Question

[Guest guest]

Ask him how his bowels are doing. He could have symptoms of Inflammatory Bowel

Disease.

http://ibdcrohns.about.com/od/relatedconditions/a/apthousstomatit.htm

This is a long shot, but it would tie the symptoms together.

One of our child members was found to have crohn's Disease, a type of

Inflammatory Bowel Disease, and her symptoms were short stature and rectal

bleeding [which she hid from her mother].

Good luck!

Love,

idio. EN '68 in remission now.

>

> My son has seemed to be EN free for awhile now - but lately he has been

complaining of stomach aches almost daily and has also been getting blisters in

his mouth??? He always has bruises on his legs but I've thought that was just

b/c he is a 6 year old boy...now I wonder if it is related to EN???

>

[Guest guest]

What kind of blisters does he have in his mouth? I get small, very hard, clear ones within a half hour of eating foods to which I am sensitive. I also get white, painful ones sometimes. Food sensitivities, and allergies in general, often go along with the bowel issues. It has been life changing for me since I stopped eating gluten and dairy. And I had a blood test (NOT a skin test) to determine other food sensitivities that I would never have figured out on my own (like lettuce). It is wonderful to have conscious awareness of this stuff and be able to avoid the food triggers.Hope it is something much more temporary that will go away quickly.Tinapg 2004Subject: QuestionTo: erythema_nodosum_Group Date: Wednesday, May 27, 2009, 11:01 PM

My son has seemed to be EN free for awhile now - but lately he has been complaining of stomach aches almost daily and has also been getting blisters in his mouth??? He always has bruises on his legs but I've thought that was just b/c he is a 6 year old boy...now I wonder if it is related to EN???

[Guest guest]

I have a quick and kind of strange question.  I have not been dx with EDS in any

form, but I have noticed most of my life (looking back) I have had

scratches/scabs all of the time.  Now if I pop a pimple it can turn into a big

scab in no time flat.  Now it does not help that I itch them, but they will be

come a huge wound.  Does this sound familiar to anyone?

Thanks!

in Texas

[Guest guest]

Yes when I has an outbreak it was always on my shins and calves. ML GemmillSent via BlackBerry from T-MobileDate: Mon, 14 Jun 2010 18:45:20 +0200 (Mitteleuropäische Sommerzeit)To: <erythema_nodosum_Group >Subject: Question Hi there,I have a short question. Did anyone here ever have an EN at the calf? I heard this is unusual and so far I also never had it there in the past but now I do have it at my left calf. So I´m a little confused and worry if I´m wrong and it is something else. But well, I´m pretty sure it is EN. Thanks for reading this here.Take care,

[Guest guest]

Not on my calfs.....But the first time they where on my hands. The docter told me it was not possible, but the biopt showed it was EN.G.RSent from my iPod

Yes when I has an outbreak it was always on my shins and calves. ML GemmillSent via BlackBerry from T-MobileFrom: "andrea" <strecheaol>

Date: Mon, 14 Jun 2010 18:45:20 +0200 (Mitteleuropäische Sommerzeit)To: <erythema_nodosum_Group >Subject: Question

Hi there,I have a short question. Did anyone here ever have an EN at the calf? I heard this is unusual and so far I also never had it there in the past but now I do have it at my left calf. So I´m a little confused and worry if I´m wrong and it is something else. But well, I´m pretty sure it is EN.

Thanks for reading this here.

Take care,

[Guest guest]

,

 

I have had EN on both of my calfs many times. I have had nodules on every part of my legs. Also had some on my arms, stomach, breast, and even on my bottom.

 

Debbie

2010/6/14 andrea

 

Hi there,I have a short question. Did anyone here ever have an EN at the calf? I heard this is unusual and so far I also never had it there in the past but now I do have it at my left calf. So I´m a little confused and worry if I´m wrong and it is something else. But well, I´m pretty sure it is EN.

 

Thanks for reading this here.

Take care,

[Guest guest]

Yes, I get it on both shins and calves.

Subject: QuestionTo: erythema_nodosum_Group Date: Monday, June 14, 2010, 4:45 PM

Hi there,I have a short question. Did anyone here ever have an EN at the calf? I heard this is unusual and so far I also never had it there in the past but now I do have it at my left calf. So I´m a little confused and worry if I´m wrong and it is something else. But well, I´m pretty sure it is EN.

Thanks for reading this here.

Take care,

[Guest guest]

Thank you so much BJ!!! I knew you could help me straighten this out in my head...as it really had me worried! What you said makes sense....I too was thinking, but most hypothyroid patients ARE hashis!!

I too swelled like crazy on synthroid....but am starting to swell again on the NDT....not sure what is going on in my body.

Anyway...thanks

To: Thyroiditis From: beckyjov@...Date: Tue, 15 Mar 2011 00:04:18 +0000Subject: Re: Question

Hi,First, this does NOT appear to be scientific research it is merely ONE comment by one naturopathic doctor. One such comment is clearly opinion not fact and should NOT cause so much panic. This ND sounds like an ND I once visited, she also used the same bias against NDT. The antibodies are NOT the cause nor are they the problem because TPO/TGabs are only formed after thyroid cells have already been damaged by Killer T-cells, the watchdogs and immediate immune responders. What she should say is that any thyroid med has the potential to cause an AI response (especially in susceptible patients). I got a horrible AI response from Synthroid and other T4-only drugs. Pardon the pun; I swelled up like a stuffed pig on Synthroid, Levoxyl, Levothroid etc. I was so sick I almost died. My hubby saved my life by flushing the pills down the toilet and taking me to the ER. Luckily, NDT works for me, it saved me.This paragraph in the article seems contradictory as she says NDT is a option but then says it should not be used by Hashis. Well, this may be a surprise to her but around 99% of hypothyroid patients do, in fact, have Hashis.My thyroid is happy, OINK! OINK!~Bj> > > Upon researching...I found this:> > > > (read the last sentence...it makes me nervous to take my natural thyroid medication now...)> > > > > > Another option is natural thyroid medication made from desiccated pig glands and marketed under the brand names of Armour Thyroid™, Nature-Throid™, Westhroid™, and others. These medications contain both T4 and T3 and many patients respond very well to them. The dosage is easy to adjust as patients report their symptomology once they've begun treatment, and this medication has been an excellent help for millions of thyroid disease patients. One disadvantage to this medication is that the ratio of T3 to T4 is fixed–it isn't possible to "tweak" one or the other to achieve an optimal balance for the patient. All of these brands are essentially the same, with the exception of the fillers or the binders used in their manufacture. With some patients I do avoid using animal thyroid if the patient has autoimmune diseases such as Hashimoto's or rheumatoid arthritis because it can add to the inflammatory process if the patient's antibodies react to the animal thyroid.> > > > http://www.drmarcantel.com/thyroid-medications/> > > > > > > > > >>

[Guest guest]

Hi ,

I think swelling has a lot to do with the diet. I get swelling (and headaches)

when I eat hidden gluten. Usually it is in my hands and feet, sometimes my

ankles and knees. There is a lot of *hidden* gluten in everyday products and

dine-out foods.

Swelling can occur from a low intake of water and eating foods with lots of

processed salt. Alcohol and caffeine will exacerbate swelling, also, allergies

and various medications (blood pressure, steroids and antidepressants) can cause

swelling.

I feel a bit swelling when I skip high fiber foods, too. I also seem to swell a

bit if I miss a dose of my NDT. How long has it been since your T labs were

last run? You may need an increase in the dosage.

Warm wishes,

~Bj

> >

> > > Upon researching...I found this:

> > >

> > > (read the last sentence...it makes me nervous to take my natural thyroid

medication now...)

> > >

> > >

> > > Another option is natural thyroid medication made from desiccated pig

glands and marketed under the brand names of Armour Thyroid™, Nature-Throid™,

Westhroid™, and others. These medications contain both T4 and T3 and many

patients respond very well to them. The dosage is easy to adjust as patients

report their symptomology once they've begun treatment, and this medication has

been an excellent help for millions of thyroid disease patients. One

disadvantage to this medication is that the ratio of T3 to T4 is fixed–it isn't

possible to " tweak " one or the other to achieve an optimal balance for the

patient. All of these brands are essentially the same, with the exception of the

fillers or the binders used in their manufacture. With some patients I do avoid

using animal thyroid if the patient has autoimmune diseases such as Hashimoto's

or rheumatoid arthritis because it can add to the inflammatory process if the

patient's antibodies react to the animal thyroid.

> > >

> > > http://www.drmarcantel.com/thyroid-medications/

> > >

> > >

> > >

> > >

> > >

> >

>

[Guest guest]

BJ,

While my feet and hands are a little problematic...it's my FACE! It's HUGE! All the wrinkles are stretched out so you can't even see them! I had wrinkles there a few weeks ago! It's all been recent with no diet change. My labs are tested every 2 months...and my dosage is changed every 2 months! My T4 will be too low and my TSH too high and so they up my dose....next time the TSH is too low...so they lower my dose....next time too high....back and forth and we can't seem to find that PERFECT dose. A few months ago, my doctor moved to a VA hospital and doesn't take patients anymore- he was great- he is the only doctor that actually tested my pituitary...my DHEA...and other stuff....well, so now I go to the other doctor in this office .... and I don't think I like him.....he's not as concerned....so looks like I'm back to square one. I'm just so sick of this....and my son has had 3 surgeries in the last few months for kidney stones to remove them at a Children's Hospital...so I've been so focussed on his health that mine is just taking a backseat. But this swelling is ridiculas! My head looks like a ballooon!

Anyway...thanks BJ!

To: Thyroiditis From: beckyjov@...Date: Tue, 15 Mar 2011 23:40:52 +0000Subject: Re: Question

Hi ,I think swelling has a lot to do with the diet. I get swelling (and headaches) when I eat hidden gluten. Usually it is in my hands and feet, sometimes my ankles and knees. There is a lot of *hidden* gluten in everyday products and dine-out foods. Swelling can occur from a low intake of water and eating foods with lots of processed salt. Alcohol and caffeine will exacerbate swelling, also, allergies and various medications (blood pressure, steroids and antidepressants) can cause swelling. I feel a bit swelling when I skip high fiber foods, too. I also seem to swell a bit if I miss a dose of my NDT. How long has it been since your T labs were last run? You may need an increase in the dosage.Warm wishes,~Bj> > > > > Upon researching...I found this:> > > > > > (read the last sentence...it makes me nervous to take my natural thyroid medication now...)> > > > > > > > > Another option is natural thyroid medication made from desiccated pig glands and marketed under the brand names of Armour Thyroid™, Nature-Throid™, Westhroid™, and others. These medications contain both T4 and T3 and many patients respond very well to them. The dosage is easy to adjust as patients report their symptomology once they've begun treatment, and this medication has been an excellent help for millions of thyroid disease patients. One disadvantage to this medication is that the ratio of T3 to T4 is fixed–it isn't possible to "tweak" one or the other to achieve an optimal balance for the patient. All of these brands are essentially the same, with the exception of the fillers or the binders used in their manufacture. With some patients I do avoid using animal thyroid if the patient has autoimmune diseases such as Hashimoto's or rheumatoid arthritis because it can add to the inflammatory process if the patient's antibodies react to the animal thyroid.> > > > > > http://www.drmarcantel.com/thyroid-medications/> > > > > > > > > > > > > > >> >>

[Guest guest]

Im so sorry. That sounds awful. Have they checked you for sclerodema?Sent from my pager.

BJ,

While my feet and hands are a little problematic...it's my FACE! It's HUGE! All the wrinkles are stretched out so you can't even see them! I had wrinkles there a few weeks ago! It's all been recent with no diet change. My labs are tested every 2 months...and my dosage is changed every 2 months! My T4 will be too low and my TSH too high and so they up my dose....next time the TSH is too low...so they lower my dose....next time too high....back and forth and we can't seem to find that PERFECT dose. A few months ago, my doctor moved to a VA hospital and doesn't take patients anymore- he was great- he is the only doctor that actually tested my pituitary...my DHEA...and other stuff....well, so now I go to the other doctor in this office .... and I don't think I like him.....he's not as concerned....so looks like I'm back to square one. I'm just so sick of this....and my son has had 3 surgeries in the last few months for kidney stones to remove them at a Children's Hospital...so I've been so focussed on his health that mine is just taking a backseat. But this swelling is ridiculas! My head looks like a ballooon!

Anyway...thanks BJ!

To: Thyroiditis From: beckyjov@...Date: Tue, 15 Mar 2011 23:40:52 +0000Subject: Re: Question

Hi ,I think swelling has a lot to do with the diet. I get swelling (and headaches) when I eat hidden gluten. Usually it is in my hands and feet, sometimes my ankles and knees. There is a lot of *hidden* gluten in everyday products and dine-out foods. Swelling can occur from a low intake of water and eating foods with lots of processed salt. Alcohol and caffeine will exacerbate swelling, also, allergies and various medications (blood pressure, steroids and antidepressants) can cause swelling. I feel a bit swelling when I skip high fiber foods, too. I also seem to swell a bit if I miss a dose of my NDT. How long has it been since your T labs were last run? You may need an increase in the dosage.Warm wishes,~Bj> > > > > Upon researching...I found this:> > > > > > (read the last sentence...it makes me nervous to take my natural thyroid medication now...)> > > > > > > > > Another option is natural thyroid medication made from desiccated pig glands and marketed under the brand names of Armour Thyroid™, Nature-Throid™, Westhroid™, and others. These medications contain both T4 and T3 and many patients respond very well to them. The dosage is easy to adjust as patients report their symptomology once they've begun treatment, and this medication has been an excellent help for millions of thyroid disease patients. One disadvantage to this medication is that the ratio of T3 to T4 is fixed–it isn't possible to "tweak" one or the other to achieve an optimal balance for the patient. All of these brands are essentially the same, with the exception of the fillers or the binders used in their manufacture. With some patients I do avoid using animal thyroid if the patient has autoimmune diseases such as Hashimoto's or rheumatoid arthritis because it can add to the inflammatory process if the patient's antibodies react to the animal thyroid.> > > > > > http://www.drmarcantel.com/thyroid-medications/> > > > > > > > > > > > > > >> >>