Guest guest Posted January 18, 2009 Report Share Posted January 18, 2009 The earlier children learn about there disabilities the better adjusted they are to it. Children need to except themselves as they are and to be able to look up information on their disability and to see how others have prospered with the same disabilities. There are many children with MDS that have graduated and live regular ordinary lives. You are only as handicap as you perceive you are. On Sun, Jan 18, 2009 at 4:50 AM, pattiefried1 wrote: > Hello, > This is Pattie, mom to 12. For many reasons we have not yet > told our daughter about her diagnosis. was diagnosed at one > and has virtually no facial features that are associated with DS or > MDS. For , learning disabilities and mild SP/L seem to be her > challenges. I am interested in hearing from other parents and > caregivers on how they handled this, what ages, how did you explain it > to them and how they responded. I am also interested in hearing from > the folks whose children are older now. > Pattie > > > -- Angels are among us so we never know if an angel is there in our time of need. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2009 Report Share Posted January 19, 2009 We told our daughter, , when she was very young, probably about three. She was watching Burke from " Life Goes On " and we said " , he has DS just like you " . We told her as if we were telling her that her hair was brown, just like mine. From a very young age, she would point out to us if she saw someone with DS. She feels that it's a good thing and has never looked at it as a negative. She thinks it is really cool. It was easier for me to treat it as a normal thing at a very early age. (mom- ,25yrs) Telling our children Hello, This is Pattie, mom to 12. For many reasons we have not yet told our daughter about her diagnosis. was diagnosed at one and has virtually no facial features that are associated with DS or MDS. For , learning disabilities and mild SP/L seem to be her challenges. I am interested in hearing from other parents and caregivers on how they handled this, what ages, how did you explain it to them and how they responded. I am also interested in hearing from the folks whose children are older now. Pattie ------------------------------------------------------------------------------ No virus found in this incoming message. Checked by AVG - http://www.avg.com Version: 8.0.176 / Virus Database: 270.10.8/1899 - Release Date: 1/17/2009 5:50 PM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2009 Report Share Posted January 19, 2009 Thank you, this is my first " put myself out there post. " ...I admire how gently and practically you handled telling . Like so many parts of our life with our children, nothing is simple and I was faced with two entirely different perspectives on a having a child with any disability. A sister with CP and a cousin with DS - both of them have always filled our families with joy and tons of entertainment and there never was an ounce of shame or embrassment. My husband's family.....genetic eliteists. This emotional argument usually occured once a year,, sometimes more intensly than others and often preciptitated by opportunities such as yours with " Life Goes on " - Now it simmers just below the surface as our becomes more aware of herself and enters the hardest years --- middle school. I will say to my husband's credit he has admitted that he wished we had told her sooner -- and his family has come to embrace and really appreciate our 's gifts that she brings to his family - to say she is a fire cracker is not an understatement - and they love her. The ironic part, the worse culprit now suffers from Alzheimer's Disease and I ask myself why I wasted my younger years being so hurt and intimidated by t;heir beliefs. With all that said, she still does not know.... and now....when she has so many other normal adolescent challenges I worry about the way she will come to terms with this part of herself. I believe ultimately she will be fine with it - she is a very kind and funny kid. I am prepared for her being really pissed off at her mother for not standing up for her in the very beginning. Telling her brother was a whole other lesson. Have you ever hear of the book " Expecting Adam " by Martha Beck......loads of parallels. Has your gone through periods of time when knowing she had MDS made life hard? Pattie --- On Sun, 1/18/09, wrote Subject: Re: Telling our children To: MosaicDS Date: Sunday, January 18, 2009, 8:17 PM We told our daughter, , when she was very young, probably about three. She was watching Burke from " Life Goes On " and we said " , he has DS just like you " . We told her as if we were telling her that her hair was brown, just like mine. From a very young age, she would point out to us if she saw someone with DS. She feels that it's a good thing and has never looked at it as a negative. She thinks it is really cool. It was easier for me to treat it as a normal thing at a very early age. (mom- ,25yrs) Telling our children Hello, This is Pattie, mom to 12. For many reasons we have not yet told our daughter about her diagnosis. was diagnosed at one and has virtually no facial features that are associated with DS or MDS. For , learning disabilities and mild SP/L seem to be her challenges. I am interested in hearing from other parents and caregivers on how they handled this, what ages, how did you explain it to them and how they responded. I am also interested in hearing from the folks whose children are older now. Pattie ------------ --------- --------- --------- --------- --------- - No virus found in this incoming message. Checked by AVG - http://www.avg. com Version: 8.0.176 / Virus Database: 270.10.8/1899 - Release Date: 1/17/2009 5:50 PM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2009 Report Share Posted January 19, 2009 Pattie, I know it's difficult when you have outside influences, but remember to always do what YOU feel is right. Nobody really know what's right for each individual. I believe each situation is different. No, has NEVER had any problem knowing that she has MDS. She has trouble with math and I told her that it just kind of goes along with MDS and it just means that she will have to try harder in that area. I also told her that everyone has some kind of special characteristic. Sometimes we realize it and sometimes we don't. But everyone has something. I think that kept her from feeling so isolated. Our is the happiest and most positve human being I have known. I have always been so glad that we told her at a young age. Telling our children Hello, This is Pattie, mom to 12. For many reasons we have not yet told our daughter about her diagnosis. was diagnosed at one and has virtually no facial features that are associated with DS or MDS. For , learning disabilities and mild SP/L seem to be her challenges. I am interested in hearing from other parents and caregivers on how they handled this, what ages, how did you explain it to them and how they responded. I am also interested in hearing from the folks whose children are older now. Pattie ------------ --------- --------- --------- --------- --------- - No virus found in this incoming message. Checked by AVG - http://www.avg. com Version: 8.0.176 / Virus Database: 270.10.8/1899 - Release Date: 1/17/2009 5:50 PM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2009 Report Share Posted January 19, 2009 Hi Pattie I totally understand what you are feeling right now. That heart dropping, terrifying feeling of how to tell her and what to expect the reaction will be. My husband and I went through the same thing that you are going through right now. We worried about Tim's reaction and we worried if we were doing the right thing by telling him. We also worried if he would be angry because we didn't tell him before. What we did is we sat down with him and I started the conversation saying " remember when you said you felt like you were the only one with the problems you were facing? " (granted, you may not be able to say the same words, but I bet you can come up with something similar) I had the booklet from VCU about mosaic Down syndrome. This booklet isn't available any more in print, but you can get it on the internet from our website and you can get all of our informational papers from our site as well. We told him he had MDS and that what this meant was that he had an extra chromosome in his body. (it helped that he was studying chromosomes in school that year) We explained that it was because of the extra chromosome that he was dealing with the " problems " that he was having. (he mainly had social issues) We told him also that we had kept this information from him until we thought he was old enough to understand it and also we explained that we kept it from him because we didn't want him to use it as a crutch to get out of doing things we knew he was capable of doing. When we were finished, he was excited and relieved with the news. He thought it was " cool " to have extra chromosomes. He said he " felt like an X-man " because they too were a little different and had different genetic makeup. He never once said that he felt bad about having it. In fact, he says he is glad he has it! We asked him if he thought we did ok by not telling him. We explained that we really worried that he would be angry with us for keeping the info from him. He said he agreed with us completely. First, he wasn't old enough to understand. And second, it would have been a great excuse to get out of work! (lol even now I tease him when he doesn't do something like cleaning up after himself and I will ask him if he has some form of disability that disables him from picking up his mess..... he says, " Well... I do have extra chromosomes! " LOL) When we finished telling him, he went back to his room like it was no big deal. We felt that huge dark cloud lift and the sigh of relief was audible for miles around I am sure! I know it is hard, but I promise what is harder is holding it in longer. Make a plan and get some information and just tell her matter of factly that this is what you have and this is why you have trouble. Don't make it a negative thing. Remember...there is nothing negative about your daughter! I know you are thinking this is how you felt when you received the diagnosis, but it really isn't like that. This is more like explaining to her why she is a little different. Good Luck! Kristy Colvin IMDSA President ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ International Mosaic Down Syndrome Association PH: Toll Free: 1-888-MDS-LINK http://www.imdsa.org http://www.mosaicmoments.today.com SAVE THE DATE! JULY 10-12 Cincinnati, Ohio, USA BUILDING BRIDGES FOR DOWN SYNDROME RESEARCH & AWARENESS CONFERENCE Subject: Re: Telling our children To: MosaicDS Date: Monday, January 19, 2009, 9:05 AM Thank you, this is my first " put myself out there post. " ...I admire how gently and practically you handled telling . Like so many parts of our life with our children, nothing is simple and I was faced with two entirely different perspectives on a having a child with any disability. A sister with CP and a cousin with DS - both of them have always filled our families with joy and tons of entertainment and there never was an ounce of shame or embrassment. My husband's family.....genetic eliteists. This emotional argument usually occured once a year,, sometimes more intensly than others and often preciptitated by opportunities such as yours with " Life Goes on " - Now it simmers just below the surface as our becomes more aware of herself and enters the hardest years --- middle school. I will say to my husband's credit he has admitted that he wished we had told her sooner -- and his family has come to embrace and really appreciate our 's gifts that she brings to his family - to say she is a fire cracker is not an understatement - and they love her. The ironic part, the worse culprit now suffers from Alzheimer's Disease and I ask myself why I wasted my younger years being so hurt and intimidated by t;heir beliefs. With all that said, she still does not know.... and now....when she has so many other normal adolescent challenges I worry about the way she will come to terms with this part of herself. I believe ultimately she will be fine with it - she is a very kind and funny kid. I am prepared for her being really pissed off at her mother for not standing up for her in the very beginning. Telling her brother was a whole other lesson. Have you ever hear of the book " Expecting Adam " by Martha Beck......loads of parallels. Has your gone through periods of time when knowing she had MDS made life hard? Pattie --- On Sun, 1/18/09, <kcrdibellsouth (DOT) net> wrote From: <kcrdibellsouth (DOT) net> Subject: Re: Telling our children To: MosaicDS@yahoogroup s.com Date: Sunday, January 18, 2009, 8:17 PM We told our daughter, , when she was very young, probably about three. She was watching Burke from " Life Goes On " and we said " , he has DS just like you " . We told her as if we were telling her that her hair was brown, just like mine. From a very young age, she would point out to us if she saw someone with DS. She feels that it's a good thing and has never looked at it as a negative. She thinks it is really cool. It was easier for me to treat it as a normal thing at a very early age. (mom- ,25yrs) Telling our children Hello, This is Pattie, mom to 12. For many reasons we have not yet told our daughter about her diagnosis. was diagnosed at one and has virtually no facial features that are associated with DS or MDS. For , learning disabilities and mild SP/L seem to be her challenges. I am interested in hearing from other parents and caregivers on how they handled this, what ages, how did you explain it to them and how they responded. I am also interested in hearing from the folks whose children are older now. Pattie ------------ --------- --------- --------- --------- --------- - No virus found in this incoming message. Checked by AVG - http://www.avg. com Version: 8.0.176 / Virus Database: 270.10.8/1899 - Release Date: 1/17/2009 5:50 PM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2009 Report Share Posted January 20, 2009 Just my 2 cents here...I don't have MDS and I struggle in math daily! So , you tell your that a Mom with 2 kids that graduated HS 20 years ago still struggles with math....that it's just a " girl " thing LOL Blessings Abound, (Becky) Rowe Mom to Trey (8 ADHD) & Austin (6 MDS) " Yesterday is history, tomorrow is a mystery, but today is a gift, that is why it is called the present " --(Master Oogway, Kung Fu Panda) ________________________________ Family Assistance Coordinator www.imdsa.org or becky@... ________________________________ To: MosaicDS Sent: Monday, January 19, 2009 11:15:51 AM Subject: Re: Telling our children Pattie, I know it's difficult when you have outside influences, but remember to always do what YOU feel is right. Nobody really know what's right for each individual. I believe each situation is different. No, has NEVER had any problem knowing that she has MDS. She has trouble with math and I told her that it just kind of goes along with MDS and it just means that she will have to try harder in that area. I also told her that everyone has some kind of special characteristic. Sometimes we realize it and sometimes we don't. But everyone has something. I think that kept her from feeling so isolated. Our is the happiest and most positve human being I have known. I have always been so glad that we told her at a young age. Telling our children Hello, This is Pattie, mom to 12. For many reasons we have not yet told our daughter about her diagnosis. was diagnosed at one and has virtually no facial features that are associated with DS or MDS. For , learning disabilities and mild SP/L seem to be her challenges. I am interested in hearing from other parents and caregivers on how they handled this, what ages, how did you explain it to them and how they responded. I am also interested in hearing from the folks whose children are older now. Pattie ------------ --------- --------- --------- --------- --------- - No virus found in this incoming message. Checked by AVG - http://www.avg. com Version: 8.0.176 / Virus Database: 270.10.8/1899 - Release Date: 1/17/2009 5:50 PM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2009 Report Share Posted January 20, 2009 NO, no, no, it's not a GIRL thing! We need to give our girls more confidence than that! Some people just do not have strengths in math and that is ok, but let's not convince our girls that they can't do math just because they are girls. A. Special Educator Simon Kenton High School (859)960-0348 cynthia.jones@... " Deaf People Can Do Anything Except Hear! " (I. King Jordan) Confidentiality Notice - This email is intended only for the person to whom it is addressed and may contain confidential information. Any unauthorized review is prohibited. If you are not the intended recipient, kindly contact the sender by reply email and destroy all copies of the original message. If you are the intended recipient, but do not wish to receive communication through this medium, please advise the sender immediately. ________________________________ From: MosaicDS [mailto:MosaicDS ] On Behalf Of Becky Rowe Sent: Tuesday, January 20, 2009 6:22 AM To: MosaicDS Subject: Re: Telling our children Just my 2 cents here...I don't have MDS and I struggle in math daily! So , you tell your that a Mom with 2 kids that graduated HS 20 years ago still struggles with math....that it's just a " girl " thing LOL Blessings Abound, (Becky) Rowe Mom to Trey (8 ADHD) & Austin (6 MDS) " Yesterday is history, tomorrow is a mystery, but today is a gift, that is why it is called the present " --(Master Oogway, Kung Fu Panda) ________________________________ Family Assistance Coordinator www.imdsa.org or becky@... <mailto:becky%40imdsa.org> ________________________________ From: <kcrdi@... <mailto:kcrdi%40bellsouth.net> > To: MosaicDS <mailto:MosaicDS%40yahoogroups.com> Sent: Monday, January 19, 2009 11:15:51 AM Subject: Re: Telling our children Pattie, I know it's difficult when you have outside influences, but remember to always do what YOU feel is right. Nobody really know what's right for each individual. I believe each situation is different. No, has NEVER had any problem knowing that she has MDS. She has trouble with math and I told her that it just kind of goes along with MDS and it just means that she will have to try harder in that area. I also told her that everyone has some kind of special characteristic. Sometimes we realize it and sometimes we don't. But everyone has something. I think that kept her from feeling so isolated. Our is the happiest and most positve human being I have known. I have always been so glad that we told her at a young age. Telling our children Hello, This is Pattie, mom to 12. For many reasons we have not yet told our daughter about her diagnosis. was diagnosed at one and has virtually no facial features that are associated with DS or MDS. For , learning disabilities and mild SP/L seem to be her challenges. I am interested in hearing from other parents and caregivers on how they handled this, what ages, how did you explain it to them and how they responded. I am also interested in hearing from the folks whose children are older now. Pattie ------------ --------- --------- --------- --------- --------- - No virus found in this incoming message. Checked by AVG - http://www.avg. com Version: 8.0.176 / Virus Database: 270.10.8/1899 - Release Date: 1/17/2009 5:50 PM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2009 Report Share Posted January 20, 2009 , I forget that my sense of humor doesn't carry through in emails...... You're right, it's not a " girl " thing, it's an " everybody " thing.....I'm better in english than math....that's just a " Becky " thing.... Newman was a great actor, race car driver, business owner and philanthropist, that was his " thing " . We are all great in somethings, others, not so much. I think once we all recognize our strengths and weaknesses, we all come out so much the better for it. Blessings Abound, (Becky) Rowe Mom to Trey (8 ADHD) & Austin (6 MDS) " Yesterday is history, tomorrow is a mystery, but today is a gift, that is why it is called the present " --(Master Oogway, Kung Fu Panda) ________________________________ Family Assistance Coordinator www.imdsa.org or becky@... ________________________________ To: MosaicDS Sent: Tuesday, January 20, 2009 7:40:36 AM Subject: RE: Telling our children NO, no, no, it's not a GIRL thing! We need to give our girls more confidence than that! Some people just do not have strengths in math and that is ok, but let's not convince our girls that they can't do math just because they are girls. A. Special Educator Simon Kenton High School (859)960-0348 cynthia.jones@ kenton.kyschools .us " Deaf People Can Do Anything Except Hear! " (I. King Jordan) Confidentiality Notice - This email is intended only for the person to whom it is addressed and may contain confidential information. Any unauthorized review is prohibited. If you are not the intended recipient, kindly contact the sender by reply email and destroy all copies of the original message. If you are the intended recipient, but do not wish to receive communication through this medium, please advise the sender immediately. ____________ _________ _________ __ From: MosaicDS@yahoogroup s.com [mailto:MosaicDS@yahoogroup s.com] On Behalf Of Becky Rowe Sent: Tuesday, January 20, 2009 6:22 AM To: MosaicDS@yahoogroup s.com Subject: Re: Telling our children Just my 2 cents here...I don't have MDS and I struggle in math daily! So , you tell your that a Mom with 2 kids that graduated HS 20 years ago still struggles with math....that it's just a " girl " thing LOL Blessings Abound, (Becky) Rowe Mom to Trey (8 ADHD) & Austin (6 MDS) " Yesterday is history, tomorrow is a mystery, but today is a gift, that is why it is called the present " --(Master Oogway, Kung Fu Panda) ____________ _________ _________ __ Family Assistance Coordinator www.imdsa.org or beckyimdsa (DOT) org <mailto:becky% 40imdsa.org> ____________ _________ _________ __ From: <kcrdibellsouth (DOT) net <mailto:kcrdi% 40bellsouth. net> > To: MosaicDS@yahoogroup s.com <mailto:MosaicDS% 40yahoogroups. com> Sent: Monday, January 19, 2009 11:15:51 AM Subject: Re: Telling our children Pattie, I know it's difficult when you have outside influences, but remember to always do what YOU feel is right. Nobody really know what's right for each individual. I believe each situation is different. No, has NEVER had any problem knowing that she has MDS. She has trouble with math and I told her that it just kind of goes along with MDS and it just means that she will have to try harder in that area. I also told her that everyone has some kind of special characteristic. Sometimes we realize it and sometimes we don't. But everyone has something. I think that kept her from feeling so isolated. Our is the happiest and most positve human being I have known. I have always been so glad that we told her at a young age. Telling our children Hello, This is Pattie, mom to 12. For many reasons we have not yet told our daughter about her diagnosis. was diagnosed at one and has virtually no facial features that are associated with DS or MDS. For , learning disabilities and mild SP/L seem to be her challenges. I am interested in hearing from other parents and caregivers on how they handled this, what ages, how did you explain it to them and how they responded. I am also interested in hearing from the folks whose children are older now. Pattie ------------ --------- --------- --------- --------- --------- - No virus found in this incoming message. Checked by AVG - http://www.avg. com Version: 8.0.176 / Virus Database: 270.10.8/1899 - Release Date: 1/17/2009 5:50 PM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2009 Report Share Posted January 20, 2009 Oh, Becky, I wasn't upset with you. :-) I just had to say what I did. I think telling a girl she can't do math because she is a girl is like telling a kid with a learning disability he can't go to college because he has a learning disability. I think it's perfectly fine to teach a child to capitalize on his/her strengths and I believe it's important to be honest with a child if they have a disorder or a disability. I just don't think it's a good idea to plant the seed that certain academic strengths are " gender specific. " I hope I didn't offend you with my response. :-) A. Special Educator Simon Kenton High School (859)960-0348 cynthia.jones@... " Deaf People Can Do Anything Except Hear! " (I. King Jordan) Confidentiality Notice - This email is intended only for the person to whom it is addressed and may contain confidential information. Any unauthorized review is prohibited. If you are not the intended recipient, kindly contact the sender by reply email and destroy all copies of the original message. If you are the intended recipient, but do not wish to receive communication through this medium, please advise the sender immediately. ________________________________ From: MosaicDS [mailto:MosaicDS ] On Behalf Of Becky Rowe Sent: Tuesday, January 20, 2009 8:08 AM To: MosaicDS Subject: Re: Telling our children , I forget that my sense of humor doesn't carry through in emails...... You're right, it's not a " girl " thing, it's an " everybody " thing.....I'm better in english than math....that's just a " Becky " thing.... Newman was a great actor, race car driver, business owner and philanthropist, that was his " thing " . We are all great in somethings, others, not so much. I think once we all recognize our strengths and weaknesses, we all come out so much the better for it. Blessings Abound, (Becky) Rowe Mom to Trey (8 ADHD) & Austin (6 MDS) " Yesterday is history, tomorrow is a mystery, but today is a gift, that is why it is called the present " --(Master Oogway, Kung Fu Panda) ________________________________ Family Assistance Coordinator www.imdsa.org or becky@... <mailto:becky%40imdsa.org> ________________________________ From: " , - Kenton County " <cynthia.jones@... <mailto:cynthia.jones%40kenton.kyschools.us> > To: MosaicDS <mailto:MosaicDS%40yahoogroups.com> Sent: Tuesday, January 20, 2009 7:40:36 AM Subject: RE: Telling our children NO, no, no, it's not a GIRL thing! We need to give our girls more confidence than that! Some people just do not have strengths in math and that is ok, but let's not convince our girls that they can't do math just because they are girls. A. Special Educator Simon Kenton High School (859)960-0348 cynthia.jones@ kenton.kyschools .us " Deaf People Can Do Anything Except Hear! " (I. King Jordan) Confidentiality Notice - This email is intended only for the person to whom it is addressed and may contain confidential information. Any unauthorized review is prohibited. If you are not the intended recipient, kindly contact the sender by reply email and destroy all copies of the original message. If you are the intended recipient, but do not wish to receive communication through this medium, please advise the sender immediately. ____________ _________ _________ __ From: MosaicDS@yahoogroup s.com [mailto:MosaicDS@yahoogroup s.com] On Behalf Of Becky Rowe Sent: Tuesday, January 20, 2009 6:22 AM To: MosaicDS@yahoogroup s.com Subject: Re: Telling our children Just my 2 cents here...I don't have MDS and I struggle in math daily! So , you tell your that a Mom with 2 kids that graduated HS 20 years ago still struggles with math....that it's just a " girl " thing LOL Blessings Abound, (Becky) Rowe Mom to Trey (8 ADHD) & Austin (6 MDS) " Yesterday is history, tomorrow is a mystery, but today is a gift, that is why it is called the present " --(Master Oogway, Kung Fu Panda) ____________ _________ _________ __ Family Assistance Coordinator www.imdsa.org or beckyimdsa (DOT) org <mailto:becky% 40imdsa.org> ____________ _________ _________ __ From: <kcrdibellsouth (DOT) net <mailto:kcrdi% 40bellsouth. net> > To: MosaicDS@yahoogroup s.com <mailto:MosaicDS% 40yahoogroups. com> Sent: Monday, January 19, 2009 11:15:51 AM Subject: Re: Telling our children Pattie, I know it's difficult when you have outside influences, but remember to always do what YOU feel is right. Nobody really know what's right for each individual. I believe each situation is different. No, has NEVER had any problem knowing that she has MDS. She has trouble with math and I told her that it just kind of goes along with MDS and it just means that she will have to try harder in that area. I also told her that everyone has some kind of special characteristic. Sometimes we realize it and sometimes we don't. But everyone has something. I think that kept her from feeling so isolated. Our is the happiest and most positve human being I have known. I have always been so glad that we told her at a young age. Telling our children Hello, This is Pattie, mom to 12. For many reasons we have not yet told our daughter about her diagnosis. was diagnosed at one and has virtually no facial features that are associated with DS or MDS. For , learning disabilities and mild SP/L seem to be her challenges. I am interested in hearing from other parents and caregivers on how they handled this, what ages, how did you explain it to them and how they responded. I am also interested in hearing from the folks whose children are older now. Pattie ------------ --------- --------- --------- --------- --------- - No virus found in this incoming message. Checked by AVG - http://www.avg. com Version: 8.0.176 / Virus Database: 270.10.8/1899 - Release Date: 1/17/2009 5:50 PM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2009 Report Share Posted January 20, 2009 Hi Pattie, I do not post much but felt inspired by your post. My daughter is also 12 and we have not told her either. We found out when she was 4. She also does not have many visual characteristics of MDS, but does struggle in some subjects in school and her maturity level is lower than some of her friends. She started middle school this year and it has been a trying year for both of us. She did make the honor roll the first quarter and not only was I proud of her, she was proud of herself as well. The problem I have in telling her is that I do not believe she is ready emotionally. She does know that her brain does not always work as fast as her brothers and that some stuff takes her a little bit longer to process. I still am not sure when to tell her, but I think I will know when it is the right time. na also has a hard time with the concept of money and time, so will be working on both of those subjects with her this summer. Just wanted you to know that you are not alone in the struggle!! Bultje Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2009 Report Share Posted January 20, 2009 No upset feelings here LOL Maybe instead of saying " a girl thing " I should have said a " who-ever " thing. Meaning that it was just a quirk one has... I think I try to make light of serious situations because depending on the situation, it may not be that serious. What one perceives as serious another may not. I consider my struggle in Math my own little " quirk " and over look it by the fact I do much better in English. Not saying that it doesn't bug me that I struggle in Math, certain times it does, but I don't let it " control " my life....I tend to look at all the other things I CAN do rather than those I cannot...for those things I cannot do are very few and aren't all that significant, mere speed bumps in life. Eh, so I can't add on the spot..I try..then use a calculator LOL Blessings Abound, (Becky) Rowe Mom to Trey (8 ADHD) & Austin (6 MDS) " Yesterday is history, tomorrow is a mystery, but today is a gift, that is why it is called the present " --(Master Oogway, Kung Fu Panda) ________________________________ Family Assistance Coordinator www.imdsa.org or becky@... ________________________________ To: MosaicDS Sent: Tuesday, January 20, 2009 9:48:57 AM Subject: RE: Telling our children Oh, Becky, I wasn't upset with you. :-) I just had to say what I did. I think telling a girl she can't do math because she is a girl is like telling a kid with a learning disability he can't go to college because he has a learning disability. I think it's perfectly fine to teach a child to capitalize on his/her strengths and I believe it's important to be honest with a child if they have a disorder or a disability. I just don't think it's a good idea to plant the seed that certain academic strengths are " gender specific. " I hope I didn't offend you with my response. :-) A. Special Educator Simon Kenton High School (859)960-0348 cynthia.jones@ kenton.kyschools .us " Deaf People Can Do Anything Except Hear! " (I. King Jordan) Confidentiality Notice - This email is intended only for the person to whom it is addressed and may contain confidential information. Any unauthorized review is prohibited. If you are not the intended recipient, kindly contact the sender by reply email and destroy all copies of the original message. If you are the intended recipient, but do not wish to receive communication through this medium, please advise the sender immediately. ____________ _________ _________ __ From: MosaicDS@yahoogroup s.com [mailto:MosaicDS@yahoogroup s.com] On Behalf Of Becky Rowe Sent: Tuesday, January 20, 2009 8:08 AM To: MosaicDS@yahoogroup s.com Subject: Re: Telling our children , I forget that my sense of humor doesn't carry through in emails...... You're right, it's not a " girl " thing, it's an " everybody " thing.....I' m better in english than math....that' s just a " Becky " thing.... Newman was a great actor, race car driver, business owner and philanthropist, that was his " thing " . We are all great in somethings, others, not so much. I think once we all recognize our strengths and weaknesses, we all come out so much the better for it. Blessings Abound, (Becky) Rowe Mom to Trey (8 ADHD) & Austin (6 MDS) " Yesterday is history, tomorrow is a mystery, but today is a gift, that is why it is called the present " --(Master Oogway, Kung Fu Panda) ____________ _________ _________ __ Family Assistance Coordinator www.imdsa.org or beckyimdsa (DOT) org <mailto:becky% 40imdsa.org> ____________ _________ _________ __ From: " , - Kenton County " <cynthia.jones@ kenton.kyschools .us <mailto:cynthia. jones%40kenton. kyschools. us> > To: MosaicDS@yahoogroup s.com <mailto:MosaicDS% 40yahoogroups. com> Sent: Tuesday, January 20, 2009 7:40:36 AM Subject: RE: Telling our children NO, no, no, it's not a GIRL thing! We need to give our girls more confidence than that! Some people just do not have strengths in math and that is ok, but let's not convince our girls that they can't do math just because they are girls. A. Special Educator Simon Kenton High School (859)960-0348 cynthia.jones@ kenton.kyschools .us " Deaf People Can Do Anything Except Hear! " (I. King Jordan) Confidentiality Notice - This email is intended only for the person to whom it is addressed and may contain confidential information. Any unauthorized review is prohibited. If you are not the intended recipient, kindly contact the sender by reply email and destroy all copies of the original message. If you are the intended recipient, but do not wish to receive communication through this medium, please advise the sender immediately. ____________ _________ _________ __ From: MosaicDS@yahoogroup s.com [mailto:MosaicDS@ yahoogroup s.com] On Behalf Of Becky Rowe Sent: Tuesday, January 20, 2009 6:22 AM To: MosaicDS@yahoogroup s.com Subject: Re: Telling our children Just my 2 cents here...I don't have MDS and I struggle in math daily! So , you tell your that a Mom with 2 kids that graduated HS 20 years ago still struggles with math....that it's just a " girl " thing LOL Blessings Abound, (Becky) Rowe Mom to Trey (8 ADHD) & Austin (6 MDS) " Yesterday is history, tomorrow is a mystery, but today is a gift, that is why it is called the present " --(Master Oogway, Kung Fu Panda) ____________ _________ _________ __ Family Assistance Coordinator www.imdsa.org or beckyimdsa (DOT) org <mailto:becky% 40imdsa.org> ____________ _________ _________ __ From: <kcrdibellsouth (DOT) net <mailto:kcrdi% 40bellsouth. net> > To: MosaicDS@yahoogroup s.com <mailto:MosaicDS% 40yahoogroups. com> Sent: Monday, January 19, 2009 11:15:51 AM Subject: Re: Telling our children Pattie, I know it's difficult when you have outside influences, but remember to always do what YOU feel is right. Nobody really know what's right for each individual. I believe each situation is different. No, has NEVER had any problem knowing that she has MDS. She has trouble with math and I told her that it just kind of goes along with MDS and it just means that she will have to try harder in that area. I also told her that everyone has some kind of special characteristic. Sometimes we realize it and sometimes we don't. But everyone has something. I think that kept her from feeling so isolated. Our is the happiest and most positve human being I have known. I have always been so glad that we told her at a young age. Telling our children Hello, This is Pattie, mom to 12. For many reasons we have not yet told our daughter about her diagnosis. was diagnosed at one and has virtually no facial features that are associated with DS or MDS. For , learning disabilities and mild SP/L seem to be her challenges. I am interested in hearing from other parents and caregivers on how they handled this, what ages, how did you explain it to them and how they responded. I am also interested in hearing from the folks whose children are older now. Pattie ------------ --------- --------- --------- --------- --------- - No virus found in this incoming message. Checked by AVG - http://www.avg. com Version: 8.0.176 / Virus Database: 270.10.8/1899 - Release Date: 1/17/2009 5:50 PM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2009 Report Share Posted January 20, 2009 or you can marry an accountant like I did... :-) Suzanne W > > No upset feelings here LOL > Maybe instead of saying " a girl thing " I should have said a " who- ever " thing. Meaning that it was just a quirk one has... > I think I try to make light of serious situations because depending on the situation, it may not be that serious. What one perceives as serious another may not. I consider my struggle in Math my own little " quirk " and over look it by the fact I do much better in English. > Not saying that it doesn't bug me that I struggle in Math, certain times it does, but I don't let it " control " my life....I tend to look at all the other things I CAN do rather than those I cannot...for those things I cannot do are very few and aren't all that significant, mere speed bumps in life. > Eh, so I can't add on the spot..I try..then use a calculator LOL > > Blessings Abound, > (Becky) Rowe > Mom to Trey (8 ADHD) & Austin (6 MDS) > " Yesterday is history, tomorrow is a mystery, but today is a gift, that is why it is called the present " --(Master Oogway, Kung Fu Panda) > ________________________________ > > Family Assistance Coordinator > www.imdsa.org or becky@... > > > > > ________________________________ > > To: MosaicDS > Sent: Tuesday, January 20, 2009 9:48:57 AM > Subject: RE: Telling our children > > > Oh, Becky, I wasn't upset with you. :-) I just had to say what I did. > I think telling a girl she can't do math because she is a girl is like > telling a kid with a learning disability he can't go to college because > he has a learning disability. I think it's perfectly fine to teach a > child to capitalize on his/her strengths and I believe it's important to > be honest with a child if they have a disorder or a disability. I just > don't think it's a good idea to plant the seed that certain academic > strengths are " gender specific. " I hope I didn't offend you with my > response. :-) > > A. > > Special Educator > > Simon Kenton High School > > (859)960-0348 > > cynthia.jones@ kenton.kyschools .us > > " Deaf People Can Do Anything Except Hear! " (I. King Jordan) > > Confidentiality Notice - This email is intended only for the person to > whom it is addressed and may contain confidential information. Any > unauthorized review is prohibited. If you are not the intended > recipient, kindly contact the sender by reply email and destroy all > copies of the original message. If you are the intended recipient, but > do not wish to receive communication through this medium, please advise > the sender immediately. > > ____________ _________ _________ __ > > From: MosaicDS@yahoogroup s.com [mailto:MosaicDS@yahoogroup s.com] On > Behalf Of Becky Rowe > Sent: Tuesday, January 20, 2009 8:08 AM > To: MosaicDS@yahoogroup s.com > Subject: Re: Telling our children > > , > I forget that my sense of humor doesn't carry through in emails...... > You're right, it's not a " girl " thing, it's an " everybody " thing.....I' m > better in english than math....that' s just a " Becky " thing.... > Newman was a great actor, race car driver, business owner and > philanthropist, that was his " thing " . We are all great in somethings, > others, not so much. I think once we all recognize our strengths and > weaknesses, we all come out so much the better for it. > > Blessings Abound, > (Becky) Rowe > Mom to Trey (8 ADHD) & Austin (6 MDS) > " Yesterday is history, tomorrow is a mystery, but today is a gift, that > is why it is called the present " --(Master Oogway, Kung Fu Panda) > ____________ _________ _________ __ > > Family Assistance Coordinator > www.imdsa.org or beckyimdsa (DOT) org <mailto:becky% 40imdsa.org> > > ____________ _________ _________ __ > From: " , - Kenton County " > <cynthia.jones@ kenton.kyschools .us > <mailto:cynthia. jones%40kenton. kyschools. us> > > To: MosaicDS@yahoogroup s.com <mailto:MosaicDS% 40yahoogroups. com> > Sent: Tuesday, January 20, 2009 7:40:36 AM > Subject: RE: Telling our children > > NO, no, no, it's not a GIRL thing! We need to give our girls more > confidence than that! Some people just do not have strengths in math > and that is ok, but let's not convince our girls that they can't do math > just because they are girls. > > A. > > Special Educator > > Simon Kenton High School > > (859)960-0348 > > cynthia.jones@ kenton.kyschools .us > > " Deaf People Can Do Anything Except Hear! " (I. King Jordan) > > Confidentiality Notice - This email is intended only for the person to > whom it is addressed and may contain confidential information. Any > unauthorized review is prohibited. If you are not the intended > recipient, kindly contact the sender by reply email and destroy all > copies of the original message. If you are the intended recipient, but > do not wish to receive communication through this medium, please advise > the sender immediately. > > ____________ _________ _________ __ > > From: MosaicDS@yahoogroup s.com [mailto:MosaicDS@ yahoogroup s.com] On > Behalf Of Becky Rowe > Sent: Tuesday, January 20, 2009 6:22 AM > To: MosaicDS@yahoogroup s.com > Subject: Re: Telling our children > > Just my 2 cents here...I don't have MDS and I struggle in math daily! So > , you tell your that a Mom with 2 kids that graduated HS 20 > years ago still struggles with math....that it's just a " girl " thing LOL > > Blessings Abound, > (Becky) Rowe > Mom to Trey (8 ADHD) & Austin (6 MDS) > " Yesterday is history, tomorrow is a mystery, but today is a gift, that > is why it is called the present " --(Master Oogway, Kung Fu Panda) > ____________ _________ _________ __ > > Family Assistance Coordinator > www.imdsa.org or beckyimdsa (DOT) org <mailto:becky% 40imdsa.org> > > ____________ _________ _________ __ > From: <kcrdibellsouth (DOT) net <mailto:kcrdi% 40bellsouth. > net> > > > To: MosaicDS@yahoogroup s.com <mailto:MosaicDS% 40yahoogroups. com> > Sent: Monday, January 19, 2009 11:15:51 AM > Subject: Re: Telling our children > > Pattie, > I know it's difficult when you have outside influences, but remember to > always do what YOU feel is right. Nobody really know what's right for > each individual. I believe each situation is different. No, has > NEVER had any problem knowing that she has MDS. She has trouble with > math and I told her that it just kind of goes along with MDS and it just > means that she will have to try harder in that area. I also told her > that everyone has some kind of special characteristic. Sometimes we > realize it and sometimes we don't. But everyone has something. I think > that kept her from feeling so isolated. Our is the happiest and > most positve human being I have known. I have always been so glad that > we told her at a young age. > > > Telling our children > > Hello, > > This is Pattie, mom to 12. For many reasons we have not yet > > told our daughter about her diagnosis. was diagnosed at one > > and has virtually no facial features that are associated with DS or > > MDS. For , learning disabilities and mild SP/L seem to be her > > challenges. I am interested in hearing from other parents and > > caregivers on how they handled this, what ages, how did you explain it > > to them and how they responded. I am also interested in hearing from > > the folks whose children are older now. > > Pattie > > ------------ --------- --------- --------- --------- --------- - > > No virus found in this incoming message. > > Checked by AVG - http://www.avg. com > > Version: 8.0.176 / Virus Database: 270.10.8/1899 - Release Date: > 1/17/2009 5:50 PM > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2009 Report Share Posted January 21, 2009 LOL! You get your taxes done for free! I didn't get so lucky. Plus, I'm such a nerd about the finances that I don't think I could give up control! HAHA! (I used to be a bookkeeper!) A. Special Educator Simon Kenton HS 11132 Madison Pk. Independence, KY 41051 (859)960-0348 cynthia.jones@... ________________________________ From: MosaicDS on behalf of suezanw13 Sent: Tue 1/20/2009 6:18 PM To: MosaicDS Subject: Re: Telling our children or you can marry an accountant like I did... :-) Suzanne W > > No upset feelings here LOL > Maybe instead of saying " a girl thing " I should have said a " who- ever " thing. Meaning that it was just a quirk one has... > I think I try to make light of serious situations because depending on the situation, it may not be that serious. What one perceives as serious another may not. I consider my struggle in Math my own little " quirk " and over look it by the fact I do much better in English. > Not saying that it doesn't bug me that I struggle in Math, certain times it does, but I don't let it " control " my life....I tend to look at all the other things I CAN do rather than those I cannot...for those things I cannot do are very few and aren't all that significant, mere speed bumps in life. > Eh, so I can't add on the spot..I try..then use a calculator LOL > > Blessings Abound, > (Becky) Rowe > Mom to Trey (8 ADHD) & Austin (6 MDS) > " Yesterday is history, tomorrow is a mystery, but today is a gift, that is why it is called the present " --(Master Oogway, Kung Fu Panda) > ________________________________ > > Family Assistance Coordinator > www.imdsa.org or becky@... > > > > > ________________________________ > > To: MosaicDS <mailto:MosaicDS%40yahoogroups.com> > Sent: Tuesday, January 20, 2009 9:48:57 AM > Subject: RE: Telling our children > > > Oh, Becky, I wasn't upset with you. :-) I just had to say what I did. > I think telling a girl she can't do math because she is a girl is like > telling a kid with a learning disability he can't go to college because > he has a learning disability. I think it's perfectly fine to teach a > child to capitalize on his/her strengths and I believe it's important to > be honest with a child if they have a disorder or a disability. I just > don't think it's a good idea to plant the seed that certain academic > strengths are " gender specific. " I hope I didn't offend you with my > response. :-) > > A. > > Special Educator > > Simon Kenton High School > > (859)960-0348 > > cynthia.jones@ kenton.kyschools .us > > " Deaf People Can Do Anything Except Hear! " (I. King Jordan) > > Confidentiality Notice - This email is intended only for the person to > whom it is addressed and may contain confidential information. Any > unauthorized review is prohibited. If you are not the intended > recipient, kindly contact the sender by reply email and destroy all > copies of the original message. If you are the intended recipient, but > do not wish to receive communication through this medium, please advise > the sender immediately. > > ____________ _________ _________ __ > > From: MosaicDS@yahoogroup s.com [mailto:MosaicDS@yahoogroup s.com] On > Behalf Of Becky Rowe > Sent: Tuesday, January 20, 2009 8:08 AM > To: MosaicDS@yahoogroup s.com > Subject: Re: Telling our children > > , > I forget that my sense of humor doesn't carry through in emails...... > You're right, it's not a " girl " thing, it's an " everybody " thing.....I' m > better in english than math....that' s just a " Becky " thing.... > Newman was a great actor, race car driver, business owner and > philanthropist, that was his " thing " . We are all great in somethings, > others, not so much. I think once we all recognize our strengths and > weaknesses, we all come out so much the better for it. > > Blessings Abound, > (Becky) Rowe > Mom to Trey (8 ADHD) & Austin (6 MDS) > " Yesterday is history, tomorrow is a mystery, but today is a gift, that > is why it is called the present " --(Master Oogway, Kung Fu Panda) > ____________ _________ _________ __ > > Family Assistance Coordinator > www.imdsa.org or beckyimdsa (DOT) org <mailto:becky% 40imdsa.org> > > ____________ _________ _________ __ > From: " , - Kenton County " > <cynthia.jones@ kenton.kyschools .us > <mailto:cynthia. jones%40kenton. kyschools. us> > > To: MosaicDS@yahoogroup s.com <mailto:MosaicDS% 40yahoogroups. com> > Sent: Tuesday, January 20, 2009 7:40:36 AM > Subject: RE: Telling our children > > NO, no, no, it's not a GIRL thing! We need to give our girls more > confidence than that! Some people just do not have strengths in math > and that is ok, but let's not convince our girls that they can't do math > just because they are girls. > > A. > > Special Educator > > Simon Kenton High School > > (859)960-0348 > > cynthia.jones@ kenton.kyschools .us > > " Deaf People Can Do Anything Except Hear! " (I. King Jordan) > > Confidentiality Notice - This email is intended only for the person to > whom it is addressed and may contain confidential information. Any > unauthorized review is prohibited. If you are not the intended > recipient, kindly contact the sender by reply email and destroy all > copies of the original message. If you are the intended recipient, but > do not wish to receive communication through this medium, please advise > the sender immediately. > > ____________ _________ _________ __ > > From: MosaicDS@yahoogroup s.com [mailto:MosaicDS@ yahoogroup s.com] On > Behalf Of Becky Rowe > Sent: Tuesday, January 20, 2009 6:22 AM > To: MosaicDS@yahoogroup s.com > Subject: Re: Telling our children > > Just my 2 cents here...I don't have MDS and I struggle in math daily! So > , you tell your that a Mom with 2 kids that graduated HS 20 > years ago still struggles with math....that it's just a " girl " thing LOL > > Blessings Abound, > (Becky) Rowe > Mom to Trey (8 ADHD) & Austin (6 MDS) > " Yesterday is history, tomorrow is a mystery, but today is a gift, that > is why it is called the present " --(Master Oogway, Kung Fu Panda) > ____________ _________ _________ __ > > Family Assistance Coordinator > www.imdsa.org or beckyimdsa (DOT) org <mailto:becky% 40imdsa.org> > > ____________ _________ _________ __ > From: <kcrdibellsouth (DOT) net <mailto:kcrdi% 40bellsouth. > net> > > > To: MosaicDS@yahoogroup s.com <mailto:MosaicDS% 40yahoogroups. com> > Sent: Monday, January 19, 2009 11:15:51 AM > Subject: Re: Telling our children > > Pattie, > I know it's difficult when you have outside influences, but remember to > always do what YOU feel is right. Nobody really know what's right for > each individual. I believe each situation is different. No, has > NEVER had any problem knowing that she has MDS. She has trouble with > math and I told her that it just kind of goes along with MDS and it just > means that she will have to try harder in that area. I also told her > that everyone has some kind of special characteristic. Sometimes we > realize it and sometimes we don't. But everyone has something. I think > that kept her from feeling so isolated. Our is the happiest and > most positve human being I have known. I have always been so glad that > we told her at a young age. > > > Telling our children > > Hello, > > This is Pattie, mom to 12. For many reasons we have not yet > > told our daughter about her diagnosis. was diagnosed at one > > and has virtually no facial features that are associated with DS or > > MDS. For , learning disabilities and mild SP/L seem to be her > > challenges. I am interested in hearing from other parents and > > caregivers on how they handled this, what ages, how did you explain it > > to them and how they responded. I am also interested in hearing from > > the folks whose children are older now. > > Pattie > > ------------ --------- --------- --------- --------- --------- - > > No virus found in this incoming message. > > Checked by AVG - http://www.avg. <http://www.avg./> com > > Version: 8.0.176 / Virus Database: 270.10.8/1899 - Release Date: > 1/17/2009 5:50 PM > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2009 Report Share Posted January 21, 2009 Suzanne, me too! That is too funny! I remember we went bowling our second date and I was in need of a calculator. I loved that he new our totals before me. LOL So, I threw on the charm and here we are 18 years later! LOL Beets Re: Telling our children > > Pattie, > I know it's difficult when you have outside influences, but remember to > always do what YOU feel is right. Nobody really know what's right for > each individual. I believe each situation is different. No, has > NEVER had any problem knowing that she has MDS. She has trouble with > math and I told her that it just kind of goes along with MDS and it just > means that she will have to try harder in that area. I also told her > that everyone has some kind of special characteristic. Sometimes we > realize it and sometimes we don't. But everyone has something. I think > that kept her from feeling so isolated. Our is the happiest and > most positve human being I have known. I have always been so glad that > we told her at a young age. > > > Telling our children > > Hello, > > This is Pattie, mom to 12. For many reasons we have not yet > > told our daughter about her diagnosis. was diagnosed at one > > and has virtually no facial features that are associated with DS or > > MDS. For , learning disabilities and mild SP/L seem to be her > > challenges. I am interested in hearing from other parents and > > caregivers on how they handled this, what ages, how did you explain it > > to them and how they responded. I am also interested in hearing from > > the folks whose children are older now. > > Pattie > > ------------ --------- --------- --------- --------- --------- - > > No virus found in this incoming message. > > Checked by AVG - http://www.avg. com > > Version: 8.0.176 / Virus Database: 270.10.8/1899 - Release Date: > 1/17/2009 5:50 PM > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2009 Report Share Posted January 21, 2009 IMO, if your child is old enough to realize that she struggles with things that other kids do not, or that she is " different " in some way, then it is time to tell him/her that he/she has mDS. If your child is aware of these differences between himself and other kids, then he is probably wondering/worrying what is wrong with himself. Would you rather have him think that he is just not as good as the other kids, lazy, not trying hard enough? Or that there is a medical reason that some things are harder for him? If you haven't given your child an explanation for his differences, then rest assured that he has come up with his own explanation for the differences. Hearing that he has mDS would probably be a relief for him! When my daughter was in 4th grade, she became very aware of how much harder math was for her than for other kids. She would pound on her forehead and say things like " I wish I had a better brain! " when she was trying to do her homework. She felt so bad, and had jumped to the conclusion that she was just " stupid. " And this was even though she'd already been told that she had DS. At this stage, we started to explain in more detail what the effects of DS were on her academic skills, and to emphasize that it was NOT her fault that math was harder for her. Once she truly understood that she had a genetic reason for having difficulties for some things, never used that as an excuse not to try hard. In fact, if anything, knowing that she has this challenge motivates her to try harder than ever before. At this moment, in fact, she's at school slaving over her final exam in 10th grade Biology. She knows she gets extra time because she has DS, and she will not stop working on that exam until she's used up every minute allotted to her. My best guess is that she'll make a B or a C on it.... Stokes Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2009 Report Share Posted January 22, 2009 HeeHee How great is it not to have to worry about taxes right now! But I guess you are a " tax widow " too for the next 3 months!! There are a couple of drawbacks to marrying an accountant though- he makes me save EVERY receipt and he rolls his eyes a lot when I hand him the restaurant bill to fill in the amount for tip!! haha. I actually caught myself the other day counting on my fingers! (and I was a Calculus AP student!!) So sad! Suzanne (mom to Zoe, 18 mos, MDS) > > > > No upset feelings here LOL > > Maybe instead of saying " a girl thing " I should have said a " who- > ever " thing. Meaning that it was just a quirk one has... > > I think I try to make light of serious situations because depending > on the situation, it may not be that serious. What one perceives as > serious another may not. I consider my struggle in Math my own > little " quirk " and over look it by the fact I do much better in > English. > > Not saying that it doesn't bug me that I struggle in Math, certain > times it does, but I don't let it " control " my life....I tend to look > at all the other things I CAN do rather than those I cannot...for > those things I cannot do are very few and aren't all that > significant, mere speed bumps in life. > > Eh, so I can't add on the spot..I try..then use a calculator LOL > >  > > Blessings Abound, > > > (Becky) Rowe > > Mom to Trey (8 ADHD) & Austin (6 MDS) > > " Yesterday is history, tomorrow is a mystery, but today is a gift, > that is why it is called the present " --(Master Oogway, Kung Fu Panda) > > ________________________________ > > > > Family Assistance Coordinator > >  www.imdsa.org or becky@  > > > > > > > > > > ________________________________ > > From: " , - Kenton County " <cynthia.jones@> > > To: MosaicDS > > Sent: Tuesday, January 20, 2009 9:48:57 AM > > Subject: RE: Telling our children > > > > > > Oh, Becky, I wasn't upset with you. :-) I just had to say what I > did. > > I think telling a girl she can't do math because she is a girl is > like > > telling a kid with a learning disability he can't go to college > because > > he has a learning disability. I think it's perfectly fine to teach a > > child to capitalize on his/her strengths and I believe it's > important to > > be honest with a child if they have a disorder or a disability. I > just > > don't think it's a good idea to plant the seed that certain academic > > strengths are " gender specific. " I hope I didn't offend you with my > > response. :-) > > > > A. > > > > Special Educator > > > > Simon Kenton High School > > > > (859)960-0348 > > > > cynthia.jones@ kenton.kyschools .us > > > > " Deaf People Can Do Anything Except Hear! " (I. King Jordan) > > > > Confidentiality Notice - This email is intended only for the person > > > to > > whom it is addressed and may contain confidential information. Any > > unauthorized review is prohibited. If you are not the intended > > recipient, kindly contact the sender by reply email and destroy all > > copies of the original message. If you are the intended recipient, > but > > do not wish to receive communication through this medium, please > advise > > the sender immediately. > > > > ____________ _________ _________ __ > > > > From: MosaicDS@yahoogroup s.com [mailto:MosaicDS@yahoogroup s.com] > On > > Behalf Of Becky Rowe > > Sent: Tuesday, January 20, 2009 8:08 AM > > To: MosaicDS@yahoogroup s.com > > Subject: Re: Telling our children > > > > , > > I forget that my sense of humor doesn't carry through in > emails...... > > You're right, it's not a " girl " thing, it's an " everybody " > thing.....I' m > > better in english than math....that' s just a " Becky " thing.... > > Newman was a great actor, race car driver, business owner and > > philanthropist, that was his " thing " . We are all great in > somethings, > > others, not so much. I think once we all recognize our strengths and > > weaknesses, we all come out so much the better for it. > > > > Blessings Abound, > > (Becky) Rowe > > Mom to Trey (8 ADHD) & Austin (6 MDS) > > " Yesterday is history, tomorrow is a mystery, but today is a gift, > that > > is why it is called the present " --(Master Oogway, Kung Fu Panda) > > ____________ _________ _________ __ > > > > Family Assistance Coordinator > >=2 > 0www.imdsa.org or beckyimdsa (DOT) org <mailto:becky% 40imdsa.org> > > > > ____________ _________ _________ __ > > From: " , - Kenton County " > > <cynthia.jones@ kenton.kyschools .us > > <mailto:cynthia. jones%40kenton. kyschools. us> > > > To: MosaicDS@yahoogroup s.com <mailto:MosaicDS% 40yahoogroups. com> > > Sent: Tuesday, January 20, 2009 7:40:36 AM > > Subject: RE: Telling our children > > > > NO, no, no, it's not a GIRL thing! We need to give our girls more > > confidence than that! Some people just do not have strengths in math > > and that is ok, but let's not convince our girls that they can't do > math > > just because they are girls. > > > > A. > > > > Special Educator > > > > Simon Kenton High School > > > > (859)960-0348 > > > > cynthia.jones@ kenton.kyschools .us > > > > " Deaf People Can Do Anything Except Hear! " (I. King Jordan) > > > > Confidentiality Notice - This email is intended only for the person > to > > whom it is addressed and may contain confidential information. Any > > unauthorized review is prohibited. If you are not the intended > > recipient, kindly contact the sender by reply email and destroy all > > copies of the original message. If you are the intended recipient, > but > > do not wish to receive communication through this medium, please > advise > > the sender immediately. > > > > ____________ _________ _________ __ > > > > From: MosaicDS@yahoogroup s.com [mailto:MosaicDS@ yahoogroup s.com] > On > > Behalf Of Becky Rowe > > Sent: Tuesday, > January 20, 2009 6:22 AM > > To: MosaicDS@yahoogroup s.com > > Subject: Re: Telling our children > > > > Just my 2 cents here...I don't have MDS and I struggle in math > daily! So > > , you tell your that a Mom with 2 kids that graduated > HS 20 > > years ago still struggles with math....that it's just a " girl " > thing LOL > > > > Blessings Abound, > > (Becky) Rowe > > Mom to Trey (8 ADHD) & Austin (6 MDS) > > " Yesterday is history, tomorrow is a mystery, but today is a gift, > that > > is why it is called the present " --(Master Oogway, Kung Fu Panda) > > ____________ _________ _________ __ > > > > Family Assistance Coordinator > > www.imdsa.org or beckyimdsa (DOT) org <mailto:becky% 40imdsa.org> > > > > ____________ _________ _________ __ > > From: <kcrdibellsouth (DOT) net <mailto:kcrdi% > 40bellsouth. > > net> > > > > > To: MosaicDS@yahoogroup s.com <mailto:MosaicDS% 40yahoogroups. com> > > Sent: Monday, January 19, 2009 11:15:51 AM > > Subject: Re: Telling our children > > > > Pattie, > > I know it's difficult when you have outside influences, but > remember to > > always do what YOU feel is right. Nobody really know what's right > for > > each individual. I believe each situation is different. No, > has > > NEVER had any problem knowing that she has MDS. She has trouble with > > math and I told her that it just kind of goes along with MDS and it > just > > means that she will have to try harder in that area. I also told her > > > that everyone has some kind of special characteristic. Sometimes we > > realize it and sometimes we don't. But everyone has something. I > think > > that kept her from feeling so isolated. Our is the happiest > and > > most positve human being I have known. I have always been so glad > that > > we told her at a young age. > > > > > > Telling our children > > > > Hello, > > > > This is Pattie, mom to 12. For many reasons we have not yet > > > > told our daughter about her diagnosis. was diagnosed at one > > > > and has virtually no facial features that are associated with DS or > > > > MDS. For , learning disabilities and mild SP/L seem to be her > > > > challenges. I am interested in hearing from other parents and > > > > caregivers on how they handled this, what ages, how did you explain > it > > > > to them and how they responded. I am also interested in hearing from > > > > the folks whose children are older now. > > > > Pattie > > > > ------------ --------- --------- --------- --------- --------- - > > > > No virus found in this incoming message. > > > > Checked by AVG - http://www.avg. com > > > > Version: 8.0.176 / Virus Database: 270.10.8/1899 - Release > Date: > > 1/17/2009 5:50 PM > > > > Quote Link to comment Share on other sites More sharing options...
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