Guest guest Posted March 4, 2004 Report Share Posted March 4, 2004 Michele, you are NOT alone that's for sure! We won't let you be alone. You're not imagining the things either. I'm the first in my family to have MS. I was the first in my family to have crohns disease also. I tell people it had to start somewhere I guess....lol I don't have kids so it won't go any further because of me either. Just hang tight until your appt. Write EVERY thing down. You will NOT remember it in the doc's office. Are you keeping a journal? MS most likely is auto immune. Good luck! And let us know how your appt goes. With my cognitive I won't remember...lol I just got lost in thought. It was unfamiliar territory. -- little frustrated Well, I see a Neuro on March 25, don't have a set time yet, MD's office setting it up. We have specialty clinics in town a few times a month, so I won't have to drive very far. Getting anxious. Last night I had a new symptom, shooting pains across my head, once above each eye, then across the right side. They didn't last long, but man did they hurt!My dad said he didn't think it could be MS as there is no family history that he knows of. MS doesn't have to be genetic related, does it? Does anyone have info on other nuerological issues/conditions that are like this besides MS? I have eliminated autoimmune stuff, I think.In the meantime, if anybody has any advice for me, I would appreciate it. My right foot tingles all the time. Whenever I am sitting still, I bounce it to try to disguise the irritating sensation. My husband is losing patience with me some times. I find myself forgetting stuff that I said or did....Anyway, thanks for listening! I appreciate it very much. It helps to know I am not alone, or imagining things going on in my body that people cannot see.Michele in Nebraska ____________________________________________________ IncrediMail - Email has finally evolved - Click Here Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2004 Report Share Posted March 4, 2004 My dad said he didn't think it could be MS as there is no family history that he knows of. MS doesn't have to be genetic related, does it? Does anyone have info on other nuerological issues/conditions that are like this besides MS? I have eliminated autoimmune stuff, I think. No, MS does not have to be genetic. There is no MS in my family. Other conditions that can mimic MS are Lupus, Lyme disease and Guillame Barre (I can't think of any others, but these can cause numbness in the extremeties among other symptoms). I was tested for all these and more before I was dx with RRMS. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2004 Report Share Posted March 5, 2004 Thanks , I have been tested for ANA, Sed Rate, Thyroid and Glucose. The lab did an ANA, and broke it down testing for specifics. The Rhuematologist feels it is Neurological, not like Lupus and the other common autoimmune things. I know that MS is considered to be autoimmune, but I thought I read somewhere that not all MS people have a positive ANA. I have not been tested for Lyme, but have not been exposed to it. The Guillian Barr seems to move more rapidly than what I'm dealing with, but until I see the Neuro, I can only research, keep a journal, and try to be patient! Thanks for the support! Michele > In a message dated 3/4/2004 8:26:04 PM Eastern o be genetic related, does > it? Does anyone have info on other nuerological issues/conditions > that are like this besides MS? I have eliminated autoimmune stuff, I > think. > No, MS does not have to be genetic. There is no MS in my family. > > Other conditions that can mimic MS are Lupus, Lyme disease and Guillame Barre > (I can't think of any others, but these can cause numbness in the extremeties > among other symptoms). I was tested for all these and more before I was dx > with RRMS. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2004 Report Share Posted March 5, 2004 Thanks! The validation of others does help tremendously! I have written a " timeline " which I gave to the Rheumatologist, and will add to it so that when I see the Neuro it will be as complete as I can make it. I have problems keeping a journal since writing can be hard, most of the time when I use a pen it is to write letters to my son in Basic Training, lol. I guess I was just feeling down yesterday, work is getting harder, my daughter is being difficult, and my husband seems to think that rather than making things easier for me, I should make them more challenging, like keeping my drinking water in the garage rather than the house, so I have to go farther for it. He just doesn't get it since he has always been very healthy, and never dealt with chronic pain. He is usually really great, but this is beyond his understanding sometimes. Anyway, thanks for letting me vent! I needed it, and hope you all don't mind...feel free to vent back at me, Michele > > > Michele, you are NOT alone that's for sure! We won't let you be alone. > You're not imagining the things either. > > I'm the first in my family to have MS. I was the first in my family to have > crohns disease also. I tell people it had to start somewhere I guess....lol > I don't have kids so it won't go any further because of me either. > > Just hang tight until your appt. Write EVERY thing down. You will NOT > remember it in the doc's office. Are you keeping a journal? MS most likely > is auto immune. > Good luck! And let us know how your appt goes. With my cognitive I won't > remember...lol > > I just got lost in thought. It was unfamiliar territory. > -- little frustrated > > Well, I see a Neuro on March 25, don't have a set time yet, MD's > office setting it up. We have specialty clinics in town a few times a > month, so I won't have to drive very far. Getting anxious. Last night > I had a new symptom, shooting pains across my head, once above each > eye, then across the right side. They didn't last long, but man did > they hurt! > > My dad said he didn't think it could be MS as there is no family > history that he knows of. MS doesn't have to be genetic related, does > it? Does anyone have info on other nuerological issues/conditions > that are like this besides MS? I have eliminated autoimmune stuff, I > think. > > In the meantime, if anybody has any advice for me, I would appreciate > it. My right foot tingles all the time. Whenever I am sitting still, > I bounce it to try to disguise the irritating sensation. My husband > is losing patience with me some times. I find myself forgetting stuff > that I said or did.... > > Anyway, thanks for listening! I appreciate it very much. It helps to > know I am not alone, or imagining things going on in my body that > people cannot see. > > Michele in Nebraska > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2004 Report Share Posted March 5, 2004 , I´m here 4u! LOVE, Andreiahttp://msmemoriesandthoughts.bravehost.com little frustrated Well, I see a Neuro on March 25, don't have a set time yet, MD's office setting it up. We have specialty clinics in town a few times a month, so I won't have to drive very far. Getting anxious. Last night I had a new symptom, shooting pains across my head, once above each eye, then across the right side. They didn't last long, but man did they hurt!My dad said he didn't think it could be MS as there is no family history that he knows of. MS doesn't have to be genetic related, does it? Does anyone have info on other nuerological issues/conditions that are like this besides MS? I have eliminated autoimmune stuff, I think.In the meantime, if anybody has any advice for me, I would appreciate it. My right foot tingles all the time. Whenever I am sitting still, I bounce it to try to disguise the irritating sensation. My husband is losing patience with me some times. I find myself forgetting stuff that I said or did....Anyway, thanks for listening! I appreciate it very much. It helps to know I am not alone, or imagining things going on in my body that people cannot see.Michele in Nebraska ____________________________________________________ IncrediMail - Email has finally evolved - Click Here Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2004 Report Share Posted March 5, 2004 Anybody else heard the same or differently? The further from the equator you live increases your chances. If you had a dog as a child.If you are female. If you live in an industrialized country. If you have bad teeth. As was pointed out recently, severe emotional trauma. Genetics is a factor, you have a better chance of having it if its in the family I think the above is a JOKE, at least it sounds like it to me, like someone had to much time on their hands...sorry but I don't buy that for one moment. However to answer your Question , I am the ONLY person in my family who has MS, but I am not the only one in my family who has an AUTOIMMUNE disease. See, the autoimmune disease I have shows as MS...My Dad and Grandmother have and Autoimmune disease and in both it shows as GOUT. Also, in my opinion another thing you can do when talking to your dad or other family member, Is show them that Scientists are finding more and more that it can be and is in most cases genetics. Plus they are working on PROVING that right now!! I happen to believe it is, just based on the autoimmune part, not the MS part!! I think it is the fact that is an AUTOIMMUNE disease, not that it shows as MS. So, you could look up how many autoimmune disease there are..minor or otherwise and then look your family history up and see if anyone present or past has had any of these things. I bet that will make you feel some better..and if you do have MS. This can be the way to educate your family and friends. http://www.nlm.nih.gov/cgi/mesh/2K/MB_cgi?term=Autoimmune+Diseases Within this link there is a list of 146 different autoimmune diseases,(I am sure there are more that 146 autoimmune diseases) things as simple as Diabetes is an autoimmune disease..So, perhaps this will help you and if it does, it can help in educating your family. This is how I did it!!! I got the ROOT of the Disease...Good Luck!! Hope This Helps!! Hugs,http://andcoverageforall.info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2004 Report Share Posted March 5, 2004 ... The only thing to me that even REMOTELY makes since to me is the genetic factor and the fact that I am a Female. But to be honest with you, I would have to see some Hard scientific PROOF of these claims. In case you haven't figured this out..I am a big skeptic!! I mean really..Does it really matter that I had a DOG or that I now live on a FARM with other animals including 2 other dogs??? I am 34 and have perfect teeth, not one cavity in any of my teeth...Things like this don't make since...And I certainly don't by this equator bit, and never lived near an industrial park...So, as a skeptic, I have to WONDER, how in the world this can be even close to scientific proof of anything!! This to me is a JOKE and I simply don't buy it. And Until I see scientific, reliable proof..You can never convince me that these are truths! See, to me this is like all those weight loss commercials...it's not uncommon to see 3-4 of them in a roll, all CLAIMING (key word there) that you will lose 20 pounds a month. Putting on actor, playing a DOCTOR, trying to comfort you into buying this potinually bad DRUG. A drug that had not been backed by the FDA. I sit there and wonder....If there really was such a WONDER drug...Why don't the Doctor's prescribe them??? BECAUSE there is Scientifically, NO DRUG that can make you lose weight, without you changing your lifestyle too, meaning your eating habits, and working out! FALSE CLAIMS, is what I see as a skeptic!! Just the thoughts of One Person!!! Hugs,http://andcoverageforall.info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2004 Report Share Posted March 5, 2004 Hey ... Don't think that you offended me...You did nothing of sort...its just that I am a Huge skeptic and I just don't buy it..thats all!! Hugs,http://andcoverageforall.info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2004 Report Share Posted March 5, 2004 Michele, NO ONE in my family at all has or has ever thought to have had MS. But now I do So that is a myth, even my dr says so. Yes it can run in families....but it doesn't for one to get it. Kim in Nebr little frustrated > Well, I see a Neuro on March 25, don't have a set time yet, MD's > office setting it up. We have specialty clinics in town a few times a > month, so I won't have to drive very far. Getting anxious. Last night > I had a new symptom, shooting pains across my head, once above each > eye, then across the right side. They didn't last long, but man did > they hurt! > > My dad said he didn't think it could be MS as there is no family > history that he knows of. MS doesn't have to be genetic related, does > it? Does anyone have info on other nuerological issues/conditions > that are like this besides MS? I have eliminated autoimmune stuff, I > think. > > In the meantime, if anybody has any advice for me, I would appreciate > it. My right foot tingles all the time. Whenever I am sitting still, > I bounce it to try to disguise the irritating sensation. My husband > is losing patience with me some times. I find myself forgetting stuff > that I said or did.... > > Anyway, thanks for listening! I appreciate it very much. It helps to > know I am not alone, or imagining things going on in my body that > people cannot see. > > Michele in Nebraska > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2004 Report Share Posted March 5, 2004 if any1 needs venting, moaning, crying or just tlking, I´m here 4u! LOVE, Andreiahttp://msmemoriesandthoughts.bravehost.com little frustrated> > Well, I see a Neuro on March 25, don't have a set time yet, MD's > office setting it up. We have specialty clinics in town a few times a > month, so I won't have to drive very far. Getting anxious. Last night > I had a new symptom, shooting pains across my head, once above each > eye, then across the right side. They didn't last long, but man did > they hurt!> > My dad said he didn't think it could be MS as there is no family > history that he knows of. MS doesn't have to be genetic related, does > it? Does anyone have info on other nuerological issues/conditions > that are like this besides MS? I have eliminated autoimmune stuff, I > think.> > In the meantime, if anybody has any advice for me, I would appreciate > it. My right foot tingles all the time. Whenever I am sitting still, > I bounce it to try to disguise the irritating sensation. My husband > is losing patience with me some times. I find myself forgetting stuff > that I said or did....> > Anyway, thanks for listening! I appreciate it very much. It helps to > know I am not alone, or imagining things going on in my body that > people cannot see.> > Michele in Nebraska> > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2004 Report Share Posted March 5, 2004 ur not imaginning anything, ! u gotta a problem that looks like MS, but, only the neuro can say it. untill, ur appt, plz, try to be calmer, cos being anxious will increase any bad simptom! there are herbs and teas that relax. why don´t u try them? LOVE, Andreiahttp://msmemoriesandthoughts.bravehost.com little frustrated Well, I see a Neuro on March 25, don't have a set time yet, MD's office setting it up. We have specialty clinics in town a few times a month, so I won't have to drive very far. Getting anxious. Last night I had a new symptom, shooting pains across my head, once above each eye, then across the right side. They didn't last long, but man did they hurt!My dad said he didn't think it could be MS as there is no family history that he knows of. MS doesn't have to be genetic related, does it? Does anyone have info on other nuerological issues/conditions that are like this besides MS? I have eliminated autoimmune stuff, I think.In the meantime, if anybody has any advice for me, I would appreciate it. My right foot tingles all the time. Whenever I am sitting still, I bounce it to try to disguise the irritating sensation. My husband is losing patience with me some times. I find myself forgetting stuff that I said or did....Anyway, thanks for listening! I appreciate it very much. It helps to know I am not alone, or imagining things going on in my body that people cannot see.Michele in Nebraska Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2004 Report Share Posted March 6, 2004 The further from the equator you live increases your chances. If you had a dog as a child.If you are female. If you live in an industrialized country. If you have bad teeth. As was pointed out recently, severe emotional trauma. Genetics is a factor, you have a better chance of having it if its in the family Statistics do in fact exist that tie all of the above to MS. What those statistics tell us is unfortunately another piece of the ms mystery. Regards, Tom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2004 Report Share Posted March 6, 2004 and , There is also some evidence that those folks that were grew up with a "Cat" in the house.........were not as likely to get ms. This is NOT a joke, there are significant statistics to support this. I know it sounds crazy......another piece of the elusive puzzle. Regards, Tom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2004 Report Share Posted March 6, 2004 hi Tom, how unluck I am! damn! 4all my life,I´ve always loved cats and they used to be wonderful with me but mum used to dislike pets! my mum just let me have Freud when I was 25, stranging this new big city. well, a real good thing of coming to Rio de Janeiro was my 4ever Freud Santos! lol LOVE, Andreiahttp://msmemoriesandthoughts.bravehost.com Re: little frustrated and , There is also some evidence that those folks that were grew up with a "Cat" in the house.........were not as likely to get ms. This is NOT a joke, there are significant statistics to support this. I know it sounds crazy......another piece of the elusive puzzle. Regards, Tom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2004 Report Share Posted March 8, 2004 I know the equator one to be true, but I'm not so sure about the others. Especially the teeth. I had perfect teeth (never saw a dentist til I was 13, and that was for a cleaning) until I started taking the pain meds. They make my mouth dry, not enough saliva to continually rinse out the bacteria that eat away at your teeth. There not that bad now, but it still bothers me because I am really anal about my teeth. May be something to the genetics: my father has 6 relatives that have/had MS. Rhonda Anybody else heard the same or differently? The further from the equator you live increases your chances. If you had a dog as a child.If you are female. If you live in an industrialized country. If you have bad teeth. As was pointed out recently, severe emotional trauma. Genetics is a factor, you have a better chance of having it if its in the family Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2004 Report Share Posted March 8, 2004 my teath r a problem now 4 the same reason, Rhonda! now, I go to the dentist once/year LOVE, Andreiahttp://msmemoriesandthoughts.bravehost.com Re: little frustrated I know the equator one to be true, but I'm not so sure about the others. Especially the teeth. I had perfect teeth (never saw a dentist til I was 13, and that was for a cleaning) until I started taking the pain meds. They make my mouth dry, not enough saliva to continually rinse out the bacteria that eat away at your teeth. There not that bad now, but it still bothers me because I am really anal about my teeth. May be something to the genetics: my father has 6 relatives that have/had MS. Rhonda Anybody else heard the same or differently? The further from the equator you live increases your chances. If you had a dog as a child.If you are female. If you live in an industrialized country. If you have bad teeth. As was pointed out recently, severe emotional trauma. Genetics is a factor, you have a better chance of having it if its in the family Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2004 Report Share Posted March 9, 2004 " The further from the equator you live increases your chances. " I live in Trinidad past 27 years I was diagnosed in 1983 in UK, where I went to find out what is wrong, then it was very unknown here as well. Now, 21 years later, I know about more and more cases. There are people who never left this island who have MS, there are people of all races ho have MS, and what is alarming the number keeps growing. Is it vitamin D? Since I was here I was on the sun all the time, but I think that doesn't count. It is true that now we are getting spoilt with air-conditioning and do not go onto the sun as before... Zora Trinidad WI Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2004 Report Share Posted March 9, 2004 Zora, once in other group, they sad "MS is desease of Scotland! Everybody with MS has family there!" not me 4sure! LOVE, Andreiahttp://msmemoriesandthoughts.bravehost.com Re: little frustrated "The further from the equator you live increases your chances."I live in Trinidad past 27 years I was diagnosed in 1983 in UK, where I went to find out what is wrong, then it was very unknown here as well.Now, 21 years later, I know about more and more cases. There are people who never left this island who have MS, there are people of all races ho have MS, and what is alarming the number keeps growing.Is it vitamin D? Since I was here I was on the sun all the time, but I think that doesn't count. It is true that now we are getting spoilt with air-conditioning and do not go onto the sun as before...ZoraTrinidadWI Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2004 Report Share Posted March 9, 2004 I do feel that environment has a lot to do with MS. Zora Trinidad WI Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2004 Report Share Posted March 10, 2004 ACCORDING TO WHAT I READ OH 10 OR 11 YEARS AGO IT IS NOT WHERE YOU ARE NOW BUT WHERE YOU SPENT THE FIRST 14 OR 15 YEARS OF YOUR LIFE. Zora wrote: "The further from the equator you live increases your chances."I live in Trinidad past 27 years I was diagnosed in 1983 in UK, where I went to find out what is wrong, then it was very unknown here as well.Now, 21 years later, I know about more and more cases. There are people who never left this island who have MS, there are people of all races ho have MS, and what is alarming the number keeps growing.Is it vitamin D? Since I was here I was on the sun all the time, but I think that doesn't count. It is true that now we are getting spoilt with air-conditioning and do not go onto the sun as before...ZoraTrinidadWI Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2004 Report Share Posted March 10, 2004 Yes, I did read that as well. I do not think it is vitamin D as the numbers are growing in Trinidad itself. We have sun here almost 365 days a year. I just hope researchers will find something encouraging.... Zora > ACCORDING TO WHAT I READ OH 10 OR 11 YEARS AGO IT IS NOT WHERE YOU ARE NOW BUT WHERE YOU SPENT THE FIRST 14 OR 15 YEARS OF YOUR LIFE. > > > > " The further from the equator you live increases your chances. " > > I live in Trinidad past 27 years I was diagnosed in 1983 in UK, > where I went to find out what is wrong, then it was very unknown > here as well. > > Now, 21 years later, I know about more and more cases. There are > people who never left this island who have MS, there are people of > all races ho have MS, and what is alarming the number keeps growing. > > Is it vitamin D? Since I was here I was on the sun all the time, > but I think that doesn't count. It is true that now we are getting > spoilt with air-conditioning and do not go onto the sun as before... > > Zora > Trinidad > WI > > > > --------------------------------- > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2004 Report Share Posted March 10, 2004 same here, Zora. LOVE, Andreiahttp://msmemoriesandthoughts.bravehost.com Re: little frustrated Yes, I did read that as well. I do not think it is vitamin D as the numbers are growing in Trinidad itself. We have sun here almost 365 days a year.I just hope researchers will find something encouraging....Zora> ACCORDING TO WHAT I READ OH 10 OR 11 YEARS AGO IT IS NOT WHERE YOU ARE NOW BUT WHERE YOU SPENT THE FIRST 14 OR 15 YEARS OF YOUR LIFE.> > > > "The further from the equator you live increases your chances."> > I live in Trinidad past 27 years I was diagnosed in 1983 in UK, > where I went to find out what is wrong, then it was very unknown > here as well.> > Now, 21 years later, I know about more and more cases. There are > people who never left this island who have MS, there are people of > all races ho have MS, and what is alarming the number keeps growing.> > Is it vitamin D? Since I was here I was on the sun all the time, > but I think that doesn't count. It is true that now we are getting > spoilt with air-conditioning and do not go onto the sun as before...> > Zora> Trinidad> WI> > > > ---------------------------------> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2004 Report Share Posted March 10, 2004 yes, Zora, I agree with u. but, in my case, I blame the fustations, deceptions and losts! they were a constant for all my life and the result was MS LOVE, Andreiahttp://msmemoriesandthoughts.bravehost.com Re: little frustrated I do feel that environment has a lot to do with MS.ZoraTrinidadWI Quote Link to comment Share on other sites More sharing options...
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