Re: New Member Introduction

[Guest guest]

,

Just curious - what kinds of insulin do you take, and when?

Nan

[Guest guest]

,

Just curious - what kinds of insulin do you take, and when?

Nan

[Guest guest]

>

> Hello everyone. The notice I received accepting me as a member of this

> group suggested a new-member introduction. So here goes.

>

> I was diagnosed with bronchiectasis 2 or 3 months ago after a

> post-pneumonia X-ray and CT scan showed some " shadows " in my lungs

> that shouldn't be there. I already had quite a few chronic illnesses;

> so I really didn't need another one. But then I'm sure none of us

> needed this.

>

> I have had multiple sclerosis for some 40 years. I also have had GERD,

> fibromyalgia and TMJ dysfunction (among other things) for years. Then

> last January, I had a sudden attack of acute pancreatitite, caused by

> a roaming gallstone. I had surgery to remove my gallbladder in order

> to prevent another pancreatitiis episode (they told me I had more

> gallstones), and when I was released from the hospital, I was informed

> that I now had diabetes. A couple of months later, I learned that I

> also had Stage 3 Chronic Kidney Disease.

>

> I was fighting to keep from losing too much weight. (I weighed 118

> when I went into the hospital but went down to 98 pounds when I had

> pneumonia.) So my diabetes PA put me on short-acting insulin. I

> typically check my blood sugar 4-6 times a day and take 2 or 3 insulin

> shots a day. I feel like a pin cushion. ;^)

>

> I was diagnosed with bronchiectasis by a pulmonologist after he did a

> slew of tests to rule out other things, including another,

> high-resolution CT scan. We tried sputum tests, but in three tries, I

> could bring up only a small dot of sputum. I have a *lot* of

> post-nasal drip and sometimes cough that up, but usually, my coughs

> are nonproductive. When I do cough, it usually feels like the

> post-nasal drip mucus rather than anything from my chest. I do

> sometimes have what I *think* is a " chest cough " (for lack

> of a better term) when I'm doing my yoga-type stretching and breathing

> exercises (most of which I do lying on my bed).

>

> The pulmonologist said the tests showed I have pseumamonas bacteria

> colonizing in my lungs, but I don't seem to have any current infection

> or significant symptoms. So we agreed that I should *not* take any

> antibiotics. ly, I sometimes wonder whether I really

> have bronchiectasis, but the pulmonologist is convinced that I do.

>

> I joined this group in hopes of learning more about this disease and

> about how to minimize the negatives. I probably will have a lot of

> questions. I thank you in advance for helping to educate me.

>

> --

> I think that if bronchiectasis has been identified by CT or X Ray then it

usually is correct. If you have pseudomonas bacteria in your lungs it is

doubtful to get rid of it. Antibiotics help to keep their numbers down. Sputum

cultures will show what level of infection. It is important to keep a close link

with healthcare professionals and find what is best to manage the condition. It

is important not to be slack about our health. Gather as much knowledge as

required. There are good doctors out there. You have quite a lot on your plate

and I hope you have good support.

Wish you well

[Guest guest]

I hope you didn't mind all my questions, I'm sorry that you have so much problems with your health . I made a mistake about the medicines that I'm taking, is biaxin not septra that I'm taking.

Stay strong Myriam

To: bronchiectasis Sent: Wednesday, May 27, 2009 8:51:33 AMSubject: New Member Introduction

Hi all,

I was officially diagnosed with bronchiectasis in 1992. I did get whooping cough as a baby before I was to be vaccinated. In 1991 I contracted non infectious atypical TB. I was very active as a young person, but noticed an annoying cough developing from 18 years of age. by the end of the 80's mucous production was a real problem. Eventually I was considered having adult onset CF.

Daily lung clearance has become part of my everyday life for many years. I am usually on quite a few medications and have regular check ups. I have tried to keep up a normal life as possible. I try to do some study when I am well. I work part time. I have lost a marriage due to decline in health and ongoing depression. Friends are important, and it is good to have an interest to get us away from our worries. Bouts of fatigue are common, however I have stayed out of hospital for years re bronchiectasis.

Looking forward to the group's input. We can learn from each other as we are mainly in the same boat..

Cheers