Re: follow-up on Lyme uveitis

[Guest guest]

Hi Everyone,I saw the eye doc today, and now, 6 hours later, after sleeping most of the dilation off, am still surrounded by bright rainbows, although they're not as blinding any more.The doc was great! I told him my story and he actually knew about Lyme and what perscriptions would be bad for it. He said my eyes are quiet now, that what I did for them worked (CS and DMSO drops) and if they flare up again, my remedies are obviously working! I can hardly believe it! There may be some problems years hence, for there are some not-so-healthy cells (Lyme) in my cornea which could make any cataract surgery (I have a very slight beginning) more complicated, but he said that what I'm doing to manage the Lyme may eventually heal those. I'll still see the uveitis specialist from Boston when he comes to Albany in May, just to be safe, but I'm feeling very relieved. And now, if I have trouble, I have a local doc who at least knows my history.Now if I can just get my pupils back down to size!Here's looking at you, kids!Be well, LŽna They'd be great in a file, bc newbies need translation and when explaining things to them, spelling it all out can get tiring.Yay! on the mag working! I have an appt. with eye doc this morning and sleep was a dotted line. °, L I can add thoseÉ it was just a generic list I foundÉ. Just thought itÕd be a good base to work with! I can add those to the other listÉ can I post it to the files section? I guess so, huhÉ IÕll do thatÉ might wait until tomorrow coz IÕm getting sleepy! ItÕs weird coz itÕs only 9pm here and IÕm usually up until 11 or so! Extra magnesium must be kicking in! LOL! From: Lyme_and_Rife [mailto:Lyme_and_Rife ] On Behalf Of Guyot LŽna Sent: Tuesday, February 16, 2010 8:47 PM To: Lyme_and_Rife Subject: Re: Usefull tidbits to file Hey , This is great! Lots of stuff I never knew and was too shy and uncool to ask! Now the other acronyms, like ASG, CS, CE, BS, ES, EIS, FGC, ABX, DX, FRX, HBOT, NAET, etc.: these I know, but there are SO many I don't know. Any takers? =) Be well, LŽna I found this somewhere and stole itÉ J At least itÕs a start and we can more easily add to it. AAMOF Ð As A Matter Of Fact ADN Ð Any Day Now AFAIK Ð As Far As I Know AKA Ð Also Known As ASAP Ð As Soon as Possible ATB Ð All the best AYOR Ð At Your Own Risk BB Ð Big brother BFF Ð Best friends forever BFN Ð Bye For Now BOL Ð Best of luck BTDT Ð Been There Done That BTW Ð By The Way CC Ð Cubic CentemetersCU Ð See You CUZ Ð Because CWOT Ð Complete Waste Of Time CWYL Ð Chat With You Later. CYA Ð See Ya CYM Ð Check Your Mail CYO Ð See You Online DHYB Ð Don't Hold Your Breath DIY Ð Do It Yourself DND Ð Do Not Disturb DOA Ð Dead On Arrival E2EG Ð Ear To Ear Grin EG Ð Evil Grin EM Ð E-Mail EMA Ð E-mail Address EOD Ð End Of Discussion EOM Ð End Of Message ETA Ð Estimated Time of Arrival EZ Ð Easy FAQ Ð Frequently Asked Question FIL Ð Father-in-law FIN Ð Finished FOCL Ð Falling Off Chair Laughing FWIW Ð For What It's Worth FYA Ð For Your Amusement FYE Ð For Your Entertainment FYI Ð For Your Information G Ð Grin GF Ð Girlfriend GGN Ð Gotta Go Now GJ Ð Good Job GL Ð Good Luck H Ð Hug HAK Ð Hugs And Kisses HAND Ð Have A Nice Day HAY Ð How Are You HCIT Ð How Cool Is That? HF Ð Have Fun HH Ð Ha-Ha HTH Ð Hope That Helps HYFB Ð Hope You Feel Better IM Ð Instant Message or Intramuscular (injection)IMHO Ð In My Humble Opinion IMO Ð In My Opinion ISO Ð in search of ITA Ð I Totally Agree IU Ð International UnitsJMHO Ð Just My Humble Opinion JMO Ð Just My Opinion K Ð OK KWIM Ð Know What I Mean? L Ð Laugh LMAO Ð Laughing My @$$ Off LO Ð Hello LOL Ð Laughing Out Loud or Lots of LuckLY Ð Love You ML Ð Millilitermm - milimeterOT Ð Off Topic OTC Ð Over The Counter RMV Ð Results May Vary ROFL Ð Rolling On Floor Laughing ROFLMAO Ð Rolling On Floor, Laughing My A$$ Off SL Ð SubLingual (under the toungue)SO Ð Significant Other SQ Ð SubQutaneous (under the skin in the fat layer)SOP Ð Standard Operating Procedure TAFN Ð That's All For Now THX Ð Thanks TVM Ð Thanks Very Much TWIMC Ð To Whom It May Concern UW Ð You're Welcome VBG Ð Very Big Grin WTG Ð Way To Go WYSIWYG Ð What you see is what you get XOXOXO Ð Hugs And Kisses YMMV Ð Your Mileage May Vary From: Lyme_and_Rife [mailto:Lyme_and_Rife ] On Behalf Of Guyot LŽna Sent: Tuesday, February 16, 2010 7:06 PM To: Lyme_and_Rife Subject: Re: Usefull tidbits to file Hi , If we start sending you translations of acronyms, will that send you screaming into the night or will you get into it and make us the glossary I always wanted to do but never got around to it. (I'm also not very good at alphabetizing things, being dyslexic. Be well, LŽna Hello everyone, I see there has been quite the drama. I've been busy with complications at home and a rather uncontrollable herx (more to come this). I would like to offer, however, to post any useful links, files, protocols, tests, etc. to the files section of our sister group. I know many of you, like me, have saved emails that have good info in them. Things such as PKU testing, or magnesium oil protocol and suppliers, good brands of FIR saunas, etc. If all of us work together, we can have an amazing archive of subject organized files. If you have something and would like for me to file it on the sister group - just put 'To be filed" or "' or something like that in the subject line. I am really down in the dumps, physically, right now, but I would like to try and do this. Be well,

[Guest guest]

Hi Lena,

Good to hear this was a nice positive visit and what you are doing is working...

I don't have eye issues, but my wife does and I know just how sensitive this

can be as she is so very careful with her eyes and eyesight...

Hopefully you will improve from here...

Jim

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> >> Hello everyone,

> >>

> >> I see there has been quite the drama. I've been busy with

> >> complications at home and a rather uncontrollable herx (more to

> >> come this).

> >>

> >> I would like to offer, however, to post any useful links, files,

> >> protocols, tests, etc. to the files section of our sister group.

> >> I know many of you, like me, have saved emails that have good info

> >> in them. Things such as PKU testing, or magnesium oil protocol and

> >> suppliers, good brands of FIR saunas, etc. If all of us work

> >> together, we can have an amazing archive of subject organized files.

> >>

> >> If you have something and would like for me to file it on the

> >> sister group - just put 'To be filed " or " ' or something like

> >> that in the subject line. I am really down in the dumps,

> >> physically, right now, but I would like to try and do this.

> >>

> >> Be well,

> >>

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> >>

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[Guest guest]

Hi Lena,

Good to hear this was a nice positive visit and what you are doing is working...

I don't have eye issues, but my wife does and I know just how sensitive this

can be as she is so very careful with her eyes and eyesight...

Hopefully you will improve from here...

Jim

> >>

> >>

> >>

> >>

> >>

> >>

> >>

> >> Hello everyone,

> >>

> >> I see there has been quite the drama. I've been busy with

> >> complications at home and a rather uncontrollable herx (more to

> >> come this).

> >>

> >> I would like to offer, however, to post any useful links, files,

> >> protocols, tests, etc. to the files section of our sister group.

> >> I know many of you, like me, have saved emails that have good info

> >> in them. Things such as PKU testing, or magnesium oil protocol and

> >> suppliers, good brands of FIR saunas, etc. If all of us work

> >> together, we can have an amazing archive of subject organized files.

> >>

> >> If you have something and would like for me to file it on the

> >> sister group - just put 'To be filed " or " ' or something like

> >> that in the subject line. I am really down in the dumps,

> >> physically, right now, but I would like to try and do this.

> >>

> >> Be well,

> >>

> >>

> >>

> >>

> >>

> >>

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> >>

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[Guest guest]

Hi Lena,

I have an optometrist and ophthalmologist, both in the same office, who know

about Lyme and it's effect. That say my problems are from Lyme and it is in my

records for my ins. co. My problem is severe dryness which causes inflammation.

I use a 4 different eye drops and have punctal plugs (plugs for tear ducts).

Plus, they told me to take EPA.

Many of my drs. comment that my Lyme is causing this problem or that, so I hope

it is going in their notes, so my ins. won't consider cutting my abx treatment

short. I guess I shouldn't be too worried as I am going into my 3rd yr. of abx

soon.

jan

>

> Hi Everyone,

>

> I saw the eye doc today, and now, 6 hours later, after sleeping most

> of the dilation off, am still surrounded by bright rainbows, although

> they're not as blinding any more.

>

> The doc was great! I told him my story and he actually knew about

> Lyme ...

[Guest guest]

Hi Lena,

With uvetis, do you get sharp pain at times in your eyes?

For about a month I occasionally get sharp pain that lasts just a second in my

left eye, as quick as it comes, it is gone and I get this a few times a week...

This just started, never had it before and just wondering if you have any

knowledge about this...

Thanks,

Jim

>

[Guest guest]

HI Lena,

Thanks... All I get are the sharp stabs, none of the other... Very uncomfortable

for a few seconds, but then it is over.. I wasn't initially even concerned, but

my history tells of things snowballing... My eye is never bloodshot...

Interesting

yours can be seen from so far...

Now that you mention it, I believe these stabs do happen later in the day

probably

when I am a lot more tired...

Thanks again,

Jim

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[Guest guest]

In adults uveitis can cause redness, pain and pressure, but in children there are no symptoms, it is a silent eye disease which is the third leading cause of preventable blindness in the US. Children should have their eyes examined at age six months, three years, and every year during the school years by an opthomologist who dialates their eyes with a slit lamp. This is the only way to see uveitis which is inflammation located on the inside of the eye. Since one of the causes of uveitis is lyme, I would think parents and people with lyme would want get their eyes checked regularly.

80% of children in the US do not get proper eye exams.

We have a uveitis patients helping patients yahoo group that focuses on natural remedies.

[Guest guest]

Hi Lena,

(That was my grandmother's name, except I don't know if she had an accent mark

in hers. I never saw it written. She was Belgian.)

My LLMD was made well with Bicillin LA, so I hope to be, too. She did tell me

at the get-go I wouldn't be cured, but that the treatment will just keep things

from getting worse and that somethings might improve. She said it will get the

Bb down to where I can just go on maintenance like her. Maintenance being

supporting the body and immune system.

I am using Rife, too and may continue with CC plus salt/C as maintenance plus

whatever sups she has me continue. (I don't know if she continues to take CC

herself, or not.)

As far as my gut, I have ulcerative colitis (I believe from the Lyme), so don't

know if abx will help or hurt. So far, so good. I read one dr's article that

said our immune systems aren't stupid and that so called autoimmune disorders

are really from bacteria, then he listed a few that have been proven to be such.

He said he treats IBD with abx.

As far as my eyes go, my dr. is hoping to be able to wean me off of the steroid

drops and just have me continue with the Restasis and Systane (otc). I, also,

have allergy eye drops and am told I must use them when I have any sign of

allergy in my eyes.

jan

>

> Hi Jan,

> Having had disastrous consequences after abx for mycoplasma pneumonia

> many years ago, when I had as-yet-undiagnosed Lyme, I cannot comment

> on abx, but am glad if it's working for you.

>

> My concern for me would be its side-effects on the digestive tract,

> as was the case for me, or driving the critters into dormancy, or the

> sequelae if I ever then stopped abx. Not willing to try that again.

> Rosner's book shows charts of the proliferation of cysts coming out

> of dormancy, not as one, but as many. It seems to be true for many

> people in the groups who have stopped abx. Scary.

>

> Colloidal silver is the closest thing to abx I dare take, and even

> that worries me if it could cause Lyme to go into 6-20yr. dormancy as

> some conjecture.

>

> CS is a critter-killer, and DMSO can deliver it deeper into tissue.

> This combo successfully cleared my eyes of the uveitis

> infection...for now. For dry-eye, I use just CS as needed.

>

> Be well,

> Léna