Roll Call

[Guest guest]

Hello from the Soto Ramos family. We are a family of six in

Michigan. Laila 15(born with bilateral cleft lip and palate)

14 (obnoxious teen) Rhaisa 10 (thinks she's awesome) and Aniza 3

(MDS) My husband and I are both full time premed students. At one

point I tried serving as National Vice President to IMDSA but, life

got in the way. I hope to one day be able to serve the organization

again in any way. Well, enough about us. Aniza is now 3, we found

out about her condition when she was about 17 months old. (Our story

is on Mosaic Moments) She seems to have difficulties with her speech

even though she knows how to get exactly what she wants when she

wants. We are celebrating that this week she said two complete

sentences. She made a huge mess in the bathroom and when I asked

what happened here? She smiled and said I did that! And then she

locked herself and the cat in the laundry room and started

screaming " Open the door!! " So to say the least, we are very

excited. Otherwise, she seems to be quite healthy. She doesn't seem

to have any heart condition or any delays in any other skill area.

So we are holding on to the hope that this will be her only delay.

Besides that she loves music, dancing and singing. She also loves

having her picture taken and taking pictures. The local paper has

done a story on her and she now thinks she's the local celeb. And so

do we!! At least she's the celeb in our family. She's one big ham

and I don't think our lives would be this wonderful without her. Our

teens adore her and their lives revolve around her. And our 10 year

old is her best friend. We hope that life is pretty normal for her,

but if it's not, we will tailor ours to hers. It's been great

reading about all of you.