Re: Re:Thank You Larry

[Guest guest]

Hey, No Problem!

I am glad you are here....contact me anytime!

Love ya already!

Larry

From: jacksparrowsgirl318 <_Tinkerbell1921@ Tinkerb_

(mailto:Tinkerbell1921@ aol.com) >

Subject: Newly Diagnosed and Looking for Support

To: _Stillsdisease@ StillsdiseasSti_ (mailto:Stillsdisease@ yahoogroups. com)

Date: Wednesday, May 6, 2009, 4:30 PM

Hello Everyone:

My name is Marie and I was diagnosed 3 days ago with AOSD. I knew about

Stills way before I was diagnosed because my cousin who I was extremely close

to had it. He was diagnosed with JRA when he was only 10 years old. He

suffered valiantly with the disease for 20+ years, but passed away 3 years ago

from paricarditis which they said was an effect of the Stills. Never once

complaining about the pain and the surgeries he had to undergo to replace

all of his major joints. He was someone I looked up to and my hero. We were

10 months apart in age. I have suffered for almost a year without knowing

what was wrong with me.

All my test results came back negative until they tested my Ferratin

levels and they were through the roof. When that came back, the doctors started

connecting the dots from the rashes, unexplained fevers, night sweats to

painful joints. I have told my family and some of them have said to me that

it's just a fancy name for plain old arthritis and that hurts to hear

because they haven't gone through the night sweats, the rashes, fevers and

crippling pain for the past year. They haven't been from doctor to doctor and

been told that we have run all the tests and there is nothing wrong with you.

Am I wrong for being upset and scared?? I just need a little support. Any

that you can give would help me feel a little better.

Thank You and God Bless

Marie