Re: (unknown)

[Guest guest]

Congrats !

I can relate and I remember how I felt when Devon finally started doing

that! WOOHOO yippee Katelyn..

I hope this is the start of a brand new trend!

Deb

(Jillian 12, Devon 10 [ChargeR], 8, 5, Kaitlyn 5)

(unknown)

>

>

> Hi all,

> I am soooo excited today! Katelyn had a bm in the toilet at school.

>Can you believe it? She is 9 1/2. I fhope this is a start to a new trend.

>I am afraid to get my hopes up only to be let down. For now I will rejoice

>in this small miricle! It is strange the things that we are excited about.

>

>Katelyn(9) Charge, Jenna(4), Shayna(2)

>

>

>

>---------------------------

[Guest guest]

,

Great news for Katelyn! What a happy day!

Bonnie

[Guest guest]

,

I will keep my fingers crossed for you ( & Katelyn!)

Give her a high five from us!

Mom to Kennedy 23 mos old CHARGEr, 10, 8, and wife to Graeme

New Brunswick, Canada

Visit the " Weir homepage " at: http://www.geocities.com/SunsetStrip/Palms/5716

ICQ #1426476

(unknown)

Hi all,

I am soooo excited today! Katelyn had a bm in the toilet at school.

Can you believe it? She is 9 1/2. I fhope this is a start to a new trend.

I am afraid to get my hopes up only to be let down. For now I will rejoice

in this small miricle! It is strange the things that we are excited about.

Katelyn(9) Charge, Jenna(4), Shayna(2)

---------------------------

[Guest guest]

Cheryl,

Ask Chantelle about CHARGE through a child's eyes. She not still a child,

but sh would be your best bet.

Foley

(unknown)

>

>

> Here is a question for anyone that has dealt with this. Is there a

> childrens book out there that explains CHARGE thru a childs eyes? Our

> daughter is 9 and has started assking questions, a lot of questions. I am

> not ready for this and I was wondering how other parents handle this. Also

I

> ordered " The Out of Sync Child " about sensory disfunction, who ever

> recommended it thank you it was wonderful and so much of it related to our

> daughter.Cheryl

> ______________________________________________________

> Get Your Private, Free Email at http://www.hotmail.com

>

>

> ------------------------------------------------------------------------

> DON'T HATE YOUR RATE!

> Get a NextCard Visa, in 30 seconds! Get rates as low as

> 0.0% Intro or 9.9% Fixed APR and no hidden fees.

> Apply NOW!

> http://click./1/2120/1/_/22564/_/953050738/

> ------------------------------------------------------------------------

>

> For information about the CHARGE Syndrome

> Foundation or to become a member please

> contact marion@... or visit

> the CHARGE Syndrome Foundation web page

> at http://www.chargesyndrome.org

>

>

[Guest guest]

I am definately going to get the egg beaters.

thanks,

nbbutler@...

[Guest guest]

HAPPY BRITHDAY AMY!!!

And congratulations on a tremendous attitude! You go girl!

Hugs,

Connie

(unknown)

Hello and welcome Gigi and ! Stick with

Weight Watchers-its the easiest and best supported

program I've ever followed. For example, today is my

birthday and I have adjusted my day and banked points

so that I can have a piece of birthday cake tonight

with my family! Every other program I've been on,

either birthday cake wasn't allowed and I'd feel like

I was cheating or I'd just blow off the diet for my

birthday. But with WW, you can eat what you want,

just count it! I have lost 12 pounds after 7 weeks,

and 6 inches in body measurements. I haven't felt

deprived or gone hungry, and I really do feel good!

Welcome to Weight Watchers!

Amy

__________________________________________________

[Guest guest]

Amy - I'd recommend going with nothing less than 8mb. Happy shopping!

You're going to love it (whichever model you decide to go with).

Amy wrote:

>

> Hi everyone;

>

> The holidays are over! Eating was difficult,.but I did score enough

> cash for a palm pilot! Now I just need to know how many Mb would be

> applicable.

>

> I made the mistake of weighing myself. could have been much worse,

> but I am at my all time highest weight and am ready to get back OP.

>

> \Well, I am headed back to MN tomorrow after a few days visiting

> family in MA. Have a great night everyone!

>

>

>

>

>

>

> ---------------------------------

>

[Guest guest]

I'm looking for a buddy on March 14, 2002. Yes this is after we have paid the

tax people a visit too.

J.-30

TL 12/2/9

TR 3/14/02

DH-28

DS-12

DS-10

DS-6

DSS-5

[Guest guest]

misty

if you ever need someone to talk to email me at rosebudd97@... , good

luck honey, love judy l

[Guest guest]

Misty, I'm so sorry to hear this from you! I wish you all the best. If you

need to vent or dump, just feel free to ICQ me, or email.

Hugs,

(unknown)

>

> I'm throwing in the towel and leaving the group. Can't take this crap no

> more. Good luck to all of you.

>

>

> DH 27

> Misty 30

> DS Ricky 10

> DD Shelby 8

> TL 8-27-93 done by a surgeon dumb enough to listen to me *lol*

> TR 12-18-00 - Dr. Levin

> 6cm left 6cm right

> Baby Fenton (Angel in Heaven)

>

>

> _________________________________________________________________

> MSN Photos is the easiest way to share and print your photos:

> http://photos.msn.com/support/worldwide.aspx

>

>

>

>

[Guest guest]

Nice to hear from you judy1!!!!

Re: (unknown)

> misty

> if you ever need someone to talk to email me at rosebudd97@... ,

good

> luck honey, love judy l

>

>

>

[Guest guest]

We'll miss you, Dot! hurry back!

Topper ()

http://toppertwo.tripod.com

On Mon, 26 May 2003 17:20:15 -0000 " dot "

writes:

> i am with out pc and i will be away from saturday for 2 weeks see

> you all when i get back

> love Dot xx

[Guest guest]

Welcome, Betty!

I am pleased to have you in our group!. I am Feisty,proud co-owner of the group.What you have descrbed sounds like Hashimoto's with that fluctuating between hyper and hypo thyroid states.

As to the question about anemia-------a big Yes! Anemias are very often a part of thyroid disease, and if you do have autoimmune , which Hashimoto's and Graves are, you very well may have some of the autoimmune anemias, such as Pernicious or Hemolytic(which I have). I too have the clear on bleeding and my periods have been far in between and that seems to be no factor in me.With thyroid disease, we may develop issues with Vitamin A absorption also(that is why we could have an orangish-yellow skin tones,especially on the palms of our hands.This differs from jaundiced in that are eyes are not discolored)Vitamin B 12 is needed to help with Pernicous Anemia.

What needs to be emphasized is that Thyroid Disease can and does affect every system in your body.

Hugs,

Feisty

Webb Osterlohhttp://groups.yahoo.com/group/The_Thyroid_Support_Group/http://feistytx.tripod.com/

(unknown)

Hi - I'm another new joiner to this group and I'd love to hear if anyone has had a similar experience to me. I'm a 41 year old mother-of-three living in London, England and have been ill for about a year (I won't bore you with all the symptoms as I'm sure they sound very familiar!).I have strongly positive anti-thyroid antibodies, but my thyroid hormones are all over the place. I've gone from having low FT4 a couple of months ago to now having reasonably high FT4 and nearly non-existent TSH. My endocrinologist reckons that the antibodies are making me cycle between hypothyroid and hyperthyroid states, which accounts for fluctuation of some symptoms such as diarrhoea and breathlessness.He says there are two alternatives: wait for the antibodies to destroy the thyroid more and I'm truly hypothyroid or hasten the process by radioactive iodine. Then, either way, start on replacement hormones.Has anyone else here experienced this transition, and what do you think is the best way to proceed? I'm not keen on going through these swings for months or years to come... Also I'm seeing a rheumatologist in 10 days time as there seems to be systemic inflammation and I have severe iron deficiency. Can thyroid problems cause anaemia? (I've had a gastrocscopy and endoscopy and they were clear so there's no GI bleeding and my periods aren't particularly heavy).Many thanks in advance for your input.Betty

[Guest guest]

have recently been diagnosed with this, following a bout of pneumonia. I have infection which I didn't shift despite 10 rounds of antibiotics. For the past 2 weeks, I have been on an inhaler to open the air passages. The doctor took me off the antibiotics. I've also started physio and am doing postural drainage plus special breathing. The infection however is still there. I'm feeling quite desperate as to what I need to do and would appreciate some feedback from people on what has worked to clear the infection. I would also like to hear some views about being taken off the antibiotics at a time infection was present.

In relation to postural drainage, I am lying over 2-3 pillows (with them under my waist) on either side and front while at the same time breathing into the lower reaches of the lungs then forcing out all of my breath - the theory being that the lungs will force the buildup out of the pockets and to the top of the lungs. I find that in the morning, when doing these exercises, I do not cough up any of the infected material, but it comes away of it's own apparent volition later in the afternoon or should I lie down later in the day. The physio has told me that the buildup of infection in the pockets in the lungs occurs overnight - I'm not sure how this can be when I don't get rid of any of it of a morning. Anyway, I'd also be interested to hear from others what they do to remove the infected material.

I look forward to hearing from you!!

Cheers

Beth

Hi Beth..you say the infection isnt gone even though you've had 10 rounds of the anti..when you say ' 10 rounds ' are you talking weeks?..days?..what?

Which anti were you taking?

How do you know the infection isnt gone? What symptoms do you have now that prompted you to use the anti in the first place? After 10 rounds what symptoms do you still have ?

Are you drinking plenty of water? I don't mean a glass here and there..I mean up to 7 or 8 a day. In the mornings try to gargle with either salt water..even plain water will do..rinse your mouth and the back of your throat well. Drink water in the morning upon rising. Are you nebbing? When I can't move my mucous nebbing helps to loosen it for me.

Try Tussin. Tussin is nothing more than Guafinesin ..when I was having difficulty moving the mucous the Tussin helped.

Drink something hot..tea..coffee..I've heard from the list even hot water works well..

Sandie

Never Look Down on SomeoneUnless You're Willing to Help Them UpThe year's hottest artists on the red carpet at the Grammy Awards. AOL Music takes you there.

[Guest guest]

Hi Sandie

I took antibiotics for about 8 weeks when I was diagnosed with pneumonia. I had a break while more tests and xrays were done and was prescribed more for a further 3 weeks then was taken off those and put on the bronchidilator, Symbicort (be aware I am in Australia and tradenames will be different, assuming you are in the US). Since November I have been coughing up yellow or greeny-grey sputum which tests have identified as an atypical bacteria. I also cough up clear or thick white sputum at times but have not been worried about that - should I be?

The pneumonia has cleared and I am otherwise well and have my energy back, but the sputum remains. I am not convinced that doctors and physios know it all hence my contact.

Hi again, ..

I asked my dr what a thick white foamy sputum means..he wasn't concerned. He more or less shrugged it off. If it's not discolored then dont worry about it.

If your sputum is yellow that's viral. Any changes in the color of my own sputum has me running immediately for my anti's. Green specifies bacterial and girl you need to be on anti's asap for that. . cause you don't want whatever's lurking down there to manifest into pnuemonia. Any temp over 100 that you cant get down w/in a day or two should be reported to your dr asap, too. That's what my dr tells me.

You say the sputum remains ..what color is it you're seeing now?

And good ..good..very good..water water water..it will really help thin out that mucous for easier production

Sandie

Never Look Down on SomeoneUnless You're Willing to Help Them UpThe year's hottest artists on the red carpet at the Grammy Awards. AOL Music takes you there.

[Guest guest]

Hi Sandie

I took antibiotics for about 8 weeks when I was diagnosed with pneumonia. I had a break while more tests and xrays were done and was prescribed more for a further 3 weeks then was taken off those and put on the bronchidilator, Symbicort (be aware I am in Australia and tradenames will be different, assuming you are in the US). Since November I have been coughing up yellow or greeny-grey sputum which tests have identified as an atypical bacteria. I also cough up clear or thick white sputum at times but have not been worried about that - should I be?

The pneumonia has cleared and I am otherwise well and have my energy back, but the sputum remains. I am not convinced that doctors and physios know it all hence my contact.

And no, I am not good on drinking water regularly, but I will get onto in immediately!

Thanks for your response

Beth

Re: (unknown)

have recently been diagnosed with this, following a bout of pneumonia. I have infection which I didn't shift despite 10 rounds of antibiotics. For the past 2 weeks, I have been on an inhaler to open the air passages. The doctor took me off the antibiotics. I've also started physio and am doing postural drainage plus special breathing. The infection however is still there. I'm feeling quite desperate as to what I need to do and would appreciate some feedback from people on what has worked to clear the infection. I would also like to hear some views about being taken off the antibiotics at a time infection was present.

In relation to postural drainage, I am lying over 2-3 pillows (with them under my waist) on either side and front while at the same time breathing into the lower reaches of the lungs then forcing out all of my breath - the theory being that the lungs will force the buildup out of the pockets and to the top of the lungs. I find that in the morning, when doing these exercises, I do not cough up any of the infected material, but it comes away of it's own apparent volition later in the afternoon or should I lie down later in the day. The physio has told me that the buildup of infection in the pockets in the lungs occurs overnight - I'm not sure how this can be when I don't get rid of any of it of a morning. Anyway, I'd also be interested to hear from others what they do to remove the infected material.

I look forward to hearing from you!!

Cheers

Beth

Hi Beth..you say the infection isnt gone even though you've had 10 rounds of the anti..when you say ' 10 rounds ' are you talking weeks?..days?..what?

Which anti were you taking?

How do you know the infection isnt gone? What symptoms do you have now that prompted you to use the anti in the first place? After 10 rounds what symptoms do you still have ?

Are you drinking plenty of water? I don't mean a glass here and there..I mean up to 7 or 8 a day. In the mornings try to gargle with either salt water..even plain water will do..rinse your mouth and the back of your throat well. Drink water in the morning upon rising. Are you nebbing? When I can't move my mucous nebbing helps to loosen it for me.

Try Tussin. Tussin is nothing more than Guafinesin ..when I was having difficulty moving the mucous the Tussin helped.

Drink something hot..tea..coffee..I've heard from the list even hot water works well..

Sandie

Never Look Down on SomeoneUnless You're Willing to Help Them Up

The year's hottest artists on the red carpet at the Grammy Awards. AOL Music takes you there.

Looking for last minute shopping deals? Find them fast with Yahoo! Search.

[Guest guest]

Beth,

I agree with Sandie. A few cups of hot coffee, tea or water in the morning help to bring up whatever is in there. Also the tussin, or generic guafasin (sp) really helps. And LOTS of water during the day.

MarilynThe year's hottest artists on the red carpet at the Grammy Awards. AOL Music takes you there.

[Guest guest]

Hi , What Mayo did you go to.. We live in Fl and my husband was

diagnosed with LBD about 5 years ago at Mayo in ville. There

are many good helps on this website and like other aliments everyone

is different. Just try to read all you can and ask others. I am new

with this group but have found it very helpful and great

encouragement. I have learned LBD as other deceases doesn't always go

by the TEXT Books. Just keep on and know you are not alone. ine

> Hi everyone, I have been reading all your post the last few days and I

> think its great the support you give. We were told 3 years ago that my

> father has lbd, we recently went to mayo for testing and we were told

> at the follow up that it was bad. He has a lot of hallucinations, and

> is also wheel chair bound, he fell a year ago and broke his hip, he

> never was able to walk on his own again. So right now I'm trying to

> deal with the " it's bad " and trying to figure out what that means.

> Thanks to everyone

>

>

>

>

[Guest guest]

ine, if I didn't greet you as a new comer, then I do so now with a big

warm hug.

(There are several new people and they are getting past me. I do feel bad

about that.)

Your husband has been diagnosed longer ago than mine. I knew something was

wrong years ago, but diagnosis didn't come until he started having

hallucinations, in 2005.

Glad you are with us, ine, and glad you like this List as I do. We have

two of the finest Moderators you'll find anywhere. , and Donna R.

They set the tone for this List to be so kind and loving.

Love a lot, it is powerful,

Imogene

Caregiver for my true Texas Gentleman Husband of 38 years. First diagnosed

with Alzheimer's by a Neurologist OCT, 2005. (He was sick long before that

date.) But, on May 2, 2006 Dr. Schillerstrom, Geriatric/Psychiatrist

diagnosed LBD with Parkinsonism. My precious husband, Don, is taking Zoloft for

LBD, and other Medicines for his heart.

A happy personality is contagious. Infect someone today

In a message dated 11/5/2008 9:27:00 AM Central Standard Time,

rboone13@... writes:

Hi , What Mayo did you go to.. We live in Fl and my husband was

diagnosed with LBD about 5 years ago at Mayo in ville. There

are many good helps on this website and like other aliments everyone

is different. Just try to read all you can and ask others. I am new

with this group but have found it very helpful and great

encouragement. I have learned LBD as other deceases doesn't always go

by the TEXT Books. Just keep on and know you are not alone. ine

**************AOL Search: Your one stop for directions, recipes and all other

Holiday needs. Search Now.

(http://pr.atwola.com/promoclk/100000075x1212792382x1200798498/aol?redir=http://\

searchblog.aol.com/2008/11/04/happy-holidays-from

-aol-search/?ncid=emlcntussear00000001)

[Guest guest]

Welcome,

What medications is he taking for the hallucinations?

Gladys

-- (unknown)

Hi everyone, I have been reading all your post the last few days and I

think its great the support you give. We were told 3 years ago that my

father has lbd, we recently went to mayo for testing and we were told

at the follow up that it was bad. He has a lot of hallucinations, and

is also wheel chair bound, he fell a year ago and broke his hip, he

never was able to walk on his own again. So right now I'm trying to

deal with the " it's bad " and trying to figure out what that means.

Thanks to everyone

------------------------------------

Welcome to LBDcaregivers.

[Guest guest]

Try baking soda + oil of oregano instead of paste

To: mb12 valtrex Sent: Thursday, February 12, 2009 7:44:50 PMSubject: (unknown)

Are there any tips or resources to help me to teach my 3 y/o daughter how to spit out her toothpaste? She hates having her teeth brushed but will submit however I just need help with teaching her how to spit.Ideas? Books? Websites?

[Guest guest]

We actually have tooth paste from the dentist which you don't need to spit out, it is called MI Paste from PROSPEC-topical paste with boi-available calcium and phosphate. it says on it.

from recaldent TM

She doesn't seem to mind it.

(unknown)

Are there any tips or resources to help me to teach my 3 y/o daughter how to spit out her toothpaste? She hates having her teeth brushed but will submit however I just need help with teaching her how to spit.Ideas? Books? Websites?

No virus found in this incoming message.Checked by AVG. Version: 7.5.552 / Virus Database: 270.10.23/1951 - Release Date: 2/13/2009 6:51 AM

[Guest guest]

Hello,

wow! what a great idea, thanks.

>

> Try baking soda + oil of oregano instead of paste

>

>

>

>

> ________________________________

>

> To: mb12 valtrex

> Sent: Thursday, February 12, 2009 7:44:50 PM

> Subject: (unknown)

>

>

> Are there any tips or resources to help me to teach my 3 y/o

daughter

> how to spit out her toothpaste? She hates having her teeth brushed

but

> will submit however I just need help with teaching her how to spit.

>

> Ideas? Books? Websites?

>

[Guest guest]

Congratulations ! So glad they finally figured out what was going on and

that you had the courage to tell them your story " one more time " . Wishing you a

speedy recovery

ps. I have had one surgery when I was 36 (45 now), needing another...

Subject: (unknown)

To: tetheredspinalcord

Date: Wednesday, February 25, 2009, 3:07 PM

Dear TCS friends,

After a three-year search, I was diagnosed with TCS on February 4, 2009 and

underwent surgery February 16, 2009.

My search began with an appt. at the urologist where I was diagnosed as having

interstitial cystitis - even though my problem was retention.  I was given a

variety of meds, instillations, bladder stretching surgery, physical therapy,

etc., but the problem remained and worsened. 

In addition, I have seen an internist, neurologist, rheumatologist,

chiropractor, accupuncturist, etc.  I have had blood drawn, taken many vitamins,

minerals, and herbs, and been detoxified.  I have been prescribed neurotin and

cymbalta.  

I told each doctor that there was a connection between my bladder problems and

my burning, aching, increasingly numbing feet and legs.  Each time I was

politely dismissed.  My internist thought the numbness and burning might be due

to hypothyroidism, as I was somewhat low.  After 5 months of thyroid meds, my

internist decided that hypothyroidism was not responsible for the burning and

numbness.  That same day, I had an appt. with the urologist (same group I

started out with) for a urodynamics test. 

I went through my story one more time.  Suddenly, as the doctor was conducting

the test, it was like a lightbulb came on.  She told me she thought she knew

what the problem might be. She made a call to a neurosurgeon, helped me get an

appt. and the rest is history.

It has just been 9 days since surgery, but I'm feeling confident.  The burning

and numbness are still present, but I had this awful sensation of my entire legs

falling to sleep every time I lay down at night.  That has gone away, and I

honestly feel as though my bladder has already improved. 

I would very much like to converse with another adult who has had the surgery. 

I truly wish everyone well.  This has been a most difficult journey for me, and

I would love to be able to help someone else along the way.

[Guest guest]

Thanks April. I too think of butterflies when I think of my girl and her cocoon!How do you know when to stop? What did you notice that made you think it was working?Thanks and blessings!!LuzOlive Leaf Extract helps PANDAS. My 3 year took 500 mg three times a day for 6 weeks. We also stay away from all strep probiotics.AprilMommy Warrior to 5Just like the butterfly, I too will awaken in my own time. Deborah Chaskin Ed and Luz Zabinzabin.luzed@...Directly from the Red Barn! No viruses attached.Be Green! Resist The Temptation To Print this E-Mail.