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Re: my update

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Dave,

That book was made for ME! I'm no cook but I can cook EFL style. :-) Glad

to see you back here. If you can make it through a spinning class, you're

doing big things at 45! I'm looking forward to meeting you in Pensacola.

Sara

>

> Her one observation: " This book is made for people who

> don't know how to cook. "

>

> I did go to a spinning class today, where I was the

> only dude amongst four or five women in spandex. Go

> me. I haven't spun lately, but I managed to do the

> whole class, and pretty much keep up, which I think

> irritated the instructor.

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Dave,

That book was made for ME! I'm no cook but I can cook EFL style. :-) Glad

to see you back here. If you can make it through a spinning class, you're

doing big things at 45! I'm looking forward to meeting you in Pensacola.

Sara

>

> Her one observation: " This book is made for people who

> don't know how to cook. "

>

> I did go to a spinning class today, where I was the

> only dude amongst four or five women in spandex. Go

> me. I haven't spun lately, but I managed to do the

> whole class, and pretty much keep up, which I think

> irritated the instructor.

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  • 5 years later...
Guest guest

Alli,

Hang in there, I have a feeling you will get the answers and relief you need

very soon.  A friend of mine told me last week that in order to get the rain, I

had to endure a little mud first, lol...

Feel better today!

Gail (KY)

Subject: my update

To: " stillsdisease " <Stillsdisease >

Date: Tuesday, June 9, 2009, 3:09 AM

Hi stills family - I know so many of you are scared and hurting.

When I saw my GP I was so scared she actually caught me with a couple

of tears - we weren't exepecting to see her for a while still. So my

husband actually helped go through what was going on, she looked at

my, look at the weight loss and we talked. I did tell her that I

hadn't been this scared in a while, like I felt like I'd take my

pills, but they'd never have time to even absorb in my system.

Anyway, we are waiting to here back on many of the test, I still don't

want to eat a thing and it's still hard to even drink much, but i'm

working on it. I just had my every two hour wake up by the nurses,

they have been awesome, for a regional med center, with a 1000 rooms

or so, and they put me in a private room since they don't want me

getting sick from someone else... It's really a nice place for a

resort that is. it's not home, but I think I'd just be getting sicker

and sicker there.

So, anyway, Thanks for all of your advice and support. You guys are awesome.

hugs to all - hang in there everyone.

Alli

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Guest guest

Alli, my daughter spent 10 months at 'Le Resort Stanford' and your symptoms

sound a lot like hers.? She initially checked in due to extreme weight loss,

diarrhea.....Sacramento resort wanted to give her fluids and send her home, but

Stanford docs said admit her and because of that she is still alive.? The weight

loss/fluid loss was due to the tremendous amount of fluid everywhere in her body

- overachiever that she is.? Her intestines were not absorbing any of the food

she ate nor any of the meds....That is why the meds weren't working.

So, bottom line - when you go home - rest like there is no tomorrow, take all of

the appropriate meds and eat well.

Take good care,? Dear.......I stayed with my daughter in her room for the entire

10 months.? We lost everything - but not my daughter!? You are the most

important thing!!

my update

Hi stills family - I know so many of you are scared and hurting.

When I saw my GP I was so scared she actually caught me with a couple

of tears - we weren't exepecting to see her for a while still. So my

husband actually helped go through what was going on, she looked at

my, look at the weight loss and we talked. I did tell her that I

hadn't been this scared in a while, like I felt like I'd take my

pills, but they'd never have time to even absorb in my system.

Anyway, we are waiting to here back on many of the test, I still don't

want to eat a thing and it's still hard to even drink much, but i'm

working on it. I just had my every two hour wake up by the nurses,

they have been awesome, for a regional med center, with a 1000 rooms

or so, and they put me in a private room since they don't want me

getting sick from someone else... It's really a nice place for a

resort that is. it's not home, but I think I'd just be getting sicker

and sicker there.

So, anyway, Thanks for all of your advice and support. You guys are awesome.

hugs to all - hang in there everyone.

Alli

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Charlotte, thanks for the info... My GP is taking this very seriously, more

so than the Rheumy, thank GOD for HER. She deserves a medal!!!... She did

a CT scan today to see if she could see anything else, she changed my diet

from clear liq to next level, which is like tomato soup, which I got that

down, but not the pudding - couldn't get that down.. fever is going up... on

schedule, just like yesterday.... but not as crazy today, so I can try to

get some rest today now that ct scan is done.

I don't know the plans yet, but my potassium is still down so - just one day

at a time...

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Guest guest

Dearest Alli,

Girl YOU are the awesome one....I hope and pray you do well there, get what you

need and get the rest you so need....ask if someone will do some genetic

testing...perhaps for Alpha 1 deficiency?  Please?

Hang in there...know that we all are standing with you!

God Bless!

Love ya!

Larry B.

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