Guest guest Posted November 17, 1998 Report Share Posted November 17, 1998 , Good timing. I just saw a new gyn. yesterday and she gave me a bunch of information about VV and vulvodynia and low oxilate diet and Estrace, etc., etc. The low oxilate diet is very different from the low carb. diet, from what I read so far, in that it eliminates most vegetables. I haven't read thoroughly through it, but it made me laugh because I've been preparing to go on a low carb diet, which eliminates all sugar, grains, etc., and now to eliminate most vegetables for the low oxilate diet, I think the only thing left to do is to be hooked up to an intraveneous feeding tube! Seriously, if you have a fax machine, I can fax you the information I was given by my doctor regarding the low oxilate diet. If you're interested, E-mail me and give me your fax number. The information may also be available on one of the vulvar websites, which maybe someone else will respond with. Best of luck, Janis Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 17, 1998 Report Share Posted November 17, 1998 Janis, That's funny! After looking at that list, I agree. Just give me a list of stuff that DOESN'T have oxilate (LOL). Lucy gave me the website address (thanks Lucy!) for info on the low oxilate diet. It was a list of foods that contained low, moderate, and high amts. of oxilate. If you have more info could you please fax it to me. My number is (919)962-6325 Thank you so much! On Tue, 17 Nov 1998 10:03:45 -0500 janis.sullivan@... (Janis Sullivan) wrote: > > >, >Good timing. I just saw a new gyn. yesterday and she gave me a bunch of >information about VV and vulvodynia and low oxilate diet and Estrace, etc., >etc. The low oxilate diet is very different from the low carb. diet, from >what I read so far, in that it eliminates most vegetables. I haven't read >thoroughly through it, but it made me laugh because I've been preparing to >go on a low carb diet, which eliminates all sugar, grains, etc., and now to >eliminate most vegetables for the low oxilate diet, I think the only thing >left to do is to be hooked up to an intraveneous feeding tube! > >Seriously, if you have a fax machine, I can fax you the information I was >given by my doctor regarding the low oxilate diet. If you're interested, >E-mail me and give me your fax number. The information may also be >available on one of the vulvar websites, which maybe someone else will >respond with. > >Best of luck, >Janis > > > >------------------------------------------------------------------------ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 17, 1998 Report Share Posted November 17, 1998 To All >I was wondering if you could give me some information concerning diet? I have heard several people >mention low-oxalate (spelling?) diets and also low carbohydrate diets. Are these two the same? I >have never altered my diet and would like to try. Can you please give me some suggestions? Sorry to have to do this, but me too. Any information would be gratefully received. Regards .@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 17, 1998 Report Share Posted November 17, 1998 Here's a listing online of the low oxalate foods/diet: http://www.branwen.com/rowan/oxalate.htm The VP Foundation also has a low oxalate cookbook available. (there's a link to their site at the above web address) It's probably best to be tested first for high oxalates since this diet is very difficult and not exactly optimal, nutritionally speaking. It is NOT the same as a low-carb or low-sugar diet! In fact, these two diets are incompatible. I think it's best that each woman found out exactly why she'd need to follow either of these diets (get diagnosed first!) before embarking on either one. The low oxalate diet omits most whole grains and many healthy vegetables (and no tomatoes, beans, berries, coffee or chocolate). I hope this helps some! Gail athena@... *************************** > > >To All > >>I was wondering if you could give me some information concerning diet? I >have heard several people >>mention low-oxalate (spelling?) diets and also low carbohydrate diets. Are >these two the same? I >>have never altered my diet and would like to try. Can you please give me >some suggestions? > >Sorry to have to do this, but me too. > >Any information would be gratefully received. > >Regards > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2005 Report Share Posted May 9, 2005 --- captwildchild wrote: >But as long as I am the cook he will at least eat well at home> For the most part, Juel, I can say the same thing... At least, until I make a batch of cookies! ;-) Diet is the hardest part after a while. Everything else, it seems, has become routine or something you really don't want to mess around with. With food, he can fool himself (or, maybe he doesn't) and go " wild! " His sex life is gone (at this point, not even injections would help), his life is governed by meds nearly all day, so what's left? Food. And, his tryke. His BMW modified motorcycle turned tryke... I think his motto is, he's going to go out feeling like he has lived right up to the end! . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2005 Report Share Posted May 10, 2005 , Lately I've been doing the same thing----indulging in the " wrong " kinds of foods--sweets--salty---meat---dairy---no limits, as well as enjoying my motorcycle with the same philosophy: " Nothing so far has worked, and I'm going to have as much fun as possible with what time is left " ---including sex with what I have left following RP, and excluding Hormone Therapy which is not a permanent solution anyway but which can cause permanent sexual problems even after it becomes refractory and ineffective. B Conroe TX Re: diet > --- captwildchild wrote: > >>But as long as I am the cook he will at least eat well at home> > > For the most part, Juel, I can say the same thing... At least, until I > make a batch of cookies! > ;-) > > Diet is the hardest part after a while. Everything else, it seems, has > become routine or > something you really don't want to mess around with. With food, he can > fool himself (or, maybe he > doesn't) and go " wild! " His sex life is gone (at this point, not even > injections would help), his > life is governed by meds nearly all day, so what's left? Food. And, his > tryke. His BMW modified > motorcycle turned tryke... I think his motto is, he's going to go out > feeling like he has lived > right up to the end! > > . > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 11, 2005 Report Share Posted May 11, 2005 --- RJ wrote: > , > > Lately I've been doing the same thing----indulging in the " wrong " kinds of > foods--sweets--salty---meat---dairy---no limits, as well as enjoying my > motorcycle with the same philosophy: " Nothing so far has worked, and I'm > going to have as much fun as possible with what time is left " ---including > sex with what I have left following RP, and excluding Hormone Therapy which > is not a permanent solution anyway but which can cause permanent sexual > problems even after it becomes refractory and ineffective. > > B > Conroe TX> I can understand the thinking, except that it's not me who has the cancer. Soooo, I'm left trying to convince my husband that I'd rather have him around longer rather than lesser... Hubby had non-nerve sparing surgery with an implant that he never used - he was afraid of it. It finally had to be removed 'cuz it failed causing more damage and because of all this and his incontinence he has no interest in sex. The hormone therapy seems to be working for now, so why muck it up with a bad diet?? <sigh> . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2009 Report Share Posted August 18, 2009 Hi Carol: I think you have a very unique situation. With your kidney/liver problems you pretty much have to listen to your doctors and your own intuition. For you, those are the only ³rules². Whatever works to get you healthy is what works for you. I think sometimes when we restrict our diet too much like, for example, saying I can never eat sugar again. Then we begin to white knuckle it and grit our teeth and put so much attention on NOT eating it that the food we are resisting becomes upper most in our mind. Then we have to have it and we will gorge on it. so your idea of moderation is very important and good for you figuring that out. I try to do that as well. I will let myself have something a little sweet every day but its not a snickers bar. Something that is healthy yet it satisfies me and I do not have to grit my teeth and say I will NOT eat anything sweet ever again. Or corn, or wheat or whatever the food is. Now I will say that I know from my personal experience what wheat will do to me so I have zero problems avoiding that. I do not have to grit my teeth at all to avoid wheat. I think that is my body telling me something. If I was you I would do research on the web and see what food is good for liver/kidney problems in a healthy diet and eat some of that every day. You can add years of quality living to your life with healthy food and moderate treats without smoking or alcohol and a little bit of exercise like walking every day or every second day. Walking will not make you look buff but it will keep your blood moving your bones healthy and your heart pumping along with your lungs. That is huge for our body so just walking can make us healthy too. That also is moderation. We do NOT need to do 2 hours a day 5 days a week like some magazines tell the young ones to do. LOL Have a good day. > > > > > Is there anything you CAN eat besides all the imitation stuff? I have been on > a very resticted Renal diet for over two years and have just about decided now > that my kidneys are working normal again that I want quality of life and not > quanity. What good is it if you live another 20 or 30 years if you can't enjoy > it? I have been taking 100 mgs of Lyrica a day and I also take Lasix to keep > down the swelling. I am doing pretty good on it now.I am not knocking the > remedies that I have been seeing on here, I am just saying that I am sick of > having to eat a limited varity of foods. I am not over doing it, and still > watch some of what I eat. But I am eating pretty much what I want in > moderation. > Carol > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2009 Report Share Posted August 19, 2009 So smart people give it up. Thanks. I really am not missing anything. Good to hear. Read. Re: Re: Diet > > I was in Bee's candida group, not for the diet as I don't agree with it, > but for her other health tips. When I found out that she believes smoking > does not harm your health, in fact she says that it detoxes you, I left. For > a health advocate to tell people this I thought was very irresponsible. I > asked her if she smoked but she wouldn't answer. That's her business if she > does but I couldn't figure out why else she would go to such great lengths > to defend smoking. She doesn't believe it causes any health problems at > all. Oh boy...she's in denial! > > Tammy > > In a message dated 8/18/2009 5:00:05 P.M. Central Daylight Time, > cindy_martian@ yahoo.com writes: > > I can eat eggs, meat I cook myself. I eat the fat on meats plus unsalted > butter, coconut oil. and extra virgin olive oil. I cut down on grains like > brown rice, and high starch veggies like potatoes, carrots and beats. that > leaves a lot of low carb veggies I can eat, as well as lots of butter and > organic spices in them that make them taste very good. I mostly cook my > vegetables, but will eat some raw when in a pinch for time, or on the go. I > don't eat gluten grains, or especially store bought breads which have lots of > preservatives. The foods I eat can cause healing reactions though, so you > have to do it gradually. That does not mean you are allergic to them, but you > may have to gradually increase them to avoid too much die offs of candida > at one time. Yahoo group; candidasupport also has a recipe group that I get > Ideas from. Hope that helps. > > C. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2009 Report Share Posted August 19, 2009 Yes, lucky for never starting it. you you are not missing a thing. Stay healthy. > > > > > So smart people give it up. Thanks. I really am not missing anything. Good to > hear. Read. > > > Re: Re: Diet >> > >> > I was in Bee's candida group, not for the diet as I don't agree with it, >> > but for her other health tips. When I found out that she believes smoking >> > does not harm your health, in fact she says that it detoxes you, I left. >> For >> > a health advocate to tell people this I thought was very irresponsible. I >> > asked her if she smoked but she wouldn't answer. That's her business if >> she >> > does but I couldn't figure out why else she would go to such great lengths >> > to defend smoking. She doesn't believe it causes any health problems at >> > all. Oh boy...she's in denial! >> > >> > Tammy >> > >> > In a message dated 8/18/2009 5:00:05 P.M. Central Daylight Time, >> > cindy_martian@ yahoo.com writes: >> > >> > I can eat eggs, meat I cook myself. I eat the fat on meats plus unsalted >> > butter, coconut oil. and extra virgin olive oil. I cut down on grains like >> > brown rice, and high starch veggies like potatoes, carrots and beats. that >> > leaves a lot of low carb veggies I can eat, as well as lots of butter and >> > organic spices in them that make them taste very good. I mostly cook my >> > vegetables, but will eat some raw when in a pinch for time, or on the go. I >> > don't eat gluten grains, or especially store bought breads which have lots >> of >> > preservatives. The foods I eat can cause healing reactions though, so you >> > have to do it gradually. That does not mean you are allergic to them, but >> you >> > may have to gradually increase them to avoid too much die offs of candida >> > at one time. Yahoo group; candidasupport also has a recipe group that I >> get >> > Ideas from. Hope that helps. >> > >> > C. >> > >> > Quote Link to comment Share on other sites More sharing options...
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