Re: Welcome Another New Family!

[Guest guest]

Hi All,

My name is , and I live in Athens, OH. We have an 8 year old

daughter with MDS, diagnosed shortly after her birth, as well as a

typically-developing 3 year old daughter. Lizzie is in 2nd grade,

and is doing really well, learning to read and write and do basic

math. Besides the typical DS cognitive issues, her primary deficit

is in speech, so she gets additional outside speech therapy. We live

in a college town, but we're in Appalachia, so therapists and

resources are quite limited, eg, the nearest OT is an hour away.

Fortunately we don't need OT anymore, but lots of my friends' kids

do.

I also wanted to reiterate what someone (Ron?) had said in an earlier

post about Medicaid waiting lists. In our part of Ohio, county

Medicaid waiver waiting lists are _10_ years. No, I'm not kidding.

We have a very limited number, and lots of poor folks (and more every

day). So, don't delay on looking into what programs are available in

your state, and find out how soon you need to get on any lists.

>

> Hi Everyone

> We have another new family joining us today! Here is what they had

to say...

>

> 8 year old daughter with MDS. Also am officer in local Arc chapter

with

> Yahoo group, so this group will be a source of information for the

> other.

>

> Welcome to our family! I am so glad you have joined us! Please tell

us all about you and your daughter! Where do you live? We may have

other families in your area. Please feel free to ask any questions

and jump right in with our discussions! I look forward to getting to

know you and your family!

>

> Kristy

> Mom to Arron 27, 23, Tim 22 MDS, Stevan 21 and Garrett 12

>

> Kristy Colvin

> IMDSA President

> ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

> International Mosaic Down Syndrome Association

> PH:

> Toll Free: 1-888-MDS-LINK

> http://www.imdsa.org

> http://www.mosaicmoments.today.com

> SAVE THE DATE! JULY 10-12 Cincinnati, Ohio, USA

> BUILDING BRIDGES FOR DOWN SYNDROME

> RESEARCH & AWARENESS CONFERENCE

>

>