Guest guest Posted October 17, 2008 Report Share Posted October 17, 2008 Quoting Ron : > bills.My boss will gladkly line up homecare work for me.But when mom > goes in the hospital she gets very upset if I even leave.If she > goes in and Im not there, do you think that will worsen her > confusion , agitation etc and make her worse? > I guess what Im asking is with lbd do you think its even worth > putting her through it to try to bring her functions back?How much > can she really even learn to do again?How strong can her body really > even get again at this point?I would appreciate any and all > feedback. R We tried that with my Dad - but the lack of quality care at most of these places only contributes to the downhill slide. The different environment - the confusion - makes everything worse. Then if they sit all day - in dirty diapers sometimes - bed sores - infections. Don't do it ! Have a PT come in house -just to keep the body movin movin movin... But in my opinion - the bad side of rehab out ways what little benefits she might get fromit. DonnaNJ CG to Dad who passed from multiple infections 4/14/04 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2008 Report Share Posted October 17, 2008 Thank you Donna.My sister seems to think that if they do the assesment and say that thats the route they want to go that the doctor can overide my power of attorney if I say no.Is this true?Anyone? Ron Re: I need oppinions Quoting Ron : > bills.My boss will gladkly line up homecare work for me.But when mom > goes in the hospital she gets very upset if I even leave.If she > goes in and Im not there, do you think that will worsen her > confusion , agitation etc and make her worse? > I guess what Im asking is with lbd do you think its even worth > putting her through it to try to bring her functions back?How much > can she really even learn to do again?How strong can her body really > even get again at this point?I would appreciate any and all > feedback. R We tried that with my Dad - but the lack of quality care at most of these places only contributes to the downhill slide. The different environment - the confusion - makes everything worse. Then if they sit all day - in dirty diapers sometimes - bed sores - infections. Don't do it ! Have a PT come in house -just to keep the body movin movin movin... But in my opinion - the bad side of rehab out ways what little benefits she might get fromit. DonnaNJ CG to Dad who passed from multiple infections 4/14/04 __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2008 Report Share Posted October 17, 2008 Thank you Donna.My sister seems to think that if they do the assesment and say that thats the route they want to go that the doctor can overide my power of attorney if I say no.Is this true?Anyone? Ron Re: I need oppinions Quoting Ron : > bills.My boss will gladkly line up homecare work for me.But when mom > goes in the hospital she gets very upset if I even leave.If she > goes in and Im not there, do you think that will worsen her > confusion , agitation etc and make her worse? > I guess what Im asking is with lbd do you think its even worth > putting her through it to try to bring her functions back?How much > can she really even learn to do again?How strong can her body really > even get again at this point?I would appreciate any and all > feedback. R We tried that with my Dad - but the lack of quality care at most of these places only contributes to the downhill slide. The different environment - the confusion - makes everything worse. Then if they sit all day - in dirty diapers sometimes - bed sores - infections. Don't do it ! Have a PT come in house -just to keep the body movin movin movin... But in my opinion - the bad side of rehab out ways what little benefits she might get fromit. DonnaNJ CG to Dad who passed from multiple infections 4/14/04 __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2008 Report Share Posted October 17, 2008 Ron, I would prefer trying to bring a PT into the house. If you can learn what to do and take over the exercising it might be enough to regain some strength in your mom's legs. It would need to be ongoing to maintain any gained strength. Do you sit your mom on a tub seat while bathing her? I'm sorry to hear of this added decline. Good thing you're such a burly young man! > > Hi everyone.The aide came out to help with moms bath again and she started to go down with both of us in there.We lowered her to the floor slowly and then I got better footing and lifted her up until she got her legs under her.The doctor wants to send out a physical therapist and do an assessment on mom and either do pt at home or send her to the nursing home for 45 days for physiical therapy and retrain her body some.... > MY QUESTIONS > 1 The doctor that wants to do this is her family doc.Hes great with her but Im wondering if hes over looking that she has lbd.WITH LBD WILL SHE EVEN BE ABLE TO BENEFIT FROM THIS? > 2You all know how Ive tried so hard to keep her here...DO YOU THINK IF SHE GOES IN SHE WILL GIVE UP AND NOT COME HOME? > 3.To do this I will have to work some on the outside to make our bills.My boss will gladkly line up homecare work for me.But when mom goes in the hospital she gets very upset if I even leave.If she goes in and Im not there, do you think that will worsen her confusion , agitation etc and make her worse? > I guess what Im asking is with lbd do you think its even worth putting her through it to try to bring her functions back?How much can she really even learn to do again?How strong can her body really even get again at this point?I would appreciate any and all feedback. Ron > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2008 Report Share Posted October 17, 2008 Ron, I would prefer trying to bring a PT into the house. If you can learn what to do and take over the exercising it might be enough to regain some strength in your mom's legs. It would need to be ongoing to maintain any gained strength. Do you sit your mom on a tub seat while bathing her? I'm sorry to hear of this added decline. Good thing you're such a burly young man! > > Hi everyone.The aide came out to help with moms bath again and she started to go down with both of us in there.We lowered her to the floor slowly and then I got better footing and lifted her up until she got her legs under her.The doctor wants to send out a physical therapist and do an assessment on mom and either do pt at home or send her to the nursing home for 45 days for physiical therapy and retrain her body some.... > MY QUESTIONS > 1 The doctor that wants to do this is her family doc.Hes great with her but Im wondering if hes over looking that she has lbd.WITH LBD WILL SHE EVEN BE ABLE TO BENEFIT FROM THIS? > 2You all know how Ive tried so hard to keep her here...DO YOU THINK IF SHE GOES IN SHE WILL GIVE UP AND NOT COME HOME? > 3.To do this I will have to work some on the outside to make our bills.My boss will gladkly line up homecare work for me.But when mom goes in the hospital she gets very upset if I even leave.If she goes in and Im not there, do you think that will worsen her confusion , agitation etc and make her worse? > I guess what Im asking is with lbd do you think its even worth putting her through it to try to bring her functions back?How much can she really even learn to do again?How strong can her body really even get again at this point?I would appreciate any and all feedback. Ron > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2008 Report Share Posted October 18, 2008 Ron, Donna R, (the other Donna) here. I don't think anyone can override your P O A. You speak for your Mom. And unless you are endangering her life, I don't think anyone can override you. But I guess I would be tempted to bring them into your home instead of taking her out. If PT works to help strengthen her legs, fine, but like Jan, it might give you something to be able to do after they are done. I sat Mom on a stool to take her bath, long before she was in the wheel chair. It was just more safe and comfortable for her so she wouldn't fall. And hospice should be able to bring in a bath chair. Hope all is well. Donna R Caregave for Mom (after I brought her from WI to MI) for 3 years and 4th year in a nh. She was almost 89 when she died in '02. No dx other than mine. Re: I need oppinions Thank you Donna.My sister seems to think that if they do the assesment and say that thats the route they want to go that the doctor can overide my power of attorney if I say no.Is this true?Anyone? Ron Re: I need oppinions Quoting Ron : > bills.My boss will gladkly line up homecare work for me.But when mom > goes in the hospital she gets very upset if I even leave.If she > goes in and Im not there, do you think that will worsen her > confusion , agitation etc and make her worse? > I guess what Im asking is with lbd do you think its even worth > putting her through it to try to bring her functions back?How much > can she really even learn to do again?How strong can her body really > even get again at this point?I would appreciate any and all > feedback. R We tried that with my Dad - but the lack of quality care at most of these places only contributes to the downhill slide. The different environment - the confusion - makes everything worse. Then if they sit all day - in dirty diapers sometimes - bed sores - infections. Don't do it ! Have a PT come in house -just to keep the body movin movin movin... But in my opinion - the bad side of rehab out ways what little benefits she might get fromit. DonnaNJ CG to Dad who passed from multiple infections 4/14/04 __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2008 Report Share Posted October 18, 2008 We had the inhome PT for a month. -part of visiting nurses group- it was covered by insurance-it included some PT. They helped us find easier ways to do some things with Mother. They also showed us different ideas to help with her. For example I had a shower bench- they showed a different one that was much easier and safer. Might be worth talking with them. Sharon T > > Ron.........this is a tough judgment call to which no one has the perfect answer. Based upon what you are saying in the post, my personal opinion would be to try to do whatever you need to in order to keep her home. > > > > http://knittingdoc.wordpress.com > I need oppinions > > > Hi everyone.The aide came out to help with moms bath again and she started to go down with both of us in there.We lowered her to the floor slowly and then I got better footing and lifted her up until she got her legs under her.The doctor wants to send out a physical therapist and do an assessment on mom and either do pt at home or send her to the nursing home for 45 days for physiical therapy and retrain her body some.... > MY QUESTIONS > 1 The doctor that wants to do this is her family doc.Hes great with her but Im wondering if hes over looking that she has lbd.WITH LBD WILL SHE EVEN BE ABLE TO BENEFIT FROM THIS? > 2You all know how Ive tried so hard to keep her here...DO YOU THINK IF SHE GOES IN SHE WILL GIVE UP AND NOT COME HOME? > 3.To do this I will have to work some on the outside to make our bills.My boss will gladkly line up homecare work for me.But when mom goes in the hospital she gets very upset if I even leave.If she goes in and Im not there, do you think that will worsen her confusion , agitation etc and make her worse? > I guess what Im asking is with lbd do you think its even worth putting her through it to try to bring her functions back?How much can she really even learn to do again?How strong can her body really even get again at this point?I would appreciate any and all feedback. Ron > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2008 Report Share Posted October 18, 2008 Good morning, When my Mom became a bit more frail several months ago, the doc got a physical therapist to come into the house 4 times and work with her - walking the stairs, catching a ball, simple things. Do I think it helped? Not really - but it didn't hurt, and it was some additional stimulation during the day. And - she was home - in the environment in which she is happiest. Helene  Subject: Re: I need oppinions To: LBDcaregivers Date: Saturday, October 18, 2008, 3:50 AM Ron, Donna R, (the other Donna) here. I don't think anyone can override your P O A. You speak for your Mom. And unless you are endangering her life, I don't think anyone can override you. But I guess I would be tempted to bring them into your home instead of taking her out. If PT works to help strengthen her legs, fine, but like Jan, it might give you something to be able to do after they are done. I sat Mom on a stool to take her bath, long before she was in the wheel chair. It was just more safe and comfortable for her so she wouldn't fall. And hospice should be able to bring in a bath chair. Hope all is well. Donna R Caregave for Mom (after I brought her from WI to MI) for 3 years and 4th year in a nh. She was almost 89 when she died in '02. No dx other than mine. Re: I need oppinions Thank you Donna.My sister seems to think that if they do the assesment and say that thats the route they want to go that the doctor can overide my power of attorney if I say no.Is this true?Anyone? Ron Re: I need oppinions Quoting Ron <dawgg4456yahoo (DOT) com>: > bills.My boss will gladkly line up homecare work for me.But when mom > goes in the hospital she gets very upset if I even leave.If she > goes in and Im not there, do you think that will worsen her > confusion , agitation etc and make her worse? > I guess what Im asking is with lbd do you think its even worth > putting her through it to try to bring her functions back?How much > can she really even learn to do again?How strong can her body really > even get again at this point?I would appreciate any and all > feedback. R We tried that with my Dad - but the lack of quality care at most of these places only contributes to the downhill slide. The different environment - the confusion - makes everything worse. Then if they sit all day - in dirty diapers sometimes - bed sores - infections. Don't do it ! Have a PT come in house -just to keep the body movin movin movin... But in my opinion - the bad side of rehab out ways what little benefits she might get fromit. DonnaNJ CG to Dad who passed from multiple infections 4/14/04 ____________ _________ _________ _________ _________ __ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2008 Report Share Posted October 18, 2008 Hi Ron, I cannot believe that a Dr can override your POA. I stopped treatment on my Father when he was in the hospital w/ lung cancer. I refused antibiodics for his pneumonia and did not allow them to suck mucus from his lungs (very painful for Dad). Nurses took me aside to explain my Father would die w/out the sucking. I said, " Yes, I understand that. "  They never did it again. His Dr gave him morphine only. We were concerned that he was going to be asked to leave the hospital because he was not being treated, but he died shortly after that.  My Father was a strong man and the caretaker of the family since he was 12. His Father committed suicide during the depression (the country has come full circle-my Dad is turning in his grave that he can't buy stock now when the price is so low). He would always ask for me whenever any thing happened in the hospital. One time I had to go in through emergency in the middle of the night because he was so agitated and wanting to leave. He took one look at me and said, " Oh good you are here "  and promptly passed out. All the meds they had given him to calm down didn't work until I got there. In the final days I spent the night in the hospital making sure he knew someone was there when he woke in the middle of the night and to make sure he got his morphine. Mom was getting physical therapy after her brainstem stroke. She was definitely improving. When therapy stopped she did decline. I thought because therapy stopped, then I thought because of LBD. However, she is getting therapy again at day care 3 time a week. She is definitely getting stronger at times. She usually performs the best when she is agitated. ;-p Move it or lose it. I don't want her to get to the point of trying alone. I just want her mobile enough to be at home...a very fine line. Excelon is bringing Mom back to a determined woman in delusion. She is in the wheelchair at day care, but when she is home we walk her up the stairs to bed. On the weekends we only use the chair to go out. I walk her around the house. Here is her chair that we use in the tub. http://www.carepathways.com/estore-cat-Bath.cfm?Title=Heavy%20Duty%20Transfer%20\ Bench%20by%20Invacare Remember Ron this is an honor to be able to help your parents, but you must honor YOURSELF too. You can only do so much. You will determine what so much is or your body will tell you no matter what your mind wants to do. Best wishes on your journey, Kat in IL, caregiver to Mom, Jane, 86, brainstem stroke survivor 2/06, dx LBD 3/08 Re: I need oppinions Quoting Ron <dawgg4456yahoo (DOT) com>: > bills.My boss will gladkly line up homecare work for me.But when mom > goes in the hospital she gets very upset if I even leave.If she > goes in and Im not there, do you think that will worsen her > confusion , agitation etc and make her worse? > I guess what Im asking is with lbd do you think its even worth > putting her through it to try to bring her functions back?How much > can she really even learn to do again?How strong can her body really > even get again at this point?I would appreciate any and all > feedback. R We tried that with my Dad - but the lack of quality care at most of these places only contributes to the downhill slide. The different environment - the confusion - makes everything worse. Then if they sit all day - in dirty diapers sometimes - bed sores - infections. Don't do it ! Have a PT come in house -just to keep the body movin movin movin... But in my opinion - the bad side of rehab out ways what little benefits she might get fromit. DonnaNJ CG to Dad who passed from multiple infections 4/14/04 ____________ _________ _________ _________ _________ __ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2008 Report Share Posted October 20, 2008 Hello, dear Ron, I am so sorry about your Mom. PT is good in order to keep her strong enough to stand and not fall.--for now. PT results are good if kept up daily. As soon as a person quits PT they loose body tone, and go downhill again. So it is good, but temporary. Once she has PT, are you going to keep it up with her? It helps her fight off infections, and keeps her strong enough to handle herself longer. But, it has to be kept up. Love a lot, and I would help more if I could, Imogene In a message dated 10/17/2008 3:06:53 PM Central Daylight Time, dawgg4456@... writes: Hi everyone.The aide came out to help with moms bath again and she started to go down with both of us in there.We lowered her to the floor slowly and then I got better footing and lifted her up until she got her legs under her.The doctor wants to send out a physical therapist and do an assessment on mom and either do pt at home or send her to the nursing home for 45 days for physiical therapy and retrain her body some.... MY QUESTIONS 1 The doctor that wants to do this is her family doc.Hes great with her but Im wondering if hes over looking that she has lbd.WITH LBD WILL SHE EVEN BE ABLE TO BENEFIT FROM THIS? 2You all know how Ive tried so hard to keep her here...DO YOU THINK IF SHE GOES IN SHE WILL GIVE UP AND NOT COME HOME? 3.To do this I will have to work some on the outside to make our bills.My boss will gladkly line up homecare work for me.But when mom goes in the hospital she gets very upset if I even leave.If she goes in and Im not there, do you think that will worsen her confusion , agitation etc and make her worse? I guess what Im asking is with lbd do you think its even worth putting her through it to try to bring her functions back?How much can she really even learn to do again?How strong can her body really even get again at this point?I would appreciate any and all feedback. Ron **************BUY Indiana and the Kingdom of the Crystal Skull on DVD today! (http://pr.atwola.com/promoclk/100000075x1209326865x1200539441/aol?redir=http://\ www.indianajones.com/site/index.html) Quote Link to comment Share on other sites More sharing options...
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