Re: OT: lyme teleseminar with Helene

[Guest guest]

>

> I just listened to the recording today and I think it was shameful. She says

all the things she thinks you want to hear but at the same time offers nothing

of substance. I don't believe that she has done any experiments mapping the

brain while someone is using rife machines and the Rife machines make the brain

unhappy.

My neurologist is completely supportive of me using the rife and my lesions in

my brain were visible with the spect scan and I had seizures. (I think she

said you could not see lesions with a spect scan unless they were the size of

golfballs) Either she is wrong or I am in big trouble.

She also said that she would not recommend anyone consider a doctor that does

not have at lease 20 years experience with lyme and yet she does not have a

medical degree.

She talks and talks and yet never says anything that you can actually use.

Tamara

>

>

> Hi,

>

> The following are my thoughts on Helene's seminar. My thoughts only. I

believe we were right to not have sellers - not to bring a bad subject back,.

>

> anyhoot. These are the things that bother me:

>

> H recommends CoQ10 and Inisitol. I have heard absolutely not on the CoQ10

from many sources. I have heard ambivalent things about Inisitol.

>

> To be fair: I did not get to ask these questions:

>

> Does she give a sliding fee scale?

>

> She mentioned that lyme has been around for thousands of years. I guess I was

under the assumption it started on an island off of Lyme CT - that whole story.

And spread from there.

>

> She talked only about brain injuries. Many lymies such as myself have had

other injuries (my tailbone and wrist) and how does that translate to the brain

and how brain mapping would help me.

>

> She said that Rife machines were making people worse and that there was only

one frx (number?) that helped when she experimented on a patient. When asked if

it was a rife or a coil she said that there are so many machines she was not

even sure which it was.

>

>

> She did talk about using multi protocols which was ok with me.

>

> When asked about her background - education, she kind of skipped around that

issue again. A little bit of information - If I am going to put a ton of money

into a protocol or treatment - I want to know exactly what the credentials are.

Especially something like this.

>

> In my mind, she mostly talked about juvenile lesions on the brain. That does

not really address those of us that are above the age of 18. or like me

waaaaayyyyyy old! She talked about Brain damage almost more than lyme - and

how they can see these lesions and the strides they are making to help people

that might not have been helped before. In my estimation - not too much how

that related to lyme.

>

> Anyway, I learned some things - but overall was somewhat disappointed with the

forum and think it was mainly used as a tool to sell.

>

> Of course it could have been the way it had to come off with little time -

but........

>

> Anyway, just my impression on that one. I do appreciate the time and effort

that went into this though - I have done this before and it is time consuming

and stressful. Thank you Cheryl and Thane.

>

> MJ

>

> I hope no one gets mad at me for this.

>

[Guest guest]

I did not listen to Helena, so what I am about to say is in general only...

I've been on these groups for over 4 years and I have seen many things posted

that sounded so good and would help with Lyme, many have tried them without

success... Some of these things I felt were being pitched by sellers, some by

Lymies with a lot of hope who had recently been pitched....

Lyme can easily be a money pit of useless supps and things, I feel it is best to

listen carefully to others and invest in only what really sounds likely to help

with Lyme... I personally was pitched 3 machines by 3 different people when I

arrived on these groups, I didn't buy, later found they were useless for Lyme...

Always best to gain a good perspective about something before you give up your

money... To me, designer Lyme treatments and those that pitch them are things I

stay away from... AND, if someone is trying to SELL me something, I am not

interested... I listen to my fellow group members who have no financial interest

in what they are discussing, as to good Lyme products to use... If something is

really good for Lyme, someone here will post it, others will research it and it

will be discussed by many and then we should have a good perspective as to

whether is is worth our consideration or not...

Best,

Jim

> >

> > I just listened to the recording today and I think it was shameful. She

says all the things she thinks you want to hear but at the same time offers

nothing of substance. I don't believe that she has done any experiments

mapping the brain while someone is using rife machines and the Rife machines

make the brain unhappy.

>

> My neurologist is completely supportive of me using the rife and my lesions in

my brain were visible with the spect scan and I had seizures. (I think she

said you could not see lesions with a spect scan unless they were the size of

golfballs) Either she is wrong or I am in big trouble.

>

> She also said that she would not recommend anyone consider a doctor that does

not have at lease 20 years experience with lyme and yet she does not have a

medical degree.

>

> She talks and talks and yet never says anything that you can actually use.

>

> Tamara

>

> >

> >

> > Hi,

> >

> > The following are my thoughts on Helene's seminar. My thoughts only. I

believe we were right to not have sellers - not to bring a bad subject back,.

> >

> > anyhoot. These are the things that bother me:

> >

> > H recommends CoQ10 and Inisitol. I have heard absolutely not on the CoQ10

from many sources. I have heard ambivalent things about Inisitol.

> >

> > To be fair: I did not get to ask these questions:

> >

> > Does she give a sliding fee scale?

> >

> > She mentioned that lyme has been around for thousands of years. I guess I

was under the assumption it started on an island off of Lyme CT - that whole

story. And spread from there.

> >

> > She talked only about brain injuries. Many lymies such as myself have had

other injuries (my tailbone and wrist) and how does that translate to the brain

and how brain mapping would help me.

> >

> > She said that Rife machines were making people worse and that there was only

one frx (number?) that helped when she experimented on a patient. When asked if

it was a rife or a coil she said that there are so many machines she was not

even sure which it was.

> >

> >

> > She did talk about using multi protocols which was ok with me.

> >

> > When asked about her background - education, she kind of skipped around that

issue again. A little bit of information - If I am going to put a ton of money

into a protocol or treatment - I want to know exactly what the credentials are.

Especially something like this.

> >

> > In my mind, she mostly talked about juvenile lesions on the brain. That

does not really address those of us that are above the age of 18. or like me

waaaaayyyyyy old! She talked about Brain damage almost more than lyme - and

how they can see these lesions and the strides they are making to help people

that might not have been helped before. In my estimation - not too much how

that related to lyme.

> >

> > Anyway, I learned some things - but overall was somewhat disappointed with

the forum and think it was mainly used as a tool to sell.

> >

> > Of course it could have been the way it had to come off with little time -

but........

> >

> > Anyway, just my impression on that one. I do appreciate the time and effort

that went into this though - I have done this before and it is time consuming

and stressful. Thank you Cheryl and Thane.

> >

> > MJ

> >

> > I hope no one gets mad at me for this.

> >

>

[Guest guest]

My neurologist is completely supportive of me using the rife and my

lesions in my brain were visible with the spect scan and I had

seizures. (I think she said you could not see lesions with a spect scan

unless they were the size of golfballs) Either she is wrong or I am in

big trouble.

She also said that she would not recommend anyone consider a doctor

that does not have at lease 20 years experience with lyme and yet she

does not have a medical degree.

Tamara,

Agreed wholeheartedly. Can't help it but it seems like a huge scam for money.

MJ

[Guest guest]

Jim,I consider your advice based on experience and wisdom, not just because that's the path I've chosen!  I have spent my time on these posts reading, researching, asking and waiting. I've tried some things and realize that what may be a healing protocol for one is not for another yet there is a common thread over time of the success of the protocol.

I'm grateful to the pioneers who've had the money, tried something and shared it's use and benefits. Jim, you're sharing your experience mag oil, I'm still reading about your process and others.

Truly, I'm looking to glean from others. What is shared is honest and practical.Thank you all,Be well

 

I did not listen to Helena, so what I am about to say is in general only...

I've been on these groups for over 4 years and I have seen many things posted that sounded so good and would help with Lyme, many have tried them without success... Some of these things I felt were being pitched by sellers, some by Lymies with a lot of hope who had recently been pitched....

Lyme can easily be a money pit of useless supps and things, I feel it is best to listen carefully to others and invest in only what really sounds likely to help with Lyme... I personally was pitched 3 machines by 3 different people when I arrived on these groups, I didn't buy, later found they were useless for Lyme...

Always best to gain a good perspective about something before you give up your money... To me, designer Lyme treatments and those that pitch them are things I stay away from... AND, if someone is trying to SELL me something, I am not interested... I listen to my fellow group members who have no financial interest in what they are discussing, as to good Lyme products to use... If something is really good for Lyme, someone here will post it, others will research it and it will be discussed by many and then we should have a good perspective as to whether is is worth our consideration or not...

Best,

Jim

> >

> > I just listened to the recording today and I think it was shameful. She says all the things she thinks you want to hear but at the same time offers nothing of substance. I don't believe that she has done any experiments mapping the brain while someone is using rife machines and the Rife machines make the brain unhappy.

>

> My neurologist is completely supportive of me using the rife and my lesions in my brain were visible with the spect scan and I had seizures. (I think she said you could not see lesions with a spect scan unless they were the size of golfballs) Either she is wrong or I am in big trouble.

>

> She also said that she would not recommend anyone consider a doctor that does not have at lease 20 years experience with lyme and yet she does not have a medical degree.

>

> She talks and talks and yet never says anything that you can actually use.

>

> Tamara

>

> >

> >

> > Hi,

> >

> > The following are my thoughts on Helene's seminar. My thoughts only. I believe we were right to not have sellers - not to bring a bad subject back,.

> >

> > anyhoot. These are the things that bother me:

> >

> > H recommends CoQ10 and Inisitol. I have heard absolutely not on the CoQ10 from many sources. I have heard ambivalent things about Inisitol.

> >

> > To be fair: I did not get to ask these questions:

> >

> > Does she give a sliding fee scale?

> >

> > She mentioned that lyme has been around for thousands of years. I guess I was under the assumption it started on an island off of Lyme CT - that whole story. And spread from there.

> >

> > She talked only about brain injuries. Many lymies such as myself have had other injuries (my tailbone and wrist) and how does that translate to the brain and how brain mapping would help me.

> >

> > She said that Rife machines were making people worse and that there was only one frx (number?) that helped when she experimented on a patient. When asked if it was a rife or a coil she said that there are so many machines she was not even sure which it was.

> >

> >

> > She did talk about using multi protocols which was ok with me.

> >

> > When asked about her background - education, she kind of skipped around that issue again. A little bit of information - If I am going to put a ton of money into a protocol or treatment - I want to know exactly what the credentials are. Especially something like this.

> >

> > In my mind, she mostly talked about juvenile lesions on the brain. That does not really address those of us that are above the age of 18. or like me waaaaayyyyyy old! She talked about Brain damage almost more than lyme - and how they can see these lesions and the strides they are making to help people that might not have been helped before. In my estimation - not too much how that related to lyme.

> >

> > Anyway, I learned some things - but overall was somewhat disappointed with the forum and think it was mainly used as a tool to sell.

> >

> > Of course it could have been the way it had to come off with little time - but........

> >

> > Anyway, just my impression on that one. I do appreciate the time and effort that went into this though - I have done this before and it is time consuming and stressful. Thank you Cheryl and Thane.

> >

> > MJ

> >

> > I hope no one gets mad at me for this.

> >

>