Guest guest Posted March 5, 2004 Report Share Posted March 5, 2004 because of MS being able to go from bad to good. I have never been told this...only that I cannot expect to get better than I am overall.....maybe slow the progression.....and some days better than others.... Beverlyhttp://www.parsonwhitestudios.com/- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2004 Report Share Posted March 5, 2004 Beverly I liked your friends singing. thanks, Bill...she is so talented...sings, writes, plays guitar and flute..... Beverlyhttp://www.parsonwhitestudios.com/- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2004 Report Share Posted March 5, 2004 For some who are new to the group. We recently had a disability attorney at our local MS support group and one thing she said that is important is that if you become ill due to your MS and have to leave work you should apply with Social Security as soon as you can. There is a waiting period after applying before you can even qualify for Social Security but what they will do when you do get approved for Social Security is if they can determine you should have started receiving Social Security when you first applied they can back pay you up to that point. I was lucky to have gotten my SS the forst time but many have trouble getting it. I know you will find in our group different stories how people have dealt with Social Security. I was an electronic tech for many years and paid my Social Security all those years so I don't feel bad about being able to make use of it now. I guess you can say I retired at an early age. Bill Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2004 Report Share Posted March 5, 2004 My first 6 months after getting my MS in Aug of 99 I was dumb to MS and all I ever really focused on was that a recovery can take place. I even told people at work I will be back as soon as I can. I still feel like a liar, my recovery I was hoping for never happened. I guess it took me 6 month's to figure out this was more than just having a bad cold. I did recently have a plumber fix my leaky pipe after learning I have MS like he does. He surprised me when he said he had MS also because he looked so healthy. He does not even take any of the MS meds but he does do a lot of exercising and watches his diet well. The company I worked for was the Critical Parts Center in Indianapolis. They repair broken postal equipment. I repaired a lot of computer monitors my last year there. When the Anthrax was going on the CPC was hit with the Anthrax as well. They had a printer that came to them broken from New Jersey. I was happy no one was hurt. Beverly I liked your friends singing. Bill Re: Social Security because of MS being able to go from bad to good. I have never been told this...only that I cannot expect to get better than I am overall.....maybe slow the progression.....and some days better than others.... Beverlyhttp://www.parsonwhitestudios.com/- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2004 Report Share Posted March 5, 2004 Beverly, I went down hill for years(1983 diagnosed...1988 bedridden) and then I had huge episode of really bad health(1992-1994 very sick) and since then it is improving very slowly. In 1997 I managed to sit in the wheelchair 3 hours a day and went to evening school for 3 years, in 1998 I started sitting in the wheechair whole day, the fatigue left me about then as well.The writing started improving after 2000. Since 2002 I manage to crochet and sew on sewing machine, using my elbow to press the pedal. In 1987 I was on 10 months of steroid treatment in Prague, which I think it even made my MS worse, but if I did not try something I would probably blame myself till today, now I know I made a mistake. Those two years I was very sick, I believe was withdrawal syndrom from the steroids. I had 8 spinal taps, 4 steroids, 4 Imuran, one month IV steroids and 1 year oral steroids. I only use supplements, like vitamins, minerals, herbs, oils and BBDiet. I do not excercise, although I should, I do not have too much motivation, but I keep busy, trying to prepare everything in the kitchen what my wheelchair state allows. I am up from 7 am to 9,10,11pm. I do not rest during the day at all. Zora Trinidad WI > In a message dated 3/5/04 11:14:32 AM Central Standard Time, > wj.foulke@i... writes: > because of MS being able to go from bad to good. > I have never been told this...only that I cannot expect to get better than I > am overall.....maybe slow the progression.....and some days better than > others.... > > Beverly > http://www.parsonwhitestudios.com/ > - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2004 Report Share Posted March 5, 2004 Bev, know wot? I guess I´m having a small better: I don´t need wheelchair in my home. I can move holding on walls or table, doors. I can stand up 4 few minutes alone. I don´t believe in my cure but I guess, having my online fridens is helping me! LOVE, Andreiahttp://msmemoriesandthoughts.bravehost.com Re: Social Security because of MS being able to go from bad to good. I have never been told this...only that I cannot expect to get better than I am overall.....maybe slow the progression.....and some days better than others.... Beverlyhttp://www.parsonwhitestudios.com/- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2011 Report Share Posted November 5, 2011 i too was turned down at first i was approved after 6 total months of waiting but no back pay b ecause there was not enough time between my approval and my check Quote Link to comment Share on other sites More sharing options...
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