New to group

October 18, 2004

Good Morning Dan!

Wecome to this amazingly supportive group! That sounds like an

amazing place to live, all th horses and animals. Lucky! I am sorry

to hear about your wife, sometimes they deal with these issues by

denying them. my husband And I went through a spell like that but

went through counseling and we learned a lot about eachother. I know

that must be very hard to handle emotionally, however, you are doing

a great job by reaching out to people who will support you! I have

found this to be an incredible way to feel supported, and I know you

will too! Looking forward tohearing your story,

Ammey

>

> Hello

> My name is Dan . I am 40yr and right now I am married. We

have

> 4 kids between us. I was dx with ms in July of this year. I live

here

> in Valdosta Ga. I am a fireman here. We have 36 horses, 3 dogs, 2

> cats, and 6 hamsters. I really enjoy meeting new people. I am

> starting a new support group here in Valdosta sponsored by the

NMSS.

> I am very excited about. Infact our forst meeting is tonight. I

> really hope to meet many friends here. Please feel free to ask me

> anything. My wife does not show any support with the MS or any

other

> issue. We are on the edge of a divorce. Well I am very happy to be

a

> part of this group. Please e mail anytime at danbenn41@a... Well

> I need to close for now and look forward in hearing from you soon.

>

> Dan

October 18, 2004

Hi Dan sorry you had to get MS to meet us. I live in Indiana with my wife Judy and we have 2 boy's and I am also 42. My wife loves the outlet mall in your town while we travel to Florida.

I have been going to a local MS meeting here in Indiana also and I hope you have a good turnout at your meetings.

I was wondering with you being a fireman does the heat from a fire cause you any trouble? Heat is my biggest enemy. What kind of troubles do you have with your MS?

Bill

http://home.insightbb.com/~msdiabetes/

New to Group

HelloMy name is Dan . I am 40yr and right now I am married. We have 4 kids between us. I was dx with ms in July of this year. I live here in Valdosta Ga. I am a fireman here. We have 36 horses, 3 dogs, 2 cats, and 6 hamsters. I really enjoy meeting new people. I am starting a new support group here in Valdosta sponsored by the NMSS. I am very excited about. Infact our forst meeting is tonight. I really hope to meet many friends here. Please feel free to ask me anything. My wife does not show any support with the MS or any other issue. We are on the edge of a divorce. Well I am very happy to be a part of this group. Please e mail anytime at danbenn41@.... Well I need to close for now and look forward in hearing from you soon. Dan

October 18, 2004

WELCOME DAN,

It is good to meet you and I hope you find what you are looking for here.

I hope your meeting goes well. You may want to find someone to share the responsiblty of the group with.

My husband knows I have MS but that is about all he really knows or wants to know. He wants me to be able to take care of the house and his projects and his problems most of which are health related. There are days when I cannot take care of myself let alone anything else. This is very hard for him. Sometimes I rant and vent about him but on the other hand I understand. I tend to spoil the men in my life starting with my father when I was a child. Now I cannot do that everyday and it is hard for me and it is hard for my husband. And then he also has to deal with his own illness and the greiving for what he has lost due to it.

By the way we are 61.

thank you for listening.

LOVE AND HAPPINESS; FLOWERS AND BUTTERFLIESLYNN

New to Group

HelloMy name is Dan . I am 40yr and right now I am married. We have 4 kids between us. I was dx with ms in July of this year. I live here in Valdosta Ga. I am a fireman here. We have 36 horses, 3 dogs, 2 cats, and 6 hamsters. I really enjoy meeting new people. I am starting a new support group here in Valdosta sponsored by the NMSS. I am very excited about. Infact our forst meeting is tonight. I really hope to meet many friends here. Please feel free to ask me anything. My wife does not show any support with the MS or any other issue. We are on the edge of a divorce. Well I am very happy to be a part of this group. Please e mail anytime at danbenn41@.... Well I need to close for now and look forward in hearing from you soon. Dan

September 30, 2009

Here¹s another good low carb item I found. When I get really hungry and

feel like I need carbs or I think I might possibly drop dead LOL I drink

chicken broth. I cannot believe how it curbs my appetite and makes me feel

satisfied.

>

> This is not that important. and i understand each other because we both

> come from the UK. In England our gravy (Bisto) contains wheat so i was telling

> him about OXO cubes which do not. They are also lower in carbs. It is only a

> small difference but whe we are trying to cut out carbs it's always good to

> hear of a lower alternative.

>

> If anybody else has any suggestions for low carb stuff that we might not

> normally thik of. really would be appreciated

>

> Joanne

>

> ________________________________

> From: Jill3809 <gray04red@... <mailto:gray04red%40yahoo.com> >

> To: fibromyalgiacured

> <mailto:fibromyalgiacured%40yahoogroups.com>

> Sent: Tuesday, 29 September, 2009 1:30:17

> Subject: Re: New to Group

>

> I would like to know what oxo and bristo are. I don't recall hearing about

> them before.

>

> Jill in TX

>> >

>> > Thanks Joanne

>> > That does help a lot. I have been on Atkins before twice but went off it

>> mostly to being given lots of meat (very dry) and a handful of veg with no

>> gravy etc.Now i can have gravy it will taste a lot better lol..

>> > I think my main problem is being inactive as on a calorie controlled diet,

>> i rarely ate enough to use up my kcals.There again i made up for it in

>> alcohol lol, also havent had a drink in weeks & not honestly bothered

>> either..I can take it or leave it.

>> > I will also try oxo as well mixed with the fats from the meats but honestly

>> prefer bisto....... .aaaaaaaahhhhhhh h lol

>> >

>> > http://www.simplyto rtoise.co. uk/

>> >

>> > ____________ _________ _________ __

>> > From: Joanne Ford <joannesford@ ...>

>> > To: fibromyalgiacured@ yahoogroups. com

>> > Sent: Sunday, 27 September, 2009 19:33:19

>> > Subject: Re: New to Group

>> >

>> > It says on the bisto pack that 4 heaped teaspoons equals 50ml seving and

>> this has 2.3g of carb so in theory you could have 25ml and this would just be

>> above 1g of carbs which would be good so long as you can tolerate the wheat

>> in it. I personally use oxo and mix with the fat of the meat with bolig

>> water. this equals no carbs and the fat gets rid of my appetite which is

>> important to me because i am a binge eater. Getting rid of my appetite is my

>> priority whic is why the bulk of my meals are fat/oils and moderate protein

>> and very small amount of carb.

>> >

>> > My diet is better described as a ketogeic diet because it is high fat,

>> generally Atkins is based more o protein which to be honest is the best way

>> for most people. the only reason why i lean towards the oils is because of

>> the healing factors that come with oils and because oils really stablise my

>> blood sugar

>> >

>> > All i can tell you is this that i think most new comers to low carb should

>> follow dr Atkins routine because this is normally the best way for most

>> people but if you find you are not getting the results you require higher fat

>> helps. Atkins has a chapter on this

>> >

>> > Hope this helps

>> >

>> > Joanne

>> >

>> > ____________ _________ _________ __

>> > From: - <simplytortoise@ rocketmail. com>

>> > To: fibromyalgiacured@ yahoogroups. com

>> > Sent: Sunday, 27 September, 2009 16:52:50

>> > Subject: Re: New to Group

>> >

>>> > >If you want to know more just ask<

>> > Can i have bisto gravy on the Atkins and if i can how do i measure how much

>> please?

>> >

>> > http://www.simplyto rtoise.co. uk/

>> >

>> > ____________ _________ _________ __

>> > From: Joanne Ford <joannesford@ yahoo.co. uk>

>> > To: fibromyalgiacured@ yahoogroups. com

>> > Sent: Sunday, 27 September, 2009 15:40:41

>> > Subject: Re: New to Group

>> >

>> > When i was younger i found excercising actually made me gain weight. I was

>> so hungry after it i ate like an horse. this was before i realised i had

>> hypoglycemia

>> >

>> > Now i do not excercise, at least not i the conventional sense. Istead i

>> garden and walk log distances with my dog. This natural excercise eables me

>> to pace myself. If i feel like my fibromyalgia is getting worse i rest

>> immediately, and then ten miutes or so later start again. If hypoglycemia

>> does set in i eat a protein meal and i stop the work full stop!!. I wait util

>> i am certain that the feelings have gone before i start again. Pacing myself

>> like this (And eating a low carb diet) has enabled me to loos 53lb and keep

>> it off.. I am getting fitter and fitter

>> >

>> > In addition to the gardenig and long walks i have followed the Atkins diet

>> and used McKenna CDs to help me

>> >

>> > If you want to know more just ask

>> >

>> > Joanne

>> >

>> > ____________ _________ _________ __

>> > From: whippet <whippetiggy@ yahoo.com>

>> > To: fibromyalgiacured@ yahoogroups. com

>> > Sent: Saturday, 26 September, 2009 22:49:55

>> > Subject: New to Group

>> >

>> > Hi. I'm new to the group. I've had fibro and CFS for years. I'm guessing

>> maybe 8 years. I can't stand all this constant pain and tiredness. I like to

>> use holistic methods to try to cure myself of anything. I currently go to a

>> chiropractor and a massage therapist. They do help, but not enough. Can

>> anyone suggest a new step to add to my routine? I should also mention that I

>> try to eat all the right things, drink lots of water and tea (antioxidants) .

>> Exercise is out of the question. I've gained so much weight because I either

>> hurt too much or am too tired to go for walks or exercise. For me, it's a

>> vicious circle. Any suggestions would be greatly appreciated! !!!

>> >

>> > Thanks!

>> >

September 30, 2009

HI Jill

Yes it does take practice learning to love yourself again. For everyone.

It seems we are taught or we teach our self that to love ourself is to be

self centered or egotistical. But perhaps a better way to word it is to

have compassion for our self.

We have so much compassion for others, most of us, but boy if we do one

little thing slightly wrong we pour on the self blame. If you look up

perfectionism you will see how overly conscientious people, people who are

overly responsible, just beat them selves up. Most fibro people are that

way I think . Overly responsible, overly caring, overly conscientious. Do

you?

Well, if your favorite young person made a mistake how would your treat

them? That is how we need to treat us.

I think your schedule is a wonderful idea. It creates order and and a sense

of purpose in our life I think. It works for me I know that.

Have a great day Jill.

rosemarie

>

> I am still learning to do the loving myself just as I am. It actually takes

> conscious practice for me to do it.

> I seem to think that if I'm doing something loving for others, my cats,

> praying for people, doing service that since it's me doing it - it's not good

> enough or often enough or at a high enough level etc.

>

> Just a bunch of mind-mess.

>

> I have begun again getting my routine in place. Today I got up around 7 am,

> made my bed and prayed. I did some weight lifting for the lower body for about

> 40 minutes (I had to make adjustments - it was quite difficult), took my

> shower, I even found some makeup I had stashed so I can change my makeup

> palate because I'm now salt & pepper gray instead of blond.

> I got some house cleaning done and have been working on my paper decluttering.

> I made some chili out of elk meat that I got from a food bank for low-income

> people. It tastes great.

>

> I found a subliminal tape by Effective Learning Systems about losing weight

> which has many positive statements on it. I also went to their site and copied

> suggestions and affirmations I can use for myself.

>

> Depression sometimes come with chronic pain - we feel helpless to make it

> stop. I feel less pain today even with 3 hours of playing with a 5 year-old

> because I took my tonic twice today. I bet if I kept to a schedule and took it

> frequently enough I would function better.

>

> The frequent prayers throughout the day, the scripture reading helps lift my

> mood. Not everything in the bible is a shalt not, a lot of it is do this and

> get such and such a blessing by doing it.

>

> Even the shalt not's help us to avoid problems and lead us to greater

> compassion.

>

> Jill in TX

>

> -- In fibromyalgiacured

> <mailto:fibromyalgiacured%40yahoogroups.com> , Rosemarie Tropf

> wrote:

>> >

>> > Hi, I think you might have a missing ingredient. At least it was for me. I

>> > used to do all the right holistic things. Low carb diet helped me lose the

>> > weight. It also helped with the depression because I think the grains for

>> > people who can¹t tolerate carbs makes their hormones go out of balance

>> > causing depression. So, go on a low carb diet and see if your depressions

>> > lifts.

>> >

>> > But the missing ingredient I am talking about is

>> > compassion/love/spirituality of some sort. And by this I mean love for you

>> > by you. Compassion for you by you. A spirituality where you feel a higher

>> > power loves you just like you are. A spiritual practice like prayer, or

>> > meditation , or walking in nature that makes you feel the beauty of the

>> > world around you once again. There is plenty of beauty and love in the

>> > world, but we isolate and turn our backs on it.

>> >

>> > Go find the love again. For you. Not for others. I bet you give plenty

>> of

>> > love to others. But do you give it to you. Tell yourself what a wonderful

>> > person you, the accomlishments you have made, the people you have helped

>> > etc. write down what is RIGHT about your life. write down what is

>> > RIGHT about you.

>> >

>> > Sincerely,

>> > rosemarie

>> >

>>> > >

>>> > > Hi. I'm new to the group. I've had fibro and CFS for years. I'm

>>> guessing

>>> > > maybe 8 years. I can't stand all this constant pain and tiredness. I

>>> like to

>>> > > use holistic methods to try to cure myself of anything. I currently go

>>> to a

>>> > > chiropractor and a massage therapist. They do help, but not enough.

Can

>>> > > anyone suggest a new step to add to my routine? I should also mention

>>> that I

>>> > > try to eat all the right things, drink lots of water and tea

>>> (antioxidants).

>>> > > Exercise is out of the question. I've gained so much weight because I

>>> either

>>> > > hurt too much or am too tired to go for walks or exercise. For me, it's

a

>>> > > vicious circle. Any suggestions would be greatly appreciated!!!!

>>> > >

>>> > > Thanks!

>>> > >

>> >

October 9, 2009

Hello everyone. I am new to this group and wanted to introduce myself, my name

is Jewel. I was diognosed with fibro almost 2 years ago, I battle depression and

am having some kind of thyroid issue to I guess. I have been to two drs so far

but doesnt seem to matter how often I go nothing seems to ever help me. I have

been on many different medicines and for whatever reason, I stay in constant

pain and havent had a good nights sleep in what seems like forever. I am

currently looking for a new Dr. because I feel like my Dr. doesnt listen and

half the time I feel like she just doesnt believe me. I am so tired all the time

and I just want to find a medicine that will actually help me WITHOUT making me

put on all the weight lol. I am so frusterated with people (even Drs.) that say

this is not real, I feel so helpless and just want to find answers. I am hoping

being in a group with others who know how I feel will help.

October 12, 2009

Welcome Jewel, has good information for you. I've had to look into the

library for information about this disorder - I have the tender points, fatigue,

fibro-flares (increased pain and fatigue and depression. insomnia, and a bunch

of other symptoms. I have had to do a self-diagnosis and came up with FM/ CFS/

ME. Which translates to Fibromyalgia, Chronic Fatigue Syndrome and Myofacial

pains.

What seems to cause my depression is not being believed when I say I'm hurting.

It's a pretty typical experience for us. I've been disbelieved by family, my

ex-husband (a doctor), other physicians, supposed friends. When I deal with the

anger about it, then I have less stress.

I have lost jobs behind it, I have lost relationships behind it, I have had to

stop college classes toward a degree behind it.

On the plus side, I have learned how to befriend myself and how to advocate for

myself and others with this complex disorder.

I pray frequently for people with this and try to find out what I can do for

myself. I get answers here and I can keep on going.

Jill in TX

>

> Subject: New to group

> To: fibromyalgiacured

> Date: Friday, October 9, 2009, 9:14 PM

>

> Hello everyone. I am new to this group and wanted to introduce myself, my name