Guest guest Posted September 29, 2008 Report Share Posted September 29, 2008 Welcome!! Angel Mom to , 15 MDS/HD and 5 sibs! In a message dated 9/28/2008 8:59:59 P.M. Mountain Daylight Time, kristy@... writes: Hi everyone! We have another new family joining us today. Here is what they had to say... I have a daughter who is almost 11 who has MDS and I want to connect with others who have kids with MDS Welcome to our family! I am so glad you have joined us! Please tell us all about you and your daughter. What are your names? Please feel free to ask any questions and join in our conversations. I look forward to getting to know more about you and your family! Kristy Mom to Arron 26, 23, Tim 22 MDS, Stevan 21 and Garrett 12 Kristy Colvin IMDSA President ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ International Mosaic Down Syndrome Association PH: Toll Free: 1-888-MDS-LINK http://www.imdsa.org http://www.mosaicmoments.today.com [Non-text portions of this message have been removed] ------------------------------------ Become a member of IMDSA today at http://www.imdsa.org ******************************************************* Purchase your MDS awareness bracelet today!http://www.imdsa.org/Awareness/aware.htm ************************************************************************** Contact IMDSA Today at: IMDSA~PO Box 1052~lin,TX~77856~USA~1-~1-888-MDS-LINK ********************************************************************* Share your story today! http://www.mosaicdownsyndrome.com ********************************************************* To unsubscribe from this list, send e-mail to: MosaicDS-unsubscribeegroups ************************************************* To visit the e-group website go to: http://groups.yahoo.com/group/MosaicDS/ *************************************************Yahoo! Groups Links **************Looking for simple solutions to your real-life financial challenges? Check out WalletPop for the latest news and information, tips and calculators. (http://www.walletpop.com/?NCID=emlcntuswall00000001) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2009 Report Share Posted January 9, 2009 Hi Everyone We have a new family joining us today. Here is what they had to say.... We are in the preliminary stages of determining if our 9 month old daughter has mDs. Welcome to our family! I am so glad you have joined us! Please tell us all about your daughter and feel free to ask any questions that you may have. We will all be very happy to share our experiences with you. Kristy Mom to Arron 27, 23, Tim 22 MDS, Stevan 21 and Garrett 12 Kristy Colvin IMDSA President ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ International Mosaic Down Syndrome Association PH: Toll Free: 1-888-MDS-LINK http://www.imdsa.org http://www.mosaicmoments.today.com SAVE THE DATE! JULY 10-12 Cincinnati, Ohio USA BUILDING BRIDGES FOR DOWN SYNDROME RESEARCH & AWARENESS CONFERENCE Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2009 Report Share Posted January 9, 2009 Thank you for the welcome. We live in NC & are beginning the process to determine if our 9 month old daughter, nna, has MDS. nna has had digestive issues since birth and is being treated by a GI doctor. Since her birth, my husband and are have had doubts if this is nna's only health issue. We recently went to a new pediatrician for a second opinion. She recognized some dysmorphic facial features & has refered us to a geneticist at UNC. We have our first appointment this Tuesday. We don't know what to expect or if MDS will be the ultimate diagnosis. I'm hoping to get information from others about when/how their children were diagnosed & what symptoms led to that diagnosis. Thanks again for the welcome! Kristi > > Hi Everyone > We have a new family joining us today. Here is what they had to say.... > > We are in the preliminary stages of determining if our 9 month old daughter has mDs. > > Welcome to our family! I am so glad you have joined us! Please tell us all about your daughter and feel free to ask any questions that you may have. We will all be very happy to share our experiences with you. > > Kristy > Mom to Arron 27, 23, Tim 22 MDS, Stevan 21 and Garrett 12 > > Kristy Colvin > IMDSA President > ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ > International Mosaic Down Syndrome Association > PH: > Toll Free: 1-888-MDS-LINK > http://www.imdsa.org > http://www.mosaicmoments.today.com > SAVE THE DATE! JULY 10-12 Cincinnati, Ohio USA > BUILDING BRIDGES FOR DOWN SYNDROME > RESEARCH & AWARENESS CONFERENCE > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2009 Report Share Posted January 9, 2009 Hi Kristi Welcome to our family! The average age for children to be diagnosed with MDS is between 1 and 3 yrs old. So, you are not alone in getting a late diagnoses. My son, Tim (22 now) was diagnosed when he was 2 1/2 years old. The reason he got his diagnosis was because he had a speech delay. Please feel free to visit our websites (links below my signature line) and read all the articles in my blog. This will probably give you a lot of incite in addition to talking with all the great families here! Kristy Colvin IMDSA President ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ International Mosaic Down Syndrome Association PH: Toll Free: 1-888-MDS-LINK http://www.imdsa.org http://www.mosaicmoments.today.com SAVE THE DATE! JULY 10-12 Cincinnati, Ohio, USA BUILDING BRIDGES FOR DOWN SYNDROME RESEARCH & AWARENESS CONFERENCE Subject: Re: Welcome new family! To: MosaicDS Date: Thursday, January 8, 2009, 8:48 PM Thank you for the welcome. We live in NC & are beginning the process to determine if our 9 month old daughter, nna, has MDS. nna has had digestive issues since birth and is being treated by a GI doctor. Since her birth, my husband and are have had doubts if this is nna's only health issue. We recently went to a new pediatrician for a second opinion. She recognized some dysmorphic facial features & has refered us to a geneticist at UNC. We have our first appointment this Tuesday. We don't know what to expect or if MDS will be the ultimate diagnosis. I'm hoping to get information from others about when/how their children were diagnosed & what symptoms led to that diagnosis. Thanks again for the welcome! Kristi > > Hi Everyone > We have a new family joining us today. Here is what they had to say.... > > We are in the preliminary stages of determining if our 9 month old daughter has mDs. > > Welcome to our family! I am so glad you have joined us! Please tell us all about your daughter and feel free to ask any questions that you may have. We will all be very happy to share our experiences with you. > > Kristy > Mom to Arron 27, 23, Tim 22 MDS, Stevan 21 and Garrett 12 > > Kristy Colvin > IMDSA President > ~~~~~~~~~~~~ ~~~~~~~~~ ~~~~~~~~~ ~~~~~~~~~ ~~~~~~~ > International Mosaic Down Syndrome Association > PH: > Toll Free: 1-888-MDS-LINK > http://www.imdsa. org > http://www.mosaicmo ments.today. com > SAVE THE DATE! JULY 10-12 Cincinnati, Ohio USA > BUILDING BRIDGES FOR DOWN SYNDROME > RESEARCH & AWARENESS CONFERENCE > > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.