Guest guest Posted May 29, 2009 Report Share Posted May 29, 2009 was in the ER this morn?? they increased my prednisone from 5 mg a day to 60 today?? flaring again....i hope you feel better Gail?? i will be praying 4 you.??????? Missy flaring again First, thanks to all in the group, you guys mean so much to me! I say this b/c I don't feel like I contribute very much and I feel a tad guilty when I get on here to complain. I do think of all of you often! I just got back from the doc... I am flaring again and he put me on 100 mg Pred per day for a week, then 50 for a week, then I see him again. This time I have the vasculitis involved. You can see broken capillaries on my chest, arms and on my face. Also, some tingling in my right hand and foot, which he said is caused by the nerves not getting enough blood supply. Also, fevers every day for 4 days in the late afternoon, I feel soooo cold, joint pain, rash, blah, blah.... I hate taking that much Prednisone. I hate the side effects, but, it makes things better in the long run. So I am going from 5 mg a day to 100mg a day. Until now, I had never been on more than 60 mgs at home, so I questioned the high dose b/c of the side effects. He said that the side effects at 100mg are no worse than at 60mg. So, my question is, has anyone else been on 100mg without being monitored in the hospital? Did you notice that the side effects were even worse? I am waiting until tomorrow to start it since it is late morning here. Any advice is much appreciated! Gail Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2009 Report Share Posted May 29, 2009 Missy, Jeez, sounds like you & I are on the same track... please get some rest and feel better, keep us posted! Gail ________________________________ To: Stillsdisease Sent: Friday, May 29, 2009 11:54:46 AM Subject: Re: flaring again was in the ER this morn?? they increased my prednisone from 5 mg a day to 60 today?? flaring again....i hope you feel better Gail?? i will be praying 4 you.??????? Missy flaring again I I am flaring again and he put me on 100 mg Pred per day for a week, then 50 for a week, then I see him again. This time I have the vasculitis involved. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2009 Report Share Posted May 29, 2009 I've only been on 100mg in the hospital. Other than blood sugar levels, I didn't notice anything worse than at 60mg. For me, my side effects go down significantly about every 10mg I drop down. April Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2009 Report Share Posted May 29, 2009 Thanks, April. I have only been on 100mg while in the hospital, and I guess I don't remember anything different than when I am on 60. Again, Thanks Gail Subject: Re: flaring again To: Stillsdisease Date: Friday, May 29, 2009, 1:18 PM I've only been on 100mg in the hospital. Other than blood sugar levels, I didn't notice anything worse than at 60mg. For me, my side effects go down significantly about every 10mg I drop down. April Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2009 Report Share Posted May 29, 2009 Gail Highest dose of pills I have been on at home was 80mg. I hope you are taking them with food, Gail. !00mg at one time or split 50/50? I did have prednisone pulse treatments. 1000mg of Solumedrol IV in the Doc's office. Then after a brief wait, went into work for the day. Had this done twice. My face did glow a bright red in the afternoon and it managed to scare several co workers. Tom > > I've only been on 100mg in the hospital. Other than blood sugar levels, I didn't notice anything worse than at 60mg. For me, my side effects go down significantly about every 10mg I drop down. > > April > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2009 Report Share Posted May 29, 2009 Good point about taking it with food. My Dr. has me on an acid reducer to protect my stomach. Seems to be working fine, although I'm down to 30mg of prednisone per day now. I'll be staying on that dose for a while, too. He told me to stop tapering because I was getting much worse. April Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 30, 2009 Report Share Posted May 30, 2009 Gail I am late with this I know but here it is any way I never was on that high of a dose but my sister was and yes at home not in the hospital. Side effects for her were some eye trouble as in bulging eyes and a very well rounded body from it. More then a moon face but a full moon body so to speak. She also be came very very depressed during that time. So it can and is done but you also need to watch out for side effects like with any of our meds Hugs and good luck the redneck Marty G. To learn about Stills Disease http://www.stillsdisease.org/stills_info For conservitive minded people http://www.americac2c.orgThe problem is not that people are taxed too little, the problem is that government spends too much. Reagan I predict future happiness for Americans if they can prevent the government from wasting the labors of the people under the pretense of taking care of them. Jefferson Quote Link to comment Share on other sites More sharing options...
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