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Kelley,

Yes, it was Chicago I was thinking of running. I'll have to check

out that community as well. Be great to have that support as well!!!

Going to take the dog out for a nice long walk, then a bike ride

later likely. I'll put my BFL/Training plan together this evening.

-Lianne

> I will be running Chicago on Sunday Oct 9th !!! It is a flat

course

> with lots of great crowd support. I belong to a running list on

> yahoo called LetsChatAboutRunning which provides great training

> incentive and support. At least 15 people from that list will be

> running Chicago, and two or three of us will be first timers.

>

> It is a good one to do for the fall.

>

> Kelley

>

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Kelley,

Yes, it was Chicago I was thinking of running. I'll have to check

out that community as well. Be great to have that support as well!!!

Going to take the dog out for a nice long walk, then a bike ride

later likely. I'll put my BFL/Training plan together this evening.

-Lianne

> I will be running Chicago on Sunday Oct 9th !!! It is a flat

course

> with lots of great crowd support. I belong to a running list on

> yahoo called LetsChatAboutRunning which provides great training

> incentive and support. At least 15 people from that list will be

> running Chicago, and two or three of us will be first timers.

>

> It is a good one to do for the fall.

>

> Kelley

>

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Kelley,

That's okay, I just pretended that was what I had asked. ;-)

I'm not going to start on a full-fledged Marathon program just yet.

That probably won't happen until mid to late July. Right now, I'm

basically just trying to get a lot of miles in each week, but working

on all those little elements to it like speeds, hills, intevals,

etc. Runnersworld.com and coolrunnings.com both have good programs

that I know of, not sure exactly what I will go with, but I have some

time to figure this out.

-Lianne

> I just realized that your last email was asking about the training

program

> ... not which race I was doing! Ooops.

>

> I am doing a self made plan due to the fact that I am just

returning from

> rehabbing a stress fracture and am starting very cautiously

basically from

> scratch. I will be doing a walk/run plan so I can continu to rehab

the leg and

> build my stamina back up without over stressing the newly healed

tibia. I am also

> working with a runner from that list I mentioned who is very

experienced,

> knowledgeable and practical in his training so I know I won't be

pushing myself

> to fast.

>

> I'm sure you already know about the various websites you can get a

good

> training program from. If not, let me know and I can direct you to

a couple.

>

> Looking forward to tomorrow!!!

>

> Kelley

> Run2Liv

>

>

>

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Guest guest

Kelley,

That's okay, I just pretended that was what I had asked. ;-)

I'm not going to start on a full-fledged Marathon program just yet.

That probably won't happen until mid to late July. Right now, I'm

basically just trying to get a lot of miles in each week, but working

on all those little elements to it like speeds, hills, intevals,

etc. Runnersworld.com and coolrunnings.com both have good programs

that I know of, not sure exactly what I will go with, but I have some

time to figure this out.

-Lianne

> I just realized that your last email was asking about the training

program

> ... not which race I was doing! Ooops.

>

> I am doing a self made plan due to the fact that I am just

returning from

> rehabbing a stress fracture and am starting very cautiously

basically from

> scratch. I will be doing a walk/run plan so I can continu to rehab

the leg and

> build my stamina back up without over stressing the newly healed

tibia. I am also

> working with a runner from that list I mentioned who is very

experienced,

> knowledgeable and practical in his training so I know I won't be

pushing myself

> to fast.

>

> I'm sure you already know about the various websites you can get a

good

> training program from. If not, let me know and I can direct you to

a couple.

>

> Looking forward to tomorrow!!!

>

> Kelley

> Run2Liv

>

>

>

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Guest guest

Kelley,

That's okay, I just pretended that was what I had asked. ;-)

I'm not going to start on a full-fledged Marathon program just yet.

That probably won't happen until mid to late July. Right now, I'm

basically just trying to get a lot of miles in each week, but working

on all those little elements to it like speeds, hills, intevals,

etc. Runnersworld.com and coolrunnings.com both have good programs

that I know of, not sure exactly what I will go with, but I have some

time to figure this out.

-Lianne

> I just realized that your last email was asking about the training

program

> ... not which race I was doing! Ooops.

>

> I am doing a self made plan due to the fact that I am just

returning from

> rehabbing a stress fracture and am starting very cautiously

basically from

> scratch. I will be doing a walk/run plan so I can continu to rehab

the leg and

> build my stamina back up without over stressing the newly healed

tibia. I am also

> working with a runner from that list I mentioned who is very

experienced,

> knowledgeable and practical in his training so I know I won't be

pushing myself

> to fast.

>

> I'm sure you already know about the various websites you can get a

good

> training program from. If not, let me know and I can direct you to

a couple.

>

> Looking forward to tomorrow!!!

>

> Kelley

> Run2Liv

>

>

>

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  • 2 years later...

Hi Courage, thanks for giving us the update.Really happy to hear that

you were able to get some news.Hoping that it continues.Do you still get

to see your mom in the mornings?Things have improved here some with the

new meds.Still rough times for her now and then but not nearly as many.I

saved the info from about the other meds and Im going to discuss it

with the new doc at her next appointment.Heres hoping that things

improve for both of our moms and keep improving.Also hope that it gets

easier for you to know whats happening with your mom.Keep up the good

fight, Ron

>

> Hi Everyone,

>

> All of your wonderfully supportive emails have emboldened me today. I

called mom's caregiver yesterday about the Podiatrist and was told by

the day nurse that a call was place for an appointment. Well, apparently

the Podiatrist came by last night to look at mom's toe and decided that

since it isn't infected that she would just cut around it. Its one of

those situations where we have to wait and see how her toe does.

> I'm sure that mom's caregiver will let my sister know that I've called

two days in a row about mom's health care needs. Have to wait and see

how she takes it.

> I guess one way of clearing a path is to kick up some dust!!!!!! :)

> Courage

>

>

>

>

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Courage, the fact that you go to such lengths for your mom just goes to show how

truly blessed she is to have you looking out for her.I know it is so hard

sometimes to deal with certain siblings of mine.I wont say names ill just call

him Mr " I never come around for the heavy lifting but I will always force my

opinion on you and you will take it cuz mom adores me and you dont want to hurt

mom. " Pretty long name huh?Ive got other names for him but I will try to keep it

clean.

The point is we on this group do what we do because we love our los and will

do anything and sacrifice anything for them.Befor dad died I was in my own home,

had a 16 foot bass tracker, 2 cars and vacationed 2 or three times a year.Now i

live with mom , have a car that barely runs and the clothes on my back.But

although the anger gets me sometimes when he pulls up in his shiny brand new

pick up truck, It never last as long because I know that people like you and I

and the great people on this group are truly the blessed ones for being the ones

that would sacrifice anything, our feelings, belongings ANYTHING, because we

love our lo so much.That takes a special person and that my friend is what you

are. Ron

gaat wrote:

Thanks Ron, Donna and Jacqui for the support and information.

I was speaking to mom's caregiver this morning and she told me that mom has been

sweating a lot (as I suspected she would be with the dilaudid) and I suggested

that maybe mom should be checked for a UTI. (She probably hasn't got one but I'm

not sure if mom has been checked in a while. ) Then I said, just in case mom's

caregiver isn't aware of the new circumstances though I know she is, that I

really couldn't say anything as I was no longer allowed to have any part in

mom's healthcare. Mom's caregiver immediately said that she would bring it to

the nurses attention and say that the request was coming from her.

I was inwardly very happy that mom's caregiver was kind enough to listen and act

on my concerns but can any of you imagine how I felt having to go about this in

such a round-about way? After nearly 7 years of seeing to my mom's every medical

need I am reduced to this??????? How on earth is this fair?

For my mom's sake I will continue to swallow this s & ^% but I swear there are

moments when I don't think I can just roll over anymore - it goes against the

grain.

Courage

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Right back at you Ron! You certainly have given up a lot to care for your

parents and I'm sure they know it and appreciate it. In the end, I think we

will walk away from all this all the richer, in the important ways that this can

be measured.

Your first paragraph had me laughing out loud. Oh, the comments and attitudes

we get from the peanut gallery! I suppose I still have a hard time accepting

that people can be that clueless....

I was looking at member photos the other day and noticed a nice dog in your

family photos. Is this your mom's dog?

Courage

Re: Re: Update

Courage, the fact that you go to such lengths for your mom just goes to show

how truly blessed she is to have you looking out for her.I know it is so hard

sometimes to deal with certain siblings of mine.I wont say names ill just call

him Mr " I never come around for the heavy lifting but I will always force my

opinion on you and you will take it cuz mom adores me and you dont want to hurt

mom. " Pretty long name huh?Ive got other names for him but I will try to keep it

clean.

The point is we on this group do what we do because we love our los and will

do anything and sacrifice anything for them.Befor dad died I was in my own home,

had a 16 foot bass tracker, 2 cars and vacationed 2 or three times a year.Now i

live with mom , have a car that barely runs and the clothes on my back.But

although the anger gets me sometimes when he pulls up in his shiny brand new

pick up truck, It never last as long because I know that people like you and I

and the great people on this group are truly the blessed ones for being the ones

that would sacrifice anything, our feelings, belongings ANYTHING, because we

love our lo so much.That takes a special person and that my friend is what you

are. Ron

gaat wrote:

Thanks Ron, Donna and Jacqui for the support and information.

I was speaking to mom's caregiver this morning and she told me that mom has

been sweating a lot (as I suspected she would be with the dilaudid) and I

suggested that maybe mom should be checked for a UTI. (She probably hasn't got

one but I'm not sure if mom has been checked in a while. ) Then I said, just in

case mom's caregiver isn't aware of the new circumstances though I know she is,

that I really couldn't say anything as I was no longer allowed to have any part

in mom's healthcare. Mom's caregiver immediately said that she would bring it to

the nurses attention and say that the request was coming from her.

I was inwardly very happy that mom's caregiver was kind enough to listen and

act on my concerns but can any of you imagine how I felt having to go about this

in such a round-about way? After nearly 7 years of seeing to my mom's every

medical need I am reduced to this??????? How on earth is this fair?

For my mom's sake I will continue to swallow this s & ^% but I swear there are

moments when I don't think I can just roll over anymore - it goes against the

grain.

Courage

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Hi Courage, I hope your well today.The dog in the pictures in the member photos

is a little character named Vedder.In 96 I was talking to a co worker and his

dog had a litter of pupppies.His kids kept one and he was able to find homes

for all the rest but one.He had mentioned he would probably take it to the pound

and I couldnt hear of that so I told him Id swing by and get him when hes old

enough and find a home for it.And so I did, and he would soon become my

traveling buddy.Every where I went this puppy would go and if I didnt take him

he would let out cries like a small child.It toulk about two or three days and I

was totally attatched to this dog.Well long story short, he became mine.I named

him and ok heres another laugh for you Vedder after the lead singer from my

favorite music group.And weve been pals every since.

Fast forward to present day, he moved in to my moms when I did, and has become

my moms best friend.At night when i get her squared away in bed he curls up

right beside her bed and thats where you find him when she wakes up.When she has

tough times I sometimes call him up in bed beside her and he is MUCH better at

turning her tears into laughs than I am.Believe it or not I really think this

dog was sent to us just for this journey were taking though lewy ville and wow

what would I do without him.

gaat wrote:

Right back at you Ron! You certainly have given up a lot to care for

your parents and I'm sure they know it and appreciate it. In the end, I think we

will walk away from all this all the richer, in the important ways that this can

be measured.

Your first paragraph had me laughing out loud. Oh, the comments and attitudes we

get from the peanut gallery! I suppose I still have a hard time accepting that

people can be that clueless....

I was looking at member photos the other day and noticed a nice dog in your

family photos. Is this your mom's dog?

Courage

Re: Re: Update

Courage, the fact that you go to such lengths for your mom just goes to show how

truly blessed she is to have you looking out for her.I know it is so hard

sometimes to deal with certain siblings of mine.I wont say names ill just call

him Mr " I never come around for the heavy lifting but I will always force my

opinion on you and you will take it cuz mom adores me and you dont want to hurt

mom. " Pretty long name huh?Ive got other names for him but I will try to keep it

clean.

The point is we on this group do what we do because we love our los and will do

anything and sacrifice anything for them.Befor dad died I was in my own home,

had a 16 foot bass tracker, 2 cars and vacationed 2 or three times a year.Now i

live with mom , have a car that barely runs and the clothes on my back.But

although the anger gets me sometimes when he pulls up in his shiny brand new

pick up truck, It never last as long because I know that people like you and I

and the great people on this group are truly the blessed ones for being the ones

that would sacrifice anything, our feelings, belongings ANYTHING, because we

love our lo so much.That takes a special person and that my friend is what you

are. Ron

gaat wrote:

Thanks Ron, Donna and Jacqui for the support and information.

I was speaking to mom's caregiver this morning and she told me that mom has been

sweating a lot (as I suspected she would be with the dilaudid) and I suggested

that maybe mom should be checked for a UTI. (She probably hasn't got one but I'm

not sure if mom has been checked in a while. ) Then I said, just in case mom's

caregiver isn't aware of the new circumstances though I know she is, that I

really couldn't say anything as I was no longer allowed to have any part in

mom's healthcare. Mom's caregiver immediately said that she would bring it to

the nurses attention and say that the request was coming from her.

I was inwardly very happy that mom's caregiver was kind enough to listen and act

on my concerns but can any of you imagine how I felt having to go about this in

such a round-about way? After nearly 7 years of seeing to my mom's every medical

need I am reduced to this??????? How on earth is this fair?

For my mom's sake I will continue to swallow this s & ^% but I swear there are

moments when I don't think I can just roll over anymore - it goes against the

grain.

Courage

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Courage,

There's something I'm not understanding here and I'm hoping you might be

interpreting parts of this incorrectly too.

You don't have POA. OK. But that has nothing to do with being a caring

child visiting her Mom. If I were visiting your Mom and I suspected a UTI,

I would ask the nurse to please check. Also, just because you don't have

POA doesn't mean you can' speak to her doctors as her daughter to find out

whatks going on and to voice your opinion. Correct?

Re: Re: Update

Thanks Ron, Donna and Jacqui for the support and information.

I was speaking to mom's caregiver this morning and she told me that mom has

been sweating a lot (as I suspected she would be with the dilaudid) and I

suggested that maybe mom should be checked for a UTI. (She probably hasn't

got one but I'm not sure if mom has been checked in a while. ) Then I

said, just in case mom's caregiver isn't aware of the new circumstances

though I know she is, that I really couldn't say anything as I was no

longer allowed to have any part in mom's healthcare. Mom's caregiver

immediately said that she would bring it to the nurses attention and say

that the request was coming from her.

I was inwardly very happy that mom's caregiver was kind enough to listen

and act on my concerns but can any of you imagine how I felt having to go

about this in such a round-about way? After nearly 7 years of seeing to my

mom's every medical need I am reduced to this??????? How on earth is this

fair?

For my mom's sake I will continue to swallow this s & ^% but I swear there

are moments when I don't think I can just roll over anymore - it goes

against the grain.

Courage

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Norma,

You told Courage exactly what I was trying to write yesterday and didn't get it

sent because I couldn't find the right words.

It has nothing to do with the Privacy Act, HIPPA, Her Mom has rights and

Dementia. So others need to help her get those rights.

And it is within your rights as her daughter, Courage to help her get her needs

met You go girl!

Lots of hugs,

Donna R

..

Caregave for Mom (after I brought her from WI to MI) for 3 years and 4th year in

a nh.

She was almost 89 when she died in '02. No dx other than mine.

Re: Re: Update

Courage,

There's something I'm not understanding here and I'm hoping you might be

interpreting parts of this incorrectly too.

You don't have POA. OK. But that has nothing to do with being a caring

child visiting her Mom. If I were visiting your Mom and I suspected a UTI,

I would ask the nurse to please check. Also, just because you don't have

POA doesn't mean you can' speak to her doctors as her daughter to find out

whatks going on and to voice your opinion. Correct?

Re: Re: Update

Thanks Ron, Donna and Jacqui for the support and information.

I was speaking to mom's caregiver this morning and she told me that mom has

been sweating a lot (as I suspected she would be with the dilaudid) and I

suggested that maybe mom should be checked for a UTI. (She probably hasn't

got one but I'm not sure if mom has been checked in a while. ) Then I

said, just in case mom's caregiver isn't aware of the new circumstances

though I know she is, that I really couldn't say anything as I was no

longer allowed to have any part in mom's healthcare. Mom's caregiver

immediately said that she would bring it to the nurses attention and say

that the request was coming from her.

I was inwardly very happy that mom's caregiver was kind enough to listen

and act on my concerns but can any of you imagine how I felt having to go

about this in such a round-about way? After nearly 7 years of seeing to my

mom's every medical need I am reduced to this??????? How on earth is this

fair?

For my mom's sake I will continue to swallow this s & ^% but I swear there

are moments when I don't think I can just roll over anymore - it goes

against the grain.

Courage

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Ron,

What a wonderful story about your little dog. And is Courage ever observant.

Glad you and your Mom has a friend to watch over her.

Hugs,

Donna R

Caregave for Mom (after I brought her from WI to MI) for 3 years and 4th year in

a nh.

She was almost 89 when she died in '02. No dx other than mine.

Re: Re: Update

Hi Courage, I hope your well today.The dog in the pictures in the member photos

is a little character named Vedder.In 96 I was talking to a co worker and his

dog had a litter of pupppies.His kids kept one and he was able to find homes

for all the rest but one.He had mentioned he would probably take it to the pound

and I couldnt hear of that so I told him Id swing by and get him when hes old

enough and find a home for it.And so I did, and he would soon become my

traveling buddy.Every where I went this puppy would go and if I didnt take him

he would let out cries like a small child.It toulk about two or three days and I

was totally attatched to this dog.Well long story short, he became mine.I named

him and ok heres another laugh for you Vedder after the lead singer from my

favorite music group.And weve been pals every since.

Fast forward to present day, he moved in to my moms when I did, and has become

my moms best friend.At night when i get her squared away in bed he curls up

right beside her bed and thats where you find him when she wakes up.When she has

tough times I sometimes call him up in bed beside her and he is MUCH better at

turning her tears into laughs than I am.Believe it or not I really think this

dog was sent to us just for this journey were taking though lewy ville and wow

what would I do without him.

gaat wrote:

Right back at you Ron! You certainly have given up a lot to care for

your parents and I'm sure they know it and appreciate it. In the end, I think we

will walk away from all this all the richer, in the important ways that this can

be measured.

Your first paragraph had me laughing out loud. Oh, the comments and attitudes we

get from the peanut gallery! I suppose I still have a hard time accepting that

people can be that clueless....

I was looking at member photos the other day and noticed a nice dog in your

family photos. Is this your mom's dog?

Courage

Re: Re: Update

Courage, the fact that you go to such lengths for your mom just goes to show how

truly blessed she is to have you looking out for her.I know it is so hard

sometimes to deal with certain siblings of mine.I wont say names ill just call

him Mr " I never come around for the heavy lifting but I will always force my

opinion on you and you will take it cuz mom adores me and you dont want to hurt

mom. " Pretty long name huh?Ive got other names for him but I will try to keep it

clean.

The point is we on this group do what we do because we love our los and will do

anything and sacrifice anything for them.Befor dad died I was in my own home,

had a 16 foot bass tracker, 2 cars and vacationed 2 or three times a year.Now i

live with mom , have a car that barely runs and the clothes on my back.But

although the anger gets me sometimes when he pulls up in his shiny brand new

pick up truck, It never last as long because I know that people like you and I

and the great people on this group are truly the blessed ones for being the ones

that would sacrifice anything, our feelings, belongings ANYTHING, because we

love our lo so much.That takes a special person and that my friend is what you

are. Ron

gaat wrote:

Thanks Ron, Donna and Jacqui for the support and information.

I was speaking to mom's caregiver this morning and she told me that mom has been

sweating a lot (as I suspected she would be with the dilaudid) and I suggested

that maybe mom should be checked for a UTI. (She probably hasn't got one but I'm

not sure if mom has been checked in a while. ) Then I said, just in case mom's

caregiver isn't aware of the new circumstances though I know she is, that I

really couldn't say anything as I was no longer allowed to have any part in

mom's healthcare. Mom's caregiver immediately said that she would bring it to

the nurses attention and say that the request was coming from her.

I was inwardly very happy that mom's caregiver was kind enough to listen and act

on my concerns but can any of you imagine how I felt having to go about this in

such a round-about way? After nearly 7 years of seeing to my mom's every medical

need I am reduced to this??????? How on earth is this fair?

For my mom's sake I will continue to swallow this s & ^% but I swear there are

moments when I don't think I can just roll over anymore - it goes against the

grain.

Courage

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  • 1 year later...
Guest guest

You are an awesome mom!

Deanna

To: miralax Sent: Sunday, August 9, 2009 7:44:48 AMSubject: Re: Update

Jennie, I will keep your son and your family in my prayers. I know what you mean when you say that the natural healing has made your son strong enough to endure surgery. Natural healing is so powerful and I am very thankful that your little guy has benefited. Susie ~

On Sat, Aug 8, 2009 at 11:47 PM, Jennie <mykidshisgift@ yahoo.com> wrote:

We made our way home today. Im a little down but well be ok! Our lil guy well be having surgery 1st week of september! He well be having colostimy/ostimy. ...so many terms, and the dreaded pull thru at the same time. Instead of original 3 stages of surgries, now only two if no complications. This is a bitter sweet for us. Avoided for so long but cant be avoided at this point. But one thing I can say is that when they mentioned this when he 1st became ill, I know my son would have been high risk for surgries and now I can say due to this group and learning about natural over the years, he is a bundle of health and I feel he well be able to take this on much better/recovery! I feel in my heart if this would have been done befor all the natural knowledge/healing he couldnt have endured it. His surgeon told us that due to the hirschsprungs the good intestines is overworking and with time well keep getting worse. I well update at the time!

Jennie<><

-- “Be careful reading medical books. You might die of a mis-print.†-- Mark Twain

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  • 7 months later...
Guest guest

you are both in my prayers!

 

                                       

                                    Love,Jill

 

We don't remember days, we remember moments.

Life is not measured by the breaths we take,but by the moments that take our

breath away.

________________________________

To: livercirrhosissupport

Sent: Thu, April 8, 2010 12:46:58 PM

Subject: Update

 

Hello All: Just a quick update. My husband was transported by ambulance from our

local hospital to the transplant center a week ago. We were informed yesterday

that he is now on the active list with a meld score of 26. We are hoping he will

get a new liver soon. Thanks for all your help, and I will keep you posted.

Jackie

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Guest guest

you are both in my prayers!

 

                                       

                                    Love,Jill

 

We don't remember days, we remember moments.

Life is not measured by the breaths we take,but by the moments that take our

breath away.

________________________________

To: livercirrhosissupport

Sent: Thu, April 8, 2010 12:46:58 PM

Subject: Update

 

Hello All: Just a quick update. My husband was transported by ambulance from our

local hospital to the transplant center a week ago. We were informed yesterday

that he is now on the active list with a meld score of 26. We are hoping he will

get a new liver soon. Thanks for all your help, and I will keep you posted.

Jackie

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Guest guest

you are both in my prayers!

 

                                       

                                    Love,Jill

 

We don't remember days, we remember moments.

Life is not measured by the breaths we take,but by the moments that take our

breath away.

________________________________

To: livercirrhosissupport

Sent: Thu, April 8, 2010 12:46:58 PM

Subject: Update

 

Hello All: Just a quick update. My husband was transported by ambulance from our

local hospital to the transplant center a week ago. We were informed yesterday

that he is now on the active list with a meld score of 26. We are hoping he will

get a new liver soon. Thanks for all your help, and I will keep you posted.

Jackie

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Guest guest

Praying for you guys. Debra

>

> Hello All: Just a quick update. My husband was transported by ambulance from

our local hospital to the transplant center a week ago. We were informed

yesterday that he is now on the active list with a meld score of 26. We are

hoping he will get a new liver soon. Thanks for all your help, and I will keep

you posted. Jackie

>

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Guest guest

Praying for you guys. Debra

>

> Hello All: Just a quick update. My husband was transported by ambulance from

our local hospital to the transplant center a week ago. We were informed

yesterday that he is now on the active list with a meld score of 26. We are

hoping he will get a new liver soon. Thanks for all your help, and I will keep

you posted. Jackie

>

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Praying for you guys. Debra

>

> Hello All: Just a quick update. My husband was transported by ambulance from

our local hospital to the transplant center a week ago. We were informed

yesterday that he is now on the active list with a meld score of 26. We are

hoping he will get a new liver soon. Thanks for all your help, and I will keep

you posted. Jackie

>

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