. I know everything is really important and that we have a TONNE of stuff to worry about, but I think it helps sometimes to try and not think about it all the time and just do other stuff you wouldn't normally do. I hope you can get out of your funk soon, I know it really stinks when you feel like that. Good luck, Mom to Kennedy 20 mos old CHARGEr, 10, 8, and wife to Graeme New Brunswick, Canada Visit the " Weir homepage " at: http://www.geocities.com/SunsetStrip/Palms/5716 ICQ #1426476 From: MoMouse495@... Hey guys, I've been depressed lately about 's icky behavior, and the feeling like I can't take this for another 10 years or so! (he's 12). What do you guys do to get out of a funk like this? I don't have any appetite and just go back to bed in the morning for awhile. Could be hormonal, had labs drawn today, as I'm 48. That could be why I'm just not handling the stress as well right now. Thanks for the ear, Barbra --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 1999 Report Share Posted October 16, 1999 Robin Insurance co.'s are my favorite to growl at on behalf of my son when I'm getting frustrated with things that stand in his way LOL! You are very right- it does wonders towards adjusting my attitude Great advice! Jelena Salt Lake City UT Mom to Matt 16, Logan 7 (bilateral cleft lip and palate, partial ACC and SOD: ONH, partial panhypopit, SI disorder and hearing impaired?), Connor 3 and Duncan 15 months. Wife to Liam Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 1999 Report Share Posted October 18, 1999 Jeanne, Hope C is doing better from her flu shot. Brit just had hers as well. So you too have nightmares huh? I think many of these CHARGE moms on here do and how comforting that is to me. Becuz I know if I'm having one of those days, weeks, I can come on here and everyone can relate. It warms my heart. Thank you for responding Jeanne. I often look at the pictures of C and Brit. It was so nice to have met the both of you. Hard to believe it's been 2 yrs already.Wow! But we love being back here in MI My heart is where my family is. Though they seem like the " idots " we've all been talking about. A CHARGEr in their own family and they act and say things strangers would say. They tend to hurt me more than the strangers do. Anyway, thank you and I'm thankful I have you and other moms who understand. Atleast someone does in this world. Amy mom to Brittney 7 CHARgE megan 4 robert 3 depression > > > Amy > > I just read your post about your nightmares about Brit. Oddly enough, last > night Caitlyn woke up with a fever and wouldn't go back to sleep so I > crawled into bed with her and subsequently had a nightmare about rushing her > to the ER and she was dx with congestive heart failure (again). I have > similar dreams all the time, part of it is because even though I tell my > friends and family that she's doing well and will be fine, deep in my heart > I will always wonder if the docs will be able to fix her heart or will God > take her from me too soon. Whenever she has a bad virus (like a flu bug or > pneumonia) I can't help but wonder is this " the way it's going to go " or > some morbid thing like that. > > She just got her flu shot Thurs and the dr swore up and down that it would > not cause her to get sick, yet here it is Sunday and she's sick as a dog. > High fever, lethargic, achy, etc. How could I still be this gullible after > 4 years? > > Thank you for your post, sometimes I think I'm going crazy that I have so > many dreams about losing my daughter. > > Jeanne > > > For information about the CHARGE Syndrome Foundation or to become a member please contact marion@.... > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 1999 Report Share Posted October 19, 1999 Jeanne, Lots of different views out there about dreams. My own view is that they are worth paying attention to. They sometimes reflect something we are not paying attention to inside ourselves. Your own interpretation of your dreams makes a lot of sense. Tim Anne Bernstein wrote: > > Jeanne, > > I guess most of us have a lot on our minds, and our dreams sometimes express unconscious fears (step in any time, Tim). > For a while I had nightly nightmares, imagining that Penina would stick her slim little leg down the garborator (we > moved into this house two years ago - I never had a garborator before!), that she would slide backwards down the icy > front (cement) steps and crack her head open like an egg, that she would cut herself with a sharp knife she found in an > open drawer and bleed all over the place etc. Translation: I guess I'm afraid that I won't be able to prevent or > control bad things from happening to her. > > After a bit, the nightmares settled down but they occasionally reoccur. I'm still sleep deprived because of Penina's > early morning school bus schedule (and I don't have the luxury of going back to sleep because I have to rush to work), > but my dreams are more lyrical, rather like epic movies with lots of characters and many sub-plots! > > Don't say " poor tortured soul - she should talk to a professional " ! I am seeing a grief counselor! > > But basically I think these are very normal for people whose minds work overtime. I was told to get some rest! (Alas, > our Canadian socialized medicine does not pay for Florida vacations, sigh) > > Yawn. > > Guess I'll go turn in early! > > Anne, mom of Penina (CHARGE, 3 years old) > Montreal, Canada > > Jeanne McMullen wrote: > > > > > > > Amy > > > > I just read your post about your nightmares about Brit. Oddly enough, last > > night Caitlyn woke up with a fever and wouldn't go back to sleep so I > > crawled into bed with her and subsequently had a nightmare about rushing her > > to the ER and she was dx with congestive heart failure (again). I have > > similar dreams all the time, part of it is because even though I tell my > > friends and family that she's doing well and will be fine, deep in my heart > > I will always wonder if the docs will be able to fix her heart or will God > > take her from me too soon. Whenever she has a bad virus (like a flu bug or > > pneumonia) I can't help but wonder is this " the way it's going to go " or > > some morbid thing like that. > > > > She just got her flu shot Thurs and the dr swore up and down that it would > > not cause her to get sick, yet here it is Sunday and she's sick as a dog. > > High fever, lethargic, achy, etc. How could I still be this gullible after > > 4 years? > > > > Thank you for your post, sometimes I think I'm going crazy that I have so > > many dreams about losing my daughter. > > > > Jeanne > > > > > For information about the CHARGE Syndrome Foundation or to become a member please contact marion@.... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 1999 Report Share Posted October 20, 1999 Thanks Jackie, The URL for the Handle Insitute is: http://www.handle.org Casey Mom to Dawn 20 HH, Ken 10 ADHD, 7 CHARGE ICQ 728514 AIM ZeeCasey CHARGE Web Page: http://www.geocities.com/Heartland/1220 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 1999 Report Share Posted October 21, 1999 Thanks so much to everyone. I feel much better today about Berkeley, and about me. I don't have the words to express how much your words of encouragement mean. Berkeley had her very first OT visit today. They will come to the house once a week, a real life saver. If only I could get the rest of her doctors to do this. I was really impressed that the OT talked about her potential and not one word about what she cannot, or will not, be able to do. The goal is to have her sitting up assisted in 6 months. I'll be keeping my fingers crossed. Wishing everyone the best, Michele Hatfield Re: depression Jeanne, and all.. Must be the mindset, because it goes both ways.. I never let them see me cry.. one of the nurses told me that the docs were talking about me.. saying I was too stoic (sp?).. wondering if I was in denial, had grasped the reality of my son's disabilities or had a detachment disorder.. We all have our own ways of coping.. as for those that think there is something wrong because it's not the way they cope or think it's the way we should cope.. well what I think of them can't be posted on the list <G> Casey Mom to Dawn 20 HH, Ken 10 ADHD, 7 CHARGE ICQ 728514 AIM ZeeCasey CHARGE Web Page: http://www.geocities.com/Heartland/1220 For information about the CHARGE Syndrome Foundation or to become a member please contact marion@.... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 1999 Report Share Posted October 21, 1999 Everyone, Talking about all these doctors painting the worst case scenarios for CHARGErs, and telling moms & dads all these horrible things makes me really upset. The reason it makes me really upset is: just imagine all the moms & dads out there without the hope of this list and the others telling them that the doctors are full of s**t, cause look how well our CHARGErs are doing. I feel really bad for anyone going through any of this without access to this list. Just another thing to thank Casey & the list for... Mom to Kennedy 20 mos old CHARGEr, 10, 8, and wife to Graeme New Brunswick, Canada Visit the " Weir homepage " at: http://www.geocities.com/SunsetStrip/Palms/5716 ICQ #1426476 From: JPM4189@... Jeanne, You give Caitlyn big hugs for me. She is one incredible little girl. I had to fight back the tears after reading your post about operating on Barney. Talk about a child who knows how to cope. The doctor's could take lessons from her (and us too). It's absurd to autimatically assume you (as her mother) have a problem because you are *weepy*. Bet you they'd be referring you if you didn't cry. Can't win either way! Janet Wife to Matt Mom to & (CHaRGEr) 7, nne 2 1/2 Mom to 16 months. Weymouth, Massachusetts, USA <A HREF= " http://members.aol.com/jpm4189/page/index.htm " >Our Family Homepage</ A> --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 1999 Report Share Posted October 21, 1999 Casey wrote: > > We all have our own ways of coping.. as for those that think there > is something wrong because it's not the way they cope or think it's > the way we should cope.. well what I think of them can't be posted > on the list <G> > > I couldn't agree with you more. This was very apparent to me when Aubrie was born. I was emotional, upset, crying, etc. DJ just handled it. I could accept that because I knew how much he loved her and was worried even tho he didn't show it the way I did. But my mom was so worried about him cuz he never cried. She just doesn't get that some people handle things in ways she doesn't understand -- and that they're still caring, loving people. Michele W mom to Aubrie (23 mos) CHaRgE and (7 yrs), wife to DJ, in IL westml@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 1999 Report Share Posted October 21, 1999 In a message dated 99-10-20 19:33:05 EDT, you write: << Talking about all these doctors painting the worst case scenarios for CHARGErs, and telling moms & dads all these horrible things makes me really upset. The reason it makes me really upset is: just imagine all the moms & dads out there without the hope of this list and the others telling them that the doctors are full of s**t, cause look how well our CHARGErs are doing. I feel really bad for anyone going through any of this without access to this list. Just another thing to thank Casey & the list for... >> , You are so very right. When was born (my CHARGE guy in heaven) NOT ONE doctor gave us any hope, NOT ONE!!!!!!!! I did not have this list and I did not have the connection to other CHARGE families. Everyone told us that it was just a matter of time before he died. It may be 2 weeks, it may be 2 years. He had major heart surgery and a duodenal atresia repair, a g-tube placed and a Nissen fundoplication and all we were told was that we prolonged his death. did die at 6 months of age but I go back in my mind (which is a bad thing to do) and ask, " What if......?? " If I had been given any hope, would we have been ALOT more aggressive?? I have to stop the " What if's " because it would drive me crazy. Well, then Jillian was born with CHARGE Syndrome 1 year exactly after died and I was scared to be near her for 2 weeks because I thought CHARGE = death. At 2 weeks I was put on an antidepressant and instantly feel in love with her. For my baby girls first 2 weeks, she was deprived of my love because I was afraid of her because of what all the docs had told me about CHARGE... THANKS TO ALL OF YOU!!!!!! I have this list and YOU GUYS were my hope for Jillian. Now my baby girl makes me so proud. She's full of attitude and personality and I wouldn't trade her for any baby in the world.She's alot milder than but just the thought of a second baby with CHARGE scared the crap out of me. When she was 4 months old I was already buying her stuff for Christmas and my husband told me I should stop because we didn't know what would happen to her. (That's what the doctors will do to your brain) DON " T LET THEM!!!!!! Foley, MOm to 4, (CHARGE angel) and Jillian 19mo cHaRGE Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 1999 Report Share Posted October 21, 1999 In a message dated 99-10-20 19:33:05 EDT, you write: << Talking about all these doctors painting the worst case scenarios for CHARGErs, and telling moms & dads all these horrible things makes me really upset. The reason it makes me really upset is: just imagine all the moms & dads out there without the hope of this list and the others telling them that the doctors are full of s**t, cause look how well our CHARGErs are doing. I feel really bad for anyone going through any of this without access to this list. Just another thing to thank Casey & the list for... >> , You are so very right. When was born (my CHARGE guy in heaven) NOT ONE doctor gave us any hope, NOT ONE!!!!!!!! I did not have this list and I did not have the connection to other CHARGE families. Everyone told us that it was just a matter of time before he died. It may be 2 weeks, it may be 2 years. He had major heart surgery and a duodenal atresia repair, a g-tube placed and a Nissen fundoplication and all we were told was that we prolonged his death. did die at 6 months of age but I go back in my mind (which is a bad thing to do) and ask, " What if......?? " If I had been given any hope, would we have been ALOT more aggressive?? I have to stop the " What if's " because it would drive me crazy. Well, then Jillian was born with CHARGE Syndrome 1 year exactly after died and I was scared to be near her for 2 weeks because I thought CHARGE = death. At 2 weeks I was put on an antidepressant and instantly feel in love with her. For my baby girls first 2 weeks, she was deprived of my love because I was afraid of her because of what all the docs had told me about CHARGE... THANKS TO ALL OF YOU!!!!!! I have this list and YOU GUYS were my hope for Jillian. Now my baby girl makes me so proud. She's full of attitude and personality and I wouldn't trade her for any baby in the world.She's alot milder than but just the thought of a second baby with CHARGE scared the crap out of me. When she was 4 months old I was already buying her stuff for Christmas and my husband told me I should stop because we didn't know what would happen to her. (That's what the doctors will do to your brain) DON " T LET THEM!!!!!! Foley, MOm to 4, (CHARGE angel) and Jillian 19mo cHaRGE Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 1999 Report Share Posted October 21, 1999 In a message dated 99-10-20 19:33:05 EDT, you write: << Talking about all these doctors painting the worst case scenarios for CHARGErs, and telling moms & dads all these horrible things makes me really upset. The reason it makes me really upset is: just imagine all the moms & dads out there without the hope of this list and the others telling them that the doctors are full of s**t, cause look how well our CHARGErs are doing. I feel really bad for anyone going through any of this without access to this list. Just another thing to thank Casey & the list for... >> , You are so very right. When was born (my CHARGE guy in heaven) NOT ONE doctor gave us any hope, NOT ONE!!!!!!!! I did not have this list and I did not have the connection to other CHARGE families. Everyone told us that it was just a matter of time before he died. It may be 2 weeks, it may be 2 years. He had major heart surgery and a duodenal atresia repair, a g-tube placed and a Nissen fundoplication and all we were told was that we prolonged his death. did die at 6 months of age but I go back in my mind (which is a bad thing to do) and ask, " What if......?? " If I had been given any hope, would we have been ALOT more aggressive?? I have to stop the " What if's " because it would drive me crazy. Well, then Jillian was born with CHARGE Syndrome 1 year exactly after died and I was scared to be near her for 2 weeks because I thought CHARGE = death. At 2 weeks I was put on an antidepressant and instantly feel in love with her. For my baby girls first 2 weeks, she was deprived of my love because I was afraid of her because of what all the docs had told me about CHARGE... THANKS TO ALL OF YOU!!!!!! I have this list and YOU GUYS were my hope for Jillian. Now my baby girl makes me so proud. She's full of attitude and personality and I wouldn't trade her for any baby in the world.She's alot milder than but just the thought of a second baby with CHARGE scared the crap out of me. When she was 4 months old I was already buying her stuff for Christmas and my husband told me I should stop because we didn't know what would happen to her. (That's what the doctors will do to your brain) DON " T LET THEM!!!!!! Foley, MOm to 4, (CHARGE angel) and Jillian 19mo cHaRGE Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 1999 Report Share Posted October 21, 1999 , I met another mom here in MI a yr ago. Her son has charge and he's 4 or 5. I've given her so much info of charge and she is in such denial. Her son is severaly charge and she feels he will be COMPLETELY normal one day. I feel for her but then agian, you want to shake her into reality so her son can get the best treatments and she too can have a better life than sitting home doing nothing. Any suggestions out there? Amy mom to Brit 7 Re: depression Everyone, Talking about all these doctors painting the worst case scenarios for CHARGErs, and telling moms & dads all these horrible things makes me really upset. The reason it makes me really upset is: just imagine all the moms & dads out there without the hope of this list and the others telling them that the doctors are full of s**t, cause look how well our CHARGErs are doing. I feel really bad for anyone going through any of this without access to this list. Just another thing to thank Casey & the list for... Mom to Kennedy 20 mos old CHARGEr, 10, 8, and wife to Graeme New Brunswick, Canada Visit the " Weir homepage " at: http://www.geocities.com/SunsetStrip/Palms/5716 ICQ #1426476 From: JPM4189@... Jeanne, You give Caitlyn big hugs for me. She is one incredible little girl. I had to fight back the tears after reading your post about operating on Barney. Talk about a child who knows how to cope. The doctor's could take lessons from her (and us too). It's absurd to autimatically assume you (as her mother) have a problem because you are *weepy*. Bet you they'd be referring you if you didn't cry. Can't win either way! Janet Wife to Matt Mom to & (CHaRGEr) 7, nne 2 1/2 Mom to 16 months. Weymouth, Massachusetts, USA <A HREF= " http://members.aol.com/jpm4189/page/index.htm " >Our Family Homepage</ A> --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 1999 Report Share Posted October 21, 1999 Amy, Unfortunately, this is not uncommon. There are 2 families in another province close to me that want NOTHING to do with the word CHARGE. They are in total denial (although I've heard 1 is starting to come around). There's not much you can do to force someone to wake up and get out of the denial stage (Tim, jump in here if you want) from what I've read/seen/heard. My question is always, " if mom and dad can't accept them, who else is going to with a msg like that coming from the child's own parents??? " I always worry about the delays they are causing by not accepting treatment/therapy as well. But, I've got enough to worry about on my own I guess I can't get to worked up about it, although it is sad. Mom to Kennedy 20 mos old CHARGEr, 10, 8, and wife to Graeme New Brunswick, Canada Visit the " Weir homepage " at: http://www.geocities.com/SunsetStrip/Palms/5716 ICQ #1426476 Re: depression , I met another mom here in MI a yr ago. Her son has charge and he's 4 or 5. I've given her so much info of charge and she is in such denial. Her son is severaly charge and she feels he will be COMPLETELY normal one day. I feel for her but then agian, you want to shake her into reality so her son can get the best treatments and she too can have a better life than sitting home doing nothing. Any suggestions out there? Amy mom to Brit 7 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 1999 Report Share Posted October 21, 1999 Amy, Unfortunately, this is not uncommon. There are 2 families in another province close to me that want NOTHING to do with the word CHARGE. They are in total denial (although I've heard 1 is starting to come around). There's not much you can do to force someone to wake up and get out of the denial stage (Tim, jump in here if you want) from what I've read/seen/heard. My question is always, " if mom and dad can't accept them, who else is going to with a msg like that coming from the child's own parents??? " I always worry about the delays they are causing by not accepting treatment/therapy as well. But, I've got enough to worry about on my own I guess I can't get to worked up about it, although it is sad. Mom to Kennedy 20 mos old CHARGEr, 10, 8, and wife to Graeme New Brunswick, Canada Visit the " Weir homepage " at: http://www.geocities.com/SunsetStrip/Palms/5716 ICQ #1426476 Re: depression , I met another mom here in MI a yr ago. Her son has charge and he's 4 or 5. I've given her so much info of charge and she is in such denial. Her son is severaly charge and she feels he will be COMPLETELY normal one day. I feel for her but then agian, you want to shake her into reality so her son can get the best treatments and she too can have a better life than sitting home doing nothing. Any suggestions out there? Amy mom to Brit 7 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 1999 Report Share Posted October 21, 1999 Amy, Unfortunately, this is not uncommon. There are 2 families in another province close to me that want NOTHING to do with the word CHARGE. They are in total denial (although I've heard 1 is starting to come around). There's not much you can do to force someone to wake up and get out of the denial stage (Tim, jump in here if you want) from what I've read/seen/heard. My question is always, " if mom and dad can't accept them, who else is going to with a msg like that coming from the child's own parents??? " I always worry about the delays they are causing by not accepting treatment/therapy as well. But, I've got enough to worry about on my own I guess I can't get to worked up about it, although it is sad. Mom to Kennedy 20 mos old CHARGEr, 10, 8, and wife to Graeme New Brunswick, Canada Visit the " Weir homepage " at: http://www.geocities.com/SunsetStrip/Palms/5716 ICQ #1426476 Re: depression , I met another mom here in MI a yr ago. Her son has charge and he's 4 or 5. I've given her so much info of charge and she is in such denial. Her son is severaly charge and she feels he will be COMPLETELY normal one day. I feel for her but then agian, you want to shake her into reality so her son can get the best treatments and she too can have a better life than sitting home doing nothing. Any suggestions out there? Amy mom to Brit 7 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 1999 Report Share Posted October 21, 1999 , I'm so glad Jillian is doing so well, despite doctors who don't give them a chance. I wish all those doctors could have a session with Dr. Blake. ARGH! I'm glad to say nobody really told us anything like that when Kennedy was very young. I don't know how anyone could deal with it. I think they need to take 5 minutes when they aren't familiar with a certain type of syndrome, and try to do a bit of digging to find the most up to date accurate information. Any doctor who says CHARGE=Death has not done their homework and are a disappointment to their profession. Mom to Kennedy 20 mos old CHARGEr, 10, 8, and wife to Graeme New Brunswick, Canada Visit the " Weir homepage " at: http://www.geocities.com/SunsetStrip/Palms/5716 ICQ #1426476 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 1999 Report Share Posted October 21, 1999 , I'm so glad Jillian is doing so well, despite doctors who don't give them a chance. I wish all those doctors could have a session with Dr. Blake. ARGH! I'm glad to say nobody really told us anything like that when Kennedy was very young. I don't know how anyone could deal with it. I think they need to take 5 minutes when they aren't familiar with a certain type of syndrome, and try to do a bit of digging to find the most up to date accurate information. Any doctor who says CHARGE=Death has not done their homework and are a disappointment to their profession. Mom to Kennedy 20 mos old CHARGEr, 10, 8, and wife to Graeme New Brunswick, Canada Visit the " Weir homepage " at: http://www.geocities.com/SunsetStrip/Palms/5716 ICQ #1426476 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2003 Report Share Posted May 20, 2003 Wow, ! Thisis amazing! What meds were they? I think thereis maybe more going on, for you memroy to be that bad... I could write you a thesis on memroy loss... I can't write about it here, though. It is too "psych." It is about childhood trauma, PSTSD, and "Disassociative" Disorders. You OD'd on anti-depressants and wound up in retraints and with tubes? You sound too much like me, and that is maybe not so good, dear. Most of this lists I own and participate in, are mental health lists<grin>. -sue d. --Sue D. Webb Osterloh wrote: Cytomel (T3) is being used quite a lot in depression now. In fact, the quack endo prescribed the cytomel for that very reason instead of doing a thyroid exam on me- and ignoring my obvious thyroid symptoms. But even that small a dosage of cytomel made a difference! I stress again that there is a high correlation between depression and hypothyroidism. I have heard that at least 25% of those with clinical depression are hypothyroid.I even took a lethal od on antidepressants that were said to be working. I dont know how I ended up in the hospital with tubes all over, and being in restraints. I lived alone and had no phone. In fact, my disability is mostly depression- some more now though, but that was the verdict. Hugs, Feisty Webb Osterloh group co-owner http://groups.yahoo.com/group/The_Thyroid_Support_Group/ ATP Board Member,Thyroid Patient Advocate Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2003 Report Share Posted May 20, 2003 Wow, ! Thisis amazing! What meds were they? I think thereis maybe more going on, for you memroy to be that bad... I could write you a thesis on memroy loss... I can't write about it here, though. It is too "psych." It is about childhood trauma, PSTSD, and "Disassociative" Disorders. You OD'd on anti-depressants and wound up in retraints and with tubes? You sound too much like me, and that is maybe not so good, dear. Most of this lists I own and participate in, are mental health lists<grin>. -sue d. --Sue D. Webb Osterloh wrote: Cytomel (T3) is being used quite a lot in depression now. In fact, the quack endo prescribed the cytomel for that very reason instead of doing a thyroid exam on me- and ignoring my obvious thyroid symptoms. But even that small a dosage of cytomel made a difference! I stress again that there is a high correlation between depression and hypothyroidism. I have heard that at least 25% of those with clinical depression are hypothyroid.I even took a lethal od on antidepressants that were said to be working. I dont know how I ended up in the hospital with tubes all over, and being in restraints. I lived alone and had no phone. In fact, my disability is mostly depression- some more now though, but that was the verdict. Hugs, Feisty Webb Osterloh group co-owner http://groups.yahoo.com/group/The_Thyroid_Support_Group/ ATP Board Member,Thyroid Patient Advocate Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2003 Report Share Posted May 20, 2003 > Wow, ! Thisis amazing! > What meds were they? > I think thereis maybe more > going on, for you memroy to be > that bad... I could write you > a thesis on memroy loss... I > can't write about it here, > though. It is too " psych. " It > is about childhood trauma, > PSTSD, and " Disassociative " > Disorders. You OD'd on > anti-depressants and > wound up in retraints and with > tubes? You sound too much like > me, and that is maybe not so > good, dear. Most of this lists > I own and participate in, are > mental health lists<grin>. > -sue d. > > --Sue D. > Hi, Sue! Dont recall that time, it may have been sinequan. The antidepressants would work for a bit, and then not, even though I eas compliant. I was put on prozac after, and that helped - again for a while. The childhood trauma, etc. may very well be related. Bottom line, though- my depression has gotten a 100% better with cytomel and now natural thyroid which I have been on 3 weeks today.And I have heard so much about thyroid disease being involved in a lot of mental illness.Btw, I have had training in counseling and intervention, and did volunteer work with teenagers . Sorry it took awhile answering, am not getting all my emails- again Hugs, > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2003 Report Share Posted May 20, 2003 We are cousins, I am also a counselor and did 10 years of volutneer work =with teens. But gues what? You got abused again. Sinequan is practically poison. Not an antidepressant of choice at all any more. It is an archaic drug.. It has so many side effects ans such littel success with people, I was just telling my b/f last nite, that we could not beleive they even still make sinequan. The stuff makes you sleepier than shit. I'd rather be crazy thant take that stuff. And desptie 10 of colleg in thsisstuff, and Years of working with other,s including 4 internships, I'm still inshock that the thyroid has such an effect on depresion. It is amaziung and beyond what iI ever expected. I was suicidal every morning (no intentions of acting on it). Now, I am thinking of taking it at night. I'm afraid it will wake me up. My newest technique is to grab anything to swallow, and take all my T meds in one swallow. Start my emailk downloads, and clear a space to make breakfast. By then, my Ritalin hits me, + I have no desire for food, but the kitchen is at least clean and my depression is gone. 93F in the desert, -finally, lol! My body temp is 98.3. Does the outside temp have anything to do with the body temp? Does anyone know? -sue d,. wacowind wrote: > > > Wow, ! Thisis amazing! > > What meds were they? > > I think thereis maybe more > > going on, for you memroy to be > > that bad... I could write you > > a thesis on memroy loss... I > > can't write about it here, > > though. It is too " psych. " It > > is about childhood trauma, > > PSTSD, and " Disassociative " > > Disorders. You OD'd on > > anti-depressants and > > wound up in retraints and with > > tubes? You sound too much like > > me, and that is maybe not so > > good, dear. Most of this lists > > I own and participate in, are > > mental health lists<grin>. > > -sue d. > > > > --Sue D. > > Hi, Sue! > Dont recall that time, it may have been sinequan. The > antidepressants would work for a bit, and then not, even though I eas > compliant. I was put on prozac after, and that helped - again for a > while. The childhood trauma, etc. may very well be related. Bottom > line, though- my depression has gotten a 100% better with cytomel and > now natural thyroid which I have been on 3 weeks today.And I have > heard so much about thyroid disease being involved in a lot of mental > illness.Btw, I have had training in counseling and intervention, and > did volunteer work with teenagers . > > Sorry it took awhile answering, am not getting all my emails- again > Hugs, > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2003 Report Share Posted May 21, 2003 Yeh, the chicken or the egg. Nurture vs. Nature. But I gotta deal with what got dealt to me, ya know? There are prolly 1,000 of us adult children of narcisssists on line in groups here at Yahoo, btw. -sue wrote: No doubt. I'm not downplaying at all what happened to us as we were growing up. I'm sure that is some cases it's a question of, did all the stress cause it, or did it cause the stress. Of course, we're all working on that, I know. Re: Re: Depression We are cousins, I am also a counselor and did 10 years of volutneer work =with teens. But gues what? You got abused again. Sinequan is practically poison. Not an antidepressant of choice at all any more. It is an archaic drug.. It has so many side effects ans such littel success with people, I was just telling my b/f last nite, that we could not beleive they even still make sinequan. The stuff makes you sleepier than shit. I'd rather be crazy thant take that stuff. And desptie 10 of colleg in thsisstuff, and Years of working with other,s including 4 internships, I'm still inshock that the thyroid has such an effect on depresion. It is amaziung and beyond what iI ever expected. I was suicidal every morning (no intentions of acting on it). Now, I am thinking of taking it at night. I'm afraid it will wake me up. My newest technique is to grab anything to swallow, and take all my T meds in one swallow. Start my emailk downloads, and clear a space to make breakfast. By then, my Ritalin hits me, + I have no desire for food, but the kitchen is at least clean and my depression is gone. 93F in the desert, -finally, lol! My body temp is 98.3. Does the outside temp have anything to do with the body temp? Does anyone know? -sue d,. wacowind wrote: > > > Wow, ! Thisis amazing! > > What meds were they? > > I think thereis maybe more > > going on, for you memroy to be > > that bad... I could write you > > a thesis on memroy loss... I > > can't write about it here, > > though. It is too "psych." It > > is about childhood trauma, > > PSTSD, and "Disassociative" > > Disorders. You OD'd on > > anti-depressants and > > wound up in retraints and with > > tubes? You sound too much like > > me, and that is maybe not so > > good, dear. Most of this lists > > I own and participate in, are > > mental health lists<grin>. > > -sue d. > > > > --Sue D. > > Hi, Sue! > Dont recall that time, it may have been sinequan. The > antidepressants would work for a bit, and then not, even though I eas > compliant. I was put on prozac after, and that helped - again for a > while. The childhood trauma, etc. may very well be related. Bottom > line, though- my depression has gotten a 100% better with cytomel and > now natural thyroid which I have been on 3 weeks today.And I have > heard so much about thyroid disease being involved in a lot of mental > illness.Btw, I have had training in counseling and intervention, and > did volunteer work with teenagers . > > Sorry it took awhile answering, am not getting all my emails- again > Hugs, > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2008 Report Share Posted July 18, 2008 Hi Jan    Im sorry to hear about Jim.You may recall the days when mom would cry all day long?Well the doctor has her on Paxil, and it has been good for her.The seroquel toulk most of the crying away, but as far as an anti depressant I wanted to tell you that mom reacted well to it.It must be very tough to see Jim so down, My heart goes out to both of you.My heartfelt best   Ron depression Yesterday, I was visiting Jim at the nh. It's the first time I have ever seen him actually depressed. Everything was as usual earlier in the evening. I took him to an outdoor concert in a shopping plaza that we go to weekly. I pull up in a hanicap parking space right next to the concert. The space has been there every week for us. Amazing! I put the top down on the convertible and we are right amongst the concert. He enjoys it. We got back to the nh after the concert and he got ready for bed and fell asleep very fast. It was around 8:30PM. I sit and read a book next to his bed until around 10PM, because almost like clock work around 9:30PM, he will wake up and have to go to the bathroom. He will hold on for as long as possible and he gets very restless. I know if I wasn't there to take him, he would hold on for a very long time and then release in his diaper and be in a wet diaper all night. I think this helps to contribute to his frequent UTIs, so I stay to bring him to the toilet one last time before he falls asleep for the night. He woke up his usual time around 9:30PM to go to the bathroom, so I took him in and brought him back to bed only this time he did not fall back to sleep. He was saying things like it was time for him to go and that he didn't want to leave me. I told him it's ok, I'll be fine but I will miss him and I told him I love him very much and he smiled and said, " thank you " He said he felt like crying. I told him it's ok to cry, but he didn't cry. He told me he was a coward and didn't want to leave this world. It went on like this for a good hour and a half. He didn't want me to walk out of the room and when I told him I have to go, it was then 11PM, he screamed for me to come back and said, " don't leave! " Just yesterday, he was joking and laughing with everyone. All the staff was saying what a great mood he is in. Not just yesterday, but the last few days. Last night tore me apart to see him like that. How this disease fluctuates! If this continues he may have to be put on an antidepressent. I WILL NOT ALLOW ATIVAN and they already have that on their charts at the nh. What is recommended for LBD as an antidepressant? Is Lexapro recommended? I know it is not a benzodiazepine. If this kind of behavior continues, I might have to think of putting him on an antidepressant. Quote Link to comment Share on other sites More sharing options...
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